SlideShare a Scribd company logo

Emergent Communities and Open Source Cure

created for the Remediating the Social conference in Edinburgh, the presentation narrates our efforts in researching innovative, peer-to-peer creative practices, and the story of the Open Source Cure as an example of our approach. www.artisopensource.net

1 of 75
Download to read offline
EMERGENT
COMMUNITIES
    and Open Humanity


              @Remediating the Social
  Salvatore Iaconesi & Oriana Persico [ Art is Open Source ]
EMERGENT CREATIVE COMMUNITIES
and the ways in which they interact with territories, networks, technologies, cities
We’ve worked on
this in the past ...
researched what can be
accomplished by creating a
fake institution which acts
as an open source meta-
brand with the

RomaEuropa Fake
Factory




www.romaeuropa.org
observed how can open
Augmented Reality and
ubiquitous technologies be
used as tools for
movements and collectives,
creating new ways of
publishing information
anywhere and enacting
location based actions and
performances easily and
accessibly for everyone
http://bit.ly/RGKILS

http://bit.ly/PBaFOz

http://bit.ly/PBaxP0
explored how we could
create a widespread p2p
people activation by
inventing an augmented
reality drug usable for the
reinvention of reality




http://bit.ly/UgZMnH
Ad

Recommended

Elmcip Presentation Edinburgh -- Remediating the Social
Elmcip Presentation Edinburgh -- Remediating the SocialElmcip Presentation Edinburgh -- Remediating the Social
Elmcip Presentation Edinburgh -- Remediating the SocialScott Rettberg
 
Roald Dahl biography Presentation
Roald Dahl biography PresentationRoald Dahl biography Presentation
Roald Dahl biography Presentationmarodriguezz
 
La Fibromialgia
La FibromialgiaLa Fibromialgia
La Fibromialgiaingava17
 
Human-machine Inter-agencies
Human-machine Inter-agenciesHuman-machine Inter-agencies
Human-machine Inter-agenciesmo-seph
 
LECTURE 6 - Cyberculture
LECTURE 6 - CybercultureLECTURE 6 - Cyberculture
LECTURE 6 - CybercultureKim Flintoff
 

More Related Content

Similar to Emergent Communities and Open Source Cure

Publishing the private notes
Publishing the private   notesPublishing the private   notes
Publishing the private notesDavid Patman
 
Implications Of The Uncanny Valley Of Avatars And Virtual Characters For Huma...
Implications Of The Uncanny Valley Of Avatars And Virtual Characters For Huma...Implications Of The Uncanny Valley Of Avatars And Virtual Characters For Huma...
Implications Of The Uncanny Valley Of Avatars And Virtual Characters For Huma...Kimberly Williams
 
Digital social networks and influencers: the crucible of the decay of ethical...
Digital social networks and influencers: the crucible of the decay of ethical...Digital social networks and influencers: the crucible of the decay of ethical...
Digital social networks and influencers: the crucible of the decay of ethical...AJHSSR Journal
 
What Makes The World At Large
What Makes The World At LargeWhat Makes The World At Large
What Makes The World At LargeWriter Paper UK
 
La Cura Summer School - Introduction
La Cura Summer School - IntroductionLa Cura Summer School - Introduction
La Cura Summer School - IntroductionNefula
 
The Symbolic Convergence Theory Rhetorical Analysis
The Symbolic Convergence Theory Rhetorical AnalysisThe Symbolic Convergence Theory Rhetorical Analysis
The Symbolic Convergence Theory Rhetorical AnalysisCrystal Alvarez
 
Media role in communication
Media role in communicationMedia role in communication
Media role in communicationSalman Jailani
 
Effects Of Mass Media On The Media
Effects Of Mass Media On The MediaEffects Of Mass Media On The Media
Effects Of Mass Media On The MediaKaren Stockton
 
Thinking in networks: what it means for policy makers – PDF 2014
Thinking in networks: what it means for policy makers – PDF 2014Thinking in networks: what it means for policy makers – PDF 2014
Thinking in networks: what it means for policy makers – PDF 2014Alberto Cottica
 
Ubiquitous Commons workshop at transmediale 2015, Capture All
Ubiquitous Commons workshop at transmediale 2015, Capture AllUbiquitous Commons workshop at transmediale 2015, Capture All
Ubiquitous Commons workshop at transmediale 2015, Capture AllSalvatore Iaconesi
 
