E-Patient Connections 2010

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Speech given at e-Patient Connections in Philadelphia Sept. 29th 2010

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E-Patient Connections 2010

  1. 1. The Worst Pain Imaginable:<br />What do patients bring to the table?<br />Regina Holliday<br />e-Patient Connections 2010<br />
  2. 2. Sometimes when you are <br />Looking at the big picture, <br />You miss the small, but<br />Very important <br />Details…..<br />The unplugged IV,<br />The pressure ulcer,<br />The unwashed tray<br />The autistic mind… <br />
  3. 3. Fred’s Medical Record from March 25th through April 22nd<br /> at Health 2.0 Goes to Washington on June 7th, 2010.<br />
  4. 4. A tale of two Binders<br />Fred’s Medical Record Freddie’s IEP Record<br />
  5. 5. Accommodations must exist to help a patient or child have the best experience possible.<br />Accommodations do not exist just to facilitate work flow for the provider or teacher. <br />
  6. 6. “You know, for kids.”<br />- Norville in the Hudsucker Proxy 1994<br />
  7. 7. “Mommy, <br /> that hospital <br />is like one of those blond girls, <br />that seem so nice <br /> and pretty <br /> until<br /> they open their mouth.”<br /> ~ Freddie Holliday 2009<br />
  8. 8. Freddie Holliday center in the Child’s Play Mural <br /> Painted August-Sept 2001<br />
  9. 9. “Nothing is as <br />simple <br />as <br />black and white”<br />
  10. 10. “Disease is a lot like that flower in the movie (Pleasantville), first it is just a flower, <br />and soon the color is everywhere….” –Freddie Holliday III 2009<br />
  11. 11. “NO, no Daddy, not cancer! I have seen <br />those t-shirts! Race for the cure… <br />That means that there’s no cure<br />for cancer.” <br />–Freddie Holliday III (10 years old) <br />
  12. 12. How would you rate your pain?<br />Is medicine suffering from “temporary autism” or face blindness?<br />
  13. 13. But,<br />who does well reading faces?<br />People who<br />have <br />Practiced. <br />“…People who have had highly abusive childhood also do well; like stroke victims, they’ve<br />had to practice the difficult art of reading minds, in their case the minds of alcoholic or<br />violent parents.”- Malcolm Gladwell author of “Blink” <br />
  14. 14. “Mommy, is God using atheists to spread the word?” –Freddie Holliday III 10 years old<br />"That's part of your problem, you haven't seen enough movies. All of life's riddles are answered in the movies." —Davis (Steve Martin), Grand Canyon, from Frederick Holliday's e-mail signature<br />
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