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2010 harris center newsletter
1. THE
Harris Center
for Education and Advocacy in Eating Disorders at
Massachusetts General Hospital
Matina S. Horner, Ph.D. Fellows
For more information, see page 10
INSIDE THIS ISSUE
Annual Update: Fall, 2010
Beauty and Health Campaign…………….…....2
Our Special Thanks……………………………..…
4
The Heart of the Center……………………….….4
Staying in Touch………………………………..…. 4
Greetings from Dr. Franko………………….…... 5
Update from Dr. Eddy …………………….…...5
…
Director of Development Named…………….…5
Seeking New Knowledge…………………….…. 6
Sharing Our Knowledge…………………….…...8
On the Advocacy Front……………………….…. 9
Training Tomorrow’s Scientists ………….…….10
…
Acknowledgments…………………………….…...11
Mission Statement
The Harris Center at MGH focuses on
education and advocacy in eating disorders.
Through interdisciplinary research, we seek
new knowledge to better understand eating
disorders, their detection, treatment and
prevention — and we strive to share that
knowledge with the community at large.
www.harriscentermgh.org
2. BEAUTY HEALTH CAMPAIGN
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Images of rail-thin fashion models are believed to play a role in the
development of disordered eating. Girls and women need healthy representations with which to identify,
and the Harris Center has called upon the American fashion industry to help make this happen.
In this section of our newsletter, you will learn about our dialogue with leaders of the fashion industry
aimed at changing female size standards from those that tout ultra-thinness to those that support health.
Highlights of the 13th Annual Public Forum:
“Oh, What a Night”
Over 700 people — students, parents, educators,
and members of the press — joined us on March
22, 2010 at Harvard Business School for our Public
Forum, “Health Matters: Weight and Wellness in
the World of Fashion.” Moderated by Dr. David Herzog,
this Forum was the 13th in our annual series of
events designed to educate our community about
eating disorders and encourage discussion.
The third speaker — Russian model Natalia Vodianova
— described how her increasing concerns about
the size and shape of her body spiraled into anorexia
in 2002 and how psychotherapy played a key role
in her recovery.
Vodianova’s courage to seek help for her eating
disorder at a time when these illnesses were not
openly discussed by the fashion industry made her
story all the more
compelling.
The program
opened with a
film illuminatAfter addressing
ing the efforts
questions from
currently under
the audience, the
way in the fashprogram closed
ion industry to
on an optimistic
promote healthy
and energetic
body images.
note. Dr. Herzog
Following this,
commended all
the spotlight fothree panelists
cused on Vogue
for the passion
Editor-in-Chief
and insight they
2010 Harris Center Public Forum — Left to right: Dr. Herzog, Natalia Vodianova, Michael Kors, Anna Wintour
Anna Wintour,
brought to our
who explained how a Health Initiative created
Forum and for their initiatives in promoting
by the Council of Fashion Designers of America
healthy body images. “The fashion industry needs
(CFDA) in 2007 is breaking the fashion industry’s
your leadership,” he emphasized.
long-standing “code of silence” surrounding the
The Forum drew enthusiastic reviews in a number
topic of underweight models. After detailing the
of publications, including The Boston Globe,
CFDA’s actions, Wintour called for an industryVogue, Women’s Wear Daily, The Harvard Crimson,
wide “celebration of all body types” and added that
and Boston magazine.
Vogue will help lead the way.
Since the Forum, the Harris Center has continued
Next, prominent American fashion designer
to collaborate with the CFDA and its President,
Michael Kors pledged to follow the CFDA Health
Diane von Furstenberg, to address beauty and
Initiative’s recommendation to stop hiring models
health.
under 16 years old. He is the first leading U.S.
designer to commit to this reform in front of a
We extend grateful appreciation to our 2010
public audience. The age requirement, which Kors Forum Advisory Committee: Maura Callahan,
feels “must be a priority,”reflects the belief that
Meghan Canal, Diana Dinescu, Joy Eber, John
body dissatisfaction among models may be partly
Grady, Nancy Harris, and Jill Karp.
due to the high percentage of girls who launch
their careers when they are too young to cope with
the competitive fashion world.
