Britain's best-loved children's hospital and charity, Great Ormond Street Hospital for Children NHS Trust (GOSH), contracted a two-year project to modernise the hospital's web presence and take its brand into the 21st century. GOSH is both Britain's first children's hospital and a pioneering child health institution (along with its partner the Institute for Child Health). The hospital's outstanding reputation meant the project was carried out under intense public, media and professional scrutiny, and required a keen awareness of new media developments and the needs of the hospital's patients, their families and the public.

1. Great Ormond Street
Children's Hospital and the
Institute of Child Health
www.gosh.nhs.uk
Want to help Children?
Here & aroundthe world

2. Stacey -Jane
Why we can
do this well
Unlike commercial for-profit websites,
we are under no pressure to compromise
our content. We are also a stable, public
institution which will not go out of business.
The Boston Consulting Group found that
most commercial online health ventures
were failing. They also found that these
ventures fundamentally misunderstood
how patients and physicians use the web.
Trust also came up as an issue.
Most patients were wary of online
information and tended to trust universities
and medical associations over commercial
websites (we are associated with University
College London). All our content is
produced in direct consultation with
patients, families, physicians and nurses.
They know what they want and we strive to
deliver it. We also have strong relationships
with the wider UK government e-initiatives,
including the NHS Direct online health
service. Through these portal sites, our
content is able to reach a vast audience.
Stacey-Jane Panther had surgery at GOSH to correct
the effects of Perthes disease, which interrupts the blood
supply to the head of the femur (thigh- bone) and makes
hip movement painful. The operations were followed by
physiotherapy. Spending time in hospital did not mean
11-year-old Stacey missing school entirely: GOSH has
its own school, which is used by thousands of children
every year With a staff of 21, it welcomes all inpatients
of school age and teaches youngsters on the ward
if they are not well enough to come to the schoolroom.
The school was praised last year by inspectors from
the education watchdog OFSTED.

3. Amy
Amy Saunders has been completely deaf since birth
but at the age of three and a half she listens and talks
almost as if there were nothing wrong. A cochlear
implant, inserted last year by surgeons at GOSH,
enables her to 'hear' by converting sounds into electrical
signals that stimulate her auditory nerve. That means
her language skills are developing as normal. "I forget
she's deaf," says her mother, Jill. "She's always telling
me things and singing. It's the nearest thing to a miracle
that I'll ever see." More than 170 children have been
given cochlear implants at GOSH since the programme
began in 1992.
Who are we?
Our strong brand, world renowned for
150 years, is now online. The Great
Ormond Street Hospital for Children works
hand-in-hand with the Institute of Child
Health (affiliated with University College
London) and South Bank University.
The Institute and the Hospital sit beside
each other in the heart of London.
It is a collaborative and dynamic
relationship, where world leaders work
together to provide the widest range
of paediatric specialties in the country,
and the largest paediatric research and
training centre in Britain. For families
and patients, this ensures that the
treatments at the hospital are grounded
in the latest developments and meet the
highest standards.
All areas of the hospital take part in
research, including a particular focus on
research by nurses and professions allied
to medicine. The Institute and Hospital's
research and development strategy
is based on research themes targeted
at meeting the health needs of children.
The seven themes are:
• Biochemical and nutritional sciences
• Cardiorespiratory sciences
• Genes, development and disease
• Infection and immunity
• Neurosciences and mental health
• Population health sciences
Who uses our site?
• Doctors, nurses, researchers/scientists,
and patients and their families of course
• We treat some 100,000 children
every year
• Number of site users per month: 72,841
(Sept. 2001)
• Most users find our site through: Google
search engine NHS.uk portal site
• It is estimated that more than three
million children in the UK have access
to the internet. They could all be potential
users of our site if the content is right.
(Source: Jupiter MMXI)