Cyberanthropology
CyberanthropologyCyberanthropology
CyberanthropologyUls Ulsaa
 
sxsw-interactive-festival-2013)
sxsw-interactive-festival-2013)sxsw-interactive-festival-2013)
sxsw-interactive-festival-2013)Kristin Milburn
 
EdgeRyders in Bucharest: Building communities to build our better future
EdgeRyders in Bucharest: Building communities to build our better futureEdgeRyders in Bucharest: Building communities to build our better future
EdgeRyders in Bucharest: Building communities to build our better futureNoemi Salantiu
 
I Am An Outsider Of The Cinephile World
I Am An Outsider Of The Cinephile WorldI Am An Outsider Of The Cinephile World
I Am An Outsider Of The Cinephile WorldAnna Melek
 
Thesis_Digest
Thesis_DigestThesis_Digest
Thesis_DigestWei Xu
 
Scholarship Essay English Writing Skills
Scholarship Essay English Writing SkillsScholarship Essay English Writing Skills
Scholarship Essay English Writing SkillsJacqueline Donovan
 
Presentation On Participation, Remediation, Bricolage Considering Principal...
Presentation On Participation, Remediation, Bricolage   Considering Principal...Presentation On Participation, Remediation, Bricolage   Considering Principal...
Presentation On Participation, Remediation, Bricolage Considering Principal...sgie6824
 

Similar to Emergent Communities and Open Source Cure (20)

Publishing the private notes
Publishing the private   notesPublishing the private   notes
Publishing the private notes
 
Implications Of The Uncanny Valley Of Avatars And Virtual Characters For Huma...
Implications Of The Uncanny Valley Of Avatars And Virtual Characters For Huma...Implications Of The Uncanny Valley Of Avatars And Virtual Characters For Huma...
Implications Of The Uncanny Valley Of Avatars And Virtual Characters For Huma...
 
The Social Impact Of Digital Media Essay
The Social Impact Of Digital Media EssayThe Social Impact Of Digital Media Essay
The Social Impact Of Digital Media Essay
 
Digital social networks and influencers: the crucible of the decay of ethical...
Digital social networks and influencers: the crucible of the decay of ethical...Digital social networks and influencers: the crucible of the decay of ethical...
Digital social networks and influencers: the crucible of the decay of ethical...
 
What Makes The World At Large
What Makes The World At LargeWhat Makes The World At Large
What Makes The World At Large
 
La Cura Summer School - Introduction
La Cura Summer School - IntroductionLa Cura Summer School - Introduction
La Cura Summer School - Introduction
 
'When I Grow Up, I Want To Be A Futurist' by Nikolas Badminton
'When I Grow Up, I Want To Be A Futurist' by Nikolas Badminton'When I Grow Up, I Want To Be A Futurist' by Nikolas Badminton
'When I Grow Up, I Want To Be A Futurist' by Nikolas Badminton
 
The Symbolic Convergence Theory Rhetorical Analysis
The Symbolic Convergence Theory Rhetorical AnalysisThe Symbolic Convergence Theory Rhetorical Analysis
The Symbolic Convergence Theory Rhetorical Analysis
 
Media role in communication
Media role in communicationMedia role in communication
Media role in communication
 
Knowledge value
Knowledge valueKnowledge value
Knowledge value
 
Effects Of Mass Media On The Media
Effects Of Mass Media On The MediaEffects Of Mass Media On The Media
Effects Of Mass Media On The Media
 
Thinking in networks: what it means for policy makers – PDF 2014
Thinking in networks: what it means for policy makers – PDF 2014Thinking in networks: what it means for policy makers – PDF 2014
Thinking in networks: what it means for policy makers – PDF 2014
 
Ubiquitous Commons workshop at transmediale 2015, Capture All
Ubiquitous Commons workshop at transmediale 2015, Capture AllUbiquitous Commons workshop at transmediale 2015, Capture All
Ubiquitous Commons workshop at transmediale 2015, Capture All
 
Cyberanthropology
CyberanthropologyCyberanthropology
Cyberanthropology
 
sxsw-interactive-festival-2013)
sxsw-interactive-festival-2013)sxsw-interactive-festival-2013)
sxsw-interactive-festival-2013)
 
