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A Conceptual Framework for
Determining Health Information
      Quality Indicators
1.   Motivation
2.   Issues
3.   Objective/Method
4.   Results/Conclusions
5.   Ongoing/Future work
Motivation
• More/better use of health information.
• Safe sharing.
  – Out of context use
  – Aggregated data, disparate sources
  – At point of care
• Judgement on whether to use/rely on
  information.
Issues
• Wanting to make use of this information.
• Information collected and stored will have
  some level of quality issues e.g. accuracy.
• Good quality information is required for
  effective use.
• What is good quality information?
Issues
“Data are of high quality if they are fit for their
  intended uses in operations, decision
  making, and planning. Data are fit for use if
  they are free of defects and possess desired
  features”

• In the absence of any indication, a judgment
  as to the information's fitness for use must be
  made.
Issues
• Is there enough information, or enough
  desired information, to allow for a judgement.
• Ensuring patient safety is not compromised.
• Out of context use, where determinations of
  quality are especially challenging.
• What do information users want to know
  about the information that aids them in the
  judgment.
Objectives/Method
• Needed to identify:
  – How the information is currently used and relied
    on?
  – What aspects of information, currently
    available, influence a user’s perception of the
    quality of that information?
  – What additional data could be made available that
    would further assist users in their assessment of
    quality?
Objectives/Method
• Semi-structured interviews using vignettes.
• Three areas of health information used:
  – Adverse events
  – Medical history
  – Medicines list
• Ratings exercise.
Results
• Transcribed interviews
• Thematic analysis of transcripts using NVivo
• Some statistical analysis of ratings exercise.
Results
                                      Quality Criteria                                                        Interviewees
                                                                                                Dr.A   Dr.B    Dr. C   Dr.D   Dr.E   Dr.F
1 : Indication of contradictory entries                                                          1      2       1       1      0      3
2 : Knowing information was produced at an organisation known for its expertise in that field    1      3       1       3      0      2
3 : Knowing information was produced at an organisation that has a good reputation               2      4       0       1      0      6
4 : Attestation of entries recorded                                                              0      0       0       1      0      0
5 : Internal consistancy or cohesion of record                                                   2      3       1       2      0      1
6 : Positive or negative personal experience with provider                                       1     13       1       5      0      9
7 : Qualifications, experience and position of person attesting to information                   1      0       0       2      0      0
8 : Contextual narrative for event for entry                                                     6      3       1      13      0      9
9 : Indication of where to go for further information                                            0      2       0       4      0      5
10 : Knowing the qualifications of the clinician involved in healthcare event                    2      2       3       8      0      1
11 : Years of experience of the clinician                                                        0      4       0       6      0      1
12 : Age of the data                                                                             0      0       0       6      0      1
13 : Reason for change of entry                                                                  1      0       0       4      0      3
14 : Where the information was captured                                                          0      0       0       1      0      0
15 : Position held by the clinician                                                              1      1       0       3      0      1
16 : Knowing testing methodology for test results                                                0      0       0       0      0      0
17 : Knowing the length of time from information captured to information recorded                0      0       0       0      0      0
18 : Knowing the qualifications of the recorder of the information                               0      0       0       0      0      0
19 : Who has been responsible for storing the information                                        0      0       0       0      0      0
20 : Years of experience of the recorder of the information                                      0      0       0       0      0      0
21 : Position held by the recorder of the information                                            0      0       0       0      0      0
Results               Interviewees                             Count
                         Quality Criteria                                                       Average Total
