Over 80 diabetes advocates, researchers, endocrinologists and other diabetes leaders ask US President Barack Obama to take a leading role in the coming UN NCD Summit, September 2011. Show your OUTRAGE to UNITE for a Healthy Future, Sept. 18 in Central Park, NYC: https://www.facebook.com/event.php?eid=242368832453916

1. August
2,
2011
President
Barack
Obama
The
White
House
1600
Pennsylvania
Ave
NW
Washington,
DC
20500
Dear
Mr.
President:
We,
the
undersigned
organizations
and
individuals,
request
that
you
attend
the
United
Nations
High-­‐Level
Summit
on
Non-­‐Communicable
Diseases
(NCD)
in
September
to
push
for
better
health
for
all
of
those
living
with
diabetes.
This
September,
you
and
your
fellow
political
leaders
will
have
a
once-­in-­a-­generation
opportunity
to
halt
a
global
epidemic
that
is
killing
and
disabling
millions
of
people,
impoverishing
families,
and
undermining
economic
progress.
The
UN
NCD
Summit
is
a
chance
for
the
Government
of
the
United
States
of
America
to
play
a
leading
global
role
in
confronting
this
major
threat
to
the
health,
prosperity
and
security
of
all
of
us
and
future
generations.
Together,
the
four
major
NCDs
–
diabetes,
cancer,
heart
disease
and
chronic
respiratory
disease
–
are
the
world’s
number
one
killer.
It
is
estimated
that
some
35
million
people
die
from
NCDs
each
year,
and
14
million
of
these
deaths
could
be
averted
or
delayed.
Diabetes
alone
creates
a
huge
burden
-­‐
over
300
million
people
worldwide
have
diabetes
now,
and
that
figure
will
reach
half
a
billion
within
a
generation
if
we
do
not
act
now.
One
dollar
in
every
eight
spent
across
the
world
on
healthcare
last
year
went
on
diabetes
–
a
staggering
USD378
billion
in
total.
No
country
rich
or
poor
is
immune
from
the
impact.
In
the
US
alone,
there
are
25.8
million
people
with
diabetes,
and
the
Centers
for
Disease
Control
and
Prevention
estimate
that
by
2050,
US
prevalence
will
rise
to
as
many
as
one
in
three
Americans.
EVERY
one
of
us
knows
someone
touched
by
diabetes.
As
a
group
of
committed
diabetes
advocates,
we
ask
you
to
attend
the
UN
Summit
and
work
with
other
political
leaders
to
take
action.
We
have
attached
the
NCD
Alliance’s1
proposals
for
the
Summit
outcomes,
which
we
believe
should
be
the
basis
of
the
political
response
to
NCDs.
The
global
failure
to
invest
in
NCDs
has
led
to
the
current
crisis,
yet
we
have
cost-­‐effective
solutions
that
can
save
lives
and
make
economic
sense.
These
include
action
on
prevention
and
diagnosis
as
well
as
universal
access
to
affordable,
high-­‐quality
essential
medicines
and
medical
technologies.
We
are
also
calling
for
the
establishment
of
a
Stop
NCDs
partnership
to
lead
multi-­‐
sectoral
and
coordinated
action,
and
a
UN
Decade
of
Action
on
NCDs
to
implement
the
commitments
governments
will
make
at
the
UN
Summit
in
New
York.
We
would
be
pleased
to
provide
your
office
with
any
further
information
in
preparation
for
the
UN
Summit.
NCDs
such
as
diabetes
affect
us
all.
Diabetes
increasingly
strikes
children,
threatening
international
economic
progress.
But
we
are
not
powerless.
We
have
achievable
cost-­‐effective
solutions.
We
need
political
leadership
now
to
make
them
a
reality.
Please
be
a
champion
for
Non-­Communicable
Diseases
by
attending
the
UN
Summit
in
September
and
safeguard
the
health
and
prosperity
of
future
generations
in
the
US
and
around
the
world.
