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THE OLMSTEAD DECISION
Defining the Future of LongTerm Care
Friday, August 30, 13
Supreme Court Decision Olmstead v. L.C. 1999
Envisioned that States would provide long-term
services and supports ( LTSS ) to individuals with
disabilities through home and community-based
services ( HCBS ) and end forced segregation in
institutions .
Friday, August 30, 13
Decision covers people with intellectual and
developmental disabilities , physical disabilities ,
and older adults with chronic conditions such as
Dementia .
Friday, August 30, 13
CMS Proposed Rule Making April , 2011
Persons with Disabilities would have more
opportunities to Live inTheir communities Under
CMS Proposed Regulations
The proposed rule also clarifies what constitutes
a true HCBS setting and sets out new
requirements for “ person- centered “ care
plans .
Friday, August 30, 13
Proposed Rules would aide States in their
Compliance with Olmstead Decision
Friday, August 30, 13
Home and Community based settings cannot be
located on the campus of a facility that provides
institutional treatment or custodial care , including
nursing homes .
Prohibits housing complexes designed expressly
for persons with disabilities to qualify as “ home
and community based settings “
Friday, August 30, 13
United States Senate Health , Education ,Labor
and Pensions Committee Report
Separate and Unequal : States Fail to Fulfill the
Community Living Promise of the Americans with
Disabilities Act
July 18 , 2013
Friday, August 30, 13
FINDINGS
States must approach decisions about Medicaid
Delivery options from an Olmstead civil rights
perspective .
States must create an Olmstead Plan with
enforceable benchmark targets .
Friday, August 30, 13
To ensure that individuals can live in community
-based settings where they can fully participate
and be granted the power of individual decision
making and choice .
Providing services for people with disabilities
outside of an institutional setting is more cost
effective than providing institutional care .
Friday, August 30, 13
Most States increased the number of individuals
served in community settings from 2008 to 2012 .
States reported transitioning individuals with
disabilities from institutions into other congregate
settings ,group homes , assisted living and other
shared living arrangements .
Friday, August 30, 13
Widespread inequities in access to HCBS still exist
across States .
Hundreds of thousands of people with disabilities
remain on waiting lists for HCBS services .
Friday, August 30, 13
Many States have focused more on enrolling
people that currently live in community
settings into HCBS programs than
transitioning individuals living in institutional
settings back into the community .
Friday, August 30, 13
States have also continued to backfill institutional
beds rather than closing them and reallocating
institutional dollars to support individuals in their
own homes and communities .
Friday, August 30, 13
When individuals are transitioned , it remains
unclear whether they are transitioned to the most
integrated setting possible or merely to a “less”
institutional setting .
Friday, August 30, 13
CMS issued a proposed rule that clearly defined
whether a setting is home or community -based .
Friday, August 30, 13
Affordable Care Act : Allows States to submit HCBS
State Plan Option under 1915 (i) to allow HCBS to
be provided to individuals “ without linking the
benefit to either a current or future need for
institutional care “ .
Friday, August 30, 13
RECOMMENDATIONS
Friday, August 30, 13
Congress should amend the ADA to clarify and
strengthen the law’s integration mandate and
to clarify that every individual who is eligible
for LTSS under Medicaid has a federally
protected right to a real choice in how they
receive services and supports
Friday, August 30, 13
State and federal efforts should focus on helping
people live in their own homes .
Virtually all people with disabilities can live in
their own apartment or house with adequate
supports .
Accordingly , for virtually all people with
disabilities , the most appropriate integrated
setting is their own home .
Friday, August 30, 13
DOJ should expand its Olmstead
enforcement efforts .
CMS should require Medicaid State spending goals
for 2015 , 2020, & 2025 to ensure that the
proportion of spending on HCBS continues to
increase .
Friday, August 30, 13
The Administration on Community Living at
HHS and HUD should collaborate to develop
and implement a national action plan to expand
access to affordable , integrated , accessible , and
“scattered site “ housing for people with
significant disabilities , consistent with the
OLMSTEAD Decision .
