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Engaging And
 Empowering
   Patients
  For Quality
   & Safety
“e-Patient Dave” deBronkart
• High tech marketing
• Data geek; tech trends; automation
• 2007: Cancer kicker
                    • 2008: E-Patient
                      blogger
                    • 2009: Participatory
                      Medicine, Public
                      Speaker
                    • 2010: full time
Michael Millenson
      • Health Quality Advisors
      • Demanding Medical
        Excellence, Health
        Affairs, many more
      • Board of American
        Medical Group
        Foundation, AHIMA
        Foundation, Soc’y for
        Participatory Medicine
        Amer Jour of Medical
Rajni Aneja, MD, MBA, CPE
          • EVP, Joslin Diabetes
            Center
          • CPE / family practice
          • Care Continuum Alliance
          • ACPE
          • Past:
            – CMO for WebMD
            – OptumHealth nat’l medical
              director for disease mgmt,
Tom Peters, MBA, PhD
       • In Search of Excellence
         and 16 other books
       • Extraordinarily diverse
         industry experiences
       • Track record of
         successfully working with
         leaders to create change
What if Duane Smith
had a shared care plan?


     “e-Patient Dave” deBronkart
        Twitter: @ePatientDave
          facebook.com/ePatientDave
         LinkedIn.com/in/ePatientDave
            dave@epatientdave.com
Proposed taxonomy of fixes
   from Helen’s keynote
• Putting more power in patient hands:
  – Information
  – Tools
Proposed taxonomy of fixes
   from Helen’s keynote
• Putting more power in patient hands:
  – Information
  – Tools
• Listening to what patients report from
  the front line
Proposed taxonomy of fixes
   from Helen’s keynote
• Putting more power in patient hands:
  – Information
  – Tools
• Listening to what patients report from
  the front line
• Not leveraging available contributions
  – A squandered opportunity
  – Economic inefficiency
“It has taken
 a full century
 for the patient’s
 perspective
 to go from being
 routinely ignored
 to being hailed
 as a pillar of an
 ideal health care
 system.”
“Rethinking the
 relationship
 between the
 patient and
 professional
 caregivers is a
 cornerstone of
 successful health
 system redesign”
“Consumer
 engagement,
 whether in the
 exam room or
 in a health care
 organization’s
 boardroom, is a
 central element.”
“Consumer
 engagement,
 whether in the
 exam room or
 in a health care
 organization’s
 boardroom, is a
 central element.”
I add: same for
engagement at
the bedside, too.
What
happened
 here??
Gawande:
• A medical miracle – a great
  save
Gawande:
• A medical miracle – a great
  save
• In stark contrast, an “epic fail”
  with great human cost
Gawande:
• A medical miracle – a great
  save
• In stark contrast, an “epic fail”
  with great human cost
• By the same people in the
  same system
What if Duane’s family
    had googled
  “splenectomy”?
What happened here?
• Squandered potential value
What happened here?
• Squandered potential value
• An asset in the system
  (knowledge) that was not
  brought to the point of care at
  the time when it was needed
Who can solve this?
Who can solve this?
 Do we pound on
 clinicians more?
“I want to note especially
  the importance of the resource
      that is most often under-
utilized in our information systems
            – our patients”
       Charles Safran MD, Beth Israel
       Deaconess
       quoting his colleague, Warner Slack
       MD
       Testimony to the House Ways & Means
       subcommittee on health, 2004
What if the care team
had shared the care plan
with the patient & family?
Abington Memorial created one.
    (It’s just an EMR report)
Doc Tom said,
                e-Patients.net founder
“e-Patients are quipped
                E
                Tom Ferguson MD
                 1944-2006

                Engaged
                Empowered
                Enabled”
Web 2.0: “When the web began to harness
the intelligence of its users” – Tim O’Reilly
If the microscope’s happy
  but the patient’s not,
has care been achieved?

   Has optimal care??

Was the money well spent
  for customer value?
This is the only industry
 where the definition of quality
         doesn’t start
by asking customers what they
         want more of
A patient’s definition of quality:
     Achieving everything
        we possibly can
 in the family member’s care.
Compliance
Compliance
Compliance
(Whose goal is it, anyway?)
Compliance
(Whose goal is it, anyway?)