3. “ he Forum made me think
T
twice when I look in the mirror
and judge myself.”
These are just a couple of examples
of the feedback we received about
our Public Forum from high school
students who attended the event.
All of them were excited about the
initiatives undertaken by the fashion
Left to right: Michael Kors, Anna Wintour, Isabel Farrington, Holly Heffernan, Callie McLaughlin
industry to provide healthy role
models. A number of the students
“ ttending this Forum meant a lot to me since
A
reported that their favorite part of
many of my classmates are affected by eating
the evening was meeting Anna
disorders.”
Wintour, Michael Kors, and Natalia
Vodianova, who — as one young
woman reflected — “gave us some really good advice about body image and self-confidence.”
Not only did these young people learn from the Forum, they are also using their knowledge to help raise
eating disorder awareness among their peers. One student won a national leadership award based partly
on her presence at our Public Forum. Another talented member of the group wrote an article for her
school newspaper. To all the teens who attended the Forum, we send a heartfelt “thank you.”
Life’s a Runway
Each year, Harvard Business School (HBS) hosts a fashion show to benefit a selected cause. The Harris
Center was honored to be the organization HBS chose to support for its April 13, 2010 show, “Life’s a
Runway,” which took place at Mantra, a Boston restaurant, in front of an audience of over 400 people.
We are deeply grateful to HBS for producing this successful fashion event on behalf of our Center.
The Beauty of Health: Resizing the Sample Size
On February 9, 2010, Dr. David Herzog served as moderator for a panel discussion titled “The Beauty
of Health: Resizing the Sample Size.” Hosted in New York City by The Council of Fashion Designers of
America (CFDA), this event convened nearly 150 leaders of the fashion industry to address concerns
about the increasing number of unhealthy, too-thin models. Six speakers offered valuable perspective
on the size zero standard — its evolution, its adverse impact on models, its negative consequences for
many facets of the fashion industry, and — despite these effects — its persistence.
Next, members of the audience joined Dr. Herzog and the panelists in a debate about what would help
improve the well-being of models. The outcome of the discussion was the CFDA recommendation that
models must be at least 16 years of age. The event was terrific, not only because it paved the way for
future dialogue, but also because it exuded passion and energy surrounding the topic at hand.
Find out more at www.harriscentermgh.org
BEAUTY HEALTH CAMPAIGN
Forum Reaches out to High Schools
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4. the heart of the center
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Our Special Thanks
We extend profound gratitude to Maura Callahan and
Meghan Canal of Partners HealthCare for their strong
commitment to our mission and for their creativity and
tireless energy in spreading the word about our work.
In addition to the millions of
Americans who currently
suffer from eating disorders,
many others are at risk of
developing them. We are
delighted that a number of
teens are reaching out among
their peers to help prevent these
serious illnesses.
In April, Emily Kandarian, a seventhgrader, interviewed our staff and sent us her
excellent report, “How Bulimia Affects Women,”
after presenting it to her classmates. One of
Emily’s final paragraphs highlights what she
learned from her research: “It opened my eyes
to how much hard work a person with bulimia
needs to go through in order to recover; this
gave me a lot of respect for those brave
enough to seek help and get through it.”
Also remarkable is 16-year-old
Ava Moreno, who wrote a
story in which a key character
develops an eating disorder. In
preparation for this challenge,
she researched the topic of
anorexia and interviewed Dr.
David Herzog. “I wanted to make
my character realistic,” said Ava, who
has now completed her story and shared
it with her classmates. “My objective was to
understand the psyche of a person with anorexia,
to learn what goes on in her mind.”
We are grateful to Emily and Ava for their
outstanding work aimed at reducing the risk
of eating disorders. Both of these young people
are educating others about eating disorders and
about the difficulties inherent in living with and
recovering from these painful conditions.
STAYING IN TOUCH
What do you think of our Beauty and Health campaign? If you attended our
2010 Public Forum, what did you like or disike about it?
What topics or speakers would you suggest for our future Public Forums?