                                                                Dr.A Dr.B Dr.C Dr.D Dr.E Dr.F                   1 2 3 4
C1    Indication of contradictory entries                         4    4    4    4     4   4          4    24         6
C2    Knowing information was produced at an organisation         3    4    4    4     4   2
      known for its expertise in that field                                                          3.5   21       1 1 4
C3    Knowing the information was produced at an                  2    4    4    4     4   3
      organisation that has a good reputation                                                        3.5   21     1 1 4
C4    Attestation of entries recorded                             2    4    3    4     4   4         3.5   21     1 1 4
C5    Internal consistency/cohesion of record                     4    3    3    3     4   4         3.5   21       3 3
C6    Positive/negative personal experience with provider         4    4    3    4     2   3        3.33   20     1 2 3
C7    Qualifications, experience and position of person           2    4    4    4     2   4                      2
      attesting to information                                                                      3.33   20         4
C8    Contextual narrative for event for entry                    4    2    3    4     3   4        3.33   20     1 2 3
C9    Indication of where to go for further information           4    1    3    4     4   4        3.33   20   1   1 4
C10   Knowing the qualifications of the clinician involved in     4    1    4    3     4   3
      healthcare event                                                                              3.17   19   1   2 3
C11   The years of experience of the clinician                    3    3    3    4     3   3        3.17   19       5 1
C12   Age of the data                                             4    2    2    4     3   4        3.17   19     2 1 3
C13   Reason for change of entry e.g. change of diagnosis or      4    2    2    4     3   4                      2
      change in prescribed medication                                                               3.17   19       1 3
C14   Where the information was captured                          2    4    2    4     4   2          3    18     3   3
C15   The position held by the clinician                          1    1    4    4     4   3        2.83   17   2   1 3
C16   Knowing testing methodology for test results                4    3    1    2     4   1         2.5   15   2 1 1 2
C17   Knowing length of time from information captured to         2    4    1    2     4   2                    1 3
      information recorded                                                                           2.5   15         2
C18   Knowing the qualifications of the recorder of the           1    1    1    4     2   4                    3
      information                                                                                   2.17   13     1   2
C19   Who has been responsible for storing the information        1    1    2    3     2   1        1.67   10   3 2 1
C20   The years of experience of the recorder of the              1    3    1    1     1   3                    4   2
      information                                                                                   1.67   10
C21   The position held by the recorder of the information        1    1    1    2     1   3         1.5    9   4 1 1
Results
• C3: “In one site I would have some considerable
  confidence that in fact the information presented
  to me was true and valid. In another site I would
  have to go off into a routine of actually justifying
  that information because I don't have the
  confidence that it's true.”
• C6: “I mean if you produce generally rubbish
  notes, then do I believe the answers you put
  there? Ah, no.”
Results
• C1: “What's the bottom line here. If the
  bottom line doesn't make any sense to the top
  line, that's when you start reading.”
• C9: “I suppose in that particular case I raised
  one of the difficulties was finding where the
  information was. So perhaps some indication
  of "if you need further information about
  this, this is where you could go.”
Conceptual Framework
Conclusions
• For Organisational and Personal
  criteria, appear to rely on tacit knowledge and
  community knowledge.
• Past experience counted highly when
  assessing fitness for use (quality of data).
• For Intrinsic and Contextual, appear to use
  professional experience, built up over time.
• Much of the process is an ad hoc procedure
  based on tacit knowledge and experience.
Conclusions
• Gap in providing GPs with accompanying, or
  enough, information for determination of
  fitness for use.
• Interviewees felt there were criteria, if made
  available, that would positively assist in the
  process.
• Interviewees felt quality indicators for
  information, at point of care, could be
  beneficial.
Ongoing/Future Work
• Quality Criteria used as inputs to generate
  Quality Indicators (QI).
• Modelling Quality Criteria (QC).
• Information Model to operate over.
  – will extend Continuity of Care Record standard
• Implement models and processing algorithm
  within a system.
  – show that QC can be implemented and processed
    over the information model to produce QIs

