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Heart of the Matter: Communication about
                                                              Reducing Pediatric Cardiovascular Risk
                                                                          Rebecca R. Moultrie • RTI International, Research Triangle Park, NC

1. Background & Conceptual Model                                                                                                                                                                                 5. Key Findings

■   Atherosclerosis remains the leading cause                                                                        ■        In response, the National Heart, Lung, and                                         ■   Cardiovascular risk factors are regarded as        Patient Materials
    of death in the U.S.                                                                                                      Blood Institute (NHLBI) developed cardio­                                              one of the main health issues for pediatric        ■   Parents and caregivers generally do
    ●   rarely manifests in children and                                                                                      vascular health guidelines for pediatric                                               patient populations yet it is not explicitly           not request materials from health care
        adolescents                                                                                                           care providers based on a formal evidence                                              discussed with patients                                providers
                                                                                                                              review addressing all the CV risk factors                                          ■   Recommendations related to nutrition and
    ●   yet cardiovascular disease (CVD) has                                                                                                                                                                                                                                ●     Those who do are interested in meal
                                                                                                                              simultaneously (family hx, tobacco exposure,                                           diet are considered the most difficult to
        contributing risk factors and risk                                                                                                                                                                                                                                        plans and menus
                                                                                                                              nutrition & diet, growth, overweight/obesity,                                          implement with patients and caregivers
        behaviors beginning in childhood                                                                                                                                                                                                                                    Materials that providers currently use vary
                                                                                                                              lipids, BP, physical act., & diabetes).                                                                                                   ■
                                                                                                                                                                                                                     ●   family culture, limited access to healthy          in terms of content and source
                                                                                                                                                                                                                         food, and lack of parental support play a
                                                                                                                                                                                                                         large role                                     ■   Only a few providers overall reported offering
                               NHLBI INTEGRATED CARDIOVASCULAR HEALTH SCHEDULE 1
                                                                                                                        AGE
                                                                                                                                                                                                                                                                            their patients materials on healthy lifestyles
                    RISK FACTOR              BIRTH-12 M                     1-4 Y                       5-9 Y                      9-11 Y                      12-17 Y                      18-21 Y
               FAMILY HISTORY                      —               At age 3 y, evaluate        Update at each non-      Re-evaluate family hx     Update at each non-      Repeat family hx
                                                                                                                                                                                                                                                                        ■   Providers requested more detail on heart
               (FAM HX) OF
               EARLY CVD
                                                                   Fam Hx for early CVD:
                                                                   parents, grandparents,
                                                                   aunts/uncles, M ≤ 55 y,
                                                                                               urgent health encounter. for early CVD in parents, urgent health encounter. evaluation with patient.
                                                                                                                        grandparents,
                                                                                                                        aunts/uncles,
                                                                                                                                                                                                                     “A normal child, or like a normal healthy              healthy foods
                                                                   F ≤ 65 y. Review with
                                                                   parents, refer prn.
                                                                                                                        M ≤ 55 y,
                                                                                                                        F ≤ 65 y.                                                                                     child, may look skinny to others…
                                                                   (+) Fam Hx identifies
                                                                   children for intensive CV
                                                                   RF attention.
                                                                                                                                                                                                                      grandma or grandpa, you know. This is
               TOBACCO
               EXPOSURE
                                        Advise smoke-free
                                        home; offer smoking
                                                                   Continue active anti-
                                                                   smoking advice with
                                                                                               Begin active anti-
                                                                                               smoking advice with
                                                                                                                          Assess smoking status
                                                                                                                          of child.
                                                                                                                                                       Continue active anti-
                                                                                                                                                       smoking counseling with
                                                                                                                                                                                    Reinforce strong anti-
                                                                                                                                                                                    smoking message.
                                                                                                                                                                                                                      the challenge of trying to say to, to the             “The medical part like checking blood
                                        cessation assistance or
                                        referral to parents.