EdgeRyders in Bucharest: Building communities to build our better future
EdgeRyders in Bucharest: Building communities to build our better futureEdgeRyders in Bucharest: Building communities to build our better future
EdgeRyders in Bucharest: Building communities to build our better future
 
I Am An Outsider Of The Cinephile World
I Am An Outsider Of The Cinephile WorldI Am An Outsider Of The Cinephile World
I Am An Outsider Of The Cinephile World
 
Thesis_Digest
Thesis_DigestThesis_Digest
Thesis_Digest
 
Scholarship Essay English Writing Skills
Scholarship Essay English Writing SkillsScholarship Essay English Writing Skills
Scholarship Essay English Writing Skills
 
Presentation On Participation, Remediation, Bricolage Considering Principal...
Presentation On Participation, Remediation, Bricolage   Considering Principal...Presentation On Participation, Remediation, Bricolage   Considering Principal...
Presentation On Participation, Remediation, Bricolage Considering Principal...
 

More from Salvatore Iaconesi

Innovation and Trangression: exploring Third Spaces and Excess Spaces
Innovation and Trangression: exploring Third Spaces and Excess SpacesInnovation and Trangression: exploring Third Spaces and Excess Spaces
Innovation and Trangression: exploring Third Spaces and Excess SpacesSalvatore Iaconesi
 
Third Infoscape, presented at DIS2017 in Edinburgh
Third Infoscape, presented at DIS2017 in EdinburghThird Infoscape, presented at DIS2017 in Edinburgh
Third Infoscape, presented at DIS2017 in EdinburghSalvatore Iaconesi
 
La Cura: Erbe Indisciplinate, ricapitolazione
La Cura: Erbe Indisciplinate, ricapitolazioneLa Cura: Erbe Indisciplinate, ricapitolazione
La Cura: Erbe Indisciplinate, ricapitolazioneSalvatore Iaconesi
 
La Cura, Erbe Indisciplinate, presentazione di benvenuto, frame
La Cura, Erbe Indisciplinate, presentazione di benvenuto, frameLa Cura, Erbe Indisciplinate, presentazione di benvenuto, frame
La Cura, Erbe Indisciplinate, presentazione di benvenuto, frameSalvatore Iaconesi
 
Human Ecosystems and the Ubiquitous Commons at the STARTS program meeting
Human Ecosystems and the Ubiquitous Commons at the STARTS program meetingHuman Ecosystems and the Ubiquitous Commons at the STARTS program meeting
Human Ecosystems and the Ubiquitous Commons at the STARTS program meetingSalvatore Iaconesi
 
Ubiquitous Commons at NetFutures 2015
Ubiquitous Commons at NetFutures 2015Ubiquitous Commons at NetFutures 2015
Ubiquitous Commons at NetFutures 2015Salvatore Iaconesi
 
Near Future Design class at Isia Design: Transmedia narratives
Near Future Design class at Isia Design: Transmedia narratives Near Future Design class at Isia Design: Transmedia narratives
Near Future Design class at Isia Design: Transmedia narratives Salvatore Iaconesi
 
Informazione Ubiqua: come è fatto un museo ubiquo?
Informazione Ubiqua: come è fatto un museo ubiquo?Informazione Ubiqua: come è fatto un museo ubiquo?
Informazione Ubiqua: come è fatto un museo ubiquo?Salvatore Iaconesi
 
Art is Open Source at Visualize: materials and links
Art is Open Source at Visualize: materials and linksArt is Open Source at Visualize: materials and links
Art is Open Source at Visualize: materials and linksSalvatore Iaconesi
 
Near Future Design: the performance of infinite futures
Near Future Design: the performance of infinite futuresNear Future Design: the performance of infinite futures
Near Future Design: the performance of infinite futuresSalvatore Iaconesi
 
Incautious Porn, SSN2014 Presentation in Barcelona
Incautious Porn, SSN2014 Presentation in BarcelonaIncautious Porn, SSN2014 Presentation in Barcelona
Incautious Porn, SSN2014 Presentation in BarcelonaSalvatore Iaconesi
 
Near Future Design - ISIA 6 Marzo 2014
Near Future Design - ISIA 6 Marzo 2014Near Future Design - ISIA 6 Marzo 2014
Near Future Design - ISIA 6 Marzo 2014Salvatore Iaconesi
 
