Family Health History Planning Progress Report


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Here is an example of a report I presented during my internship with the South Central AHEC. Project GRACE is the Genomic-based Research Applications for Community Engagement project, created by Nedal Arar of the UT Health Science Center of San Antonio. The Family Health History project is a pilot testing wider application of the program in public libraries.

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Family Health History Planning Progress Report

  1. 1. Library Focus Group Meeting -8/28/12- Participants Librarians from the Cortez, Mission, Central, Memorial, and Guerra libraries of San Antonio Moderator Paula Winkler_____________________________________________________________ Report by: Kristen Hanich, Intern Project Coordinator 1
  2. 2. Goals of Project GRACE and the Family Health History Project• To increase awareness of Family Health Histories and their role in medicine• To entice participants to create a three- generation family pedigree detailing their and their families’ health status• To encourage participants to share their Family Health History with their relatives and primary care provider• To collect data that can be used in the creation of additional projects 2
  3. 3. Hopes and expectations for the focus group• Discover potential problems and opportunities• Determine if language barriers exist, and if so, to what extent• Discover what level of familiarity librarians have with health research, particularly MedlinePlus• Discover if patrons and librarians are familiar with the Surgeon General’s family health history tool.• Evaluate level of librarian training in health research and privacy• Determine the existing library health resources, and the degree of public awareness of these resources.• Uncover potential ways to market the program 3
  4. 4. What we learned about the Family Health History Project• Librarians are mostly asked general questions about topics and book locations• Most questions are asked in English, a small percentage in Spanish• Spanish-speakers tend to want their health information in Spanish• Paper resources are more popular than electronic ones• The cost of printing is a potential deterrent to patrons• Many patrons do not voice concerns about privacy• Most libraries receive health questions weekly; one receives questions daily• Middle-aged to older women are most likely to ask health questions, followed by baby boomers, pregnant young women, and students working on projects• Most health questions are about diabetes, heart disease, diet, pregnancy, and cancer. Some are about mental health.• All librarians reported having searched for health information online for themselves and their families, and that this was useful while helping patrons. 4
  5. 5. What we learned about the Family Health History Project, cont’d• The librarians have not received formal training on health research or privacy• None of the librarians had received any questions about family health histories• Most librarians consider MedlinePlus the first place to go for simple answers or up-to-date information• Libraries are a health resource, but the public isn’t fully aware of this• Librarians feel that their role is to promote health literacy among their patrons• The Health Stations were considered an example of an underutilized resource• LibGuides are rarely used by patrons, but some librarians use them as a way to identify good references• Free newspapers and school handouts have been a good way to advertise• Successful library programs engage all generations• Proper timing of promotional events is key, and this timing might vary• Time of day is a factor when patrons are seeking librarian assistance 5
  6. 6. What we want to see incorporated into the Family Health History Project• Train the librarians in how to research health, and brief them on what tools are available• Train the librarians on health privacy and relevant HIPPA laws• Bring bilingual librarians into the project• Promotional program material in English and Spanish, targeting middle-aged women• Free printing for program materials• Promotional events: advertise project to already existing library groups, October as Family History Month (2013)• Bring in schools and teachers• Communicate with doctors• Require that patrons fill out a pre- and post- test before getting their gift card 6
  7. 7. What we want to see incorporatedTrain Librarians Create Promos Stakeholders Implementing EvaluatingResearch health, Promotional Bring in the Free printing for Pre- and post-health tools material in English schools and pedigrees and testing for and Spanish teachers health sheets librarians undergoing trainingHealth privacy Target middle- See if the schools Chose event Track theand HIPPA aged women will allow promos times that allow participation of for maximum schools and participation doctorsBring in bilinguals In-library posters See if teachers Make use of Incorporate pre- want to include already existing and post- tests the Family Health groups in into the process History project in advertising the of getting an HEB their curriculum program gift card Mass-emailing Bring in doctors Flyers for Explain program newspapers, scho and see if we can ol handouts work together 7
  8. 8. What steps we can take to get this project running• Identify bilingual librarians and incorporate them into project• Have librarians create own family health history and research relevant conditions on MedlinePlus• Make sure bilingual librarians are prepared to answer questions about the program in Spanish.• Identify library groups that may be interested in the project• Develop bilingual promotional materials• Contact area schools and doctors• Find a source of funding for the printing costs 8
  9. 9. Addressing GRACE’s Goals• To increase awareness of the Family Health History – Family Health Histories do not appear to be a topic of interest within the libraries. The program must create interest and awareness of this within the community in order to succeed. Promoting October as Family History Month is one option.• To entice participants to create a three-generation family pedigree – Promotional materials, social marketing, and gift card incentives will all be used in order to entice participants.• To encourage participants to share their Family Health History with their relatives and primary care provider – Sharing the Family Health History with the primary care provider might not be a practical solution. Push-back is expected from physicians. To minimize this, area physicians will be contacted with information on the program and how it may be useful to them. Additionally, MedlinePlus has been incorporated into the project as a means for participants to manage their own health.• To collect data that can be used in the creation of additional projects – Pre- and post- tests will be administered to librarians undergoing to curriculum. Pre- and post- tests will be administered to participants seeking to receive a gift card. 9