                                                                   parents. Offer smoking
                                                                   cessation assistance
                                                                   and referral as needed.
                                                                                               child.                     Active anti-smoking
                                                                                                                          counseling or referral as
                                                                                                                                                       patient. Offer smoking
                                                                                                                                                       cessation assistance or
                                                                                                                                                       referral as needed.
                                                                                                                                                                                    Offer smoking cessation
                                                                                                                                                                                    assistance or referral as
                                                                                                                                                                                                                      family, “No, your child is normal. He’s               pressure, etc. is easy. [Materials needed
                                                                                                                                                                                                                      not underweight.” And they come and
                                                                                                                          needed.                                                   needed.

               NUTRITION/DIET           Support breast- feeding    Age 12-24 m, may            Reinforce CHILD 1 diet     Reinforce CHILD 1 diet       Obtain diet information      Review healthy diet with
                                                                                                                                                                                                                                                                            include] additional training web-based
                                                                                                                                                                                                                      say, “Oh, no, he’s underweight. He looks
                                        as optimal to age 12 m     change to cow’s milk        messages.                  messages as needed.          from child and use to        patient.
                                        if possible. Add formula
                                        if breast-feeding
                                                                   with % fat per family &
                                                                   pediatric care provider.
                                                                                                                                                       reinforce healthy diet,
                                                                                                                                                       limitations and provide
                                                                                                                                                                                                                                                                            on nutrition for kids, ways to approach
                                                                                                                                                                                                                      pale and my grandma, my mom told me                   families to help kids with nutrition and
                                        decreases or stops         After age 2 y, fat- free                                                            counseling as needed.
                                        before age 12 m.           milk for all; juice ≤ 4
                                                                   oz/d; transition to CHILD
                                                                   1 Diet by age 2 y.
                                                                                                                                                                                                                      that.” …So it’s always perception that                physical activity. Or a list of resources to
               GROWTH,                  Review family hx for       Chart Ht/Wt/BMI             Chart ht/wt/BMI &          Chart ht/wt/BMI &            Chart ht/wt/BMI &            Review ht/wt/BMI and
               OVERWEIGHT/
               OBESITY
                                        obesity     Discuss wt
                                        for ht tracking, growth
                                                                   classify wt by BMI from
                                                                   age 2, review with
                                                                                               review with parent.        review with parent and
                                                                                               BMI > 85 %ile, crossing child.
                                                                                                         th
                                                                                                                                                       review with child and
                                                                                                                                                       parent.
                                                                                                                                                                                    norms for health with
                                                                                                                                                                                    patient.                          you have to be overweight a little bit,               give to parents. It can be overwhelming
                                        chart, healthy diet.       parent.                     %iles, intensify           BMI > 85th %ile,
                                                                                               diet/activity focus X 6 m. crossing %iles, intensify
                                                                                               If no change      RD
                                                                                                                                                       BMI > 85th %ile, crossing
                                                                                                                                                       %iles, intensify
                                                                                                                                                       diet/activity focus X 6 m.
                                                                                                                                                                                    BMI > 85th %ile,
                                                                                                                                                                                    crossing %iles intensify          especially in the first three or four years of        to pull together all of this information”
                                                                                                                          diet/activity focus X 6 m.                                diet/activity focus X 6 m.
                                                                                               referral, manage per
                                                                                               obesity algorithms.
                                                                                                                          If no change      RD
                                                                                                                          referral, manage per
                                                                                                                                                       If no change      RD
                                                                                                                                                       referral, manage per
                                                                                                                                                       obesity algorithms.
                                                                                                                                                                                    If no change      RD
                                                                                                                                                                                    referral, manage per
                                                                                                                                                                                                                      life, that means healthy in some cultures”             (family practitioner, Washington, DC)
                                                                                               BMI > 95th %ile, manage obesity algorithms.
                                                                                                                                                                                                                      (pediatrician, Chicago)
                                                                                                                                                                                    obesity algorithms.