Human Ecosystems - the relational ecosystems of cities for a new definition o...
Human Ecosystems - the relational ecosystems of cities for a new definition o...Human Ecosystems - the relational ecosystems of cities for a new definition o...
Human Ecosystems - the relational ecosystems of cities for a new definition o...Salvatore Iaconesi
 
La Cura: an Open Source Cure for Cancer, at Transmediale 2014: Afterglow. In ...
La Cura: an Open Source Cure for Cancer, at Transmediale 2014: Afterglow. In ...La Cura: an Open Source Cure for Cancer, at Transmediale 2014: Afterglow. In ...
La Cura: an Open Source Cure for Cancer, at Transmediale 2014: Afterglow. In ...Salvatore Iaconesi
 
Openness Workshop at Luiss i-Lab
Openness Workshop at Luiss i-Lab Openness Workshop at Luiss i-Lab
Openness Workshop at Luiss i-Lab Salvatore Iaconesi
 
EC(m1) the Cultural Ecosystem of Rome, at Cultur+
EC(m1) the Cultural Ecosystem of Rome, at Cultur+EC(m1) the Cultural Ecosystem of Rome, at Cultur+
EC(m1) the Cultural Ecosystem of Rome, at Cultur+Salvatore Iaconesi
 
Innovation Ecosystems at Internet Festival 2013
Innovation Ecosystems at Internet Festival 2013Innovation Ecosystems at Internet Festival 2013
Innovation Ecosystems at Internet Festival 2013Salvatore Iaconesi
 
Master Exhibit & Public Design, La Sapienza, Lezione 1
Master Exhibit & Public Design, La Sapienza, Lezione 1Master Exhibit & Public Design, La Sapienza, Lezione 1
Master Exhibit & Public Design, La Sapienza, Lezione 1Salvatore Iaconesi
 

More from Salvatore Iaconesi (20)

Innovation and Trangression: exploring Third Spaces and Excess Spaces
Innovation and Trangression: exploring Third Spaces and Excess SpacesInnovation and Trangression: exploring Third Spaces and Excess Spaces
Innovation and Trangression: exploring Third Spaces and Excess Spaces
 
Third Infoscape, presented at DIS2017 in Edinburgh
Third Infoscape, presented at DIS2017 in EdinburghThird Infoscape, presented at DIS2017 in Edinburgh
Third Infoscape, presented at DIS2017 in Edinburgh
 
La Cura: Erbe Indisciplinate, ricapitolazione
La Cura: Erbe Indisciplinate, ricapitolazioneLa Cura: Erbe Indisciplinate, ricapitolazione
La Cura: Erbe Indisciplinate, ricapitolazione
 
La Cura, Erbe Indisciplinate, presentazione di benvenuto, frame
La Cura, Erbe Indisciplinate, presentazione di benvenuto, frameLa Cura, Erbe Indisciplinate, presentazione di benvenuto, frame
La Cura, Erbe Indisciplinate, presentazione di benvenuto, frame
 
Human Ecosystems and the Ubiquitous Commons at the STARTS program meeting
Human Ecosystems and the Ubiquitous Commons at the STARTS program meetingHuman Ecosystems and the Ubiquitous Commons at the STARTS program meeting
Human Ecosystems and the Ubiquitous Commons at the STARTS program meeting
 
Ubiquitous Commons at NetFutures 2015
Ubiquitous Commons at NetFutures 2015Ubiquitous Commons at NetFutures 2015
Ubiquitous Commons at NetFutures 2015
 
Near Future Design class at Isia Design: Transmedia narratives
Near Future Design class at Isia Design: Transmedia narratives Near Future Design class at Isia Design: Transmedia narratives
Near Future Design class at Isia Design: Transmedia narratives
 
Imaginary Brands
Imaginary BrandsImaginary Brands
Imaginary Brands
 
Informazione Ubiqua: come è fatto un museo ubiquo?
Informazione Ubiqua: come è fatto un museo ubiquo?Informazione Ubiqua: come è fatto un museo ubiquo?
Informazione Ubiqua: come è fatto un museo ubiquo?
 
