Family Participatory Care is an approach for improving quality of care of newborns admitted in SNCU by involving the parents in care of the baby.

1. Family Centered Care/
Family Participatory Cate
For Improving Newborn Health

2. 2
Presentation Format
Why FPC?
What Is FPC?
Components of FPC
Learning Principles & session plan

3. FCC is not another training or
program !!
It is
a PHILOSOPHY for evidence based
management !
An approach for improving quality of care!!
3

4. Rationale for Family Centred Care (Why)
Parents of preterm and sick infants experience high stress levels and feelings of
helplessness.
Human resource constraint in health facility setting is closely linked to
overburdening of staff, low compliance with aseptic routines resulting in
compromise of quality neonatal care.
Continuity of care is very important for families, particularly at times of crisis,
during transitional care (from health facility to home), and at discharge when the
parents are assuming full responsibility for their baby’s care for the first time.
Once the baby reaches home, the quality of long term care provided can make a
difference to the overall growth and development of the baby.

5. Family Participatory Care (FPC)
• Family Participatory Care (FPC) is a low
cost simple innovative approach for
improving quality of care delivered to
hospitalized sick & small neonates.
• FPC promotes partnership between health
providers and families. Families are
welcomed as partners in caregiving and
decision making.

6. What is Family Participatory Care?
• Family- Participatory care in paediatrics is based on the
understanding that family is the child’s primary source of strength and
support and that family’s perspective is important in decision making
and long term care.
• FPC provides a setting in which family is empowered, encouraged
and supported as the constant care provider, in addition to available
nursing staff, to complement the care of sick their newborn in the
nursery, from admission to discharge.

7. 7
Environment
•Noise
•Light
•Smell
•Taste
•Touch
•Handling
•Positioning
•Pain Management
Handling and
positioning
practices
Recognize
and respond
to the
behavioural
“CUES”
Care Giving
Practices
•Hand Washing
•Breast
Feeding
•KMC
SNCU Environment
FPC enables evidence based Service Provision

8. Benefits of Family Centred Care
NEWBORN FAMILY STAFF
• ↓ length of stay
• ↓ Nosocomial infection
• ↑ Breast feeding
• ↑ Weight gain
• Better continuum of
care
• Fewer re-
hospitalisation
• Improved long-term
outcomes
• More informed parents
• Better coping with the
stress, fear and altered
parenting roles.
• More comfort level &
parenting confidence
• Greater family
satisfaction with the
health care experience.
• Enhanced bonding with
baby
• Ease the transition
from hospital to home
• Work sharing
• Better quality of care
• Increased staff
satisfaction
• Better job performance
• Positive impact on
stress levels
• Better allocation of
resources

9. Improving Health
Systems
Attitude of Health Providers
 Availability of Logistics
 Organization of work at health
facilities
 Quality improvement and
supervision at health facilities
Record Keeping
SNCU/NICU Environment
Improving Parenting practices
• Appropriate Care seeking
• Optimal Feeding
• Infection Prevention
• Mother Baby Bonding
• Warmth
Improving health
Providers skills
• FCC standards & guidelines
• Training of facility-based
public health care providers
• FCC roles for private
providers
• Maintaining competence
among trained health
providers
FCC components

10. • Learning by doing
• Gradually incremental learning
• Group Discussions
• Video, Demonstrations and role plays add variety to the learning
FCC Learning Principle

11. FCC in practise
Identifying primary caregivers (has to be individualised)
Counselling parents-attendants at time of admission & discharge
Willingness & flexibility of participation of parents-attendants
Induction session before entry into nursery
Scheduling of sessions for parents –attendants
Mentoring & monitoring by FCC In-charge

12. AUDIO-VIDEO Training package for parents-
attendants

17. GLIMPSES
PROVIDE A
COMFORTABLE
ENVIRONMENT FOR
PARENTS ATTENDING
THE CAPACITY
BUILDING SESSIONS.

18. GLIMPSES
FOR PEER TRAINING &
EXPERIENCE SHARING
INVOLVE MOTHERS
WHO HAVE ALREADY
BEEN TRAINED AND
INVOLVED IN CARE OF
THEIR OWN BABY.

19. GLIMPSES
BESIDES THE
VIDEOS,
DEMONSTRATE
SKILLS TO PARENTS
DURING THE
CAPACITY BUILDING
SESSIONS.

20. GLIMPSES
ALLOW
MOTHERS/PARENTS TO
PRACTISE SKILLS
DURING THE SESSIONS!
ENSURE THAT PARENTS-
ATTENDANTS ALWAYS
FOLLOW THE
PROTOCOLS FOR ENTRY
INTO THE NURSERY!

21. GLIMPSES PROVIDE CONSTANT
SUPERVISION TO
PARENTS INVOLVED
IN THE CARE OF THE
NEWBORN.
REMEMBER THAT THE
STAFF IS RESPONSIBLE
FOR THE WELLBEING
OF THE BABY
ADMITTED TO
NURSERY.

22. Important carry home messages!
FCC is not merely the screening of videos & entry of parents into the nursery. It is
about a change in attitude of providers & adopting a more permissive mind-set to
allow responsibility sharing with parent attendants.
Parents have a supplementary role only and staff is primarily responsible for care
giving.
Even when parents are involved in care of the baby, the accountability is with the
staff. Parents caring for their babies must be provided constant oversight by the
staff.
Only agreed tasks, for which skills have been provided , should be shifted to
parents.
Participation of parents- attendants is voluntary (and not obligatory).
Creating a family friendly environment & policies is a pre-requisite for FCC.
Transparency & open communication between parents and staff is the
cornerstone of FCC.

23. Who is eligible to participate in FCC?
All the parent-attendants (and the extended family member/s*) of all
sick new-borns who are admitted to sick new-born units are eligible
to participate in FCC programme.
Primary responsibility for the wellbeing of the babies remains with the
staff and the parents are, at all times, to be supervised by nurses while
caring for their babies.

24. Which babies should receive FCC?
• All parents should be allowed to visit their babies admitted to SNCU.
However entry can be regulated depending on the case load,
availability of staff, space etc.
• Parents are involved in care of newborns whose condition are
stabilised and they no longer have a need for oxygen or continuous IV
fluids. This includes babies receiving phototherapy but having no
other concomitant illness.

25. Training Facilities and Resources
• Ideally a separate room for conducting sessions with parents-
attendants.
• Sufficient space for all parents-attendants to sit comfortably during
the session & interact with one another;
• Space and facilities for hands-on training (such as mannequin or
scrub station) as part of activity-based learning;
• Equipment, technical support, and resources sufficient to support
training via technology, such as for screening of videos using LCD or
laptop.