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Support for parents of children with cerebral palsy
1. Support for Parents of Children with Cerebral Palsy
An active role of parents in all phases of program is preferable. Parents must be
included as integral participation. First, the program must focus on the child’s and
family’s needs and priorities. They should be encouraged to tell which activities
they would like to improve further and which activities are more stressful or time –
consuming. Second, parents must be included in goal setting which may prevent
unrealistic expectations and frustrations of both parents and therapists.
Third, the program must be adapted to family’s capabilities, situation, and daily
schedule. The therapist must do counseling of mother, father, caretaker and family
members because child always copies skills of his parents and also influenced by his
atmosphere .Copying skill of parents, parent child interaction and functional
outcomes, such as independence in self care, mobility and communication of child,
should be quantified and measured.
Educate yourself - The more you know about cerebral palsy, the more tools you
will have to help your child. Read about cerebral palsy in other sections of this Web
site. Ask your child’s doctor about resources available from his or her office and on
the internet. Many non-profit organizations offer information on cerebral palsy;
keep up-to-date with current research.
Build a support system - Seek out local groups and parent network organizations
for families of children with disabilities. Ask your doctor or specialist for referrals.
Join an online chat group for parents of children with cerebral palsy.
Take care of yourself - You can’t help your child if you are burned out. Make
plans to do things you enjoy, such as taking time out to have a night out with
friends or family. Planning ahead so that the situation at home is safe for your child
prior to going out makes this possible and more beneficial. It is so important to
“recharge the batteries.”
2. Take care of your relationships - Find a babysitter whom you like and trust, so
you and your partner can have private time together. And don't forget your other
children; make sure to keep up with their activities and try to have special one-to-
one time with them as often as possible.
Get help - If you or your partner is consistently burned out or depressed, or if you
are not getting along, seek help. Having a disabled child can be extremely stressful;
it can also put your relationship at risk. Your doctor can refer you to a qualified
individual, family, or couple's therapist. It may also be that you are still at an early
stage in understanding your child’s condition and the services that are available to
help. Finding out more may give an enormous boost to your ability to cope.