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Budi Iman Santoso

Presented at IUGA Regional Symposium, Sanur-Bali, 7-9 Nov 2013
Outline
Our Patients:

HUGI
accomplishments

What do we
have?

IUGA & HUGI
mission &
activities

• What have we done?

HUGI recent
activities

HUGI: Challenges
& obstacles

HUGI-IUGA
affiliation

• What are going on?

• What do we face?

• What do we need?

Conclusion
What do we have?
• 1 center, 13 sub-center, 38 urogynecologists, more
than 4000 OB/GYN, 245 million population, 18.306
islands
Urogynecology Outpatient Clinic
Cipto Mangunkusumo Hospital during Jan-Des 2012
327

350
53%

300
250

175

200
150
100
50
0

72
22

23

17

18
Projected Prevalence for
13 sub-centers
3500

3270

3000
2500
2000

1750

1500
1000
500

720
230

220

170

Other

Incontinence

180

0
Fistules

Urogenital
Congenital
Anomaly

POP

OASIS

Total

In Indonesia, more than 3000 patients per year predicted to visit
urogynecology services in 13 teaching hospitals
Urogynecology Procedures
Cipto Mangunkusumo Hospital during Jan-Des 2012
45

46%

40

39

35
30
25
20

15
9

10

8

8

6
5

2

3
1

4
2

2

0

In Indonesia, more than 800 procedures predicted to be performed in a year in 13
teaching hospitals
Urogynecology Procedures
Hasan Sadikin Hospital Bandung during Jan-Des 2012
30
25
20
15
10
5
0

21%
Urogynecology Procedure
Dr. Soetomo hospital during Jan-Des 2012

RUMAH SAKIT UMUM DAERAH

Dr. SOETOMO

120
102

100
80

43%

60

44

40
20

0

20
7

6

1

2

1

3

2

6

7

3
IUGA Mission Statement
• “Global advancement of urogynecological knowledge
and practice through education and the promotion
of basic and clinical research on disorders of the
female pelvic floor.“
IUGA Activities
• annual conference
• International Urogynecology Journal
• education programs
– consensus terminology in the field
– connecting related professionals
– producing patient education materials
– grant

• etc
Urogynecology Procedure
Dr. Soetomo hospital during Jan-Des 2012

RUMAH SAKIT UMUM DAERAH

Dr. SOETOMO

120
102

100
80
43%

60
44

40
20
0

20
7

6

1

2

1

3

2

6

7

3
HUGI Mission Statement
• “A well established organization with the
achievement of high quality medical science
and technology in pelvic floor dysfunction in
2015.”
HUGI Collaboration
Government

Advisors

Organizing
Committee

Indonesian
Women

Affiliation
Organization

Members
Other
Providers
Our mission statement
Indonesian Women

• To Improve management and quality of care of pelvic floor dysfunction.
• To increase Indonesian women’s knowledge and awareness regarding pelvic floor
dysfunction.
Members & Providers
• To raise and set standards of training in urogynaecology
• To provide support and guidelines for urogynecologists’ research.
• To organise meetings & trainings in order to increase doctors, nurses, midwives,
and students’ knowledge and skill about the pelvic floor dysfunction.
Government
• To help the government to full fill the need of Urogynecology Services in all area
in Indonesia.

Affiliation

Organizing Committee

Advisors
HUGI activities
Education

Research

Practice

• Residency Training
Curriculum
Improvement
• Urogynecology
Training Curriculum
• Study Guide:
• Perineal Rupture
• Urinary tract
injury
• Workshop &
Training

• Urogynecology QoL
Questionnaires
Development
• Patient Registration
(online)
• Epidemiology
Research
• Clinical Trial

• Uniform Medical
record
• Urogynecology
Guideline
• Collaboration with
Universal Coverage
System
What have we done?

