Building a Biomedical Research Commons

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Slides for the Ohio State Personalized Medicine Conference, 10/3/2012

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Building a Biomedical Research Commons

  1. 1. building a medicalresearch commons @wilbanks john.wilbanks@sagebase.org
  2. 2. 1. the commons.
  3. 3. the tragedy of thetragedy of the commons
  4. 4. no single entity maintains control over the resource
  5. 5. http://www.flickr.com/photos/kalexanderson/6354182139/ http://www.flickr.com/photos/kalexanderson/6354182139/
  6. 6. all resting on astandard , open infrastructure
  7. 7. state of the art in biomedical sharing
  8. 8. requires near-simultaneous creation of complex infrastructure.
  9. 9. 2. this is not about EMR.
  10. 10. this is about acomplete phase change.
  11. 11. 3. essentialcomponents.
  12. 12. storage, provenance, version control
  13. 13. http://synapse.sagebase.org
  14. 14. informed consent
  15. 15. http://weconsent.us
  16. 16. [at least some] people really liketo share as their form of controlTHREE SCENARIOS
  17. 17. can researchers contact me
  18. 18. incentives and community
  19. 19. 31
  20. 20. changed roles
  21. 21. http://sagebridge.org
  22. 22. 34
  23. 23. 35
  24. 24. if we scale...
  25. 25. honesty, reusability,portability, and consent will change a clinical outcome.
  26. 26. thank you

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