                                                                                               per obesity algorithms. BMI > 95th%ile, manage          BMI > 95th %ile, manage BMI > 95th %ile, manage
                                                                                                                       per obesity algorithms.         per obesity algorithms. per obesity algorithms.


               1
                   From the National Heart, Lung and Blood Institute Expert Panel Integrated Guidelines on Pediatric Cardiovascular Health and Risk Reduction Summary Report (Table XV.)



                                                                                                                                                                                                                                                                        Guideline Implementation
                                                                                                                                                                                                                 Family Influence                                       ■   Guidelines related to nutrition and diet
                                                                                                                                                                                                                 ■   The following family factors are key barriers          are the most difficult to communicate to
2. Study Objectives                                                                                                                                                                                                  to the implementation of the guidelines                parents and caregivers. Why?
                                                                                                                                                                                                                     ●   socioeconomic status (SES)                         ●     the sensitive nature of discussing
                                                                                                                                                                                                                     ●   attitudes toward overweight and                          weight with patients and families
1. To explore pediatric health care providers’
   knowledge, awareness, and attitudes                                                                                                                                                                                   obesity                                            ●     a family’s socioeconomic status and
   toward NHLBI’s Integrated Pediatric                                                                                                                                                                               ●   perceptions of weight including what is                  lifestyle
   Guidelines for Cardiovascular Health                                                                                                                                                                                  considered healthy                             ■   Other risk factors were deemed easier to
   (anticipated for release 2011);                                                                                                                                                                                   ●   cultural and familial traditions                   implement because of their clinical nature
2. To understand providers’ intended                                                                                                                                                                                                                                        (i.e., blood pressure lab tests)
                                                                                                                                                                                                                 ■   Providers acknowledge the importance of
   implementation of the guidelines; and                                                                                                                                                                             parental involvement and modeling                  ■   Diet was the risk factor discussed most
3. To inform the development of provider                                                                                                                                                                                                                                    frequently with their patients but was also
                                                                                                                                                                                                                     ●   Especially the role of extended family
   and family materials to support guideline                                                                                                                                                                                                                                named as the most challenging
   implementation.
                                                                                                                                                                                                                     “Especially in our area… things like their             “Physical activity and nutrition and diet
                                                                                                                                                                                                                     diet is something that they’ve done for                would be useful to give as guidelines.
                                                                                                                                                                                                                     generations. “We’ve, I’ve always eaten this            For nutrition and diet there are so many