4. uacK
Jack Smithson, 11, was born with a cyst on his brain
which caused uncontrollable seizures and weakened the
left side of his body. He underwent a hemispherectomy
at GOSH to disconnect the left side of his brain from the
right- a surgical procedure that helps to control seizures
in about 80 per cent of patients. GOSH developed
the UK's first service for children with severe epileptic
seizures, which has grown into one of the largest
paediatric epilepsy surgery programmes in the world.
A child
health portal
that can
be trusted
It has been estimated there are now more
than 100,000 web sites dedicated to health.
It's a crowded market out there on the
internet - and pretty confusing if you need
to know where to turn. The Journal of
the American Medical Association surveyed
these sites and found most offering
"incomplete, misleading, or difficult to
understand information, while others blur
the distinction between advertising and
medical advice".
In September of this year we re-launched
our child health portal,www.gosh.nhs.uk,
as part of a dynamic project to tap the
wealth of knowledge held in the hospital
and our research partner, the Institute of
Child Health.
We seek to become a one-stop portal for
complex child health issues. To date, our
expertise in innovative care and research
has not been fully reflected in the content
of our site: a situation we are determined
to change. What we hear from patients
and families time and time again is the
need for trust when seeking out resources
on the web. If your child is sick, you want
to know the information you find is accurate
and up-to-date, grounded in cutting-edge
research and care developments: two
things we do very well.

5. Gemma
Opportunities
for
collaboration
Content partnerships, for example
• Research breakthroughs/
developments, strengthening research
networks, aiding developing countries.
• Children's research news service
• Children's website editorial board
Ethical guidelines: All partners must meet our ethical
guidelines. We adhere to the 1992/1993 CharitiesAct.
Please contact us for additional details, but they are
in short:
We will not accept funds from the following:
• tobacco/alcohol companies
Technical support
• Research developments without
the jargon
• Technical support: innovative
applications to enhance our work
Gemma Richards had a bone marrow transplant at
GOSH after she was diagnosed with leukocyte adhesion
deficiency, an extremely rare disorder that hindered the
response of her white blood cells to skin infection
or injury. It meant that her skin was unable to heal itself.
Gemma, 11, received bone marrow from an unrelated
UK donor and is now well on the way to recovery.
Although not a fan of hospitals, she likes GOSH.
"I know a lot of people here now," she says. Last year
there were 57 bone marrow transplants at GOSH.
** <1
•*«*.,,
pharmaceutical companies, with the following proviso:
if a specific medicinal product allows the Charity to
meet specific strategic and operational objectives
if it is a non-pharmaceutical product, for example
cosmetics or toiletries with a proven track record
no endorsement of infant feeding formulae
no endorsement of dietary supplements
Anything that could damage the reputation of the
hosoitaI/institute
David South, Web Strategy
Southd@gosh.nhs.uk
Tel: 020 7829 8671 Ext.1052
Design/Layout: Medical illustration
© GOS/ICH 2001