Art is Open Source at Visualize: materials and links
Art is Open Source at Visualize: materials and linksArt is Open Source at Visualize: materials and links
Art is Open Source at Visualize: materials and links
 
Near Future Design: the performance of infinite futures
Near Future Design: the performance of infinite futuresNear Future Design: the performance of infinite futures
Near Future Design: the performance of infinite futures
 
Incautious Porn, SSN2014 Presentation in Barcelona
Incautious Porn, SSN2014 Presentation in BarcelonaIncautious Porn, SSN2014 Presentation in Barcelona
Incautious Porn, SSN2014 Presentation in Barcelona
 
Near Future Design - ISIA 6 Marzo 2014
Near Future Design - ISIA 6 Marzo 2014Near Future Design - ISIA 6 Marzo 2014
Near Future Design - ISIA 6 Marzo 2014
 
Human Ecosystems - the relational ecosystems of cities for a new definition o...
Human Ecosystems - the relational ecosystems of cities for a new definition o...Human Ecosystems - the relational ecosystems of cities for a new definition o...
Human Ecosystems - the relational ecosystems of cities for a new definition o...
 
La Cura: an Open Source Cure for Cancer, at Transmediale 2014: Afterglow. In ...
La Cura: an Open Source Cure for Cancer, at Transmediale 2014: Afterglow. In ...La Cura: an Open Source Cure for Cancer, at Transmediale 2014: Afterglow. In ...
La Cura: an Open Source Cure for Cancer, at Transmediale 2014: Afterglow. In ...
 
Aivot 1: a concept Library
Aivot 1: a concept LibraryAivot 1: a concept Library
Aivot 1: a concept Library
 
Openness Workshop at Luiss i-Lab
Openness Workshop at Luiss i-Lab Openness Workshop at Luiss i-Lab
Openness Workshop at Luiss i-Lab
 
EC(m1) the Cultural Ecosystem of Rome, at Cultur+
EC(m1) the Cultural Ecosystem of Rome, at Cultur+EC(m1) the Cultural Ecosystem of Rome, at Cultur+
EC(m1) the Cultural Ecosystem of Rome, at Cultur+
 
Innovation Ecosystems at Internet Festival 2013
Innovation Ecosystems at Internet Festival 2013Innovation Ecosystems at Internet Festival 2013
Innovation Ecosystems at Internet Festival 2013
 
Master Exhibit & Public Design, La Sapienza, Lezione 1
Master Exhibit & Public Design, La Sapienza, Lezione 1Master Exhibit & Public Design, La Sapienza, Lezione 1
Master Exhibit & Public Design, La Sapienza, Lezione 1
 

