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Taming Diabetes
   How can Big Data help?


                   Raj N Manickam   February 2013
Driblets of Data
  Pre-Diagnosis State
More than 317 million people worldwide have diabetes –
half of them don’t know they have it!
In the US alone, over 6 million cases yet to be detected
Conclusion – we can’t stop at monitoring the known cases
– the entire population is our dataset!
Opportunistic self-screening
High risk people identifiable with simple questionnaire to
assess risk factors such as age, waist
circumference, family history, cardiovascular history and
gestational history.
         … all this adds up to substantial data …

            Source: International Diabetes Federation, updated 2012
Diabetes Cannot be Cured – Has
        to be Managed
            What do we need to track?
Appropriate medication, high quality care and good medical advice, you should be able
to lead an active and healthy life and reduce the risk of developing complications.

Keeping your blood sugar levels as close to normal as possible. This can be achieved by
a combination of the following:

Physical Activity Levels

Body Weight

Eating Regimen – types of food, quantify, frequency, time interval, etc.

Tobacco Consumption

Monitoring and Early Detection of Complications – eye, foot, blood pressure, blood
glucose, assessing risks for cardiovascular and kidney disease.
                      … data data everywhere …
Between Office Visits:
             Monitoring @ Home
Different warning signs:
     Frequent urination
     Excessive thirst
     Increased hunger
     Weight loss
     Tiredness
     Lack of interest and concentration
     Vomiting and stomach pain (often mistaken as the flu)
     A tingling sensation or numbness in the hands or feet
     Blurred vision
     Frequent infections
     Slow-healing wounds
     … Need to provision patients with devices to
     collect, analyze, alert, transmit to HCP …
     … along with data on time, location, context – MORE data …
What do we need to track?
   Diabetes is not Alone – Co-morbidities
   Cardiovascular disease - the major cause of death in people with
   diabetes (and much disability)

   Kidney disease (diabetic nephropathy) - increasingly important
   cause of renal failure, and indeed has now become the single most
   common cause of end stage renal disease

   Nerve disease (diabetic neuropathy): can ultimately lead to
   ulceration and amputation of the toes, feet and lower limbs

   Eye disease (diabetic retinopathy)



… these need to be monitored and tracked as well – even more data …
So, I need to manage a *lot* of data –
what is the connection with ‘Big-Data’?
Big-Data – a term referring to the collection of
technologies, platforms, methods to collect, store, process and
publish ‘large’ amounts of data
You need it when:
   Your data volume/velocity/variety needs (current or anticipated)
   are too much for traditional technologies / processes
   You have special needs that can be handled better by non-
   traditional technologies / processes (i.e. elastic
   scalability, unstructured data, streaming data, …)
   Your business needs social, mobile and cloud-based technologies
   and deployments that are better matched with big-data tools
   You could base your solution on traditional technologies, yet you
   are not sure what you need, choose technologies that can flex as
   your needs change.
Do I need big-data?
            Some Rules of Thumb

Volume –storage needs are more a few terabytes and you
are growing
Variety –significant share of non-relational data that
needs to be processed / accessed / presented along with
relational data
Velocity – need to sip from the fire hose
‘Special’ needs:
      Assimilate and integrate social data
      Gather and present from mobile devices
      Tie-in with cloud-based infrastructure
Once I have the big-data –
              what else can I do with it?

A few examples from Health Technology Forum (San
Francisco, March 2013) on Data-driven mHealth Tools for Managing
Diabetes:

•   Feet First, Inc – using a combination of innovative
    devices, tests, processes to screen, monitor, alert and intervene
    in complications affecting the foot

•   ginger.io – using a combination of passive and user-provided
    data from mobile devices to amass massive data volumes that
    help with analyzing and delivering timely care

•   LogicNets – general platform for decision engines used in
    transition of care and continuity of care for in-patients at UCSF
    Hospital
Sounds cool – I’m sold!
   How can I get it, how much does it cost?
Not so fast 
     In general, platforms, tools, technologies, vendors not as mature

     People with the right skills and aptitude hard to find

     Pace of innovation is amazing – can seem like you are building on shifting sands

     You can ‘buy’ a solution or roll out your own, using open-source tools – costs can vary from $800
     per terabyte to $180,000 per terabyte!(1)

     No ‘one neck to choke’ – no ‘one solution’ to buy - you need to procure, assemble, build and
     deploy your own

     Traditional platforms are not standing still – what was ‘big-data’ a few years ago is no longer so




(1) Source: GigaOM, 2012
Conclusions

The answer? Depends
       on asking and answering the right questions


Thank you for reading. You can send comments and
questions to ‘2025rm at gmail dot com’