Yours
sincerely,
[All
signatures
on
file]
Kelly
Close
(diaTribe)
Research
&
product
news
for
15,000+
people
with
diabetes
Manny
Hernandez
(Diabetes
Hands
Foundation)
Serving
200,000
people
with
diabetes
every
month
Phil
Southerland
(Team
Type
1)
CEO/Founder
Team
Type
1,
author
of
Not
Dead
Yet,
and
complication
free
after
29
years
with
Type
1
Diabetes
due
to
always
having
had
access
to
insulin
and
testing
supplies.
Bruce
Buckingham,
M.D.
(Stanford
Medical
Center)
Professor,
Pediatrics
-­
Division
of
Endocrinology
and
Diabetes
1
The
NCD
Alliance
comprises
the
International
Diabetes
Federation,
the
International
Union
Against
TB
and
Lung
Disease,
the
Union
for
International
Cancer
Control,
and
the
World
Heart
Federation.
Together
the
NCD
Alliance
represents
900
member
associations
in
170
countries:
www.ncdalliance.org
1

2. Jessica
Apple,
Michael
Aviad,
Karmel
Allison
(ASweetLife.org)
Reaching
30,000
People
Affected
by
Diabetes
Each
Month
David
Edelman,
Elizabeth
Edelman
(DiabetesDaily.com)
A
diabetes
community
reaching
300,000
each
month.
Francine
R.
Kaufman,
M.D.
(Childrens
Hospital
Los
Angeles)
Emeritus
Professor
of
Pediatrics
and
Communications
at
USC
-­
The
Center
for
Diabetes,
Endocrinology
&
Metabolism
Amy
Tenderich
(DiabetesMine)
A
leading
diabetes
blog
serving
50,000
readers
a
month
Riva
Greenberg
(the
Huffington
Post
and
DiabetesStories.com)
Reaching
more
than
150,000
diabetes
patients,
professionals
and
readers
each
month
Paula
Ford-­Martin
(dLife)
Editor-­in-­Chief,
Patient
Advocate,
Author
Zachary
T.
Bloomgarden,
MD
(www.jdiabetes.com)
Editor,
the
Journal
of
Diabetes
Sheri
Colberg,
PhD
(www.shericolberg.com)
Expert
on
diabetes
and
exercise,
author
of
8
books
on
lifestyle
and
diabetes
management
Sarah
Knotts
–
Insulin,
Glucose,
Test
Strip
Stories
Sharing
real
stories
of
living
with
Type
1
Diabetes
since
1988.
William
“Lee”
Dubois,
Diabetes
Author,
Educator,
&
Advocate
Reaching
more
than
3
million
people
a
month
via
columns
and
articles
Steven
V.
Edelman,
M.D.
Founder
and
Director
of
Taking
Control
of
Your
Diabetes
Sandra
Bourdette
(Taking
Control
Of
Your
Diabetes)
Co-­Founder
and
Executive
Director,
Educating
and
empowering
the
diabetes
community
since
1995
Irl
B.
Hirsch,
M.D.
(University
of
Washington
Med
Ctr-­Roosevelt)
Professor
of
Medicine
Neal
Kaufman,
M.D.,
M.P.H.
(UCLA
Schools
of
Medicine
and
Public
Health)
Professor
of
Pediatrics
and
Public
Health
Tom
Karlya
(Diabetesdad)
Columnist
at
dLife,
1
million+
people
with
diabetes
Lois
Jovanovič,
MD
(Sansum
Diabetes
Research
Institute)
CEO
&
Chief
Scientific
Officer
James
S.
Hirsch
Author
of
"Cheating
Destiny:
Living
with
Diabetes"
Bernard
Farrell
(Diaboogle.com
and
Diabetes
Technology
Blog)
Diabetes
answers
for
1,000
people
per
month
and
reviewing
technology
for
3,000
readers/month.
Scott
K.
