Adolescents and young adults need organizations like yours with clout and standing to be champions for them and to insist that the evidence-based, cost effective preventive and clinical tools at hand be used more widely to prevent painful and potentially life-long consequences.
Most of what we accomplish happens through our committees, and we’ll hear from them momentarily. A few items of note: First strategic plan since coalition was formed in 2008; helped to focus our attention given the maturity of the coalition and changing health care environment; includes objectives to work with health plans, diversify our membership and funding, and share more information with our members about our accomplishments and available resources. The plan is in your notebook and on the members-only section of our website.We have more than 1,200 subscribersWe issued the coalition’s first annual report, which summarizes our accomplishments in 2012 and provides highlights of our finances. The annual report is in your notebook and on our members-only section of our website.
We’ve chosen panels and speakers to help get our juices flowing!If the most effective contraception lasts for years and is ideal for adolescents and young women, how will screening get done? Will condoms be ignored?Reaching boys may be one answer…but how?Breaches to confidentiality seem entrenched in our current system: what are the work-arounds?Could pharmacists be new front-line proponents of chlamydia screening?How can we use the positive messages and approaches being developed around the concept of “sexual health” to complement and augment our work on chlamydia?
Each coalition—the NCC and NCSH—take a fundamentally different approach. The NCC wants to ensure that the evidence we have about chlamydia and other STDs, and the tools we have to combat the effects of these diseases, are widely implemented to protect adolescent and young adult health. The NCSH aims to make sexual health a common part of our national discourse, to encourage conversations about sexual health, and to normalize sexual health as a core component of our overall health. Much like we are comfortable with heart health, we want Americans to be comfortable talking about their sexual health with their partners, children, and health care providers.
We have not convened a Steering Committee, primarily due to committee burn-out. Do we need one?Membership has remained mostly constant. How do we balance coalition growth with a focus on using our existing members to get stuff done? What new members and/or collaborators would benefit the coalition strategically? Sources of support for the NCC are limited and overlap and compete with sources of support for some of our coalition members, so it’s a delicate balancing act. We want to be proactive but not overreaching.
At our last in-person meeting, received great feedback from PAC on layout, design, and functionality of CREAlso received increased requests to house things on NCC site; each committee had products and/or resources to postDecided to overhaul NCC site and CRE simultaneously to ensure integration for a cohesive NCC brand, and more importantly, increased functionality for both sitesWorked with web designers through the summer, and soft launched new sites in October 2012
Homepage of new NCC website. Review of the new and noteworthy:Improved and password protected “For NCC Members section,” includes a landing page with coalition-wide info (strategic plan, annual report, etc) as well as committee-specific pages to house meeting related info (minutes/agendas)As of this morning, the username for this section will be NCC (uppercase) and password will be chlamydia (lowercase)Specific area designated for “NCC Products” which allows us to better organize all the materials that our committees produce The “Chlamydia Information” section includes new page on “Performance Management and Chlamydia Screening,” which houses info about HEDIS screening rates The NCC mini-grant case studies are housed under “Innovative Strategies.” Each project has its own page where several of the tools and resources used to implement the projects are linked
Overhaul of the Chlamydia Resource Exchange (CRE):Visual changes—more integrated into the overall look and feel of the NCC website; included on the homepage and not as a whole separate page only; included more diverse images (got rid of the image of the provider, which gave the site a bit of a “clinical” feel)Functionality changes—integrated CRE into the NCC website, so you are not rerouted to another page to access it; streamlined the upload process to one page instead of five; included more search options
“Other efforts”: AHIP is convening roundtables of state insurance commissioners and health plan executives to discuss possible solutions.
Mention that at last year’s meeting we changed our name to the Research Translation Committee, and that John Papp is now the new co-chair.
Surveys will be distributed now.
NCC Update- 2013 Annual Meeting
NCC UPDATE 2013• Overview—Ashley Coffield• Provider Education Committee—Karen Smith• Public Awareness Committee—Yvonne Hamby• SPG: Adolescent Confidentiality—HeatherBoonstra• Research Translation Committee—CharlotteGaydos February 20, 2013
NCC UpdateMISSION To address the high burden of chlamydia in adolescents and young adults by promoting access to comprehensive and high quality health services Young people need us!