PFDI-20, PFIQ 7,
ICIQ FLUTS 08/04
Kuesioner: Pelvic Floor Distress Inventory-Short Form (PFDI-20)

Instruksi: Anda diminta menjawab semua pertanyaan yang diberikan pada survei berikut. Anda
akan ditanya mengenai apakah anda mengalami gejala tertentu pada usus, kandung kemih, atau
panggul, dan jika ya seberapa mengganggunya kondisi tersebut. Beri tanda silang X di area yang
sesuai untuk menjawab.

Terdapat 20 pertanyaan untuk kuesioner PFDI-20 dengan tiga skala inventori. Semua pertanyaan
menggunakan skala respon 0 sampai 4, dengan format sebagai berikut.
Apakah anda ………………………………….?
Tidak
Ya
Jika ya, seberapa mengganggu kondisi tersebut?
1 = tidak sama sekali
2 = terkadang
3 = sedang
4 = mengganggu

Skala
Pelvic Organ Prolapse Distress Inventory 6 (POPDI-6)
1. Biasa mengalami tekanan di abdomen bagian bawah?
2. Biasa mengalami perasaan tidak nyaman di area panggul?
3. Biasa mendapati benjolan? atau sesuatu yang keluar yang anda bisa lihat atau rasa di area
vagina?
4. Pernah harus mendorong vagina atau rektum untuk melakukan atau menyelesaikan BAB?
5. Biasa mengalami rasa buang air kecil yang tidak tuntas?
6. Pernah harus mendorong bonjolan di area vagina dengan jari untuk memulai atau
menuntaskan buang air kecil?
Colorectal-Anal Distress Inventory 8 (CRADI-8)
7. Merasa anda harus mengedan terlalu kuat untuk BAB?
8. Merasa tidak tuntas setelah buang air besar?
9. Biasa mengeluarkan feses diluar kontrol dengan bentuk feses Anda yang padat?
10. Biasa mengeluarkan feses diluar kontrol dengan bentuk feses Anda cair atau lembek?

• Urogynecology & Residency
Training Curriculum
• Seminars, Trainings & Workshops
• Research & Publication
• QoL Questionnaires translation &
validation
• Levator Ani Injury Screening Tools
• HUGI Website
–
–
–
–

Research Database
Member Database
News & Event
Knowledge Update
HUGI Official Website:
HUGI Website
• Research Database
• Member Database
• News & Event
• Knowledge Update
• Patient education
• Scoring System/Screening
Tools
• Surgical procedures video
(coming soon)
• Online store (coming soon)

www.hugi-online.com
What is going on?
• Urogynecology Patient
Registration
• Pelvic Organ prolapse
National Guideline
• Planned CS
recommendation
• Research
• Urogynecology & Residency
Training
• Organization Development
• Local Workshop & Training
POP Guideline
Postal Round
(online)

• Online

www.hugi-online.com
Challenges
Education

Research

• Limited
resources
• Limited available
time for
teaching
• IT practice

• Limited
resources
• Low number of
Int’l publications
• Language
barrier
• Scientific writing
skills
• International
collaboration

Practice
• Women with
low education
• Awareness
regarding PFD
HUGI-IUGA Affiliation:
What do we need from IUGA?
Education
• Guest Lecture
• Collaboration in
Workshop & Training
• Observerships &
Fellowship
Opportunities
• Guideline,
terminology,
procedure update

Research
• PISQ-IR translation
project
• Research Grant
• Collaborative/Multicenter Research
• Regional &
International
Publication Tutorial
& Guidance

Practice
• IUGA Patient
education in Bahasa
Indonesia
• Get Involve in
Guideline
Development
Strategic Plan
Description

HUGI
PIC

IUGA
PIC

Objective
Parameter

Target of accomplishment

Guest Lecture

1 Guest Lecture

Within 1 year

Collaboration in Workshop & Training

1 Event after
Regional Bali

Within 3 years

Education & Training:
1. Observerships
2. Fellowship Opportunities
3. Exchange
4. Short Course

