Caregiving Statistics

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Statistics on family caregivers and family caregiving.

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Caregiving Statistics

  1. 1. Caregiving Statistics
  2. 2. STATISTICS ON FAMILY CAREGIVERS AND FAMILY CAREGIVING1. CAREGIVING POPULATION2. ECONOMICS OF CAREGIVING3. IMPACT ON FAMILY CAREGIVER’S HEALTH4. CAREGIVING AND WORK5. CAREGIVING AND HEALTH CARE6. CAREGIVER SELF-AWARENESS Reference: http://www.nfcacares.org/who_are_family_caregivers/care_giving_statstics.cfm
  3. 3. CAREGIVING POPULATION 1More than 65 million people, 29% of the U.S. population,provide care for a chronically ill, disabled or aged familymember or friend during any given year and spend anaverage of 20 hours per week providing care for their lovedone. Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP; November 2009.
  4. 4. CAREGIVING POPULATION 2The value of the services family caregivers provide for "free,"when caring for older adults, is estimated to be $375 billiona year. That is almost twice as much as is actually spent onhomecare and nursing home services combined ($158 billion). Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009
  5. 5. CAREGIVING POPULATION 3The typical family caregiver is a 49-year-old woman caring forher widowed 69-year-old mother who does not live with her.She is married and employed. Approximately 66% of familycaregivers are women. More than 37% have children orgrandchildren under 18 years old living with them. Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
  6. 6. CAREGIVING POPULATION 41.4 million children ages 8 to 18 provide care for an adultrelative; 72% are caring for a parent or grandparent; and 64%live in the same household as their care recipient.Fortunately, most are not the sole caregiver. National Alliance for Caregiving and the United Hospital Fund, Young Caregivers in the U.S., 2005
  7. 7. CAREGIVING POPULATION 520 hours per week is the average number of hours familycaregivers spend caring for their loved ones while 13% offamily caregivers are providing 40 hours of care a week ormore. Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
  8. 8. CAREGIVING POPULATION 6Family caregivers are the foundation of long-term carenationwide exceeding Medicaid long-term care spending in allstates. Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009
  9. 9. CAREGIVING POPULATION 751% of care recipients live in their own home, 29% live withtheir family caregiver, and 4% live in nursing homes andassisted living. Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
  10. 10. CAREGIVING POPULATION 836% of family caregivers care for a parent and 7 out of 10caregivers are caring for loved ones over 50 years old. Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
  11. 11. CAREGIVING POPULATION 914% of family caregivers care for a special needs child withan estimated 16.8 million caring for special needschildren under 18 years old. 55% of these caregivers arecaring for their own children. Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
  12. 12. CAREGIVING POPULATION 1078% of adults living in the community and in need of long-term care depend on family and friends as their only sourceof help. Thompson, L. Long-term care: support for family caregivers. 2004
  13. 13. ECONOMICS OF CAREGIVING 1Women who are family caregivers are 2.5 times more likelythan non-caregivers to live in poverty and five times morelikely to receive Supplemental Security Income (SSI). Study conducted by researchers at Rice University data compiled from the Health and Retirement Study funded by the National Institute of Aging and conducted by the University of Michigan, 1992-2004
  14. 14. ECONOMICS OF CAREGIVING 2Caregiving families (families in which one member has adisability) have median incomes that are more than15% lower than non-caregiving families. In every state andDC the poverty rate is higher among families with memberswith a disability than among families without. Disability and American Families: 2000, Census 2000 Special Reports, July 2005
  15. 15. ECONOMICS OF CAREGIVING 3During the 2009 economic downturn, 1 in 5 familycaregivers had to move into the same home withtheir loved ones to cut expenses. Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009
  16. 16. ECONOMICS OF CAREGIVING 447% of working caregivers indicate an increase in caregivingexpenses has caused them to use up ALL or MOST oftheir savings. Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009
  17. 17. ECONOMICS OF CAREGIVING 5The average family caregiver for someone 50 years or olderspends $5,531 per year on out of pocket caregivingexpenses in 2007 which was more than 10% of the medianincome for a family caregiver that year. Valuing the Invaluable: The Economic Value of Family Caregiving, 2008 Update. AARP
  18. 18. IMPACT ON FAMILY CAREGIVER’S HEALTH 123% of family caregivers caring for loved ones for 5 years ormore report their health is fair or poor. Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP; November 2009
  19. 19. IMPACT ON FAMILY CAREGIVER’S HEALTH 2Stress of family caregiving for persons with dementia hasbeen shown to impact a persons immune system for up tothree years after their caregiving ends thus increasing theirchances of developing a chronic illness themselves. Drs. Janice-Kiecolt Glaser and Ronald Glaser, "Chronic stress and age-related increases in the proinflammatory cytokine IL-6.“ Proceedings of the National Academy of Sciences, June 30, 2003.