    Quality???
EMRs and Quality (NEJM)

• Patients who achieved 4 out of 5 outcomes
     With EMR            Paper based
       44%                 16%


• Patients whose care met four quality
  standards
     With EMR            Paper based
       51%                 7%
Peter Margolis, Cincinnati Children’s



     .5 x .5 = .25
A patient’s definition of safety:
     Avoiding avoidable
     harm and mistakes.
A patient’s definition of safety:
     Avoiding avoidable
     harm and mistakes.
  Also known as accidents.
What could possibly
         stop us
from speaking up to help?
Answer:
We’re afraid of you.
“I want to note especially
  the importance of the resource
      that is most often under-
utilized in our information systems
            – our patients”
       Charles Safran MD, Beth Israel
       Deaconess
       quoting his colleague, Warner Slack
       MD
       Testimony to the House Ways & Means
       subcommittee on health, 2004
“What is the Role of the Patient?”
“What is the Role of the Patient?”
“What is the Role of the Patient?”
Gawande at CMMI Summit
“There is a bell curve for quality – a wide
 gap between the best care and the worst.
Gawande at CMMI Summit
“There is a bell curve for quality – a wide
 gap between the best care and the worst.
“There is another bell curve
 for costs – again, a wide gap.
Gawande at CMMI Summit
“There is a bell curve for quality – a wide
 gap between the best care and the worst.
“There is another bell curve
 for costs – again, a wide gap.
“Surprisingly, the two curves
 do not match.
Gawande at CMMI Summit
“There is a bell curve for quality – a wide
 gap between the best care and the worst.
“There is another bell curve
 for costs – again, a wide gap.
“Surprisingly, the two curves
 do not match.
“And that means
 there is hope.”
“It has taken
 a full century
 for the patient’s
 perspective
 to go from being
 routinely ignored
 to being hailed
 as a pillar of an
 ideal health care
 system.”
Let Patients Help
Heal Healthcare.

   “e-Patient Dave” deBronkart
      Twitter: @ePatientDave
        facebook.com/ePatientDave
       LinkedIn.com/in/ePatientDave
          dave@epatientdave.com

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Quality colloquium 2012 final

  • 1. Engaging And Empowering Patients For Quality & Safety
  • 2. “e-Patient Dave” deBronkart • High tech marketing • Data geek; tech trends; automation • 2007: Cancer kicker • 2008: E-Patient blogger • 2009: Participatory Medicine, Public Speaker • 2010: full time
  • 3. Michael Millenson • Health Quality Advisors • Demanding Medical Excellence, Health Affairs, many more • Board of American Medical Group Foundation, AHIMA Foundation, Soc’y for Participatory Medicine Amer Jour of Medical
  • 4. Rajni Aneja, MD, MBA, CPE • EVP, Joslin Diabetes Center • CPE / family practice • Care Continuum Alliance • ACPE • Past: – CMO for WebMD – OptumHealth nat’l medical director for disease mgmt,
  • 5. Tom Peters, MBA, PhD • In Search of Excellence and 16 other books • Extraordinarily diverse industry experiences • Track record of successfully working with leaders to create change
  • 6. What if Duane Smith had a shared care plan? “e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave dave@epatientdave.com
  • 7. Proposed taxonomy of fixes from Helen’s keynote • Putting more power in patient hands: – Information – Tools
  • 8. Proposed taxonomy of fixes from Helen’s keynote • Putting more power in patient hands: – Information – Tools • Listening to what patients report from the front line
  • 9. Proposed taxonomy of fixes from Helen’s keynote • Putting more power in patient hands: – Information – Tools • Listening to what patients report from the front line • Not leveraging available contributions – A squandered opportunity – Economic inefficiency
  • 10. “It has taken a full century for the patient’s perspective to go from being routinely ignored to being hailed as a pillar of an ideal health care system.”
  • 11. “Rethinking the relationship between the patient and professional caregivers is a cornerstone of successful health system redesign”
  • 12. “Consumer engagement, whether in the exam room or in a health care organization’s boardroom, is a central element.”
  • 13. “Consumer engagement, whether in the exam room or in a health care organization’s boardroom, is a central element.” I add: same for engagement at the bedside, too.
  • 14.
  • 15.
  • 16.
  • 18. Gawande: • A medical miracle – a great save
  • 19. Gawande: • A medical miracle – a great save • In stark contrast, an “epic fail” with great human cost
  • 20. Gawande: • A medical miracle – a great save • In stark contrast, an “epic fail” with great human cost • By the same people in the same system
  • 21. What if Duane’s family had googled “splenectomy”?
  • 22. What happened here? • Squandered potential value
  • 23. What happened here? • Squandered potential value • An asset in the system (knowledge) that was not brought to the point of care at the time when it was needed
  • 24. Who can solve this?
  • 25. Who can solve this? Do we pound on clinicians more?
  • 26. “I want to note especially the importance of the resource that is most often under- utilized in our information systems – our patients” Charles Safran MD, Beth Israel Deaconess quoting his colleague, Warner Slack MD Testimony to the House Ways & Means subcommittee on health, 2004
  • 27. What if the care team had shared the care plan with the patient & family?
  • 28. Abington Memorial created one. (It’s just an EMR report)
  • 29. Doc Tom said, e-Patients.net founder “e-Patients are quipped E Tom Ferguson MD 1944-2006 Engaged Empowered Enabled”
  • 30.
  • 31.
  • 32.
  • 33. Web 2.0: “When the web began to harness the intelligence of its users” – Tim O’Reilly
  • 34. If the microscope’s happy but the patient’s not, has care been achieved? Has optimal care?? Was the money well spent for customer value?
  • 35.
  • 36. This is the only industry where the definition of quality doesn’t start by asking customers what they want more of
  • 37. A patient’s definition of quality: Achieving everything we possibly can in the family member’s care.
  • 38.
  • 42. Compliance (Whose goal is it, anyway?) Quality???
  • 43. EMRs and Quality (NEJM) • Patients who achieved 4 out of 5 outcomes With EMR Paper based 44% 16% • Patients whose care met four quality standards With EMR Paper based 51% 7%
  • 44. Peter Margolis, Cincinnati Children’s .5 x .5 = .25
  • 45. A patient’s definition of safety: Avoiding avoidable harm and mistakes.
  • 46. A patient’s definition of safety: Avoiding avoidable harm and mistakes. Also known as accidents.
  • 47. What could possibly stop us from speaking up to help?
  • 49.
  • 50. “I want to note especially the importance of the resource that is most often under- utilized in our information systems – our patients” Charles Safran MD, Beth Israel Deaconess quoting his colleague, Warner Slack MD Testimony to the House Ways & Means subcommittee on health, 2004
  • 51. “What is the Role of the Patient?”
  • 52. “What is the Role of the Patient?”
  • 53. “What is the Role of the Patient?”
  • 54. Gawande at CMMI Summit “There is a bell curve for quality – a wide gap between the best care and the worst.
  • 55. Gawande at CMMI Summit “There is a bell curve for quality – a wide gap between the best care and the worst. “There is another bell curve for costs – again, a wide gap.
  • 56. Gawande at CMMI Summit “There is a bell curve for quality – a wide gap between the best care and the worst. “There is another bell curve for costs – again, a wide gap. “Surprisingly, the two curves do not match.
  • 57. Gawande at CMMI Summit “There is a bell curve for quality – a wide gap between the best care and the worst. “There is another bell curve for costs – again, a wide gap. “Surprisingly, the two curves do not match. “And that means there is hope.”
  • 58. “It has taken a full century for the patient’s perspective to go from being routinely ignored to being hailed as a pillar of an ideal health care system.”
  • 59. Let Patients Help Heal Healthcare. “e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave dave@epatientdave.com

