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E-Patient Connections 2010
 

E-Patient Connections 2010

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Speech given at e-Patient Connections in Philadelphia Sept. 29th 2010

Speech given at e-Patient Connections in Philadelphia Sept. 29th 2010

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    E-Patient Connections 2010 E-Patient Connections 2010 Presentation Transcript

    • The Worst Pain Imaginable:
      What do patients bring to the table?
      Regina Holliday
      e-Patient Connections 2010
    • Sometimes when you are
      Looking at the big picture,
      You miss the small, but
      Very important
      Details…..
      The unplugged IV,
      The pressure ulcer,
      The unwashed tray
      The autistic mind…
    • Fred’s Medical Record from March 25th through April 22nd
      at Health 2.0 Goes to Washington on June 7th, 2010.
    • A tale of two Binders
      Fred’s Medical Record Freddie’s IEP Record
    • Accommodations must exist to help a patient or child have the best experience possible.
      Accommodations do not exist just to facilitate work flow for the provider or teacher.
    • “You know, for kids.”
      - Norville in the Hudsucker Proxy 1994
    • “Mommy,
      that hospital
      is like one of those blond girls,
      that seem so nice
      and pretty
      until
      they open their mouth.”
      ~ Freddie Holliday 2009
    • Freddie Holliday center in the Child’s Play Mural
      Painted August-Sept 2001
    • “Nothing is as
      simple
      as
      black and white”
    • “Disease is a lot like that flower in the movie (Pleasantville), first it is just a flower,
      and soon the color is everywhere….” –Freddie Holliday III 2009
    • “NO, no Daddy, not cancer! I have seen
      those t-shirts! Race for the cure…
      That means that there’s no cure
      for cancer.”
      –Freddie Holliday III (10 years old)
    • How would you rate your pain?
      Is medicine suffering from “temporary autism” or face blindness?
    • But,
      who does well reading faces?
      People who
      have
      Practiced.
      “…People who have had highly abusive childhood also do well; like stroke victims, they’ve
      had to practice the difficult art of reading minds, in their case the minds of alcoholic or
      violent parents.”- Malcolm Gladwell author of “Blink”
    • “Mommy, is God using atheists to spread the word?” –Freddie Holliday III 10 years old
      "That's part of your problem, you haven't seen enough movies. All of life's riddles are answered in the movies." —Davis (Steve Martin), Grand Canyon, from Frederick Holliday's e-mail signature