The Empowered
Patient of the 21st
Century

How Technology Enables
Good Medical Practice
Presented by Nancy B. Finn,


Healthcare journalist and thought
leader, author of

e-Patients Live Longer, The Complete
G...
Key Points


Profile of the 21st century empowered
patient (e-patient).



Priorities of an e-patient.



Digital Tools...
The 21st Century
Patient Profile


Smart, well read



Used to constant communication from
many media



Concerned abou...
What Are the e- Patient’s
Priorities?


Compassionate care



Complete Attention, open, two-way communication



Care t...
Compassionate, Safe Care

Patients want care that is:
 Thoughtful
 High

and personal

Quality and Safe

 Incorporates
...
Full Communication:
Gimme Me My Data






Access to the data in the health record
(Open Notes).
What the patient will...
Challenges

For Patients
Understanding what is happening.
Learning how to navigate the system.
Cost and consequences of ca...
Savvy Providers

Know that patients are seeking patientcentered, participatory health care
Foster better communication and...
Savvy Patients


Want communication and collaboration



Expect to be kept fully informed



Use digital communication ...
Tools for e-patients
& savvy providers











Digital health records
Email Patient
Portals
Health Information...
How Patients Use
Digital Tools?
Go Online for heath information to diagnose health issues
themselves or to be armed with i...
Where do Patients
Get Information


70% of U.S. adults get information, care, or
support from a doctor or other health ca...
Web Resources


Information overload



Google Search option



Best web sites for information include:
Sites sponsored...
Questions to Ask when
Selecting Health Sites Health


Who developed this site?



Was it properly vetted by health care
...
Social Networks


A social network is a community of individuals who
engage and have similar interests.



Examples incl...
Patient Centered Care,
History and Definition
“Respectful of and Responsive to individual patient
preferences needs, and v...
Hallmarks of Patient- Centered Care



Team Approach



Patient Included in important health
decisions when there are di...
In-Patient Care
Choosing a Hospital –
Hospital compare
Quality check
HealthGrades
Access to EHR
Communication and coordina...
Patient Advocates
The patient must have a voice on the care
team.

Advocates:
 Family,
 Friends,

 Social

workers

Sig...
Chronic Disease Management


More than 120 million people suffer from chronic conditions.



Patient participation in ma...
Chronic Disease
Management Tools
Home monitoring
machines

Smartphones – Newest
technologies


Smartphones



Web resour...
Connected Health
Bringing care to those are
homebound.


Telemedicine – uses
expanded bandwidth
and technology such as
vi...
What the Future Holds
Patient at Center Stage


Personalized Medicine/ Genetics and Genomics



Implanted Microchip & Co...
Contact Information

Nancy B. Finn

nfinn@comcast.net
www.healthcarebasicsinfo.com
781-444-8421
The Empowered Patient of the 21st Century – How Technology Enables Good Medical Practice
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The Empowered Patient of the 21st Century – How Technology Enables Good Medical Practice

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This presentation will present a profile of empowered, e-patients, their expectations and challenges when confronted with medical issues and have to deal with the medical establishment, and the tools that they use to communicate and collaborate with their health care providers. Patients are looking for compassionate, caring providers who are comfortable engaging with them in open two-way communication. They expect full information at the point of care so that in partnership with their providers they can make appropriate choices and good decisions

Today’s e-patient is used to constant communication delivered in sound bites from a variety of media. They use email to communicate with their colleagues and business associates, access various online networks and databases in order to connect with others, use a variety of health apps on their smartphones, and find needed information on the web. They are concerned with their health, but are typically confused and overwhelmed with the complexity of health care. The presentation will review the tools that e-patients and savvy providers use to provide the patient-centered care that we are all trying to achieve including: digital health records, email, patient portals, health information exchange, smartphones, online resources and telemedicine technology.

About the Speaker:
Nancy B. Finn is a health care journalist, thought leader and patient advocate focusing on patient empowerment and engagement with the deployment of digital communication technology. She is the author of “e-Patients Live Longer, the Complete Guide to Managing Health Care Using Technology”, published by iUniverse. She is one of the blog authors of e-patients.net published by the Society for Participatory Medicine, writes the health care blog www.healthcarebasicsinfo.com, and is the editor of Health Care Basics, a monthly e-newsletter. She is a contributing columnist and a reviewer for the Journal of Participatory Medicine and is sought after to write articles for health-related publications.