6. GOSH/ICH Child Health Portal
2001 to 2003

7. Institute of Child Health
Great Ormond Street Hospital for Children i
MHSTru
arch Clinical Services GOSH Intern
About Us
Contact Us
Site Map
ICH Intranet
Staff Directories:
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Welcome to the new joint website of Great Ormond Street
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GOSH
Research Review
The Research Review
is tarn-packed with
stories about our
researchand
achievements Read
GOSH launches first
ever child-friendly
health site
GOSHKids-the first
truly child-lrienclly
hospital site. Reed
MM.,
A UK ftrst: child cured
by gene therapy A
child has been cured of
a fatal genetic condition,
X-SCID. by gene
therapy at GOSH Rea<i
ICH heads genetics
knowledge park ICH
dean David tatchman is
to lead <3 million London
IDEAS Park. R«td
CHnical improvement
for a better hospital
A six-month review has
started to produce a
new action plan tor
GOSH Read more
MMR GOSH says"MMR
is best and safest cptton
for our children" R«fd
Quick search
[please select
Jack was born wiih a cyst
on his brain which caused
uncontrollable seizuresand
weakened the left side oi his
body R?3<2 more
Events
Learning Events
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Courses
Clirucal Improvement
Institute of Child Health
Great Ormond Street Hospital for Children
HHS Tnjft
alth Professionals Research Clir
Patients and families
About us |Contactus
|Seorchlhesite
mlo@c,osh.nhsuk
Patunit family Inli*
Coming to GOSH
How to Get Here
n your Child is Admitted
nternationol andPrivate
Patients
Health Information Cerrtre
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GOSHTots
;T
iOSHKids
Hospital Tour
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Radio Gosh
Getting Help
Bereavement Services
. ,
Chid DeathHelpline
Family Advocates
SocialWork
amity t actaheets
Tests and Procedures
Operations
Directorate of Nursing and Family Services
Use this page as a gateway to our many
support services, or try exploring our many fact
sheets on medical procedures, ailments and
diseases. We have a lively range of support
services for children and teens, including our
radio station (Radio Gosh) and children's
school
Holly White underwent
pioneering surgery at GOSH
after •» bi din scan snowed
she had rnoya may*
Aik l)f J
*ne
Collins column
Or Jan. """"« Poplar Times
• f ColMns... columndispenses jargon-
^ S
r^*l
THE«tti»T1Ml£
tree advice.
A-Z of CMct Complaints
F actsheets for families
Large archive developed
by our medical and
researchteams. Read
Joint website puts the
:htld first Check outour
new Teens and Tots
International
& Private
Patients
•rring an Inter national or
Private Patient
|Email:
arivatelnTogggosh nhs.ufc
'tVi>10845
D/recf4647
NHSDirect online healh
encyclopedia
Institute of Chili! Health
Great Ormond Street Hospital for Children
Health Professionals Research Clinical Services GOSHInternational Press Office Campaigns I
Health Professionals
About us|Contact u?
(Search thesite t-bi>j
Service*
Nursing and Family Directorate
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Children's Pain Assessment
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Institute of Child Health
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& Private
Patients
Referring an Inter national or
Private Patient
Email:
3rivate.fifQ@gosh nhs,uk
Search here to explore our services, make a
referral, attend a course or conference, and
connect with our researchers.
Stacey-Jane Panther had
surgery at GOSH to correct
the effects of Perthe*
disease, which interrupts
the blood supply to the head
of the femur (thigh-bone)
and make* hip movement
painful. Read more about
Holly and others mthis
year's Anau&f rtport
Patient and family
factsheets
Download our many
factsheets to distribute to
families
Check out our library,
MM selected by the BMJ as an
pi excellent sourceof
paedialttc resources
Clinical improvement
A six-month review has
started to produce a new
action plan tor GOSH. R«S
mon, .
Resources
Ifcrary
NetH
Famrfy Factsheets
Centre tor Evidence-Based
Ch*JHea»h
Publications
Roundabout
• •
AnnualReport
Chrite at Oovernance Report
NHS Local Information
Database
NHSInformation Authority
wwwjihs.uk
Department o( Heath
Institute of Child I htilth
Research
Great Ormond Street Hospital for Children
NHS Tru
• .mjra.»<rr.Ti^^T^r^»ntin.irnnmTnrn.Ti
Institute of Child Health
About us
Academic Units
Reset"eh Themes
Research Review 2001
Courses
Conference Services
Recruitment
RSI) Office
R&D eUtetin
Learning Events
Together, the Hospital and the tnstilule of Child
Health offer a rich source of knowledge on child
health. Explore our research themes, link with
colleagues or conduct a search.
Ellie (above) from Chingford,
East London suffers from a
rare neonatal disorder, PHHl,
which has puzzfed doctors
and scientists for years.
Read more about Ellie in this
year's Research Review.
More research links
Research Review 200-1
The ResearchReview is iam-
I packedwith stones about our
research and achievements. R
ICH heads genetics
knowledge park ICHdean David
LONDON Latchman isto lead £3 million
IDEAS London IDEAS Park Read mote
Cancer gene breakthrough
ICH scientists have identified five
genes that areexpressed n
embryo and cancer eels. Read
About us I Contact us
jSearch the site CEE3