Johnson
(scottsdiabetes.com)
Diabetes
blog
reaching
thousands
per
month
George
Simmons
(Ninjabetic)
Sharing
my
story
so
others
feel
less
alone.
Randolph
B.
Linde,
M.D.
(Endocrinologist)
Palo
Alto
Medical
Foundation
Brandy
Barnes
(www.DiabetesSisters.org)
2

3. A
national
nonprofit
organization
devoted
to
the
issues
faced
by
women
with
diabetes)
and
a
woman
who
has
lived
with
diabetes
for
more
than
21
years.
Kelly
Booth
(kellywpa.wordpress.com)
Helping
people
with
diabetes
complications
Kerri
Sparling
(SixUntilMe.com)
Patient
Blogger,
Diabetes
Advocate,
and
Living
with
Type
1
Diabetes
Howard
Zisser,
MD
(Sansum
Diabetes
Research
Institute)
Director
of
Clinical
Research
and
Diabetes
Technology
Bruce
W.
Bode
MD
FACE
Atlanta
Diabetes
Associate
Michael
W.
Hoskins
(The
Diabetic's
Corner
Booth)
Personal
blog
reaching
5,500
globally
each
month.
Karen
Graffeo
(BitterSweetDiabetes.com)
Patient
blog
reaching
several
hundred
subscribers
Gina
Capone
(DiabetesTalkfest.com,
Juvenation.org)
Patient
blogger
and
community
manager
reaching
over
19,000+
affected
by
diabetes.
Crystal
Lane
(Randomly
capitalizeD)
Diabetes
Advocate
letting
hundreds
know
they
are
not
alone
Scott
Strange
(StrangelyDiabetic.com)
Sharing
decades
of
diabetes
trials
and
tribulations
Lorraine
Sisto
(This
is
Caleb...)
Daily
readers
in
excess
of
500.
Wendy
K.
Rose,
RN
(www.CandyHeartsBlog.com)
Diabetes
Advocate
Aliza
Chana
Zaleon
(Aliza
With
Diabetes)
1,000+
readers
and
counting
Michael
W.
Durbin
(www.mydiabeticheart.com)
Diabetes
Advocate,
living
with
Type
2
Diabetes
and
Congestive
Heart
Failure
Kim
Vlasnik
(Texting
My
Pancreas;
You
Can
Do
This
Project)
Reaching
12,000+
people
with
diabetes
every
month
Mari
Ruddy
(Team
WILD
and
Red
Rider
Recognition
Program
Founder)
Representing
over
5,000
cyclists
and
athletes
with
diabetes
Scott
Strumello
(Scott's
Web
Log)
A
Patient-­Written
Blog
Reaching
An
Average
of
2,500
Visitors
Per
Month
Lahle
Wolfe
(Isletsofhope.com,
Pre-­Diabetes.com)
7.9
million
visitors
since
2005,
10,000+
subscribers
Bill
Woods
(1HappyDiabetic.com)
“It’s
All
About
Your
Attitude!”
Martin
Wood
(DiabeticallySpeaking.com)
Type
1
diabetes
blogger
and
advocate.
Sharing
my
life
with
diabetes
so
that
others
may
have
a
voice.
Chris
Stocker
(The
Life
of
a
Diabetic)
Reaching
1,000's
of
people
with
diabetes
every
day!
Naomi
Kingery,
The
Diabetic
Diva
(www.livetolovediabetes.com)
Author
and
blogger
who
has
reached
over
10,000
people
with
diabetes.
3

4. Victoria
Cumbow
(www.victoriacumbow.com)
Type
1
diabetic
for
18
years,
advocate,
patient
and
health
blogger
at
Dia-­Beat-­This
and
@victoriacumbow
Hallie
K.
Addington
(The
Princess
and
The
Pump)
I
am
a
wife,
mother,
teacher…
and
a
pancreas!
Kelly
Kunik
(diabetesaliciousness.blogspot.com)
Spreading
Diabetes
Validation
through
Humor,Ownership
&
Advocacy
Elissa
R.
