1. A supplement to
®
Focus on joint pain
vol. 1, no. 2
FREE
3
Ta ke-Home
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Moves that
make your
mornings easier
is psoriatic
arthritis
behind
your joint
pain?
Model turned fashion designer
Tools to get Juretha Lawson tells how...
more from your
next checkup
“RA led to
Compliments of your doctor
my dream
job”
3. “
Rheumatoid Arthritis basics Psoriatic Arthritis basics
For me, it’s The pathway to relief
never been The good news is, you don’t have to just live with the
pain and inflammation of RA—and Lana is proof.
about coping.
“I still work and maintain a work-home life balance,
but I have learned to include my family in tasks that I
used to take on alone,” she says. “There are days when I
It’s been feel physically and emotionally drained. On those days,
all I have to do is look at my sons and see how indepen-
about thriving
dent, strong and empathic they are despite RA in our
A
lives. While my kids think they need me, they don’t
realize that I need them, too.” manda Steyer struggled with
despite RA.” And Lana’s feeling pretty great these days, thanks to
medication, three or four sessions of yoga a week,
joint pain and swelling for so
much of her life, she thought
meditation and prayer. She’s also built a solid, trusting it was normal. “When I was
relationship with her doctor. She was frank about her younger, doctors chalked it up
rheumatoid disease, as it can affect almost every organ. symptoms and provided details (like what her pain felt to growing pains,” says the mother of five
Many cells play a role—and not everyone will experience like, what might have triggered it and what might from Bristol, CT. In addition to the joint
problems with each type of cell. For some, T cells (white make it feel better) that helped him determine the pain, she’d been getting strange rashes on
blood cells that normally help the body fight infections) treatment path that made sense for her. her skin, and was diagnosed with what she
Is
or B cells (which normally produce antibodies) will go “I often tell fellow sufferers that they have the power thought was a separate condition: psoria-
haywire and cause problems. Sometimes cytokines to advocate for themselves,” Lana says. “They can do sis—an autoimmune condition that causes
psoriatic
(proteins that normally regulate the immune system) mal- this by learning about their condition, expressing their patches of thick, red spots on the skin that
function. Various treatments take aim at problem cells. needs and concerns clearly, and opening up about burn and itch.
how the disease affects them. For me, it’s never been “Then I had a very bad flare of arthri-
Why does RA hurt? about coping. It’s been about thriving despite RA. That
means accepting that sometimes there are things—like
tis in my feet and had a lot of testing
done.” Over the next 11 years, Amanda’s
arthritis
During an RA flare, the immune system cells listed the physical aspects of the disease—that are out of your symptoms came and went, and she found
above target your synovium—the delicate lining that control, but knowing that how you respond and fight herself too busy taking care of her fam-
surrounds and cushions your joints and produces fluid back are always in your control.” ily—including her five kids—to figure out
that lubricates the area. As a result, your synovium why the aches and pains never seemed to
becomes swollen and inflamed, putting pressure on go away for good. Then, one morning in
your nerves, which then transmit pain signals to your February 2011, everything changed.
brain. What’s more, the swollen synovium also
protrudes into the joint, where it releases chemicals
Gentle exercise,
like walking, helps
“I woke up and my left ankle wasn’t
working. I had almost no range of behind your
joint pain?
that eat away at the bone. motion. My primary care doctor discov-
keep joints limber ered not only severely limited range of
and reduces pain, motion in my left ankle, but substantially
limited range in my right ankle.” Her
according to a
doctor eventually referred Amanda to
study in Arthritis a rheumatologist, who, after several
Rheumatism. months and many tests, diagnosed her
with psoriatic arthritis (PsA). About 30% of people with
Affecting an estimated 500,000
Americans, PsA is not as well known as
psoriasis develop psoriatic
other forms of arthritis, yet raising aware-
ness is critical. That’s because treatments
arthritis. Luckily, with the right
are now available to control the disease. treatment plan, you can live
And left untreated, PsA can cause perma-
nent and irreversible joint damage. a full and active life.
4 Focus on Joint Pain Supplement to Arthritis health monitor 5
4. “ “W
Psoriatic Arthritis basics COVER story
For me,
humor is the
What you can do RA opened the door
to my dream career!”
If your doctor diagnoses you with PsA, take heart: Many
of today’s medical options can treat both the psoriasis
best coping
and the psoriatic arthritis. Talk to your doctor about
trying one of the many medications available, such as:
skill” Nonsteroidal anti-inflammatory drugs
(NSAIDs) corticosteroids These can ease pain,
inflammation and stiffness, but don’t prevent joint damage. by Katie Alberts
Systemic “body-wide” medications These atching Juretha Lawson pose for the camera, you’d
help relieve symptoms and can limit joint damage. never guess she has rheumatoid arthritis (RA). At
57, she exudes serenity and style and has a long,
Biologics These medications, such as TNF-alpha lean figure women half her age would envy. Her
inhibitors, block a protein called tumor necrosis factor secret? “I eat right, exercise and am lucky that
(TNF) that causes inflammation. Biologics can help medication keeps my RA symptoms in check.”