8. fnstitHtc of Child Health
Great Ormond Street Hospital for Children
About Ui
Contact Us
Sle Map
CM intrsnel
Staff Direclones
Patients and Families
Kris BiiO Teens
How To Get Here
Your Visit
International and Private
Pahents
Health Professionals
Ctnical Improvement
Cinicol Services
Recrurtmenl
Referrals
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Academic Units
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Oppcfturtftw
R A B O f f t c *
.GOSH
f chanty website
Welcome to the new joint website ol Great Omiond Street
Children's Hospital and the Institute at Child Health
A UKfirst: child cur
by gene therapy A
child hasbesn cured
a fatal genetic eondrtic
X-SCO. by acne
therapy at GOSH Rea
s (or
families scfdi trKejyit
our large archive of
fam*y factsheets. Reso
mote
irsalment of epilepsy
MMR GOSH says-
is test ana safest o
fot our children" S*
more
Quick search
Ptease select
Jack i', as born with a cy*1
on ha brain which caused
veafcenftd the teft tide c 1 n
boay. ReaOmore
Learning Events
Fundraising Events
Courses
x Great Ormond Street Hospital
Children's Charity
Donate News Events Get Involved Companies About
Great Ormord Street Hospital welcomes more than 90,000 patients per year. An>
donations you make to Great Ormcrid Street Hospital Children's Chanty have a
Lopping up the NHS'funding. To find out n
visit www.gosh.nlt&.uk.
>ital work of the hospital,
Make a Donation: phone now on 020 79K
Sorvg of hope (or 'Mir.icln CliiUl"
Emma Lucas is a bright and friendly eight-year-
old girl whose main concern is getting the next
issue ot her favourite magazine. But to her
parents she is a mini-miracle... retjd more
Millv helps owl HIP hospit.il
The naming of a neiv Miffy ward at Great Oi
Street Hospital brings loads of Mirfy-related
activities to the hospital... rrad more
Contact Ui Sitemap Copyright
> Kyle's Ka makes a mint for children's
hospital
* Parts to {.ordon Bike Ride, 26-31 July
2003
GOSH ';;1 Peter
-.1 "1;, Shop ^ Pan
Teens
Empowering children
Una younf) [i»nplt I'irauqh hiijltFi
Last updated 27th June 2003
©GOSH 2001-2003
Written by GOSH Trust.
Reviewed by ChiWrei First
About us
• Find out what it's realty like
in hospital.
• Share your view on the
world.
• Problems? Take a
look at ihe problem page
• The news and stones thai
matter to you.
« Looking 4 answers? Try
health and hospital
ssageboards.
the latest celeb goss
n Sneak magazine,
global. Check out
rldflrst.
; r
v*fd lots of real stones
ut health and hospital.
• Find out about your body
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' What do kids really think of
burgers and chips?
• Being bullied? Find out
what you can do to stop it.
• Check out our wiiard harry
Potter section.
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'NT
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ir., Schools tl
Contact Us Sltenwp Co[vyrfKlil T#i OM 791fi W7B - -^
R*S. Ch.rlt.,. M,a.J3S.S1S