Weitzman,
ScD,
MSc
Assistant
Professor
Harvard
Medical
School
|
Children’s
Hospital
Boston
Cherise
Shockley
(Diabetes
Social
Media
Advocacy)
Diagnosed
with
Latent
Autoimmune
Diabetes
in
Adults
in
June
2004.
Creator
of
Diabetes
Social
Media
Advocacy
(DSMA)
weekly
twitter
chat
and
blog
talk
radio.
Merle
Gleeson
(Type
1
Diabetes
Lounge)
Meri
Schuhmacher
(Our
Diabetic
Life)
Blogger,
advocate,
friend
to
1000+
mothers
and
fathers
of
children
with
diabetes.
Satish
K.
Garg,
MD
(Barbara
Davis
Center
for
Childhood
Diabetes,
University
of
Colorado
Denver)
Professor
of
Medicine
and
Pediatrics;
Director,
Adult
Program;
Clinical
and
Research
Endowed
Chairs
Editor-­in-­Chief,
Diabetes
Technology
and
Theraputics
Beatriz
Dominguez
(Sweet
Bea)
Diabetes
Patient
and
Advocate
Jessica
Collins
(jess-­meandd.blogspot.com)
Diabetes
blogger
and
advocate
Allison
Blass
(Lemonade
Life)
A
personal
blog
about
living
with
diabetes
serving
5,000
readers
a
month
Leighann
Calentine
(D-­Mom
Blog)
Mom
of
a
child
with
type
1
diabetes,
author
of
D-­Mom
Blog
reaching
8,000+
families
per
month,
diabetes
advocate.
Hope
Warshaw,
RD,
CDE
(www.hopewarshaw.com)
Diabetes
educator,
author
with
nearly
1
million
books
in
print
Nicolas
Cuttriss,
MD,
MPH
(www.ayudainc.net)
Empowering
youth
to
serve
as
agents
of
change
in
diabetes
communities
abroad
Jane
Jeffrie
Seley,
DNP
MPH
MSN
BC-­ADM
CDE
(New
York
Presbyterian/Weill
Cornell)
Diabetes
Nurse
Practitioner
Barry
H
Ginsberg,
MD,
PhD
Diabetes
Consultants
Prof.
Dr.
Lutz
Heinemann,
PhD
(Profil
Institut
für
Stoffwechselforschung
GmbH)
Partner
and
Scientific
Consultant
Bennet
Dunlap
(Your
Diabetes
May
Vary,
The
BetesNOW)
Advocate
for
families
living
with
diabetes.
Father
of
two
type
1
teens.
Jay
Skyler,
MD
(University
of
Miami
Miller
School
of
Medicine,
Diabetes
Research
Institute)
Professor
of
Medicine,
Pediatrics
and
Psychology
at
Associate
Director
for
Academic
Programs
at
DRI
Darrell
M
Wilson,
MD
(Stanford
University
and
the
Lucile
Packard
Children's
Hospital)
Professor
and
Chief,
Pediatric
Endocrinology
and
Diabetes
4

5. Ginger
Vieira
(www.Living-­in-­Progress.com)
Type
1
diabetes
advocate,
vlogger,
author
and
health
coach.
Lee
Ann
Thill,
MA,
ATR-­BC,
LPC
(www.thebuttercompartment.com)
Type1
diabetic
for
32
yrs,
blogger,
art
therapist,
diabetes/mental
health
advocate,
artist.