NCC UpdateGOALS Educate providers on the importance of screening, timely treatment, partner services, and re-screening as recommended in current guidelines Educate the public on preventing, screening and treating chlamydia and preventing re-infection Translate and disseminate research findings to enhance the prevention of chlamydia and its medical and social consequences Develop & promote policies that ensure access to chlamydia screening and treatment for all populations, especially adolescents and young adults
NCC UpdateMEMBERSHIP 48 members Three committees: Provider Education, Public Awareness, and Research Translation In 2012, we established a Special Policy Group on Adolescent Confidentiality
NCC Update Strategic Plan, February 2012 Update: Why Screen for Chlamydia: A Implementation Guide for Health Care Providers New NCC Website and Improved CRE NCC Monthly Newsletter Annual Report 2012
NCC UpdateMEETING THEMES Working with health plans: how can we be more effective? What other opportunities & challenges do we have? Long-acting contraception: what happens to screening? Boys Confidentiality Pharmacists Sexual health
NCC UpdateNational Coalition for Sexual Health Partnership for Prevention is also manager of the NCSH Launched in October 2012 Currently has 25 members (includes organizations and individuals) Goal is to advance a positive health promotion framework Starting with a small group willing to put in the time to build messages and products Complements but does replace the NCC
NCC UpdateKey Questions for 2013 Steering Committee Membership recruitment: to grow or not to grow? Diversifying funding and sustainability
Priority Projects for 2012 Update and Revise Why Screen Complete Provider Toolkit Complete State Networking Project
Why Screen? Second edition completed and released online Updated all data Expanded and updated sections on EPT, notifying partners, and taking a sexual history Revised section on coding Revised and updated testing recommendations Included information on HEDIS reporting under ACA Developed a diagnosis and treatment diagram
Provider Toolkit Specific provider pathway added to NCC website Easierto locate tools and resources Can be easily updated as new resources are developed Revised and updated “Guide to Chlamydia and STD Resources for Health Care Professionals” went online in October 2012 Included over 20 additions and revisions to resources Clinical practice tools subdivided: 1) Adolescents;
State Networking Project State specific letters sent to 18 states with contacts from ACOG, ACNM, PPFA, AAP, NPWH Names and contact information for key persons in state provided Follow up with those responding Several chapters featured chlamydia and the NCC at state/local meetings, newsletters, or email blasts ACOG had responses from 10/18 states Follow up continues
Other Projects Developed NCC response to National Collaborative for Innovation in Quality Measurement (NCINQ) on Proposed Pediatric Chlamydia Screening and Treatment Measure NCC members alerted and several NCC organizations also responded Developed new collaboration with the NCQA Presentations on chlamydia, NCC, and resources at HEDIS Best Practices conferences in Seattle and DC
Public Awareness Committee2012 Review: 2012 NCC Meeting Stated goal: improving and extending the Chlamydia Resource Exchange (CRE) Led to overhaul of CRE and NCC websites Soft launch in October 2012
Public Awareness Committee2012 Old CRE New CRE
Public Awareness Committee2013 Promotional strategy for NCC website Full website and CRE launch for STD Awareness Month Promotional strategy for CRE—both downloads and uploads Upload challenge to NCC members Links to CRE from other sites Seeking specific types of resources to upload, such as those on adolescents’ rights to confidentiality Postcards and other print materials
Public Awareness Committee2013 Consumer-friendly messages about chlamydia screening What are the existing chlamydia-specific messages for consumers? How might the PAC provide resources health plans can use? Should we do more with social media?
SPECIAL POLICY GROUP(SPG) ON ADOLESCENTCONFIDENTIALITY
SPG Update The NCC will use SPGs to: Focus on a specific topic Address policy issues relevant at the time SPGs will dissolve when objective has been met Confidentiality chosen because it was a recurring issue raised by NCC members but with no focus
SPG Update This SPG launched at 2012 NCC Meeting Participants agreed that confidentiality is emerging as potentially a more significant barrier due to ACA Participants identified questions What are the best levers (federal, state, private sector)? What is currently happening? How can we make an impact/add value?
SPG UpdateAccomplishments in 2012 Prepared a list of resources on confidentiality and updated it throughout the year Wrote a paper that summarizes the issues and describes recent attempts to influence policy Prepared updates about confidentiality-related activities/research for SPG members Developed a hub for confidentiality information on the NCC website
SPG UpdateNext Steps What can we do as an SPG on this issue beyond information sharing and awareness? Is that a sufficient objective to continue an SPG? Other efforts may produce recommendations we can eventually endorse, publicize, and encourage What options do health care providers have now? What other topics should the NCC consider for an SPG?
Research Translation Committee2012 Released 3 Hot Topics: Cost Effectiveness of Chlamydia Screening (June 2012), Thomas Gift Extra-Genital Chlamydia and Gonorrhea Infections (August 2012), John Papp Use of NAATs to Detect Chlamydia in Children Being Evaluated for Suspected Sexual Abuse (November 2012), Margaret Hammerschlag
Research Translation Committee2012 Released 7 Expert Commentaries: Chlamydial Infection Trends and Outcomes, Lizzi Torrone (February 2012) Approaches to Delivering Partner Treatment, Catherine Lindsey Satterwhite(March 2012) Developing Effective Strategies for Increasing Patient Retesting Rates, Wendy Nakatsukasa- Ono and Holly Howard (April 2012) Hot Topics and Overview from the 2012 National STD Prevention Conference, Charlotte Gaydos, Lizzi Torrone, Karen Hoover, and Sarah Goldenkranz (May 2012)
Research Translation Committee2012 Expert Commentaries Continued… Chlamydia Testing Patterns for Commercially Insured Women, Karen Hoover (July 2012) Comparative Effectiveness of POC Tests for Chlamydia in a Clinic Setting, Charlotte Gaydos (September 2012) Practical Strategies for Improving Chlamydia and Gonorrhea Retesting in Your Practice, Wendy Nakatsukasa-Ono and Holly Howard (October 2012)
Research Translation Committee2012 Vehicles for dissemination in 2012 included: NCC Newsletter NCC Website NCSD Newsletter Partnership with Provider Education Committee Please fill out our survey to help us make the RTC products more informative and useful for you in 2013!