Online Multiple Sclerosis educational programs - A General Practitioners' view
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Online Multiple Sclerosis educational programs - A General Practitioners' view
- 1. Online Mul)ple Sclerosis educa)onal programs A General Prac))oner’s view Liliana Laranjo MD, MPH PhD student 2nd ECTRIMS Focused Workshop Lisbon, 7 March 2014
- 2. MS is not a frequent disease in General Prac)ce In Portugal, the average number of MS pa)ents in a GP’s list is ≈1 Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 3. Implica.ons Lack of experience: …Diagnosis …Follow-‐up Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 4. Further complicated by: -‐ Difficulty contac)ng Neurologists -‐ Limited access to certain exams In Portugal, a head MRI is 100x more expensive when ordered by a GP than in the Hospital Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 5. Importance of the GP in MS: -‐ Diagnosis (gatekeeping role) -‐ Longitudinal care -‐ Help the pa)ent navigate the health care system -‐ Pa)ent and family support -‐ Holis)c view -‐ Care coordina)on between all health care professionals Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 6. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view Health informa.on technology HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 7. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion Electronic Health records -‐ Care coordina)on -‐ Safety -‐ Clinical decision support -‐ Improved care management Health Informa)cs in the cloud (Braunstein M, 2013)
- 8. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view Personal Health Records – A guide for Clinicians (Al-‐Ubaydli, 2011) HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion Personal Health records
- 9. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 10. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view ‘Physicians, especially those in primary care, were frustrated when demands for greater quan)ty of care limited the )me they could spend with each pa)ent, detrac)ng from the quality of care in some cases.’ Friedberg M et al. Factors Affec)ng Physician Professional Sa)sfac)on and Their Implica)ons for Pa)ent Care, Health Systems, and Health Policy HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 11. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view ‘Electronic health records were a source of both promise and frustra)on, with major concerns about interoperability between systems and with the amount of physician )me involved in data entry.’ Friedberg M et al. Factors Affec)ng Physician Professional Sa)sfac)on and Their Implica)ons for Pa)ent Care, Health Systems, and Health Policy HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 12. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion 1. Social media 2. GP – Neurologist interac)on 3. Educa)onal programmes
- 13. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion 1. Social media 2. GP – Neurologist interac)on 3. Educa)onal programmes
- 14. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view Social media Physicians should be able to advise pa)ents regarding: • Good informa)on sites (HON code) • Danger of erroneous health informa)on online • Online social networks for social support HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 15. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion Social media – online social networks for pa.ents
- 16. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view Social media for physicians (e.g medical community sites; physician mailing lists) • Informa)on and knowledge exchange • Share clinical cases • Benefit from the collec)ve wisdom of the network HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 17. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion
- 18. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion 1. Social media 2. GP -‐ Neurologist interac.on 3. Educa)onal programmes
- 19. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion GP – Neurologist interac.on: -‐ Facilitated communica)on (e.g. secure email, EHR) -‐ Bilateral informa)on exchange -‐ Telemedicine
- 20. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion 1. Social media 2. GP – Neurologist interac)on 3. Educa.onal programmes
- 21. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion Educa.onal programmes: -‐ Unbiased, industry-‐free -‐ Evidence-‐based -‐ Asynchronous -‐ Focused on the specific needs and role of the GP in MS (e.g. community-‐based care; pa)ent and family support, common complica)ons and comorbidi)es; care coordina)on)
- 22. Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view HIT -‐ benefits Opportuni)es & challenges HIT -‐ limita)ons MS in General Prac)ce Conclusion The role of GPs in MS care can be leveraged by HIT: • Social media • Web-‐enabled communica)on between GPs and Neurologists • Online educa)onal programmes Before adding more technology to the life of over-‐burdened physicians, cost-‐ effec)veness should be demonstrated
- 23. liliana.laranjo@gmail.com @LilianaLaranjo “Medicine has built on a long history of innova)on, from the stethoscope (…) to magne)c resonance imaging (…) Doctors have embraced each new technology to advance pa)ent care. But nothing has changed clinical prac)ce more fundamentally than one recent innova)on: the internet.” Online Mul)ple Sclerosis educa)onal programs -‐ A General Prac))oner’s view