Mariela
Glandt,
MD
Endocrinology
Department,
Bronx-­Lebanon
Hospital
Gonzalo
Bacigalupe,
EdD,
MPH
International
Health
Council
Representative
at
,
Ikerbasque
Research
Professor,
Associate
Editor
at
Family,
Systems,
&
Health
Sysy
Morales
(TheGirlsGuidetoDiabetes.com)
Encouraging
10,000
women
with
diabetes
to
live
their
best
life
every
month
Kitty
Castellini,
Founder,
President
&
CEO
(Diabetes
Living
Today®)
National
Broadcast
News
on
Diabetes
for
120,000
with
diabetes
Kathy
White
(kathy-­mynewislets.blogspot.com)
Islet
cell
transplant
recipient
Anne
Findlay
(annetics,
Team
Type
1
cyclist)
Advocating
for
healthier
living
through
exercise
for
people
with
diabetes
Gretchen
Becker
(www.gretchenbecker.com)
Author
of
"The
First
Year:
Type
2
Diabetes"
Cheryl
Alkon
Author
of
Balancing
Pregnancy
With
Pre-­Existing
Diabetes:
Healthy
Mom,
Healthy
Baby
Ronnie
Gregory
(www.thepoordiabetic.com)
Erin
D.
O'Neill
Argueta
(www.edonadesigns.blogspot.com)
Living
creatively
for
over
39
years
with
Type
I
Diabetes
Cara
Richardson
(countrygirldiabetic.blogspot.com)
Every
Day,
Every
Hour,
Every
Minute
Cheri
Pate
(princessladybug.blogspot.com)
Michael
Robinton
(Insulin
Pumpers)
Executive
Director
5

6. sectIon 4: resources, tooLs AnD pubLIcAtIons
IDF - Calling the World to aCtion on diabetes: an adVoCaCY toolKit 39
J. ncd AlliAnce proposed oUTcomes docUmenT – pAGe 1
Proposed Outcomes Document
for the United Nations High-Level Summit
on Non-Communicable Diseases
We, the NCD Alliance, request Governments of the world at the UN High-level Summit
on NCDs taking place 19-20th September 2011 to commit to:
Leadership Prevention
• Implement the WHO 2008-2013 Action Plan for the Global • ccelerate the effective implementation of the Framework
A
Strategy for the Prevention and Control of NCDs; Global Strategy Convention on Tobacco Control.
on Diet, Physical Activity and Health; and the Global Strategy to
Reduce the Harmful Use of Alcohol. • Establish effective population-wide prevention, early detection,
screening and awareness-raising programmes for NCDs targeting
• nclude NCDs in the global development goals that succeed the
I high-risk populations by 2020, including, but not limited to:
Millennium Development Goals in 2015. o By 2018, reduce the mortality and morbidity of
gastric, colorectal, breast, cervical cancer; diabetes; and
• By 2016, 60% of countries implement a national NCDs Action cardiovascular diseases (including heart disease and stroke)
Framework, a Coordinating Authority and a country-level by increasing early detection programmes.
Monitoring and Evaluation System and develop national health o By 2018, implement national immunisation strategies for
plans with specific objectives and targets for the prevention, early HPV and HBV for populations at high risk and strategies to
detection, treatment and care of NCDs. prevent rheumatic fever to avert rheumatic heart disease.
o Reduce or eliminate environmental (including indoor air
• Develop, implement, monitor and evaluate strategies addressing pollution), occupational and other contextual risk factors
NCDs engaging the whole of government, the private sector and associated with NCDs.
civil society and adopt a ‘health in all policies’ approach where all
major policies and capital projects are subject to a health impact • mplement global and national trade and fiscal measures to
I
assessment. provide incentives for production, distribution and marketing of
vegetables, fruit and unprocessed food.
• Establish a UN interagency coordination mechanism on NCDs by
2012. • By 2013, develop and implement comprehensive strategies to
decrease childhood obesity, and eliminate all forms of marketing,
• Establish a ‘Stop NCDs Partnership’ within the UN system to particularly those aimed at children, for foods high in saturated
coordinate follow-up action on UN Summit commitments fats, trans-fats, salt and refined sugars by 2016.
working with governments, NGOs and the private sector.