1 observership
1 fellowship

Within 5 years

Guideline, terminology, procedure
update

Regular update

Within 1 month

IUGA Patient education in Bahasa
Indonesia

Published in
www.iuga.org or hugionline.com

Within 1 year

Get Involve in Guideline Development

HUGI member
invlovement

If there is any guideline
development

PISQ-IR translation project

PISQ-IR indonesian
ver

Within 1 year

Research Grant

1 Research grant

Within 5 years

Collaborative/Multi-center Research

1 Research

Within 5 years

Regional & International Publication
Tutorial & Guidance

1 IUGA mentor for
HUGI member
2 Int Publication

Within 5 years
Collaborative Research
• Multi-center
• Collaborative
Research
• Grant
• PIC?
Educational Training
• Observership &
Fellowship Grant
• Short Course
Training
• Exchange program
• Contact
Person/Host?
International Publication
Work
• Tutorial & Guidance

Indonesian Journal of
Obstetrics & Gynecology
• Strategic Plan Development
• IUGA member as one of
international boards
Conclusion
HUGI has big opportunities, market, and potential
resources (Challenges & Opportunities)
Greater efforts to increase women and physicians
awareness regarding pelvic floor disorder are extremely
needed in Indonesia.
IUGA assistances in the field of education, research, and
practice are needed to develop in systematic, clear, and
targeted strategic plan.
Strategic Plan
Description

HUGI
PIC

IUGA
PIC

Objective
Parameter

Target of accomplishment

Guest Lecture

1 Guest Lecture

Within 1 year

Collaboration in Workshop & Training

1 Event after
Regional Bali

Within 3 years

Education & Training:
1. Observerships
2. Fellowship Opportunities
3. Exchange
4. Short Course

1 observership
1 fellowship

Within 5 years

Guideline, terminology, procedure
update

Regular update

Within 1 month

IUGA Patient education in Bahasa
Indonesia

Published in
www.iuga.org or hugionline.com

Within 1 year

Get Involve in Guideline Development

HUGI member
invlovement

If there is any guideline
development

PISQ-IR translation project

PISQ-IR indonesian
ver

Within 1 year

Research Grant

1 Research grant

Within 5 years

Collaborative/Multi-center Research

1 Research

Within 5 years

Regional & International Publication
Tutorial & Guidance

1 IUGA mentor for
HUGI member
2 Int Publication

Within 5 years
Thank you

“Collaboration toward a better life”
Dr. Catherine
Matthews

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Hugi iuga affiliation-edit(1)