Feel free to use / re-use under Creative Commons 3.0
license – attribution requested (Creative Commons 3.0)

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Big data in Diabetes Care

  • 1. Taming Diabetes How can Big Data help? Raj N Manickam February 2013
  • 2. Driblets of Data Pre-Diagnosis State More than 317 million people worldwide have diabetes – half of them don’t know they have it! In the US alone, over 6 million cases yet to be detected Conclusion – we can’t stop at monitoring the known cases – the entire population is our dataset! Opportunistic self-screening High risk people identifiable with simple questionnaire to assess risk factors such as age, waist circumference, family history, cardiovascular history and gestational history. … all this adds up to substantial data … Source: International Diabetes Federation, updated 2012
  • 3. Diabetes Cannot be Cured – Has to be Managed What do we need to track? Appropriate medication, high quality care and good medical advice, you should be able to lead an active and healthy life and reduce the risk of developing complications. Keeping your blood sugar levels as close to normal as possible. This can be achieved by a combination of the following: Physical Activity Levels Body Weight Eating Regimen – types of food, quantify, frequency, time interval, etc. Tobacco Consumption Monitoring and Early Detection of Complications – eye, foot, blood pressure, blood glucose, assessing risks for cardiovascular and kidney disease. … data data everywhere …
  • 4. Between Office Visits: Monitoring @ Home Different warning signs: Frequent urination Excessive thirst Increased hunger Weight loss Tiredness Lack of interest and concentration Vomiting and stomach pain (often mistaken as the flu) A tingling sensation or numbness in the hands or feet Blurred vision Frequent infections Slow-healing wounds … Need to provision patients with devices to collect, analyze, alert, transmit to HCP … … along with data on time, location, context – MORE data …
  • 5. What do we need to track? Diabetes is not Alone – Co-morbidities Cardiovascular disease - the major cause of death in people with diabetes (and much disability) Kidney disease (diabetic nephropathy) - increasingly important cause of renal failure, and indeed has now become the single most common cause of end stage renal disease Nerve disease (diabetic neuropathy): can ultimately lead to ulceration and amputation of the toes, feet and lower limbs Eye disease (diabetic retinopathy) … these need to be monitored and tracked as well – even more data …
  • 6. So, I need to manage a *lot* of data – what is the connection with ‘Big-Data’? Big-Data – a term referring to the collection of technologies, platforms, methods to collect, store, process and publish ‘large’ amounts of data You need it when: Your data volume/velocity/variety needs (current or anticipated) are too much for traditional technologies / processes You have special needs that can be handled better by non- traditional technologies / processes (i.e. elastic scalability, unstructured data, streaming data, …) Your business needs social, mobile and cloud-based technologies and deployments that are better matched with big-data tools You could base your solution on traditional technologies, yet you are not sure what you need, choose technologies that can flex as your needs change.
  • 7. Do I need big-data? Some Rules of Thumb Volume –storage needs are more a few terabytes and you are growing Variety –significant share of non-relational data that needs to be processed / accessed / presented along with relational data Velocity – need to sip from the fire hose ‘Special’ needs: Assimilate and integrate social data Gather and present from mobile devices Tie-in with cloud-based infrastructure
  • 8. Once I have the big-data – what else can I do with it? A few examples from Health Technology Forum (San Francisco, March 2013) on Data-driven mHealth Tools for Managing Diabetes: • Feet First, Inc – using a combination of innovative devices, tests, processes to screen, monitor, alert and intervene in complications affecting the foot • ginger.io – using a combination of passive and user-provided data from mobile devices to amass massive data volumes that help with analyzing and delivering timely care • LogicNets – general platform for decision engines used in transition of care and continuity of care for in-patients at UCSF Hospital
  • 9. Sounds cool – I’m sold! How can I get it, how much does it cost? Not so fast  In general, platforms, tools, technologies, vendors not as mature People with the right skills and aptitude hard to find Pace of innovation is amazing – can seem like you are building on shifting sands You can ‘buy’ a solution or roll out your own, using open-source tools – costs can vary from $800 per terabyte to $180,000 per terabyte!(1) No ‘one neck to choke’ – no ‘one solution’ to buy - you need to procure, assemble, build and deploy your own Traditional platforms are not standing still – what was ‘big-data’ a few years ago is no longer so (1) Source: GigaOM, 2012
  • 10. Conclusions The answer? Depends on asking and answering the right questions Thank you for reading. You can send comments and questions to ‘2025rm at gmail dot com’ Feel free to use / re-use under Creative Commons 3.0 license – attribution requested (Creative Commons 3.0)