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Family involvement in Treatment – Katie d’Ath Ocd presentation-katie-d ath
1. Supporting your loved one
not their OCD
Family Involvement in OCD
OCD Action Conference
February 2010
Katie d’Ath
www.katiedath.com
2. Can I fix it?
(Can I be fixed?)
No. But you can help.
The OCD sufferer plays the most
important role in their recovery but they
need your support, encouragement and
understanding
Katie d’Ath Feb 2010
3. Supporting your loved on not their OCD
•
•
•
•
Effects of OCD on family members
Understanding how we often respond to OCD
Finding better ways of responding to OCD
Building resilience: agreeing goals and moving
forward
• Shifting the focus from OCD
• Questions and Answers
Katie d’Ath Feb 2010
4. How does OCD affect you?
Depression
Sadness
Shame Hurt
Anger
Guil
t
Frustratio
Anxiety
n
Concern
Resentme
Exhaustio nt
n
Katie d’Ath Feb 2010
5. Introducing the OCD snake
QuickTime™ and a
decompressor
are needed to see this picture.
Katie d’Ath Feb 2010
6. CBT: Exposure & Response Prevention
- Deliberate exposures to the feared
event or stimuli
- then NOT engaging in the ritual
(including reassurance seeking!)
This promotes HABITUATION
Katie d’Ath Feb 2010
7. WHAT WOULD YOU DO IF THERE
WAS A SNAKE IN YOUR HOUSE?
Katie d’Ath Feb 2010
8. Why do we accommodate the
OCD?
• Counter-Intuitive: it’s normal to reassure
someone or help them when they feel bad
• Quicker: Short term gain (long term pain)
• Easier: Short term gain (long term pain)
• Less distressing: In the short term
Katie d’Ath Feb 2010
9. HOW DO WE ACCOMMODATE THE
OCD SNAKE?
Katie d’Ath Feb 2010
10. Accommodation Traps
•
•
•
•
•
•
•
REASSURANCE – “everything will be ok”
AVOIDANCE – avoiding doing things for fear of triggering OCD
RITUALS – participating in OCD rituals
ASSISTANCE WITH DECISIONS AND SIMPLE TASKS
MODIFYING WORK, FAMILY OR SOCIAL ROUTINES
ASSUMING LOVED ONES RESPONSIBILITIES
TOLERATING ABNORMAL BEHAVIOURS OR CONDITIONS
Katie d’Ath Feb 2010
11. Why doesn’t accommodation work?
• Inadvertently sends message it’s okay or
necessary to respond to OCD in this way
• Gives OCD respect it doesn’t merit
• By stepping in you are modeling belief that
they can’t cope and need to be protected
• Unwittingly Sending the message that they
are weak/vulnerable
• ALL OF THESE THINGS HELP MAINTAIN THE
OCD
Katie d’Ath Feb 2010
12. Aims of standing up to the OCD Snake
1.To promote HABITUATION – i.e
allow sufferer to feel the fear and not
do anything to make it better
2.To encourage RISK TAKING –
fighting against the need for certainty
3.To STARVE the OCD Snake of
attention
Katie d’Ath Feb 2010
15. Standing up to the OCD Snake
• Contract: agree what you’re working on
• Help by being consistently unaccommodating
• Alert to OCD’s cunning
• Reward your loved one for sticking with it
• Manage expectations (change rarely happens
overnight,
but persistence pays off)
Katie d’Ath Feb 2010
17. How do I know if it’s the OCD or a
different concern?
• 99% of anxiety experienced by the sufferer is a result
of their OCD.
• Magic question: Ask if they’d feel anxious if you
didn’t help them.
If yes: it’s an OCD thing and needs to be treated
as such
If no: suggest experimenting to test this out
You’ll soon learn to play the OCD snake at it’s
own game.
Katie d’Ath Feb 2010
18. RULE OF THUMB
If, in the short term, the actions:
• help the sufferer to feel better
• relieve anxiety
• provide comfort
WORK TOWARDS NOT DOING IT
It’s food for the OCD Snake!
Katie d’Ath Feb 2010
19. What can you do when it’s not working?
TROUBLESHOOT - did you negotiate the contract
according to the rules? If not renegotiate.
DON’T TAKE IT PERSONALLY - it’s not your fault!
DON’T JUDGE - they are trying their best.
ACCEPT - if your loved one is not ready to change you
can’t force them to but you can change how you respond to
the OCD’s demands.
STICK to the contract even if your loved one is not fulfilling
their part - it’s not IF you’ll stop feeding the OCD it’s WHEN
21. More accommodation leads to:
-More severe OCD
-Greater level of family dysfunction
-More negative attitude towards sufferer
Reduction in accommodation leads to:
-OCD sufferer does better in treatment
-More functional family life
-Better family relationships
22. “Life shrinks or expands in
accordance with one’s courage”
- Anais Nin
www.katiedath.com
Editor's Notes
Introduce Self: Katie d’Ath – cognitive behavioural therapist –
specialize in working with people suffering from OCD and families etc
Different stages – try and make it as relevant as possible
Format – not talk at you – interactive – questions.
Firstly, let’s have a show of hands – who came along today to learn how to fix their loved one’s OCD?
OK – and anyone with OCD who came along to get their loved ones to learn how to fix them?
If lots: Alright, well, I’m afraid you’re going to be disappointed because unfortunately I’m not going to tell you how to get someone better – why do you think that is? (Invite answers)
That’s right – you can’t cure someone’s OCD – or indeed have someone cure your OCD – even the best therapist in the world can’t cure OCD. Certainly you can help and the right therapy can help, but ultimately it’s the person suffering from OCD who plays the most important role in curing themselves.
So if we’re not going to learn how to cure OCD what are we going to do today?