  • 1. Budi Iman Santoso Presented at IUGA Regional Symposium, Sanur-Bali, 7-9 Nov 2013
  • 2. Outline Our Patients: HUGI accomplishments What do we have? IUGA & HUGI mission & activities • What have we done? HUGI recent activities HUGI: Challenges & obstacles HUGI-IUGA affiliation • What are going on? • What do we face? • What do we need? Conclusion
  • 3. What do we have? • 1 center, 13 sub-center, 38 urogynecologists, more than 4000 OB/GYN, 245 million population, 18.306 islands
  • 4. Urogynecology Outpatient Clinic Cipto Mangunkusumo Hospital during Jan-Des 2012 327 350 53% 300 250 175 200 150 100 50 0 72 22 23 17 18
  • 5. Projected Prevalence for 13 sub-centers 3500 3270 3000 2500 2000 1750 1500 1000 500 720 230 220 170 Other Incontinence 180 0 Fistules Urogenital Congenital Anomaly POP OASIS Total In Indonesia, more than 3000 patients per year predicted to visit urogynecology services in 13 teaching hospitals
  • 6. Urogynecology Procedures Cipto Mangunkusumo Hospital during Jan-Des 2012 45 46% 40 39 35 30 25 20 15 9 10 8 8 6 5 2 3 1 4 2 2 0 In Indonesia, more than 800 procedures predicted to be performed in a year in 13 teaching hospitals
  • 7. Urogynecology Procedures Hasan Sadikin Hospital Bandung during Jan-Des 2012 30 25 20 15 10 5 0 21%
  • 8. Urogynecology Procedure Dr. Soetomo hospital during Jan-Des 2012 RUMAH SAKIT UMUM DAERAH Dr. SOETOMO 120 102 100 80 43% 60 44 40 20 0 20 7 6 1 2 1 3 2 6 7 3
  • 9. IUGA Mission Statement • “Global advancement of urogynecological knowledge and practice through education and the promotion of basic and clinical research on disorders of the female pelvic floor.“
  • 10. IUGA Activities • annual conference • International Urogynecology Journal • education programs – consensus terminology in the field – connecting related professionals – producing patient education materials – grant • etc
  • 11. Urogynecology Procedure Dr. Soetomo hospital during Jan-Des 2012 RUMAH SAKIT UMUM DAERAH Dr. SOETOMO 120 102 100 80 43% 60 44 40 20 0 20 7 6 1 2 1 3 2 6 7 3
  • 12. HUGI Mission Statement • “A well established organization with the achievement of high quality medical science and technology in pelvic floor dysfunction in 2015.”
  • 14. Our mission statement Indonesian Women • To Improve management and quality of care of pelvic floor dysfunction. • To increase Indonesian women’s knowledge and awareness regarding pelvic floor dysfunction. Members & Providers • To raise and set standards of training in urogynaecology • To provide support and guidelines for urogynecologists’ research. • To organise meetings & trainings in order to increase doctors, nurses, midwives, and students’ knowledge and skill about the pelvic floor dysfunction. Government • To help the government to full fill the need of Urogynecology Services in all area in Indonesia. Affiliation Organizing Committee Advisors
  • 15. HUGI activities Education Research Practice • Residency Training Curriculum Improvement • Urogynecology Training Curriculum • Study Guide: • Perineal Rupture • Urinary tract injury • Workshop & Training • Urogynecology QoL Questionnaires Development • Patient Registration (online) • Epidemiology Research • Clinical Trial • Uniform Medical record • Urogynecology Guideline • Collaboration with Universal Coverage System
  • 16. What have we done? PFDI-20, PFIQ 7, ICIQ FLUTS 08/04 Kuesioner: Pelvic Floor Distress Inventory-Short Form (PFDI-20) Instruksi: Anda diminta menjawab semua pertanyaan yang diberikan pada survei berikut. Anda akan ditanya mengenai apakah anda mengalami gejala tertentu pada usus, kandung kemih, atau panggul, dan jika ya seberapa mengganggunya kondisi tersebut. Beri tanda silang X di area yang sesuai untuk menjawab. Terdapat 20 pertanyaan untuk kuesioner PFDI-20 dengan tiga skala inventori. Semua pertanyaan menggunakan skala respon 0 sampai 4, dengan format sebagai berikut. Apakah anda ………………………………….? Tidak Ya Jika ya, seberapa mengganggu kondisi tersebut? 1 = tidak sama sekali 2 = terkadang 3 = sedang 4 = mengganggu Skala Pelvic Organ Prolapse Distress Inventory 6 (POPDI-6) 1. Biasa mengalami tekanan di abdomen bagian bawah? 2. Biasa mengalami perasaan tidak nyaman di area panggul? 3. Biasa mendapati benjolan? atau sesuatu yang keluar yang anda bisa lihat atau rasa di area vagina? 4. Pernah harus mendorong vagina atau rektum untuk melakukan atau menyelesaikan BAB? 5. Biasa mengalami rasa buang air kecil yang tidak tuntas? 6. Pernah harus mendorong bonjolan di area vagina dengan jari untuk memulai atau menuntaskan buang air kecil? Colorectal-Anal Distress Inventory 8 (CRADI-8) 7. Merasa anda harus mengedan terlalu kuat untuk BAB? 8. Merasa tidak tuntas setelah buang air besar? 9. Biasa mengeluarkan feses diluar kontrol dengan bentuk feses Anda yang padat? 10. Biasa mengeluarkan feses diluar kontrol dengan bentuk feses Anda cair atau lembek? • Urogynecology & Residency Training Curriculum • Seminars, Trainings & Workshops • Research & Publication • QoL Questionnaires translation & validation • Levator Ani Injury Screening Tools • HUGI Website – – – – Research Database Member Database News & Event Knowledge Update