Have you visited our Web site lately? Was it helpful? Why or why not?
What can we do to improve the site?
Tell us what you think by emailing harriscentermgh@partners.org
5. H
arris Center Associate Director Debra L. Franko, Ph.D., is instrumental
in moving our mission forward and leads a number of key Center
activities. She coordinates the Matina Horner Fellowship Program,
works with the research assistants on grant submissions and
conference presentations, and publishes in a variety of areas,
including prevention, the role of ethnic and cultural differences,
and adolescent health.
Update from dr. eddy
Kamryn T. Eddy, Ph.D., was the Harris Center’s first postdoctoral fellow
(2007-2008). At the end of her fellowship, we invited her to continue
her research and clinical work here at the Harris Center. Now in
her second year as a Staff Psychologist at MGH and Instructor in
Psychology (Psychiatry) at Harvard Medical School, Dr. Eddy is an
accomplished researcher and a talented clinician.
harris
Dr. Franko is a licensed clinical psychologist and also a Professor in
the Department of Counseling and Applied Educational Psychology
at Northeastern University. There, she is currently investigating how
eating disorders present themselves in ethnically diverse populations.
In another grant-funded project, Dr. Franko and her colleagues have
tested an online health promotion program called Bodimojo with over
300 high school students.
t he
Greetings from Dr. Franko
Director of Development Named
Dr. David Herzog has announced the appointment of Nora Frank as
the Harris Center’s Director of Development. Working with Dr. Herzog,
Frank Soldo in the Office of Development at MGH, and other key
individuals, Nora — who joined our team in September — coordinates
and implements our comprehensive fundraising program. She is a
development professional with 20 years of experience. As Director of
Philanthropy at the Massachusetts Audubon Society, Nora played a
leadership role in a comprehensive $55 million, five-year fundraising
campaign and supervised multiple capital campaigns for land acquisition,
building projects, and endowment. She has also served as Director
of Marketing and Development at Germaine Lawrence, a nonprofit
residential treatment facility for girls.
aff
Yet, Nora is not new to the Center. In 1987, when Dr. Herzog embarked
on his landmark study to examine the long-term course and outcome
of eating disorders, Nora was among his first clinical interviewers. Her
knowledge of our longitudinal data will be invaluable in her work as our
Director of Development.
center st
In 2009, Dr. Eddy received a two-year NIMH-funded National Research
Service Award that allowed her to expand her research on the
diagnostic classification of eating disorders. She continues to examine
how accurately the current diagnostic system, which includes anorexia
nervosa, bulimia nervosa, and eating disorders not otherwise
specified (EDNOS), “fits” individuals with disordered eating.
Dr. Eddy is an upcoming leader in the field of eating disorders and it is
wonderful to have her on our team!
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6. Seeking New Knowledge
6
Newest Research Collaborations
The Harris Center was founded based on our belief that interdisciplinary research is critical to
understanding and treating eating disorders.
The following provide a taste of our current collaborations:
With investigators at Drexel University in
Philadelphia, we are studying patterns of
weight loss and regain in patients with
bulimia nervosa. During the last two
years, this research collaboration has
yielded one publication, two manuscripts
in progress, and several presentations at
conferences.
We are working with the Depression
Clinical and Research Program at MGH
to study the course of major depression
in our Longitudinal Study sample.
For over a decade, we have teamed with the
Neuroendocrine Unit at MGH to learn more
about the relationship between eating disorders
and osteoporosis. Currently, we are investigating
the effects of low-dose testosterone in women
with anorexia nervosa.
The Harris Center is collaborating
with MGH’s Adult ADHD (Attention
Deficit Hyperactivity Disorder)
Program on a study examining
symptoms of ADHD and symptoms
of bulimia nervosa in a sample of
young adults.
Research and Publications
So far this year, 14 Harris Center research articles and book chapters have been accepted for
publication. Here is a taste of this work:
Crisafulli, M.A., Thompson-Brenner, H., Franko, D.L., Eddy, K.T., Herzog, D.B. Stigmatization of
anorexia nervosa: Characteristics and response to intervention. Journal of Social and Clinical
Psychology. 2010; 29:756-770.