Emergent Communities and Open Source Cure

  • 1. EMERGENT COMMUNITIES and Open Humanity @Remediating the Social Salvatore Iaconesi & Oriana Persico [ Art is Open Source ]
  • 2. EMERGENT CREATIVE COMMUNITIES and the ways in which they interact with territories, networks, technologies, cities
  • 3. We’ve worked on this in the past ...
  • 4. researched what can be accomplished by creating a fake institution which acts as an open source meta- brand with the RomaEuropa Fake Factory www.romaeuropa.org
  • 5. observed how can open Augmented Reality and ubiquitous technologies be used as tools for movements and collectives, creating new ways of publishing information anywhere and enacting location based actions and performances easily and accessibly for everyone http://bit.ly/RGKILS http://bit.ly/PBaFOz http://bit.ly/PBaxP0
  • 6. explored how we could create a widespread p2p people activation by inventing an augmented reality drug usable for the reinvention of reality http://bit.ly/UgZMnH
  • 7. analyzed how to transform high school students of the city of Pompei in Italy into designers of their digital city, creating business models, participation practices, peer to peer environments for creativity and governance http://bit.ly/YDUiTG
  • 8. engaged a whole territory in the south of Italy to create an augmented reality movie using open source technologies, to explore how it is possible to create tools and practices through which digital technologies and networks can be used by people to coordinate, participate, and create together, inventing new economies and practices http://bit.ly/RedYtu http://bit.ly/n9ZJ10
  • 9. understood how to capture real-time information from social networks and use it to create open tools usable by people to understand what happens in their city, what are people's emotions, ideas and thoughts about the environment, city governance, energy, lifestyle, and the possibility to organize themselves in p2p ways, creating businesses, art, politics in http://bit.ly/RRVFYY http://bit.ly/JuIXOk novel ways
  • 10. and then... Digital Manual understand the relationships and processes through which creative communities emerge around digital publishing tools of many kinds http://bit.ly/RRWu4f
  • 11. our point of view: it is not really interesting, for us, to create communities
  • 12. It is really interesting, instead, to recognize communities in how they emerge, and to understand how to design and develop tools to support them, to enable them to assemble, to recombine, to collaborate, to create business models, communication models, ways to interact with organizations and institutions
  • 13. To enable expression of multiple points of view, organized in networks which can spread out along territories, topics, visions on the future, ethics, cultures, also in temporary ways.
  • 14. We don't really appreciate the idea of "creating" a community
  • 15. as we feel it is a process which has already been industrialized
  • 16. there is much buzz about the "third industrial revolution"
  • 17. maybe we should question ourselves if the term "industry" is really fitting to describe the possibilities which are opening up in these complex times
  • 18. powerful innovation sits where it is possible to create open methodologies, infrastructures, tools and education...
  • 19. and use them to perform, to practice, to act in the creation of liberated zones where things can really happen
  • 21. we will talk about this from a peculiar point of view and a very personal, networked story, which is happening to us, right now
  • 22. this september I have been diagnosed with a brain cancer
  • 23. I was not really satisfied about the way in which hospitals were handling my situation
  • 24. as soon as I was declared officially "diseased" it was almost as if i disappeared, replaced by my clinical data, protocols and procedures
  • 25. I was, by all effects, industrialized: i was not a human being anymore, I became a "patient"
  • 26. In different cultures the words "disease" and "cure" can mean many different things, relating to the body, to society, to relationships and the environment
  • 27. I felt that medicine was only assessing very few parts of this, interpreting my body in terms of its components and leaving out all the rest, in an over-simplification which really left me unsatisfied
  • 28. especially thinking about cancer which is a very peculiar disease, having to do with the ways in which we eat, with the environment we live in, and with our lifestyle
  • 29. So I decided to leave the hospital
  • 30. I gave the hospital administration 35euros and grabbed my medical records in digital format...
  • 31. ...with the idea that they could be published on the web to share them with as many people as possible, interweaving sciences, design, arts, traditions and spirituality, aiming at the creation of a "cure" which could confront with all the spheres which describe a human being
  • 32. As soon as I arrived home I had a sad surprise
  • 33. The clinical data was distributed using a format which is, technically, open But it constitutes a very interesting parallel with the ways in which medicine handled my disease
  • 34. The language which the doctor uses to tell you that “you have cancer” is technically open, but it's not really accessible: it uses words which you don't understand and it is not really made for you
  • 35. In a way, a doctor is not really talking to you when he/she explains your condition he is talking about you, using language which is intended for his colleagues, and not even enabling you to understand all the different options which are available to you, ranging from diets, homeopathy, traditional medicine and, yes, surgery, chemiotherapy etcetera
  • 36. Once a doctor replied to me “you don't think that i will really explain to you how the surgery technically works! You need to have your head opened up and cancer removed! That's all you need to know!” of course i want to know everything! and as clearly as possible!
  • 37. The data format used in the digital clinical records was just like that. It was technically open, but it was not intended for me to do anything with it.
