The Most Powerful Weapon Against Asthma Is Education


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Community-Driven Asthma Research Project between SC CTSI and Community Groups Helps Kids in Long Beach Breathe Easier. This presentation summarizes the research project: After-school settings as a setting as a method of addressing asthma management and prevention: A community-based research perspective.
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View the booklet now "What you can do about your child's asthma" -

This SC CTSI-supported study was developed by: Marisela Robles, MS; Katrina Kubicek, MA; Michele D. Kipke, PhD - SC Clinical and Translational Science Institute and Children’s Hospital Los Angeles; Neal Richman, PhD; Saba Firoozi, MPH - BREATHE California of Los Angeles County; Charlene Chen, MHS; Hannah Valino, MPH - COPE Health Solutions.

Learn more about SC CTSI at USC and CHLA:

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The Most Powerful Weapon Against Asthma Is Education

  1. 1. Marisela Robles, MSKatrina Kubicek, MAMichele D. Kipke, PhDSC Clinical and Translational Science Institute andChildren’s Hospital Los AngelesNeal Richman, PhDSaba Firoozi, MPHBREATHE California of Los Angeles CountyCharlene Chen, MHSHannah Valino, MPHCOPE Health SolutionsAFTER-SCHOOL SETTINGS AS A METHOD OFADDRESSING ASTHMA MANAGEMENT ANDPREVENTION: A COMMUNITY-BASED RESEARCHPERSPECTIVE
  2. 2. PRESENTER DISCLOSURES(1) The following personal financial relationships withcommercial interests relevant to this presentationexisted during the past 12 months:Marisela Robles“No relationships to disclose”
  3. 3. PARTNERSHIPSThis project is a unique partnership with:•University of Southern California•Children’s Hospital Los Angeles•BREATHE California of Los Angeles County•COPE Health Solutions•Boys and Girls Club of Long Beach•Community and Clinical Partners
  4. 4. BACKGROUND• Asthma is the most common chronic childhood disease inthe US.• It accounts for three times more lost school days than anyother chronic disease• Higher rates of asthma among children living alongcongested freeways and ports and other industrial areas• Long Beach is particularly burdened with higher rates ofchildhood asthma, where asthma affects 21.9% of childrenages 5-17, compared with 15.6%, 18%, and 14.2% in LACounty, CA and the US respectively.
  5. 5. BACKGROUND CONTINUED• Providing parents and children with the tools needed toeffectively control asthma is an essential component ofpediatric care for children with asthma.• School-based programs were found to be effective inincreasing knowledge about asthma.• No identified after-school program based on asthma educationand management.
  6. 6. METHODS• Community-Based Participatory Research (CBPR) approacho Healthcare Community Advisory Boardo Parent Advisory Board• Photovoice methodStudy Participants:• 124 total participants,16 focus groups• 9 children (8-12 yrs. old) focus groups, 74 child participants36 male and 38 female• 6 parent focus groups, 41 parent participants4 male and 36 female• 1 staff focus group, 9 participants
  8. 8. RESULTSLIMITATIONS“If other people challenge you andyou want to take the challenge,and you know you can’t but youare competitive so at the end,you’re out of breath and mighthave an asthma attack.”“…how can you explain to alittle child, you can’t play likeeveryone else?”“If they [children] have asthma theycan’t touch them [pets] or pet them…or get near them… they get asthma.”
  9. 9. RESULTS CONTINUEDSOCIAL SUPPORT“My friend said let’s go racing,and I said, ‘no you can’tbecause you have asthma,’ andthen he started running and hehad to stop and use his inhaler.”
  10. 10. RESULTS CONTINUEDADVOCACY“My neighbors are smokers theyjust moved in so I don’t knowwhat I am going to do. A least wehave more laws. People can’tsmoke in restaurants, But whatabout where you live?”“I have a picture of the refineries.I work close to it in the childcare.There are kids there who alreadycome with asthma, but they haveto withdraw because the smokefrom the refineries aggravatestheir asthma.
  11. 11. CURRICULUM ADAPTATION• New emphasis on how children with asthma can safelyengage in physical activity• Incorporated a buddy system• New section on advocacy• Added to the asthma myths activity• Included photographs and examples provided by studyparticipants
  12. 12. DISSEMINATION• Parent Asthma Booklet• Photo Gallery• SC CTSI Website• Manuscript• Community Presentations
  13. 13. CONCLUSIONS• This study provides guidelines for how to conduct a CBPRproject with the goal of creating a community-driven andscientifically-grounded asthma curriculum.• The first asthma curriculum identified that integrates socialsupport as a way to mediate positive health outcomes.Next Step:• Take the newly adapted curriculum into an efficacy trial toidentify whether the desired outcomes are met.
  14. 14. ACKNOWLEDGEMENTSNational Institutes of HealthGrant number UL1RR031986Boys and Girls Club of Long Beach StaffHealthcare Community Advisory Board MembersParent Advisory Board Members