9. •istitutt of Child Health
Great Ormond Street Hospital for Children
niM.imrmnrmT!i»jnn«i.iro»«i,.i..T.i.t.
Patients and families
About us | Contact us
[Search the site 13223
Ask GOSH
info®gosh nhs.uk
Patient.famitylnfo
Comingto GOSH
How to Get Here
n your ChW is Admitted
international and Private
Patients
Health information Centre
HospitalWaiting 7«nes
Kids and Teens
OOSHTots
OT
OOSHKidS
Hospital Tour
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A / of child complaints
Getting Help
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Chaplaincy
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family F*ctsheet»
Tests and Procedures
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Hinesses and Diseases
Drugs
Acne
Up to 85 per cent of 1 2 to 25 year otds suffer from spots Boys and girls are
equally affected They usually appear at puberty and reachtheir peak at 17-21 If
untreated, persistent spots or acne, can cause scarring but prompt treatment
minimises this Acne is caused by over-production of oil from the sebaceous
glands in the skin mainly on the face, chest and backin response to normal
levels of sex hormones Oil blocks the ducts to the surface of the skin allowing
waste cells to accumulate under the skin's surfaceforming a plug Bactena
also play a part Teenage girls often report a flare-up beforemenstruation
Some find stress and certainfoods, especially fast food and chocolate, make
acne worse although there is no scientific evidence for this Some cosmetics
provoke spots especiallythose containing oils, fatty acids and waxes Acne is
not infectious or contagious
Symptoms: Oily skin with red lumps, yellow spots, blackheads and whiteheads
Teenagers with black skin often find that spots make their skin darker and this
pigmentation can last for months
mi: ^ssTIMES
A / of i hilil ciimpSiiinls
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Institute of Child Health
Information for families Genetics and inheritance
Great Ormond Street Hospital for Children
NHS Iru*t
Please use theindexes
below tofind the factsheet
you need.
Or search the full
alphabetical index
BDDEIOOE1
QOQDQDD
QDDOH
#
What are genes?
HOW can genetic disorders be inherited?
Is it always possible tomake a genetic diagnosis'1
How can genetic abnormalities be detected?
Contac! information
Background
Many immunodeficiency disorders are the result of defects in an individual's
genetic makeup These are mistakes which occur in genes and are passed from
generation to generation Sometimes a genetic mistake (mutation) can occur for
the first time in an infantor child when no-one else In the famiry has had the
problem, but in other situations there may Befamily members who have suffered
from the same or similar problems. There are several ways in which mutations
can be inherited - theseare explained below In an increasing number of
immunodeficiency disorders the precise mistake inthe relevant gene can now lie
identified in the laboratory, and this means that accurate counselling can be
offered lo the family, andscreening tests can be offered in pregnancy if requested
What are genes?
Institute of Child Health
Great Ormond Street Hospital for Children
NHS Tww
Feedback/Contact us
Contact Information
Frequently Asked
Questions
Who arewe'
About the site
Publications
FEE
Welcome to Great Ormond Street Children's Hospital/Institute of Child Health. If you
have a question, please look through the frequently AskedQuestions to see if the
answer is there If not, please use Ihe form on this page to contact us
We are unable to answer queries or offer advice about specific patients and/or their
conditions through this website. Atthe same time, we recognize that visitors to our
website may require informationabout particular paediatric health issues Please check
out our family factsheets for informationon tests, procedures, operations, andvarious
paediatric conditions You can also readour archiveof Dr Jane Colims'Times column,
dispensing jargon-free advice on a wide range of paediatric topics.
| Choosea subject
Vour
name
Your
Institute of Child Health
Great Ormond Street Hospital for Children
NHS Trutt
Information for families The Activities Centre
[searchthesite CS3
Please use the indexes
below to findthetactsheet
you need
Or search the full
alphabetical index
nummnun
QDDDOISID
DDQDBDD
DDDDD
Download PDF of 'The Activities Centre' tactsheet
Contents
What is the Activities Centre?
Where is the Activities Centre?
Who can use the Actrvities Centre7
Who runs trie Activities Centre?
What is thereto do in the Activities Centre^1
What happens when I bring my child to theAetivies Centre7
When is theActtwities Centre open?
Special needs therapysession
vouih Group
Junior youth group
The Den
This page tells you about the Activities Centre at Great Ormond Street Hospital.
What is the Activities Centre?
it's a place where inpattents at Great Ormond Street Hospital can get away from trie
medical environmenl oftheir ward for awtiiie and have some fun ifs bright and
colourful, full of things to do and gives children attne hospital an opportunity to meet
other people their own age

