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HIV AIDS EPIDEMIC:2012
           Where are we and where are we going?




Rotary Club of Nigdi       12/10/2012             1
30 years of HIV Epidemic
        1981 TO 2012

 1981-Ist case of AIDS described in homosexuals in
             USA.
 1983-Viral etiology determined , Montagnier in
             France, Gallo in USA.
 1986-Ist case of AIDS in India ( Bombay)
 And in 2012........




                         12/10/2012   Rotary Club of Nigdi   2
2012: HIV IS STILL AN ISSUE
   350 lakh people are infected with HIV worldwide

   More than 96% are in low and middle income countries- in Asia
    and Africa

   India has 25 lakh people infected with HIV- stands third after Sub
    Saharan Africa and Nigeria

   Still 26 lakh new infections occur every year around the world
    and 18 lakh deaths from HIV/AIDS.

 6000      young people are dying of HIV every
    day                           12/10/2012   Rotary Club of Nigdi   3
High Prevalence States
 Andhra Pradesh
 Karnataka
 Maharashtra
 Tamilnadu
 Manipur/ Nagaland




20% of HIV infected are in Maharashtra
                 12/10/2012   Rotary Club of Nigdi   4
High Prevalence Districts

   Thane              * Mumbai
   Sangli             * Jalgaon
   Pune
   Aurangabad
   Chandrapur
   Latur
   Ratnagiri
   Thane

                    12/10/2012   Rotary Club of Nigdi   5
The problem is……

Behind every one known case there are
      10 unknown cases of HIV




                  12/10/2012   Rotary Club of Nigdi   6
BASICS OF HIV/AIDS


          12/10/2012   Rotary Club of Nigdi   7
WHAT IS HIV?

H    HUMAN.
I   IMMUNODEFICIENCY.
V   VIRUS.




                 12/10/2012   Rotary Club of Nigdi   8
WHAT IS AIDS?


A   ACQUIRED.
I   IMMUNE
D   DEFICIENCY
S   SYNDROME.




                  12/10/2012   Rotary Club of Nigdi   9
How HIV Is Transmitted?




              12/10/2012   Rotary Club of Nigdi   10
Waves in Spread of HIV
      Epidemic



           Core
           Group
        Bridge Population-
        mostly males

        Women &
        Children


                12/10/2012   Rotary Club of Nigdi   11
How HIV Is Not Transmitted?
How HIV Is Not Transmitted?
Symptoms of AIDS.
   HIV infection remain silent for 8 to 10 years

 Unexplained weight loss
 Persistent fever
 Prolonged diarrhea
 Persistent cough
 Skin infections
 Tuberculosis
 Herpes zoster


Diagnosis cannot be made on the basis of symptoms
  only.
HIV Blood Test Is Important
                                12/10/2012   Rotary Club of Nigdi   14
HIV MEANS DEATH?

 HIV is no more a fatal disease
 It is a chronic manageable disease like
  diabetes, hypertension and asthma




                       12/10/2012   Rotary Club of Nigdi   15
Normal life span after HIV
infection
              A- ANTI (AGAINST)
        R- RETROVIRAL ( RETROVIRUS)
          T –THERAPY (TREATMENT)



           TEST AND TREAT
                 ART


  HIV                                                   AIDS


                    12/10/2012   Rotary Club of Nigdi          16
HIV IS A “SILENT” DISEASE.
An Epidemic of “Silence”
 ◦ Social, cultural taboos prevent free discussion

  on sexuality and therefore on HIV

 ◦ People don’t know how and where to access

  help

 ◦ People don’t want to be seen asking

 ◦ Ignorance leads to panic or indifference

                      12/10/2012   Rotary Club of Nigdi   17
Breaking the silence…..
    Phone is easy to use, its everywhere

    Can get accurate information from experts

    It’s anonymous

    It’s there when you need it

    There is cell phone with about 80% of the
     population

 Samvad          HIV Helpline is a solution
                         12/10/2012   Rotary Club of Nigdi   18
What Does Samvad Helpline
Do?
1.   Provides up-to-date and accurate information,

2.   Promotes safer behavior

3.   Provide referrals to existing services for HIV in the

     location of the caller

4. Crisis support: prevents suicides

5. Avenue for venting, provides psychological

     support


                              12/10/2012   Rotary Club of Nigdi   19
Sample of questions asked
 ◦ Am I at risk in my specific situation?