  • 17. HUGI Official Website: HUGI Website • Research Database • Member Database • News & Event • Knowledge Update • Patient education • Scoring System/Screening Tools • Surgical procedures video (coming soon) • Online store (coming soon) www.hugi-online.com
  • 18. What is going on? • Urogynecology Patient Registration • Pelvic Organ prolapse National Guideline • Planned CS recommendation • Research • Urogynecology & Residency Training • Organization Development • Local Workshop & Training
  • 19. POP Guideline Postal Round (online) • Online www.hugi-online.com
  • 20. Challenges Education Research • Limited resources • Limited available time for teaching • IT practice • Limited resources • Low number of Int’l publications • Language barrier • Scientific writing skills • International collaboration Practice • Women with low education • Awareness regarding PFD
  • 21. HUGI-IUGA Affiliation: What do we need from IUGA? Education • Guest Lecture • Collaboration in Workshop & Training • Observerships & Fellowship Opportunities • Guideline, terminology, procedure update Research • PISQ-IR translation project • Research Grant • Collaborative/Multicenter Research • Regional & International Publication Tutorial & Guidance Practice • IUGA Patient education in Bahasa Indonesia • Get Involve in Guideline Development
  • 22. Strategic Plan Description HUGI PIC IUGA PIC Objective Parameter Target of accomplishment Guest Lecture 1 Guest Lecture Within 1 year Collaboration in Workshop & Training 1 Event after Regional Bali Within 3 years Education & Training: 1. Observerships 2. Fellowship Opportunities 3. Exchange 4. Short Course 1 observership 1 fellowship Within 5 years Guideline, terminology, procedure update Regular update Within 1 month IUGA Patient education in Bahasa Indonesia Published in www.iuga.org or hugionline.com Within 1 year Get Involve in Guideline Development HUGI member invlovement If there is any guideline development PISQ-IR translation project PISQ-IR indonesian ver Within 1 year Research Grant 1 Research grant Within 5 years Collaborative/Multi-center Research 1 Research Within 5 years Regional & International Publication Tutorial & Guidance 1 IUGA mentor for HUGI member 2 Int Publication Within 5 years
  • 23. Collaborative Research • Multi-center • Collaborative Research • Grant • PIC?
  • 24. Educational Training • Observership & Fellowship Grant • Short Course Training • Exchange program • Contact Person/Host?
  • 25. International Publication Work • Tutorial & Guidance Indonesian Journal of Obstetrics & Gynecology • Strategic Plan Development • IUGA member as one of international boards
  • 26. Conclusion HUGI has big opportunities, market, and potential resources (Challenges & Opportunities) Greater efforts to increase women and physicians awareness regarding pelvic floor disorder are extremely needed in Indonesia. IUGA assistances in the field of education, research, and practice are needed to develop in systematic, clear, and targeted strategic plan.
  • 27. Strategic Plan Description HUGI PIC IUGA PIC Objective Parameter Target of accomplishment Guest Lecture 1 Guest Lecture Within 1 year Collaboration in Workshop & Training 1 Event after Regional Bali Within 3 years Education & Training: 1. Observerships 2. Fellowship Opportunities 3. Exchange 4. Short Course 1 observership 1 fellowship Within 5 years Guideline, terminology, procedure update Regular update Within 1 month IUGA Patient education in Bahasa Indonesia Published in www.iuga.org or hugionline.com Within 1 year Get Involve in Guideline Development HUGI member invlovement If there is any guideline development PISQ-IR translation project PISQ-IR indonesian ver Within 1 year Research Grant 1 Research grant Within 5 years Collaborative/Multi-center Research 1 Research Within 5 years Regional & International Publication Tutorial & Guidance 1 IUGA mentor for HUGI member 2 Int Publication Within 5 years