Friday, August 30, 13

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OLMSTEAD

  • 1. THE OLMSTEAD DECISION Defining the Future of LongTerm Care Friday, August 30, 13
  • 2. Supreme Court Decision Olmstead v. L.C. 1999 Envisioned that States would provide long-term services and supports ( LTSS ) to individuals with disabilities through home and community-based services ( HCBS ) and end forced segregation in institutions . Friday, August 30, 13
  • 3. Decision covers people with intellectual and developmental disabilities , physical disabilities , and older adults with chronic conditions such as Dementia . Friday, August 30, 13
  • 4. CMS Proposed Rule Making April , 2011 Persons with Disabilities would have more opportunities to Live inTheir communities Under CMS Proposed Regulations The proposed rule also clarifies what constitutes a true HCBS setting and sets out new requirements for “ person- centered “ care plans . Friday, August 30, 13
  • 5. Proposed Rules would aide States in their Compliance with Olmstead Decision Friday, August 30, 13
  • 6. Home and Community based settings cannot be located on the campus of a facility that provides institutional treatment or custodial care , including nursing homes . Prohibits housing complexes designed expressly for persons with disabilities to qualify as “ home and community based settings “ Friday, August 30, 13
  • 7. United States Senate Health , Education ,Labor and Pensions Committee Report Separate and Unequal : States Fail to Fulfill the Community Living Promise of the Americans with Disabilities Act July 18 , 2013 Friday, August 30, 13
  • 8. FINDINGS States must approach decisions about Medicaid Delivery options from an Olmstead civil rights perspective . States must create an Olmstead Plan with enforceable benchmark targets . Friday, August 30, 13
  • 9. To ensure that individuals can live in community -based settings where they can fully participate and be granted the power of individual decision making and choice . Providing services for people with disabilities outside of an institutional setting is more cost effective than providing institutional care . Friday, August 30, 13
  • 10. Most States increased the number of individuals served in community settings from 2008 to 2012 . States reported transitioning individuals with disabilities from institutions into other congregate settings ,group homes , assisted living and other shared living arrangements . Friday, August 30, 13
  • 11. Widespread inequities in access to HCBS still exist across States . Hundreds of thousands of people with disabilities remain on waiting lists for HCBS services . Friday, August 30, 13
  • 12. Many States have focused more on enrolling people that currently live in community settings into HCBS programs than transitioning individuals living in institutional settings back into the community . Friday, August 30, 13
  • 13. States have also continued to backfill institutional beds rather than closing them and reallocating institutional dollars to support individuals in their own homes and communities . Friday, August 30, 13
  • 14. When individuals are transitioned , it remains unclear whether they are transitioned to the most integrated setting possible or merely to a “less” institutional setting . Friday, August 30, 13
  • 15. CMS issued a proposed rule that clearly defined whether a setting is home or community -based . Friday, August 30, 13
  • 16. Affordable Care Act : Allows States to submit HCBS State Plan Option under 1915 (i) to allow HCBS to be provided to individuals “ without linking the benefit to either a current or future need for institutional care “ . Friday, August 30, 13
  • 18. Congress should amend the ADA to clarify and strengthen the law’s integration mandate and to clarify that every individual who is eligible for LTSS under Medicaid has a federally protected right to a real choice in how they receive services and supports Friday, August 30, 13
  • 19. State and federal efforts should focus on helping people live in their own homes . Virtually all people with disabilities can live in their own apartment or house with adequate supports . Accordingly , for virtually all people with disabilities , the most appropriate integrated setting is their own home . Friday, August 30, 13
  • 20. DOJ should expand its Olmstead enforcement efforts . CMS should require Medicaid State spending goals for 2015 , 2020, & 2025 to ensure that the proportion of spending on HCBS continues to increase . Friday, August 30, 13
  • 21. The Administration on Community Living at HHS and HUD should collaborate to develop and implement a national action plan to expand access to affordable , integrated , accessible , and “scattered site “ housing for people with significant disabilities , consistent with the OLMSTEAD Decision . Friday, August 30, 13