 ◦ What should I do to live longer?

 ◦ Where do I get tested?

 ◦ My daughter’s marriage – what can I do for her?

 ◦ How do I break the news to my spouse?

 ◦ How do I register for government schemes?

 ◦ Can I have children?

 ◦ How do I protect my wife?

                            12/10/2012   Rotary Club of Nigdi   20
How do we do this?
   Anonymous, confidential service

   Showing empathy and non judgmental attitude

   Understanding the life context of the caller

   Counseling that provides actionable insight not just
    for HIV but related life problems too

   Getting to the story behind the story

   Dealing with guilt, anxiety, phobia, anger,
    frustration and fear
                           12/10/2012   Rotary Club of Nigdi   21
Journey of Samvad HIV
       Helpline
      2005-2012




         12/10/2012   Rotary Club of Nigdi   22
12/10/2012   Rotary Club of Nigdi   23
12/10/2012   Rotary Club of Nigdi   24
12/10/2012   Rotary Club of Nigdi   25
AASHA                               SAMPARK




        CBS




 SMS                                  ANKUR




              12/10/2012   Rotary Club of Nigdi   26
12/10/2012   Rotary Club of Nigdi   27
Reminder service
• ART medicine
•CD4 Testing




                   12/10/2012   Rotary Club of Nigdi   28
12/10/2012   Rotary Club of Nigdi   29
12/10/2012   Rotary Club of Nigdi   30
12/10/2012   Rotary Club of Nigdi   31
Why work in the field of HIV at
             all?




                12/10/2012   Rotary Club of Nigdi   32
Why work for HIV patients at all?



People get HIV because of their “wrong
                deeds”




                 12/10/2012   Rotary Club of Nigdi   33
We can throw stones at others if we have
  never committed a crime in our life      34
Which disease is not
“manmade”?
 Heart disease
 Diabetes
 Cancer
 Blindness
 COPD………….




                  12/10/2012   Rotary Club of Nigdi   35
12/10/2012   Rotary Club of Nigdi   36
“There are lot of funds in HIV”
 Recession in US and Europe will
  revert the tide of epidemic
 Continued funds will ensure that we
  capitalize on the gains of 3 decades of
  efforts
 “Hatti nikal gaya, ab punch rah gayi
  hai”

   Learn from Leprosy. Its back.
                    12/10/2012   Rotary Club of Nigdi   37
Why spent money on a HIV
helpline?
 Information is power
 It acts as a catalyst for uptake of all
  other services
 One rupee spent on prevention will
  save Eight rupees on treatment




                    12/10/2012   Rotary Club of Nigdi   38
12/10/2012   Rotary Club of Nigdi   39
Thank you
                            Contact person
                         Muktaa Charitable Trust

                               020-26383456
                        Web : http://www.mcf.org.in
                       E-mail : contactus@mcf.org.in
                           Blog: blog.mcf.org.in




Rotary Club of Nigdi                   12/10/2012      40
 Tuberculosis
 Cancer
 Infant hearing screening
 Helpline in other health related
  issues



                       12/10/2012   Rotary Club of Nigdi   41
◦ 1.8 million new cases occurring every year in India
◦ Every Day more than 5000 develop TB disease
◦ 1000 people die of TB: the highest number in the world .


            2 deaths every 3 minutes

    Tuberculosis is a treatable and preventable disease.
      What is needed is knowledge about the disease

          Plan to start TB Helpline by this year end

                                12/10/2012   Rotary Club of Nigdi   42
   India has the highest number of oral cancer cases in the world.

   Of 7-8 lakh registered cancer cases every year, 40% are of oral

    cancer. Annually 130,000 people succumb to oral cancer in India.

   60 to 80 % present in advanced stage.

   14 people, mostly young, die of oral cancer every hour.