We’ll also briefly discuss the treatment for OCD, so that everyone understands a couple of very important principles before moving on to family involvement.
We’ll look at how OCD affects you as family and loved ones when you live with OCD around you and introduce ways of coping both so that your life is less dominated by OCD and help you maintain a healthy constructive relationship with your loved one suffering from OCD.
Then we will of course look at how you can help? What can you do – (or perhaps more importantly stop doing,) to enhance treatment and help with recovery.
NORMALISE!!!!!!
How does OCD affect relationship with sufferer? How do you feel?
Perhaps here – talk about what it’s like to live with OCD – get an idea of how people cope, what they do etc.
How do these feelings affect your relationship with your loved one?
Compassion towards selves for having these feelings.
Working with OCD sufferers I encourage them to create an image of their OCD as an animal or a monster of some kind – something that helps them to remember that it is the OCD that’s driving them rather than themselves.
Does anyone here have a way that they’ve characterised their OCD?
I give the very same advice to the families and carers of OCD sufferers. Help you to be angry and resentful of the OCD rather than the OCD sufferer.
So I wanted to introduce you to my image of OCD….
On white board.
Why might I characterize OCD as a snake do you think?
Slimey, slippery, unpleasant, cunning, quick – difficult to get hold of, scary, unpredictably etc tenatious.
1st reason for characterising the OCD as a snake is so that you can separate the OCD from your loved one and feel angry resentful etc towards the OCD rather than your loved one.
SO how is it going to help you and your relationship if you can separate the OCD from your loved one?
What other reasons might we have for seeing it as a snake?
Who can tell us what the main principles are in treating OCD (from therapy pov)
(So that you’re denying things to the OCD snake rather than to the OCD sufferer)
OCD vs Intuition
OCD is distressing for the sufferer right? What’s our natural response when we see our loved one suffering or they ask for help if someone falls over and hurts themselves – what’s the first thing you do – go to them and check they’re ok – you try and provide them with comfort. If you have a friend who’s worrying about an exam – what do you do? You try and reassure them that it will be OK – so it’s intuitive to do these things, which is why it’s so easy to fall into OCDs traps.
Can you remember what the main treatment for OCD is? Deliberate exposures to the feared event or stimuli then NOT engaging in the ritual - especially REASSURANCE. So dealing with OCD is counter-intuitive. BUT if you see it as a snake (or a …) then it makes much more sense.
Would you get a broom and try and shoo it away? Would you call someone to come and get rid of it?
You probably wouldn’t say ‘oh hello snake how can I help you? Is there anything I can do to help you or make you more comfortable?
– would you like something to eat? Perhaps a nice big bite of REASSURANCE PIE?
Easier = no battle
Don’t have to watch your loved one struggling if you give in to the ocd.
Because we confuse the OCD with our loved one we are WAY TOO ACCOMMODATING!
Can anyone think of ways in which they may unwittingly be inviting and accommodating to the OCD snake?
Invite people to share stories of what they do…. Give examples to start them off if necessary.
If you can see the OCD as a snake how would that change the way you deal with it?
Take over locking up house?
Not have certain things in their house?
Extra washing of themselves -
Do you reassure your loved one when they’re anxious…
Go through and get examples from people of each of the traps.
Tricky – some of these things work in the short term – especially reassurance – also modifying your life to make it easier – (i.e if you just have to get out the door to get somewhere you’ll take over the responsibility for checking so that you can leave on time – short term helpful – long term maintains the OCD.
The more disrupted your life becomes, the more resentful (understandably) you are likely to feel about your loved one with OCD – the more resented they feel the more upset and anxious they get the greater the OCD.
At the back of your hand out you’ll find a sheet called ‘Recognising and changing accommodation traps’ ….
Remember what the treatment is for OCD? Deliberate exposures to the feared event or stimuli then NOT engaging in the ritual (which is usually designed to alleviate distress) – HABITUATION –i.e getting used to the fear so that it gradually decreases.
So let’s recap: We know what OCD is
We know what the treatment for OCD is – ERP
We’ve talked about how it affects us and
We know how the OCD traps us into feeding it
So – what can we do now to start standing up to the OCD?
Shea Khan doesn’t take any of the OCD snake’s rubbish
Shea Khan is suspicious and doesn’t give in to Kaa easiliy
Kaa is good at tricking Shea Khan
It takes both you - the carer and the suferer to help beat the OCD snake at it’s whiley game.
Watch more snake so they can see that even when you try and resist the snake is very whiley and he tries to convince you he’s on your side….
So both carers and sufferers have to be on their guard!
(Who remembers learning to drive? How did you feel the first time you got behind the wheel? Nervous. How do you feel when you drive now? Both learning that you can do it -you can cope and getting used to it)
Do interactive bit here:
CONTRACT:
But remember: when you learned to drive you did it gradually – you didn’t start in a formula one car on a busy motor way – you started small and worked up – the first time you drove you may have just gone around the block….
So that’s why when people say to people suffering from OCD, just do it – it’s just not that simple – in fact that is nigh on impossible. Imagine if you’d never been in a car and then someone sat you in it and said take part in the grand prix – do you think you’d be able to do it, or do you think you’d be completely overwhelmed and refuse or quit?
Talk about Sufferer needing to be in CONTROL of TREATMENT - can’t force them into things but you can take a very strong stance: see sheet at back. Contract - timelines.
Contract: Challenging but not overwhelming principle – in line with therapy (if in therapy) - think about when you tried to do something difficult.
HELP:
Consistently unaccomodating - ask audience what might happen to stop them from being accomodating etc…what stops us from sticking to our guns?
ALERT: In what ways is OCD cunning - again ask for examples.
Reward: Agree rewards (never to do with being more accommodating though!!)
Seeing your loved one distressed
OCD sufferer threats
Worries: Am I doing the right thing?