                                                                                                                                                                                                                     way. This is the way my family is.” Or,…               parents that want to know how much and
3. Methods and Analysis                                                                                                                                   4. Sample                                                  again, even telling someone that they’re               amount of milk or food... I don’t think the
                                                                                                                                                                                                                     overweight,…people here say they’re                    parents would count their kids calories
■   Qualitative methodology; in­depth in­person                                                                                                           ■        Interviews were segmented                         thick. “That’s not fat, thick.” But it’s fat.…         every day. Place emphasis on whole grains
    interviews                                                                                                                                                     by location and type of health                    I think they’re, potential barriers is,…is             and health foods rather than counting
                                                                                                                                                                   care provider                                     you’re asking me to be different from the              calories. It is nice to give them guidelines
■   41 Health Care Providers
                                                                                                                                                                                                                     way, not only I’ve been but the way I was              on what they should be doing” (registered
        Pediatricians, FPs, RNs, PAs, NPs, and RDs who:                                                                                                   ■        A total of 41 interviews
    ●                                                                                                                                                                                                                brought up, the way my grandparents…                   nurse, Chicago, IL)
                                                                                                                                                                   60 minutes in length:
        ◆ Practice in Washington, DC, Chicago, IL or                                                                                                                                                                 (pediatrician, Greenville, NC)
                                                                                                                                                                   9 pediatricians, 9 family
           Greenville, NC
                                                                                                                                                                   practitioners, 9 registered
        ◆ Care for at least 15% of patients are under
                                                                                                                                                                   nurses, 5 physician’s assistants
           18 years of age                                                                                                                                         or nurse practitioners, and
        ◆ Have the primary responsibility of direct                                                                                                                9 registered dietitians
           patient care                                                                                                                                            Average participant had prac­
                                                                                                                                                          ■
                                                                                                                                                                                                                 6. Recommendations
■   Reviewed verbatim transcripts of audio­recorded                                                                                                                ticed medicine for 17 years
    interviews and conducted thematic analysis to                                                                                                         ■        46% practiced medicine in
    identify causal and logical statements expressed                                                                                                               suburban areas and 27%                        Patient Materials
    by the informant                                                                                                                                               practiced in large cities                     Materials should be:
                                                                                                                                                                                                                 ■   Culturally appropriate
                                                                                                                                                                                                                 ■   Framed to address immediate benefits to youth as
                                                                                                                                                                                                                     opposed to long­term benefits
Additional Authors on the Study                                                                                      More Information
                                                                                                                                                                                                                 ■   Focused on healthy lifestyles as well as diet