Eddy, K.T., Swanson, S.A., Crosby, R.D., Franko, D.L., Engel, S., Herzog, D.B. How should DSM-V
classify eating disorder not otherwise specified (EDNOS) presentations in women with lifetime
anorexia or bulimia nervosa. Psychological Medicine. 2010; 40:1735-44.
Herzog, D.B., Thomas, J.G., Kass, A.E., Eddy, K.T., Franko, D.L., Lowe, M.R. Weight suppression
predicts weight change over five years in bulimia nervosa. Psychiatry Research. 2010; 177: 330-334.
Find out more at www.harriscentermgh.org
7. The MGH Longitudinal Study:
A Study of Recovery and Outcome
Seeking
Harris Center Research Meeting
Left to right: Dr. Eddy, Stephanie Ross, Jennifer Slane, Dr. Herzog, Dr. Franko, Kara Gaughen
“ our study was the first time I had ever felt good
Y
about myself...I began to think, ‘Wow, I’m not alone.’”
For over two decades, we have followed 246
women with anorexia and bulimia who initially
sought treatment in Boston-area hospitals. This
seminal investigation maps the course and outcome of eating disorders in order to determine
what happens to patients over time. We collect
data by interviewing the women at regular intervals about their eating behaviors, their physical
and emotional health, and their functioning in
school, work, and social activities. Recently,
one of the women described what participating
in this research meant to her: “Your study was
the first time I had ever felt good about myself. I
could tell the interviewer how I really felt about
eating without fear that she would judge me or
lead me to believe that my disorder was my own
fault. I began to think, ‘Wow, I’m not alone.’”
New Kn
“What will I be like in 5, 10, or 20 years?” This is a
question asked by many eating disorder patients
and families, and our central research project
attempts to answer it.
Our Longitudinal Study has generated over 40
published articles about eating disorders, covering
topics such as recovery and relapse, pregnancy,
medical complications, and coexisting mental
illnesses. With proper funding, the Harris Center
will continue this groundbreaking and important
work by documenting how these women are
doing 25 years after the start of the study.
New England Research Collaborative
owledge
Established in 2006, the New England Research Collaborative is a dynamic partnership between the Harris
Center and the Neuroendocrine Unit at MGH. Twice a year, the Collaborative brings together scientists,
clinicians, and educators to discuss advances in eating disorder research and possible applications to
treatment. The April 9, 2010 Forum featured “Psychopharmacology of AN and BN” and “Depression in Eating
Disorders.” The October 12, 2009 meeting included “Association between ADHD and Bulimia Nervosa,”
“Neuroimaging in Anorexia Nervosa: Research Update,” and “Female Athlete Triad: Research Update.”
Most of these PowerPoint presentations are available for viewing on our Web site: “About Us – Symposia.”
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8. sharing our Knowledge
8
Educators’ Program in Washington, D.C.
Early in 2010, a family requested our help developing clinical services in Washington, D.C. With this
family’s backing, the Harris Center held a program on October 14, 2010 titled “Eating Disorders: What
School Professionals and Parents Need to Know.” At the meeting, administrators, health educators,
guidance counselors, athletic coaches, teachers, and parents learned how to recognize high-risk
attitudes and behaviors, and what steps to take, so that students with eating disorders can begin the
process of recovery at the earliest detection of symptoms.
Dr. Herzog Speaks in Manchester-by-the-Sea
On October 20, 2010, we hosted a dinner at the Essex County Club in Manchester, Massachusetts to
raise awareness of eating disorders. Among our 150 guests were long-time Harris Center supporters
as well as many new friends. Speakers included David Herzog, M.D. and world champion triathlete
Ellen Hart Peña. We gratefully acknowledge the co-chairs of this event – Stori Cadigan and Cindy Stowell
– for their time, talent, and dedication.
Presentations and Conferences
We present our research findings at conferences all over the world.