  20. 20. IMPACT ON FAMILY CAREGIVER’S HEALTH 3Nearly three quarters (72%) of family caregivers report notgoing to the doctor as often as they should and 55% say theyskip doctor appointments for themselves. 63% ofcaregivers report having poor eating habits than non-caregivers and 58% indicate worse exercise habits thanbefore caregiving responsibilities. Evercare Study of Caregivers in Decline: A Close-Up Look at Health Risks of Caring for a Loved One. National Alliance for Caregiving and Evercare. 2006.
  21. 21. IMPACT ON FAMILY CAREGIVER’S HEALTH 420% of employed female caregivers over 50 years oldreport symptoms of depression compared to 8% of their non-caregiving peers. MetLife Study of Working Caregivers and Employer Health Costs; National Alliance for Caregiving and MetLife Mature Market Institute. February 2010
  22. 22. IMPACT ON FAMILY CAREGIVER’S HEALTH 540% to 70% of family caregivers have clinically significantsymptoms of depression with approximately a quarter tohalf of these caregivers meet the diagnostic criteria for majordepression. Zarit, S. (2006). Assessment of Family Caregivers: A Research Perspective
  23. 23. IMPACT ON FAMILY CAREGIVER’S HEALTH 6More than 1 in 10 (11%) of family caregivers report thatcaregiving has caused their physical health to deteriorate. How Do Family Caregivers Fare? A Closer Look at their Experiences. Center on Aging Society. 2005.
  24. 24. IMPACT ON FAMILY CAREGIVER’S HEALTH 7A wifes hospitalization increased her husbands chances ofdying within a month by 35%. A husbands hospitalizationboosted his wifes mortality risk by 44%. Nicholas D. Christakis, Professor, Health-care Policy, Harvard Medical School, Boston and Suzanne Salamon, M.D., Associate Chief, Geriatric Psychiatry, Beth Israel Deaconess Hospital, Boston, New England Journal of Medicine, Feb. 16, 2006
  25. 25. IMPACT ON FAMILY CAREGIVER’S HEALTH 8Family caregivers experiencing extreme stress have beenshown to age prematurely. This level of stress can take asmuch as 10 years off a family caregivers life. Elissa S. Epel, Dept of Psychiatry, Univ of Calif, SF, et al, From the Proceedings of the National Academy of Sciences, Dec 7, 2004, Vol 101, No. 49.
  26. 26. CAREGIVING AND WORK1Six in 10 family caregivers are employed. MetLife Study ofWorking Caregivers and Employer Health Costs; National Alliance for Caregiving and MetLife Mature Market Institute. February 2010
  27. 27. CAREGIVING AND WORK273% of family caregivers who care for someone over the ageof 18 either work or have worked while providing care; 66%have had to make some adjustments to their work life, fromreporting late to work to giving up work entirely; and 1 in 5family caregivers have had to take a leave of absence. Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
  28. 28. CAREGIVING AND WORK364% of working parents caring for a special needs childbelieve that caregiving responsibility has negatively impactedtheir work performance. Care.com and National Family Caregivers Association: State of Care Index. 2009
  29. 29. CAREGIVING AND WORK4American businesses can lose as much as $34 billioneach year due to employees need to care for loved ones 50years of age and older. MetLife Caregiving Cost Study: Productivity Losses to U.S. MetLife Mature Market Institute and National Alliance for Caregiving Business. July 2006
  30. 30. CAREGIVING AND WORK5Caregivers caring for elderly loved ones cost employers 8%more in health care costs estimated to be worth $13.4billion per year. MetLife Study of Working Caregivers and Employer Health Costs; National Alliance for Caregiving and MetLife Mature Market Institute. February 2010
  31. 31. CAREGIVING AND WORK6Over 65% of employers believe that health benefitsimprove employees health. Sixty percent (60%) believe itincreases morale and 39% believe it increases productivity. Job-based Health Insurance in the Balance: Employer Views of Coverage in the Workplace.Collins, S.R. et al, The Commonwealth Fund, Commonwealth Fund Supplement to the 2003 National Organization Study. March 2004
  32. 32. CAREGIVING AND HEALTH CARE 122% of family caregivers say they need help communicatingwith physicians. National Alliance for Caregiving and AARP, Caregiving in the U.S. 2004
  33. 33. CAREGIVING AND HEALTH CARE 2Focus group research suggests that family caregivers do notrecognize that public policy has a direct impact on theirday-to-day lives. Many are uncomfortable even thinkingthere might be a connection. Lake Snell Perry & Associates, A Report on Formative Focus Groups, conducted for the Family Caregivers Self-Awareness and Empowerment Project, a joint program of the National Family Caregivers Association and the National Alliance for Caregiving, September 2001.
  34. 34. CAREGIVER SELF-AWARENESS 1Over 90% of family caregivers become more proactive aboutseeking resources and skills they need to assist their carerecipient after they have self-identified. National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.
  35. 35. CAREGIVER SELF-AWARENESS 283% of self-identified family caregivers believe their self-awareness led to increased confidence when talking tohealthcare professionals about their loved ones care. National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001
  36. 36. CAREGIVER SELF-AWARENESS 3For over 75% of family caregivers it was the act of helpingtheir loved one with personal care that contributed to theirself-identification. National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.
  37. 37. CAREGIVER SELF-AWARENESS 4For 60% of family caregivers, their loved ones diagnosis andtheir interaction with the health care system made themaware that they were family caregivers. National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.
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