RTI International                                                                                                    *Presenting author:
■ Julia Kish­Doto, PhD, MS                                                                                           Rebecca Moultrie                                                                            Action Steps
                                                                                                                     919.541.6696 · munch@rti.org                                                                Health care providers should consider:
■ Robert Furberg, PhD, MBA
■ Kenneth LaBresh, MD
                                                                                                                     RTI International                                                                           ■   Using existing nutrition­based materials that contain
                                                                                                                     3040 Cornwallis Road                                                                            concrete action steps
National Heart, Lung, and Blood Institute                                                                            Research Triangle Park, NC 27709
                                                                                                                                                                                                                 ■   Assessing existing patient materials prior to use (e.g.,
■ Janet De Jesus, MS, RD                                                                                             Presented at: The International Conference on                                                   “don’t reinvent the wheel”; use evidence­based materials)
                                                                                                                     Communication in Healthcare (ICCH), Chicago,                                                ■   How to involve “influencers” (such as parents, extended
                                                                                                                     IL, October 16–19, 2011
Presenter Disclosures                                                                                                                                                                                                family members, and local schools and grocers) in
■   Rebecca Moultrie has no relationships to                                                                         www.rti.org                                                                                     cardiovascular risk reduction
    disclose.                                                                                                        RTI International is a trade name of Research Triangle Institute.                           ■   Distributing personalized BMI charts to parents/caregivers

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Heart of the Matter: Communication about Reducing Pediatric Cardiovascular Risk

  • 1. Heart of the Matter: Communication about Reducing Pediatric Cardiovascular Risk Rebecca R. Moultrie • RTI International, Research Triangle Park, NC 1. Background & Conceptual Model 5. Key Findings ■ Atherosclerosis remains the leading cause ■ In response, the National Heart, Lung, and ■ Cardiovascular risk factors are regarded as Patient Materials of death in the U.S. Blood Institute (NHLBI) developed cardio­ one of the main health issues for pediatric ■ Parents and caregivers generally do ● rarely manifests in children and vascular health guidelines for pediatric patient populations yet it is not explicitly not request materials from health care adolescents care providers based on a formal evidence discussed with patients providers review addressing all the CV risk factors ■ Recommendations related to nutrition and ● yet cardiovascular disease (CVD) has ● Those who do are interested in meal simultaneously (family hx, tobacco exposure, diet are considered the most difficult to contributing risk factors and risk plans and menus nutrition & diet, growth, overweight/obesity, implement with patients and caregivers behaviors beginning in childhood Materials that providers currently use vary lipids, BP, physical act., & diabetes). ■ ● family culture, limited access to healthy in terms of content and source food, and lack of parental support play a large role ■ Only a few providers overall reported offering NHLBI INTEGRATED CARDIOVASCULAR HEALTH SCHEDULE 1 AGE their patients materials on healthy lifestyles RISK FACTOR BIRTH-12 M 1-4 Y 5-9 Y 9-11 Y 12-17 Y 18-21 Y FAMILY HISTORY — At age 3 y, evaluate Update at each non- Re-evaluate family hx Update at each non- Repeat family hx ■ Providers requested more detail on heart (FAM HX) OF EARLY CVD Fam Hx for early CVD: parents, grandparents, aunts/uncles, M ≤ 55 y, urgent health encounter. for early CVD in parents, urgent health encounter. evaluation with patient. grandparents, aunts/uncles, “A normal child, or like a normal healthy healthy foods F ≤ 65 y. Review with parents, refer prn. M ≤ 55 y, F ≤ 65 y. child, may look skinny to others… (+) Fam Hx identifies children for intensive CV RF attention. grandma or grandpa, you know. This is TOBACCO EXPOSURE Advise smoke-free home; offer smoking Continue active anti- smoking advice with Begin active anti- smoking advice with Assess smoking status of child. Continue active anti- smoking counseling with Reinforce strong anti- smoking message. the challenge of trying to say to, to the “The medical part like checking blood cessation assistance or referral to parents. parents. Offer smoking cessation assistance and referral as needed. child. Active anti-smoking counseling or referral as patient. Offer smoking cessation assistance or referral as needed. Offer smoking cessation assistance or referral as family, “No, your child is normal. He’s pressure, etc. is easy. [Materials needed not underweight.” And they come and needed. needed. NUTRITION/DIET Support breast- feeding Age 12-24 m, may Reinforce CHILD 1 diet Reinforce CHILD 1 diet Obtain diet information Review healthy diet with include] additional training web-based say, “Oh, no, he’s underweight. He looks