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A Conceptual Framework for Determining Health Information Quality Indicators

  • 1. A Conceptual Framework for Determining Health Information Quality Indicators
  • 2. 1. Motivation 2. Issues 3. Objective/Method 4. Results/Conclusions 5. Ongoing/Future work
  • 3. Motivation • More/better use of health information. • Safe sharing. – Out of context use – Aggregated data, disparate sources – At point of care • Judgement on whether to use/rely on information.
  • 4. Issues • Wanting to make use of this information. • Information collected and stored will have some level of quality issues e.g. accuracy. • Good quality information is required for effective use. • What is good quality information?
  • 5. Issues “Data are of high quality if they are fit for their intended uses in operations, decision making, and planning. Data are fit for use if they are free of defects and possess desired features” • In the absence of any indication, a judgment as to the information's fitness for use must be made.
  • 6. Issues • Is there enough information, or enough desired information, to allow for a judgement. • Ensuring patient safety is not compromised. • Out of context use, where determinations of quality are especially challenging. • What do information users want to know about the information that aids them in the judgment.
  • 7. Objectives/Method • Needed to identify: – How the information is currently used and relied on? – What aspects of information, currently available, influence a user’s perception of the quality of that information? – What additional data could be made available that would further assist users in their assessment of quality?
  • 8. Objectives/Method • Semi-structured interviews using vignettes. • Three areas of health information used: – Adverse events – Medical history – Medicines list • Ratings exercise.
  • 9. Results • Transcribed interviews • Thematic analysis of transcripts using NVivo • Some statistical analysis of ratings exercise.
  • 10. Results Quality Criteria Interviewees Dr.A Dr.B Dr. C Dr.D Dr.E Dr.F 1 : Indication of contradictory entries 1 2 1 1 0 3 2 : Knowing information was produced at an organisation known for its expertise in that field 1 3 1 3 0 2 3 : Knowing information was produced at an organisation that has a good reputation 2 4 0 1 0 6 4 : Attestation of entries recorded 0 0 0 1 0 0 5 : Internal consistancy or cohesion of record 2 3 1 2 0 1 6 : Positive or negative personal experience with provider 1 13 1 5 0 9 7 : Qualifications, experience and position of person attesting to information 1 0 0 2 0 0 8 : Contextual narrative for event for entry 6 3 1 13 0 9 9 : Indication of where to go for further information 0 2 0 4 0 5 10 : Knowing the qualifications of the clinician involved in healthcare event 2 2 3 8 0 1 11 : Years of experience of the clinician 0 4 0 6 0 1 12 : Age of the data 0 0 0 6 0 1 13 : Reason for change of entry 1 0 0 4 0 3 14 : Where the information was captured 0 0 0 1 0 0 15 : Position held by the clinician 1 1 0 3 0 1 16 : Knowing testing methodology for test results 0 0 0 0 0 0 17 : Knowing the length of time from information captured to information recorded 0 0 0 0 0 0 18 : Knowing the qualifications of the recorder of the information 0 0 0 0 0 0 19 : Who has been responsible for storing the information 0 0 0 0 0 0 20 : Years of experience of the recorder of the information 0 0 0 0 0 0 21 : Position held by the recorder of the information 0 0 0 0 0 0
  • 11. Results Interviewees Count Quality Criteria Average Total Dr.A Dr.B Dr.C Dr.D Dr.E Dr.F 1 2 3 4 C1 Indication of contradictory entries 4 4 4 4 4 4 4 24 6 C2 Knowing information was produced at an organisation 3 4 4 4 4 2 known for its expertise in that field 3.5 21 1 1 4 C3 Knowing the information was produced at an 2 4 4 4 4 3 organisation that has a good reputation 3.5 21 1 1 4 C4 Attestation of entries recorded 2 4 3 4 4 4 3.5 21 1 1 4 C5 Internal consistency/cohesion of record 4 3 3 3 4 4 3.5 21 3 3 C6 Positive/negative personal experience with provider 4 4 3 4 2 3 3.33 20 1 2 3 C7 Qualifications, experience and position of person 2 4 4 4 2 4 2 attesting to information 3.33 20 4 C8 Contextual narrative for event for entry 4 2 3 4 3 4 3.33 20 1 2 3 C9 Indication of where to go for further information 4 1 3 4 4 4 3.33 20 1 1 4 C10 Knowing the qualifications of the clinician involved in 4 1 4 3 4 3 healthcare event 3.17 19 1 2 3 C11 The years of experience of the clinician 3 3 3 4 3 3 3.17 19 5 1 C12 Age of the data 4 2 2 4 3 4 3.17 19 2 1 3 C13 Reason for change of entry e.g. change of diagnosis or 4 2 2 4 3 4 2 change in prescribed medication 3.17 19 1 3 C14 Where the information was captured 2 4 2 4 4 2 3 18 3 3 C15 The position held by the clinician 1 1 4 4 4 3 2.83 17 2 1 3 C16 Knowing testing methodology for test results 4 3 1 2 4 1 2.5 15 2 1 1 2 C17 Knowing length of time from information captured to 2 4 1 2 4 2 1 3 information recorded 2.5 15 2 C18 Knowing the qualifications of the recorder of the 1 1 1 4 2 4 3 information 2.17 13 1 2 C19 Who has been responsible for storing the information 1 1 2 3 2 1 1.67 10 3 2 1 C20 The years of experience of the recorder of the 1 3 1 1 1 3 4 2 information 1.67 10 C21 The position held by the recorder of the information 1 1 1 2 1 3 1.5 9 4 1 1
  • 12. Results • C3: “In one site I would have some considerable confidence that in fact the information presented to me was true and valid. In another site I would have to go off into a routine of actually justifying that information because I don't have the confidence that it's true.” • C6: “I mean if you produce generally rubbish notes, then do I believe the answers you put there? Ah, no.”
  • 13. Results • C1: “What's the bottom line here. If the bottom line doesn't make any sense to the top line, that's when you start reading.” • C9: “I suppose in that particular case I raised one of the difficulties was finding where the information was. So perhaps some indication of "if you need further information about this, this is where you could go.”
  • 15. Conclusions • For Organisational and Personal criteria, appear to rely on tacit knowledge and community knowledge. • Past experience counted highly when assessing fitness for use (quality of data). • For Intrinsic and Contextual, appear to use professional experience, built up over time. • Much of the process is an ad hoc procedure based on tacit knowledge and experience.
  • 16. Conclusions • Gap in providing GPs with accompanying, or enough, information for determination of fitness for use. • Interviewees felt there were criteria, if made available, that would positively assist in the process. • Interviewees felt quality indicators for information, at point of care, could be beneficial.
  • 17. Ongoing/Future Work • Quality Criteria used as inputs to generate Quality Indicators (QI). • Modelling Quality Criteria (QC). • Information Model to operate over. – will extend Continuity of Care Record standard • Implement models and processing algorithm within a system. – show that QC can be implemented and processed over the information model to produce QIs

Editor's Notes

  1. Information is a resource utilised widely within organisations for decision making tasks.
  2. How is data quality related. Quality related to context and use. For this research …With a desire to make more, and better, use of information, and information from disparate sources, at the point of care, factors regarding characteristics of the information, and its use, become important. These factors include: