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210425オンライン報告会_冒頭発表
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難病者の社会参加を考える研究会オンライン報告会 冒頭発表
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210425オンライン報告会_冒頭発表
1.
難病者の社会参加を考える研究会 オンライン報告会 NPO法人両育わーるど 代表 重光喬之
2.
私たちのビジョン 難病のある人の社会参加・就労機会が拡大し 誰にでも役割のある社会の実現
3.
脊髄から脳脊 髄液が漏出
4.
WHOが定めるトータルペイン4分類 身体的苦痛 痛み、かゆみ めまい、だるさ、吐き気 絶え間ない症状 日常生活が困難 思うように体が動かない 精神的苦痛 終わりのない闘病 怒りぽくなってしまう 意欲の低下 孤独 理解してもらえない 頭が働かない 社会的苦痛 居場所がない 経済的に困窮する 就労が困難 医療が限られる 医療費が高い 社会保障制度が使えない 社会資源にたどり着けない 存在的苦痛 生きてていいのか 自問自答 人との絆が 絶たれていく 医療 医療・ 支援機関 社会制度、社会 参加・就労機会 他項目の解消 により改善
5.
難病者の疾患の定義や制度区分の状況
6.
難病者の社会制度の状況
7.
ビジョン実現へのステップ 最低限度の生活・就労の保障 自己実現の自助 1.障害者雇用促進法の対象者の拡大 障害者雇用促進法と障害者総合支援法の一致 2.孤立*している難病者の就労機会の創出 3.自分らしい働き方を選択できる社会の仕組み 狭間を生みづらい仕組みの実現 ありたい姿 最低限度の生活 (生存権) 社会から孤立 孤立した 自助 障害者雇用 障害者総合支援法 雇用保険 社会保険 年金(障害) * 孤立の判断:①公的支援がない、社会的排除*2の状態にある人、②関わる人の属性と居場所の数 *2
平成 24 年 9 月 社会的排除リスク調査チーム 内閣官房社会的包摂推進室 現在 未来 狭間のある 社会制度
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