as optimal to age 12 m change to cow’s milk messages. messages as needed. from child and use to patient. if possible. Add formula if breast-feeding with % fat per family & pediatric care provider. reinforce healthy diet, limitations and provide on nutrition for kids, ways to approach pale and my grandma, my mom told me families to help kids with nutrition and decreases or stops After age 2 y, fat- free counseling as needed. before age 12 m. milk for all; juice ≤ 4 oz/d; transition to CHILD 1 Diet by age 2 y. that.” …So it’s always perception that physical activity. Or a list of resources to GROWTH, Review family hx for Chart Ht/Wt/BMI Chart ht/wt/BMI & Chart ht/wt/BMI & Chart ht/wt/BMI & Review ht/wt/BMI and OVERWEIGHT/ OBESITY obesity Discuss wt for ht tracking, growth classify wt by BMI from age 2, review with review with parent. review with parent and BMI > 85 %ile, crossing child. th review with child and parent. norms for health with patient. you have to be overweight a little bit, give to parents. It can be overwhelming chart, healthy diet. parent. %iles, intensify BMI > 85th %ile, diet/activity focus X 6 m. crossing %iles, intensify If no change RD BMI > 85th %ile, crossing %iles, intensify diet/activity focus X 6 m. BMI > 85th %ile, crossing %iles intensify especially in the first three or four years of to pull together all of this information” diet/activity focus X 6 m. diet/activity focus X 6 m. referral, manage per obesity algorithms. If no change RD referral, manage per If no change RD referral, manage per obesity algorithms. If no change RD referral, manage per life, that means healthy in some cultures” (family practitioner, Washington, DC) BMI > 95th %ile, manage obesity algorithms. (pediatrician, Chicago) obesity algorithms. per obesity algorithms. BMI > 95th%ile, manage BMI > 95th %ile, manage BMI > 95th %ile, manage per obesity algorithms. per obesity algorithms. per obesity algorithms. 1 From the National Heart, Lung and Blood Institute Expert Panel Integrated Guidelines on Pediatric Cardiovascular Health and Risk Reduction Summary Report (Table XV.) Guideline Implementation Family Influence ■ Guidelines related to nutrition and diet ■ The following family factors are key barriers are the most difficult to communicate to 2. Study Objectives to the implementation of the guidelines parents and caregivers. Why? ● socioeconomic status (SES) ● the sensitive nature of discussing ● attitudes toward overweight and weight with patients and families 1. To explore pediatric health care providers’ knowledge, awareness, and attitudes obesity ● a family’s socioeconomic status and toward NHLBI’s Integrated Pediatric ● perceptions of weight including what is lifestyle Guidelines for Cardiovascular Health considered healthy ■ Other risk factors were deemed easier to (anticipated for release 2011); ● cultural and familial traditions   implement because of their clinical nature 2. To understand providers’ intended (i.e., blood pressure lab tests) ■ Providers acknowledge the importance of implementation of the guidelines; and parental involvement and modeling ■ Diet was the risk factor discussed most 3. To inform the development of provider frequently with their patients but was also ● Especially the role of extended family and family materials to support guideline named as the most challenging implementation. “Especially in our area… things like their “Physical activity and nutrition and diet diet is something that they’ve done for would be useful to give as guidelines. generations. “We’ve, I’ve always eaten this For nutrition and diet there are so many way. This is the way my family is.” Or,… parents that want to know how much and 3. Methods and Analysis 4. Sample again, even telling someone that they’re amount of milk or food... I don’t think the overweight,…people here say they’re parents would count their kids calories ■ Qualitative methodology; in­depth in­person ■ Interviews were segmented thick. “That’s not fat, thick.” But it’s fat.… every day. Place emphasis on whole grains interviews by location and type of health I think they’re, potential barriers is,…is and health foods rather than counting care provider you’re asking me to be different from the calories. It is nice to give them guidelines ■ 41 Health Care Providers way, not only I’ve been but the way I was on what they should be doing” (registered Pediatricians, FPs, RNs, PAs, NPs, and RDs who: ■ A total of 41 interviews ● brought up, the way my grandparents… nurse, Chicago, IL) 60 minutes in length: ◆ Practice in Washington, DC, Chicago, IL or (pediatrician, Greenville, NC) 9 pediatricians, 9 family Greenville, NC practitioners, 9 registered ◆ Care for at least 15% of patients are under nurses, 5 physician’s assistants 18 years of age or nurse practitioners, and ◆ Have the primary responsibility of direct 9 registered dietitians patient care Average participant had prac­ ■ 6. Recommendations ■ Reviewed verbatim transcripts of audio­recorded ticed medicine for 17 years interviews and conducted thematic analysis to ■ 46% practiced medicine in identify causal and logical statements expressed suburban areas and 27% Patient Materials by the informant practiced in large cities Materials should be: ■ Culturally appropriate ■ Framed to address immediate benefits to youth as opposed to long­term benefits Additional Authors on the Study More Information ■ Focused on healthy lifestyles as well as diet RTI International *Presenting author: ■ Julia Kish­Doto, PhD, MS Rebecca Moultrie Action Steps 919.541.6696 · munch@rti.org Health care providers should consider: ■ Robert Furberg, PhD, MBA ■ Kenneth LaBresh, MD RTI International ■ Using existing nutrition­based materials that contain 3040 Cornwallis Road concrete action steps National Heart, Lung, and Blood Institute Research Triangle Park, NC 27709 ■ Assessing existing patient materials prior to use (e.g., ■ Janet De Jesus, MS, RD Presented at: The International Conference on “don’t reinvent the wheel”; use evidence­based materials) Communication in Healthcare (ICCH), Chicago, ■ How to involve “influencers” (such as parents, extended IL, October 16–19, 2011 Presenter Disclosures family members, and local schools and grocers) in ■ Rebecca Moultrie has no relationships to www.rti.org cardiovascular risk reduction disclose. RTI International is a trade name of Research Triangle Institute. ■ Distributing personalized BMI charts to parents/caregivers