  • 38. It included a "reader" software (which only worked on Windows computers, by the way) but you could not do anything at all with the data and images included in it
  • 39. You could only send it to another professional doctor and have him or her look at it
  • 40. No traditional medicine. No homeopathy. No arts. No printing. No exporting. No sharing online.
  • 41. My own data was not made for me it was made for bureaucratic and administrative tasks
  • 43. Again, it was about me, but it was not me
  • 44. It did not answer the common questions which someone who is diagnosed cancer has every minute of his life: does my life stop? can i work? can i be creative? can i make love? can i find out other information?
  • 45. I hacked the data format and converted it to a set of ones which are easier to use: PNGs and JPGs for images, XML for data etcetera
  • 46. And i created a website: My Open Source Cure www.artisopensource.net/cure
  • 47. “Grab the information about my disease, if you want, and give me a CURE: create a video, an artwork, a map, a text, a poem, a game, or try to find a solution for my health problem. Artists, designers, hackers, scientists, doctors, photographers, videomakers, musicians, writers. Anyone can give me a CURE.”
  • 48. In a way, I was asking everyone to take part in my disease. Beyond medicine, beyond science, beyond protocols, beyond administration and bureaucracy
  • 49. This is what happened
  • 51. an incredible network formed almost immediately, combining the contributions of thousands of doctors, scientists, researchers, artists, designers, musicians, videomakers, ex-patients, friends and relatives of people who had died from cancer
  • 53. more than 30 videos dozens of music tracks hundreds of poems and narratives 3 performances dozens of visual designs a projection mapping on a building an electronic music concert
  • 54. Patrick Lichty even produced a 3D model of my tumor, and put it on Thingiverse, so that you can print it out in 3D: you can have my cancer, too if you want.
  • 55. More than 90 doctors and researchers contacted me, offering information and support.
  • 56. Multiple of their ex-patients contacted me as well, telling me about their attitude, the effectiveness of their cures for them, the quality of the hospitals they operated in.
  • 57. BBC, CNN, Folhio de S. Paulo, New Scientist, Repubblica, the Wall Street Journal, Wired and many more news, television and online operators worldwide gave coverage of what happened
  • 58. I received around 200k advices about how to cure myself, ranging from hi-tech medicine, to surgery, to diet suggestions, to magic, to esotheric remedies.
  • 59. Many of them had the remarkable characteristic of describing the same healing processes using different languages.
  • 60. It was really a lot of information there was no way in which i could have processed it by myself
  • 61. The emergent network, again, was the solution: hundreds of people helped me out to process the info, tagging it, comparing it, and pointing out the most remarkable bits of it, even arriving at the level of independently contacting the doctors, sciamans and scientists proposing the remedies and techniques, to know more details.
  • 62. And then the conversations started: experts, people, patients started discussing autonomously.
  • 63. As of now, my "cure" is composed by the harmonious contributions of a neuro surgeon, an oncologist, a holistic oncologist, a traditional chinese doctor, a neuro-radiologist, an expert on macrobiotics and nutrition a sciaman all talking and discussing their techniques together, understanding how to combine them harmoniously.
  • 64. This is something that rarely, if never, happens. And it is remarkable, as it manages to confront with the human being in its wholeness: as a body, as part of a society, as a bearer of emotions, feelings and expectations.
  • 65. a team has formed, inspired by what is happening.
  • 66. we are working on a set of tools to go beyond medicine, talking to the people who have invented Open Medicine up to now, and to the ones which are discussing about eHealth, and to the ones who feel that a “revolution” in this domain could go way beyond all of this
  • 67. transforming disease, medicine, cures into an open environment in which human beings are able to relate, to communicate, to inform, to be creative, to confront critically, to experience, to support.
  • 68. it is all very different from the ideas of open data, open government, open everything that is being discussed worldwide today.
  • 69. it is not about some people inventing something, it is about everyone having the tools to do what they need to, as this need emerges, in open, shareable, efforts
  • 70. it is not about industrializing data, or spectacularizing information, or business-modeling crowds, which is what happens most of the time when we speak about open data, open communities, smart cities etcetera
  • 71. it is about anthropologizing digital technologies and networks, enabling innovation to emerge autonomously and conversationally, and re-thinking the idea of governments and organizations as producers and maintainers of tools and infrastructures which neutrally support the expression of multiple voices, their interconnection and their collaboration.
  • 73. And an incredible thing is taking place: people are actually taking into serious consideration a novel way of doing things on a delicate subject such as human health.
  • 74. an Open Source Cure for you and for me :)
  • 75. Salvatore Iaconesi Oriana Persico www.artisopensource.net

Editor's Notes

  1. \n
  2. \n
  3. \n
  4. \n
  5. \n
  6. \n
  7. \n
  8. \n
  9. \n
  10. \n
  11. \n
  12. \n
  13. \n
  14. \n
  15. \n
  16. \n
  17. \n
  18. \n
  19. \n
  20. \n
  21. \n
  22. \n
  23. \n
  24. \n
  25. \n
  26. \n
  27. \n
  28. \n
  29. \n
  30. \n
  31. \n
  32. \n
  33. \n
  34. \n
  35. \n
  36. \n
  37. \n
  38. \n
  39. \n
  40. \n
  41. \n
  42. \n
  43. \n
  44. \n
  45. \n
  46. \n
  47. \n
  48. \n
  49. \n
  50. \n
  51. \n
  52. \n
  53. \n
  54. \n
  55. \n
  56. \n
  57. \n
  58. \n
  59. \n
  60. \n
  61. \n
  62. \n
  63. \n
  64. \n
  65. \n
  66. \n
  67. \n
  68. \n
  69. \n
  70. \n
  71. \n
  72. \n
  73. \n
  74. \n
  75. \n