4. Graded Exercise Therapy:
“planned increases”
My comment:
Some therapists push patients to adhere to
these “increases” despite symptom
exacerbation.
5. Graded Exercise Therapy:
My comment:
The whole emphasis of GET appears to assume
that increase is possible, and takes little heed of
potential harms.
Again mention of increase!
6. Graded Exercise Therapy:
My comment:
Aerobic exercise has been demonstrated to be
harmful to ME patients.*
*http://ptjournal.apta.org/content/early/2013/06/26/ptj.20110368.short
“aerobic exercise”
7. Graded Exercise Therapy:
The word “EXERCISE” is a big problem!
General NHS guidance on exercise says:
“…you need to be moving quick enough to
raise your heart rate, breathe faster and
feel warmer.”*
*http://www.nhs.uk/Livewell/fitness/Pages/whybeactive.aspx
8. Graded Exercise Therapy:
I have explored the use of the word
“exercise” further in my blog post:
Why NOT exercise?
http://sallyjustme.blogspot.co.uk/2014/05/WhyNOTexercise.html
9. Graded Exercise Therapy:
Some NICE guidance sounds sensible:
Yet 74% of patients who have done
Graded Exercise Therapy also report
worsening symptoms!*
*ME Association Survey:
http://www.meassociation.org.uk/2015/05/23959/
10. Graded Exercise Therapy:
On a positive note - NICE advice on heart rate
monitoring seems sensible:
My Comment:
However this strategy is not often suggested
to patients, by their doctors.*
*Personal experience, and anecdotal stories from online ME community.
11. Graded Exercise Therapy:
I think the premise of GET is faulty!
If energy were money:
GET is tackling the wrong side of the equation.
Patients need treatment & recovery before GET.
12. Please!
QuestiontheNICEguidelineforME!
Professor Baker, the Directorof NICE does:
In June2014 he said of the 2007 Guideline:
“The Guideline failed toaddress thereal issues
in ME/CFS”*
*http://www.forward-me.org.uk/25th%20June%202014.htm
13. Please also query:
- the reasons that research funding for ME
seems to end up directed towards
psychiatry . . .
. . . surely it is now time to fund biomedical
researchto find the energetic problems at
the root of ME?
15. More Information:
The following guidelines have been produced jointly by ME researchers:
International Consensus Criteria (ICC)
2012
http://irishmecfs.org/Myalgic%20Encephalomyelitis%2
0International%20Consensus%20Primer-2012-11-
24.pdf
Canadian Consensus Criteria (CCC)
2003
http://www.investinme.org/Documents/PDFdocuments
/Canadian_ME_Overview_A4.pdf
17. This slide series was produced in response to a question about NICE that I
received after my presentation to the QUB ePatients conference.
The above 22 minute presentation can be viewed on my blog: Just ME
or on YouTube: https://youtu.be/DJBd5wEKcpU
Active links from this slide series available at:
http://sallyjustme.blogspot.com/2015/09/graded-exercise-therapy-no-thank-you.html
END.