10. Institute of Child Health
Great Ormond Street Hospital for Children
NHS Trurt
rch Clinical Services GOSH Inte
Search the site
Scroll through our statements, publications and
press releases, or learn more aboul Hie rich
history ol our work. We have been in Die
forefront ol child health lor over 150 years.
Contact us at (020) 7829 8671.
I
Kelogenic Diet
HtgMat chei reduces
severe epileptic seizures •
children. Reoomcre.
GOSH Kid* wins award
International ChiMnet award
gs*S to GOSH R«tO
Epilepsy Feature
Learn owe about
ground breaking advances.
in the treatment of epilepsy
3 June 2003
Non-executive director
reappomtea at Great Ormont)
Street Hospital for Cnfcdnw WHS
Trust Reea mom..
i . - • • , • , • . .''.i C •
. - • • I ' , .'in '
Great Qrmcnd Street HIcspita!
celebrated ten year* of
intensive care unit. Resa more
20 May 2003
H«a«hy start, healthy futures
The (y)ure of children and young
people's maternity ond neonatal
health services. Head more...
IM . ' i
Past and present patients united
to cete&rate opening of new
ward Ree<3more...
1. May ,'ni,
Hew appeal raises f.i.S million
for first-ever research chair m
institute of Child Health
Great Ormond Street Hospital for Children
NHS Tru*t
Patients and families
About us |Contact us
[Search the site ; HE
Directorate of Nursing and Family Services
'«tierttf •mitylrrfo
ominfl to GOSH
-low to Get Here
(Uteri your Chrtd is Aclmflerl
nternabonai and Private
Mrii
•tealth Intoi martion Cw^re
HospitalWatmg Tirrws
lids MM) Teens
3OSHTots
3T
SOSHKids
•fospitaf Tour
tal School
niq Hei(3
9ef eavement Services
:rwptaincy
:hild Death Helpline
"amlly Advocaies
Social Work
«TWVf actsheets
ests andProcedures
Use this page as a gateway to our many
support services, or try exploring our many fact
sheets on medical procedures, ailments and
diseases We have a lively range of support
services for children and teens, including our
odio station (Radio Gosh) and children's
school
Holly WTwte undciwrfrt
piiinKeMfiit wurqeryat GOSH
•itlcr a bi *IH sc*n Khowcd
slip hnrt oiov moy«
Or Jane Collins column
online Popular Times
column dispenses jargon-
free advice.
A-Z of Chtlc* Concerts
Articles
Large at c hive developed
by our medical and
research teams. Rvnl
mof«
Joint website put* thi*
child fit st Check outour
new Teens and Tots
D/rect4647
NHSDirect online health
encyclopedia
Great Orrnond Street Hospital for Children
HHtInnt_, Institute of Child Health
Publications and
Downloads
Press Release Archive
Statement Archive
Backgrounder*
Ketogenic Diet: FAQs
Epilepsy Unit
Epilepsy: Did Vou Know?
Press Release Ketogenic Diet
Press Release: Trapdoor in Head
Ketogenic Diet: FAQs
Epilepsy Unit
Epilepsy: Did YouKnow?
._ Epilepsy Did You Press Release:
Great Ormond Street Hospital for Children
Patients and Families Health Professionals Research Clinical Services GOSH International Press Office Campaigns I
Information for families When your child is admitted
|search the site
Please use the indexes
below to find the factsheet
you need
Contents
Getting ready for admission
Talking to your child
Packing for your child
For yourself
Electrical appliances
Telephones
imvMyimiiMjm^™
Getting ready for admission
Or search the full
alphabetical index
QDOQODD
DDnDDCDD
DDQDDDD
DQDDB
rease is may e cu or osewo ave oer c r e n a ome.
As a parent you are welcome to be with your child in the hospital at all limes (and at
no charge). We will always provide somewhere for one parent to stay althoughwe
cannot guarantee that this will be at your child's bedside.
A list of local hotels is also available from the family services department If needed.
Talking to your child

11. Get Invoh/etl | Hilon nation | Reseat ch | FAQs | Links | Heln
UK Newborn Screening Programme Centre
'Quality through partnership in newborn bSoodspot Kreenmg'
Welcome to the UK Newborn Screening Programme Centre
We hope vou will find this website informativeand a convenient way of receiving information on the
collaborative wotk that we have planned to assure quality in newborn screening sen/ices throughout
the UK We welcome yout involvement whether as a professional, parent or interested member of
the public and vou can find out how to do this in the 'Gel involved' pages.
Through this site we will introduceyou to our team and the purpose of our work in 'AiiQutjjj'. You will
also be able to access Information about our work and its context within the 'information'..iiafl6.§-*
useful glossary and key to some of the abbreviations used is also available here for your use.
The Programme Centre Team
L.ilesl Hews
News and information
FAQs
H5SH Questions answered (or parents
A clickable
,) of A UKsci eeiiliiii Ijl'
A partnership between
Useful links, including the Naj
LuJdbirthl
.
mi Great Ormond Street Hospital for Children ft'/M JS^,1
.1
,'.;;;,'™ >? s
NMS Tluil 1^3 h»>.
Institute of Child Health Great Ormond Street Hospital for Children
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Wr«e4GOSH marksthe 150th birthday of Great
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14. Empowering children
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