Editor's Notes

  1. Concurrent competing sessions:Best practices in hospital patient safetyTechnology to improve health care safety, quality and efficiencyOurs:Millenson’s model; Duane Smith; Joslin remote
  2. Atul Gawande told this story in his much-publicized 2010 Stanford commencement address, which he repeated at the National Quality Colloquium at Harvard in August.This slide is followed by what happened next: 2 years later, Smith was on vacation in Mexico when strep swept through him. He survived but lost all his fingers and toes.
  3. Atul Gawande told this story in his much-publicized 2010 Stanford commencement address, which he repeated at the National Quality Colloquium at Harvard in August.This slide is followed by what happened next: 2 years later, Smith was on vacation in Mexico when strep swept through him. He survived but lost all his fingers and toes.
  4. Atul Gawande told this story in his much-publicized 2010 Stanford commencement address, which he repeated at the National Quality Colloquium at Harvard in August.This slide is followed by what happened next: 2 years later, Smith was on vacation in Mexico when strep swept through him. He survived but lost all his fingers and toes.
  5. Remembering allergyBedside shift changeDuane’s vaccinesMissed dosesAbington’s shared care plan====Aneja: one definition of “engagement” is the patient accessing an available service. So good new tech is a way of engaging pts in quality.
  6. Remembering allergyBedside shift changeDuane’s vaccinesMissed dosesAbington’s shared care plan====Aneja: one definition of “engagement” is the patient accessing an available service. So good new tech is a way of engaging pts in quality.
  7. Remembering allergyBedside shift changeDuane’s vaccinesMissed dosesAbington’s shared care plan====Aneja: one definition of “engagement” is the patient accessing an available service. So good new tech is a way of engaging pts in quality.
  8. Remembering allergyBedside shift changeDuane’s vaccinesMissed dosesAbington’s shared care plan====Aneja: one definition of “engagement” is the patient accessing an available service. So good new tech is a way of engaging pts in quality.
  9. This is not quite the right slide – find the one that is
  10. Find Elaine / Seinfeld slide
  11. Add duplicate for The Caregiver Crisis
  12. Add duplicate for The Caregiver Crisis
  13. Add duplicate for The Caregiver Crisis