Published in: Health & Medicine, Business
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The Empowered Patient of the 21st Century – How Technology Enables Good Medical Practice

  1. 1. The Empowered Patient of the 21st Century How Technology Enables Good Medical Practice
  2. 2. Presented by Nancy B. Finn,  Healthcare journalist and thought leader, author of e-Patients Live Longer, The Complete Guide to Managing Health Care Using Technology
  3. 3. Key Points  Profile of the 21st century empowered patient (e-patient).  Priorities of an e-patient.  Digital Tools.  Why Communication and Collaboration are so important.  Challenges for providers and patients.  The Future.
  4. 4. The 21st Century Patient Profile  Smart, well read  Used to constant communication from many media  Concerned about their health and their family’s health  Confused and overwhelmed with the complexity of health care today  High Expectations
  5. 5. What Are the e- Patient’s Priorities?  Compassionate care  Complete Attention, open, two-way communication  Care that puts safety and security of the patient first  Full information at the point of care  Access to resources needed to understand medical issues • Clear discharge instructions including specifics about medications, follow up appointments, and home care.  Availability of a patient advocate if needed
  6. 6. Compassionate, Safe Care Patients want care that is:  Thoughtful  High and personal Quality and Safe  Incorporates  Efficient joint decision-making and Economical  Patient-Centered
  7. 7. Full Communication: Gimme Me My Data     Access to the data in the health record (Open Notes). What the patient will do with the data. Do patients really want the data? What sort of problems does this create for the provider?
  8. 8. Challenges For Patients Understanding what is happening. Learning how to navigate the system. Cost and consequences of care. For Providers Dealing with stresses of care environment. Incenting patients to become engaged/empowered. Viewing patients as full partners in their care. Providing appropriate enabling tools.
  9. 9. Savvy Providers Know that patients are seeking patientcentered, participatory health care Foster better communication and collaboration, using technology to enable this. (e.g. email, portals, e-visits) Are sensitive to the needs and desires of each individual patient Continue to adopt and implement new technologies
  10. 10. Savvy Patients  Want communication and collaboration  Expect to be kept fully informed  Use digital communication tools to be in touch with their personal health and to interact with their providers  Expect to be treated as full partners in the healthcare decision process
  11. 11. Tools for e-patients & savvy providers          Digital health records Email Patient Portals Health Information Exchange Smartphones/Chronic Care Monitoring Tools Online resources including the web and social networks Cloud computing enables the data repository Chronic care management tools Telemedicine
  12. 12. How Patients Use Digital Tools? Go Online for heath information to diagnose health issues themselves or to be armed with information to discuss with providers Use smartphone apps to monitor conditions and measure diet, fitness, vitals Engage in conversations with others on social networks about their health issues Email their providers for faster response to get rid of telephone tag Use patient portals for secure communication, online conversation, to view labs and get referrals and prescription renewals
  13. 13. Where do Patients Get Information  70% of U.S. adults get information, care, or support from a doctor or other health care professional.  60% of adults get information or support from friends and family.  24% of adults get information or support from others who have the same health condition.  The vast majority of this care and conversation takes place offline; small group of people communicate online. (PEW study: Health online 2013)
  14. 14. Web Resources  Information overload  Google Search option  Best web sites for information include: Sites sponsored by well respected health institutions e.g. Mayo Clinic Sites sponsored by health societies e.g. cancer.org Other general sites e.g. medlineplus, Healthfinder.gov, webmd.
  15. 15. Questions to Ask when Selecting Health Sites Health  Who developed this site?  Was it properly vetted by health care professionals? Has the site been updated recently? Is contact information provided? Can the information on the site be verified? Does the site have a seal of approval?    
  16. 16. Social Networks  A social network is a community of individuals who engage and have similar interests.  Examples include: Facebook, Twitter, You Tube, Patients Like Me –Daily Strength, ACOR, ICYou, My Family Health
  17. 17. Patient Centered Care, History and Definition “Respectful of and Responsive to individual patient preferences needs, and values and ensuring that patient values guide all clinical encounters.” (IOM Crossing the Quality Chasm, National Academy Press, 2001)
  18. 18. Hallmarks of Patient- Centered Care  Team Approach  Patient Included in important health decisions when there are diverging opinions or multiple options:  Long-term relationship - Medical Home  Use of Digital Communication Technology
  19. 19. In-Patient Care Choosing a Hospital – Hospital compare Quality check HealthGrades Access to EHR Communication and coordination among providers Follow up /Recovery services plan
  20. 20. Patient Advocates The patient must have a voice on the care team. Advocates:  Family,  Friends,  Social workers Signed legal document appointing an advocate.
  21. 21. Chronic Disease Management  More than 120 million people suffer from chronic conditions.  Patient participation in managing and monitoring these conditions is critical.  Five steps in patient self management: (Shared responsibility between the patient and the provider)  Collection of data.  Transmission of data.  Evaluation of information & agreement on treatment choice.  Notification among health team (patients and providers).  Executing the intervention/treatment.
  22. 22. Chronic Disease Management Tools Home monitoring machines Smartphones – Newest technologies  Smartphones  Web resources  Home monitoring systems  Weight scales, glucometers, blood pressure kits and peak flow meters  Wearable devices to measure pulse and heart rate fluid retention
  23. 23. Connected Health Bringing care to those are homebound.  Telemedicine – uses expanded bandwidth and technology such as video, robotics.  Addresses the shortage of physicians; Healthcare to underserved populations
  24. 24. What the Future Holds Patient at Center Stage  Personalized Medicine/ Genetics and Genomics  Implanted Microchip & Continuous monitoring of chronic conditions  Robotic Surgery
  25. 25. Contact Information Nancy B. Finn nfinn@comcast.net www.healthcarebasicsinfo.com 781-444-8421

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