prevent further joint damage. But things weren’t always so rosy for the model, entrepreneur
What is PsA? and former schoolteacher from Chicago. “Around my 50th
About 30% of people with psoriasis eventually develop Relief is possible! birthday, I began experiencing mysterious pains and unrelenting
fatigue,” she recalls. “I canceled on friends, skipped parties and
PsA, according to the National Psoriasis Foundation. Amanda isn’t letting PsA bring her down. In addition watched my social life go from vibrant to nonexistent. I assumed
Psoriasis is an autoimmune disease that causes scaly to homeschooling and raising her five children with her it was menopause until one morning I woke up unable
skin patches that itch and burn, while PsA is an husband, Jim, she also provides child care for friends and to stand. The bottoms of my feet were so tender
autoimmune disease that causes joint pain. Turns out, neighbors, and is the cofounder and president of Mindful I couldn’t put weight on them, never mind
the same miscommunication between cells that causes Village (fclct.org), a nonprofit organization that provides walk across the room.” With a scarf tied
scaly patches to form on the skin can also cause joint an online community for parents. around her neck and arm to
damage, bringing with it pain in fingers, wrists, knees, “For me, humor is the best coping skill,” Amanda says. stabilize a throbbing shoulder,
hips, ankles, toes, spine and other joints. “My kids help a lot with that aspect of ‘Sporadic Artie,’ as Juretha made it to see her
Most people with PsA develop psoriasis first— we refer to ‘him,’ thanks to my 3-year-old who can’t quite doctor. “Looking back, it
sometimes as early as 10 years before—and then wrap her mouth around ‘psoriatic arthritis.’ was crazy that I drove
develop psoriatic arthritis. But sometimes the joint “Having lots of little kids in the house is also a helpful myself—I could barely
problems begin before skin lesions appear, which coping skill—they keep my joints moving, but also allow steer the car—but I
can delay diagnosis. for a nice balance of cuddling and reading time. During was desperate for relief.”
times my body is acting up, I don’t always mind laying Luckily, relief came quickly
Could you have PsA? there to read them their favorite book over and over and
over again so I don’t have to move!”
once she was diagnosed with
RA. “After I started on my
If you have joint pain, a careful evaluation by a rheumatol- What’s also helped Amanda is staying in touch with medications, I felt much better,
ogist can help you determine the cause. In PsA, a “sausage- her doctors to make sure she is up-to-date on her tests and improved more each day.”
like” swelling of the fingers and toes often accompanies the and to get answers to any questions she might have. “I Juretha did lots of research and
pain. It’s also common to have problems with your nails— found doctors who took the time to really get to know me found out about what she should
they may start to separate from the nail bed, or develop and discuss things fully with me, and whom I can contact eat and what were the best exer-
small depressions on their surface. Morning stiffness and just about any time of day. My rheumatologist has even cises for RA. The one thing she
fatigue are also signs of the illness. In addition to having called me from home to discuss test results!” couldn’t find were clothes that
psoriasis, several factors can increase your risk, including: Amanda also chose to “make friends” with PsA instead fit her new life. “I wanted piec-
Having psoriatic lesions on your nails of fighting with it. “PsA has allowed me to get to the es without zippers and but-
Having a parent or a sibling with the disease heart of what’s really important and let go of the rest. It tons so they were easy to put
Being between ages 30 and 50. Although people has encouraged me to slow down and enjoy the beauty on and take off if my hands
of any age can develop psoriatic arthritis, it occurs around me, and it’s taught me to see the world through swelled up. And they need-
most often during those years. my blessings instead of my hardships.” ed to be ultra-soft, wrinkle-
6 Focus on Joint Pain Supplement to Arthritis health monitor 7
7. 3
wake up right
moves to make mornings easier
If waking up is difficult due to pain and stiffness, you’re not alone. According to the
National Institutes of Health, morning stiffness is one of the most common symptoms of
rheumatoid arthritis and psoriatic arthritis. To the rescue: These gentle stretches you can
do before you even get out of bed!
Lengthen your neck and shoulders
Lie flat on your back with your knees bent and your head
comfortably relaxed on a pillow. Carefully straighten and raise
your arms with your palms facing each other. While keeping
your head on the pillow, exhale and reach both arms to the
ceiling, allowing your shoulders to lift off the bed. Hold this
stretch for 30 seconds and repeat 10-15 times.
Tip! Keep your neck relaxed through the entire range of
motion to allow your arms to fully lengthen both your neck
and shoulder muscles.
Release your neck and back Tip! As you
shift forward and
Sit tall at the edge of the bed carefully arch backward as
back, keep your
and cross both arms behind your you pass through the starting
abdomen tight to
head. Exhale and gently tilt your position and hold for an additional
protect your lower
head and shoulders forward and 5 seconds. Repeat the range
back and strengthen
hold for 5 seconds. Inhale and of motion 12-15 times.
your core.
Tip! Too Check
hard? Simply
rotate wrists
with your
outward and doctor
inward without Get your
incorporating rheumatologist’s
the fist okay before
contraction. starting any
Too easy? new exercise
Remove the program!
pillow and hold
Wake up your hands and wrists your elbows
in the air at a
Sit tall and rest your forearms Rotate both wrists outward as you
90-degree angle
comfortably on a pillow with your stretch all 10 fingers open. Turn both
while doing the
palms facing downward and your hands inward and return fingers to a
move.
hands loosely grasped in a fist. closed fist. Repeat 15-20 rotations.
Exercises developed and modeled by Lisa Robins. Photography: Steven Trujillo of
12 Focus on Joint Pain Trudge Photo, Phoenix, AZ, October 2011. Supplement to Arthritis health monitor 13