Here are a few of our 2010 presentations:
October 7th — 9th, 2010
Eating Disorders Research Society Annual Meeting, Cambridge, MA
Accepted as poster presentation: Kamryn T. Eddy, Ph.D, “Latent structure of DSM-IV-TR Eating
Disorders: A comparison of the latent structure of the EDE and EDE-Q using latent class analysis.”
July 17th — 20th, 2010
New Zealand Psychological Society Annual Conference, Rotorua, New Zealand
Debra L. Franko, Ph.D., “Internet-based tools for decreasing eating disorder risk in adolescents.”
July 11th — 16th, 2010
Symposium for International Congress of Applied Psychology, Melbourne, Australia
Prevention and Early Intervention of Body Image Concerns and Eating Disorders across the Lifespan
Debra L. Franko, Ph.D., “Decreasing risk factors for eating disorders.”
June 10th — 12th, 2010
International Conference on Eating Disorders, Salzburg, Austria
Debra L. Franko, Ph.D., “Using health 2.0 technology to promote healthy nutrition, physical activity,
and positive body image in adolescents.”
April 20th — 21st, 2010
Grand Rounds, Weill Cornell Medical College, Cornell University, NY
Payne Whitney Manhattan and Westchester campuses
David B. Herzog, M.D., “Do women with anorexia nervosa and bulimia nervosa ever get well?”
9. In 2000, the Harris Center founded the Eating
Disorders Coalition for Research, Policy
Action (EDC) in Washington, D.C. The EDC is a
group of professional organizations committed
to raising national awareness of eating disorders
and to improving access to care, parity, and
research. During its first decade, the EDC has
grown its membership significantly, played
a key role in the passing of improved mental
health parity legislation, and launched the
FREED Act (Federal Response to Eliminate
Eating Disorders), comprehensive legislation
addressing eating disorder research, treatment,
and prevention. We hope you will stand strong with
us and with the EDC in support of FREED, which
was introduced to the Senate on April 27, 2010.
For further information, please visit
eatingdisorderscoalition.org
Eating disorders Legislation in Massachusetts
Representative Kay Khan
For several years, the Harris Center has served as a consultant to
Massachusetts Representative Kay Khan as she has sponsored
key legislation on behalf of individuals with eating disorders.
Rep. Khan’s bill, H. 936, provides comprehensive treatment for
eating disorders and has progressed to the Division of Health Care
Finance and Policy. Also exciting is “An Act Relative to School
Nutrition,” which requires healthier foods in schools and includes
an amendment authored by Rep. Khan calling for public school
nurses to be educated about early identification of students with
eating disorders and appropriate interventions. The future of the
Act is pending a joint decision by the House and Senate.
The Center in the Media
The Center has taken a leadership role in working with the media to raise awareness of eating disorders.
Please see page two of this newsletter for media coverage of our 2010 Forum.
Here are additional highlights from this past year:
Dr. Herzog contributed to a June 17, 2010 ABC News
report about the dangers of pro-anorexia Web sites.
In June, 2010, a reporter from The Chicago Tribune
interviewed Dr. Herzog for an upcoming story about
residential treatment programs for eating disorders.
Find out more at www.harriscentermgh.org
Dr. Herzog authored “Are Male Fashions Increasing
Eating Disorders in Men?” for the Child Mind
Institute’s Web site.
Dr. Herzog’s professional work is briefly described in
Let’s Take the Long Way Home, published in 2010 by
Random House. In this book, Pulitzer Prize-winning
author Gail Caldwell explores her relationship with
the late Caroline Knapp, a beloved member of the
Harris Center family.
ON THE ADVOCACY FRO NT
Eating disorders Coalition:
Celebrating a Decade of Progress
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10. training tomorrow’s scientists
Update from Andrea Kass
Andrea Kass excelled in her work as a Harris Center research
assistant between 2007 and 2009, and then became a graduate
student in the doctoral program of clinical psychology at
Washington University in St. Louis. Andrea received an NIMH
Early Career Investigator Travel Fellowship from the Academy
for Eating Disorders, which enabled her to present at the 2010
International Conference on Eating Disorders in Salzburg, Austria.
