Personal Information
Organization / Workplace
Minneapolis United States
Industry
Medical / Health Care / Pharmaceuticals
Website
www.pcdfoundation.org
About
We aim to improve the quality of life of patients with primary ciliary dyskinesia (PCD) and to develop the means to find a cure..
Our mission is three-fold:
• Improve diagnosis and prognosis through research
• Educate & support patient, scientific and medical communities
• Raise awareness about the realities of the disease
Tags
ciliopathies
pcd
lung disease
primary ciliary dyskinesia
sinusitus
cilia
biobanking
death
children
genetics
clinical centers
pcd diagnosis
pcd treatment
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