   Diagnosed early, these premature deaths are preventable




                                       12/10/2012   Rotary Club of Nigdi   43
12/10/2012   Rotary Club of Nigdi   44
 Approximately 1%-2% of newborns
  are born with hearing loss.
 If diagnosed before age of 6 months,
  prevent permanent loss of speech,
  language, and learning skills
 This project is just yet in idea stage




                  12/10/2012   Rotary Club of Nigdi   45
Thank U




          12/10/2012   Rotary Club of Nigdi   46

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Samvad hiv helpline

  • 1. HIV AIDS EPIDEMIC:2012 Where are we and where are we going? Rotary Club of Nigdi 12/10/2012 1
  • 2. 30 years of HIV Epidemic 1981 TO 2012  1981-Ist case of AIDS described in homosexuals in USA.  1983-Viral etiology determined , Montagnier in France, Gallo in USA.  1986-Ist case of AIDS in India ( Bombay)  And in 2012........ 12/10/2012 Rotary Club of Nigdi 2
  • 3. 2012: HIV IS STILL AN ISSUE  350 lakh people are infected with HIV worldwide  More than 96% are in low and middle income countries- in Asia and Africa  India has 25 lakh people infected with HIV- stands third after Sub Saharan Africa and Nigeria  Still 26 lakh new infections occur every year around the world and 18 lakh deaths from HIV/AIDS.  6000 young people are dying of HIV every day 12/10/2012 Rotary Club of Nigdi 3
  • 4. High Prevalence States  Andhra Pradesh  Karnataka  Maharashtra  Tamilnadu  Manipur/ Nagaland 20% of HIV infected are in Maharashtra 12/10/2012 Rotary Club of Nigdi 4
  • 5. High Prevalence Districts  Thane * Mumbai  Sangli * Jalgaon  Pune  Aurangabad  Chandrapur  Latur  Ratnagiri  Thane 12/10/2012 Rotary Club of Nigdi 5
  • 6. The problem is…… Behind every one known case there are 10 unknown cases of HIV 12/10/2012 Rotary Club of Nigdi 6
  • 7. BASICS OF HIV/AIDS 12/10/2012 Rotary Club of Nigdi 7
  • 8. WHAT IS HIV? H HUMAN. I IMMUNODEFICIENCY. V VIRUS. 12/10/2012 Rotary Club of Nigdi 8
  • 9. WHAT IS AIDS? A ACQUIRED. I IMMUNE D DEFICIENCY S SYNDROME. 12/10/2012 Rotary Club of Nigdi 9
  • 10. How HIV Is Transmitted? 12/10/2012 Rotary Club of Nigdi 10
  • 11. Waves in Spread of HIV Epidemic Core Group Bridge Population- mostly males Women & Children 12/10/2012 Rotary Club of Nigdi 11
  • 12. How HIV Is Not Transmitted?
  • 13. How HIV Is Not Transmitted?
  • 14. Symptoms of AIDS.  HIV infection remain silent for 8 to 10 years  Unexplained weight loss  Persistent fever  Prolonged diarrhea  Persistent cough  Skin infections  Tuberculosis  Herpes zoster Diagnosis cannot be made on the basis of symptoms only. HIV Blood Test Is Important 12/10/2012 Rotary Club of Nigdi 14
  • 15. HIV MEANS DEATH?  HIV is no more a fatal disease  It is a chronic manageable disease like diabetes, hypertension and asthma 12/10/2012 Rotary Club of Nigdi 15
  • 16. Normal life span after HIV infection A- ANTI (AGAINST) R- RETROVIRAL ( RETROVIRUS) T –THERAPY (TREATMENT) TEST AND TREAT ART HIV AIDS 12/10/2012 Rotary Club of Nigdi 16
  • 17. HIV IS A “SILENT” DISEASE. An Epidemic of “Silence” ◦ Social, cultural taboos prevent free discussion on sexuality and therefore on HIV ◦ People don’t know how and where to access help ◦ People don’t want to be seen asking ◦ Ignorance leads to panic or indifference 12/10/2012 Rotary Club of Nigdi 17
  • 18. Breaking the silence…..  Phone is easy to use, its everywhere  Can get accurate information from experts  It’s anonymous  It’s there when you need it  There is cell phone with about 80% of the population Samvad HIV Helpline is a solution 12/10/2012 Rotary Club of Nigdi 18
  • 19. What Does Samvad Helpline Do? 1. Provides up-to-date and accurate information, 2. Promotes safer behavior 3. Provide referrals to existing services for HIV in the location of the caller 4. Crisis support: prevents suicides 5. Avenue for venting, provides psychological support 12/10/2012 Rotary Club of Nigdi 19