Congratulations, Andrea!
Matina S. Horner, Ph.D. Fellowship
Each year, we award Matina S. Horner, Ph.D. Fellowships to
promising graduate and undergraduate students, with the goal
of preparing them for careers in the field of eating disorders.
During their summers at the Center, our fellows are mentored
as they conduct independent research projects and participate
in our current research activities.
In 2010, we sponsored four outstanding fellows. Dan Donoho is
a first-year student at Stony Brook University School of Medicine;
as a Matina Horner fellow, he worked with the Neuroendocrine
Unit on a study of the neurobiology of appetite regulation in
anorexia nervosa. Two of our 2010 fellows attend Boston University
(BU): Kara Gaughen, a first-year graduate student in clinical
social work, devoted her fellowship to reviewing the literature on Matina S. Horner, Ph.D.
eating disorders in male athletes; and Lauren Richards, now in
her third year as a doctoral student in the BU Eating Disorders Program, spent her summer
developing a new tool for the assessment of binge eating. Jennifer Slane is a fifth-year graduate
student in clinical psychology at Michigan State University. For her fellowship project, she worked
on her dissertation, which examines genetic and environmental influences on associations between
bulimia nervosa and alcohol-use disorders.
As we enjoy the Matina S. Horner program’s 14th consecutive summer, we are delighted to have
mentored 40 fellows. Many of them — including Michele Crisafulli, Maria Frisch, Lareina La Flair,
and Maria-Christina Stewart — have continued their independent projects after their fellowships
ended, resulting in theses or published papers. A paper written by Kyle De Young and Jason Lavender during their fellowships was recently accepted for publication by the International Journal
of Eating Disorders. A number of our trainees have achieved academic positions in universities
across the nation. Bryn Austin, one of our first Matina Horner fellows, plays an important role in
the Academy for Eating Disorders and serves as Director of Fellowship Research Training in the
Division of Adolescent and Young Adult Medicine at Children’s Hospital in Boston.
It is our pleasure to feature photos of our fellows on the cover of this newsletter. We hope that you share
our pride in our fellows’ accomplishments and know how much we value the work they are doing.
“ y summer at the Harris Center provided me with the time and
M
guidance to establish a strong foundation for my dissertation research.
Dr. Franko and Dr. Herzog were incredibly helpful supervisors and I’m
grateful that I had the opportunity to work with them.”
- Loren Gianini, Fellow
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11. to
To protect the privacy of our donors, we have removed
their names from our online version of this newsletter.
all
our
do nors: t hank
you !
11
12. We welcome your comments
and suggestions!
For further details on information covered in this newsletter,
please contact us at:
Harris Center for Education and Advocacy in Eating Disorders
Massachusetts General Hospital
2 Longfellow Place, Suite 200
Boston, MA 02114
617-726-8470
www.harriscentermgh.org
E-mail: harriscentermgh@partners.org
HARRIS CENTER AT MGH STAFF
David B. Herzog, M.D.
Director
Debra L. Franko, Ph.D.
Associate Director
Kamryn T. Eddy, Ph.D. Staff Psychologist
Aparna Keshaviah, Sc.M.
Biostatistician
Heather Thompson-Brenner, Ph.D. Research Consultant
Nora Frank, M.B.A.
Director of Development
Molly Davis, B.A. Research Assistant
Stephanie Ross, B.A. Research Assistant
Patricia Cable, R.N.
Publications Director
Photo Credits
Pages 2 and 3: by Roger Farrington.
Page 4: Parc Dendrologic – Arcalia by bortescristian.
Page 5: Nora Frank by Kathleen Krueger.
Page 7: New England Research Collaborative by
Ivan Walsh.
Page 9: Kay Khan: used with permission, Kay Khan
Back cover: “Dimphy” by FaceMe PLS; Mother and
Daughter by viralbus; Teens Tweens Party by
Franklin Park Library
Cover collage and Page 7 graphic: Nicole Ricciardi