• By 2013, develop and implement regulatory measures to achieve
• Establish a UN Decade of Action on NCDs 2012–2022 to substantial reductions in levels of saturated fats, trans-fats, salt
implement the Outcomes Document and ensure that by 2016, and refined sugars in processed foods. Aim to reduce worldwide
85% of the world’s population have access to information, salt intake to less than 5g/day per capita (2,000 mg sodium/day)
education and services to reduce their vulnerability to NCDs. by 2025.
• Reduce NCD death rates by at least 2% per annum. • Develop and implement policies for urban design to include safe
open spaces and encourage walking, cycling and other physical
activities.
• Develop and implement comprehensive strategies to decrease
the harmful use of alcohol, in particular, among youth.
Non-Communicable Diseases (NCDs): Cancer, cardiovascular disease, chronic respiratory disease and diabetes, and the four shared risk factors of tobacco use, unhealthy diet,
physical inactivity and the harmful use of alcohol, as identified by the World Health Organization (WHO).

7. 40 sectIon 4: resources, tooLs AnD pubLIcAtIons
IDF - Calling the World to aCtion on diabetes: an adVoCaCY toolKit
J. ncd AlliAnce proposed oUTcomes docUmenT – pAGe 2
Diagnostics and Treatment
• Ensure universal access to affordable high-quality essential NCD
medicines and medical technologies including, but not limited to:
o Diagnostic technologies, radiotherapy and cancer
medicines by 2020.
o Anti-hypertensives, statins, aspirin and penicillin by 2015.
o Insulin and other diabetes medicines, and diabetes
diagnostic and monitoring technologies by 2015.
o Good-quality, affordable asthma inhalers by 2012.
• Provide improved access to high quality palliative care, including
opioid analgesics, for those suffering from pain associated with
NCDs.
• By 2013 develop and implement strategies to address NCD
treatment and care in emergencies, natural disasters and
conflicts.
Health Systems Research
• By 2015, establish and strengthen national health information • Encourage, increase and accelerate research on NCD causes and
systems (including registries) for monitoring and evaluation of cures, including longitudinal research into the ‘early origins’ of
NCDs and risk factors and morbidity/mortality statistics by cause. NCDs.
• By 2016, 60% and by 2020 80% of countries to develop strategies • Encourage operational research on prevention, treatment and
to integrate health-system management of NCDs, especially at management of NCDs.
primary health care levels.
• Strengthen national and community-based health systems to
ensure continuity of care and support through to effective referral Human Rights / Vulnerability
by 2020.
• Accelerate approaches to address the social determinants of
• Develop and implement strategies to strengthen human NCDs, including malnutrition, and reduce the vulnerability
resources for health, including public health and community of women, children, indigenous peoples and populations at
health workers, to ensure equitable access to NCD prevention, particularly high risk.
early detection, treatment and care.
• By 2016, implement NCD screening into maternal and child
health programmes.
Resources
• Implement legislation, policies and public awareness campaigns
to reduce stigma and discrimination associated with NCDs.
• Allocate sufficient funds to the United Nations and member states
to support the implementation of the UN Summit Outcomes
Document.
Monitoring / Follow up
• Develop and implement innovative financing mechanisms for
NCDs at global and country level. • By 2012, establish a high-level Commission on Accountability for
Action on NCDs with representatives from government, donors,
• Leverage existing essential medicine procurement mechanisms multi-lateral institutions, civil society and the private sector
and develop new solutions to provide access to affordable NCD to ensure ongoing monitoring of commitments from the UN
medicines and technologies. Summit.
• Increase the percentage of national health budgets allocated to • Every year devote time at the UN General Assembly to review a
NCDs. report from the Secretary General on progress, and conduct a
high-level review of progress in 2016.
• By 2012, bilateral donor agencies and multilateral organisations
to support NCD programmes in low- and middle-income
countries.
NCD Alliance UN Summit Partners
American Cancer Society, American Heart Association, Framework Convention Alliance,
Global Health Council, LIVESTRONG, Norwegian Cancer Society and World Lung Foundation.
To comment on this Proposed Outcomes Document and get more information about the NCD Alliance, please visit:
www.ncdalliance.org