  • 20. Sample of questions asked ◦ Am I at risk in my specific situation? ◦ What should I do to live longer? ◦ Where do I get tested? ◦ My daughter’s marriage – what can I do for her? ◦ How do I break the news to my spouse? ◦ How do I register for government schemes? ◦ Can I have children? ◦ How do I protect my wife? 12/10/2012 Rotary Club of Nigdi 20
  • 21. How do we do this?  Anonymous, confidential service  Showing empathy and non judgmental attitude  Understanding the life context of the caller  Counseling that provides actionable insight not just for HIV but related life problems too  Getting to the story behind the story  Dealing with guilt, anxiety, phobia, anger, frustration and fear 12/10/2012 Rotary Club of Nigdi 21
  • 22. Journey of Samvad HIV Helpline 2005-2012 12/10/2012 Rotary Club of Nigdi 22
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  • 25. 12/10/2012 Rotary Club of Nigdi 25
  • 26. AASHA SAMPARK CBS SMS ANKUR 12/10/2012 Rotary Club of Nigdi 26
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  • 28. Reminder service • ART medicine •CD4 Testing 12/10/2012 Rotary Club of Nigdi 28
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  • 31. 12/10/2012 Rotary Club of Nigdi 31
  • 32. Why work in the field of HIV at all? 12/10/2012 Rotary Club of Nigdi 32
  • 33. Why work for HIV patients at all? People get HIV because of their “wrong deeds” 12/10/2012 Rotary Club of Nigdi 33
  • 34. We can throw stones at others if we have never committed a crime in our life 34
  • 35. Which disease is not “manmade”?  Heart disease  Diabetes  Cancer  Blindness  COPD…………. 12/10/2012 Rotary Club of Nigdi 35
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  • 37. “There are lot of funds in HIV”  Recession in US and Europe will revert the tide of epidemic  Continued funds will ensure that we capitalize on the gains of 3 decades of efforts  “Hatti nikal gaya, ab punch rah gayi hai”  Learn from Leprosy. Its back. 12/10/2012 Rotary Club of Nigdi 37
  • 38. Why spent money on a HIV helpline?  Information is power  It acts as a catalyst for uptake of all other services  One rupee spent on prevention will save Eight rupees on treatment 12/10/2012 Rotary Club of Nigdi 38
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  • 40. Thank you Contact person Muktaa Charitable Trust 020-26383456 Web : http://www.mcf.org.in E-mail : contactus@mcf.org.in Blog: blog.mcf.org.in Rotary Club of Nigdi 12/10/2012 40
  • 41.  Tuberculosis  Cancer  Infant hearing screening  Helpline in other health related issues 12/10/2012 Rotary Club of Nigdi 41
  • 42. ◦ 1.8 million new cases occurring every year in India ◦ Every Day more than 5000 develop TB disease ◦ 1000 people die of TB: the highest number in the world . 2 deaths every 3 minutes Tuberculosis is a treatable and preventable disease. What is needed is knowledge about the disease Plan to start TB Helpline by this year end 12/10/2012 Rotary Club of Nigdi 42
  • 43. India has the highest number of oral cancer cases in the world.  Of 7-8 lakh registered cancer cases every year, 40% are of oral cancer. Annually 130,000 people succumb to oral cancer in India.  60 to 80 % present in advanced stage.  14 people, mostly young, die of oral cancer every hour.  Diagnosed early, these premature deaths are preventable 12/10/2012 Rotary Club of Nigdi 43
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  • 45.  Approximately 1%-2% of newborns are born with hearing loss.  If diagnosed before age of 6 months, prevent permanent loss of speech, language, and learning skills  This project is just yet in idea stage 12/10/2012 Rotary Club of Nigdi 45
  • 46. Thank U 12/10/2012 Rotary Club of Nigdi 46