Local authorities and the education of young people with sickle cell disorders (SCD) in England<br />Simon Dyson<br />Sic...
Funding RES-000-23-1486.<br />
Research Team<br />Dr Hala Abuateya, Unit for the Social Study of Thalassaemia and Sickle Cell, Research Fellow<br />Profe...
The Research: Phases 1-2<br />[1] Review of Secondary Sources<br />[2] Surveys: <br />[i] 150 education authorities and po...
The Research: Phases 3-5<br />[3] 50 depth, tape-recorded interviews<br />[4] 8-10 case studies with completion of year-lo...
Survey of Local Authorities<br />February-April 2007<br />107 replied from 150<br />
Replies by Local Authority Type<br />
Responding Officer<br />
Survey of Local Authorities <br />Who to contact in local authority Children’s and Young Person’s Department<br />92 diffe...
Local Authorities with Policies on..<br />
Should have Statement of Special Educational Needs<br />
Department for Children, Schools and Families (DCSF) Spokesperson<br />SCD was not on its own regarded by the DCSF as a sp...
Should have Statement of Special Educational Needs<br />
Should have Individual Health Care Plan (IHCP)<br />
Should have Individual Health Care Plan (IHCP)<br />
Number of Children with SCD in Local Authorities, England, 2007<br />
Number of Children with SCD in Local Authorities, England, 2007<br />Most LAs do not know numbers of children with SCD und...
Number of Children with SCD in Local Authorities, England, 2007<br />
Number of Children with SCD in Local Authorities, England, 2007<br />LA ranked 90th an area designated “high prevalence” b...
Conclusion<br />Young people with SCD currently invisible in terms of education policy<br />Where good practice exists it ...
Publication<br />Dyson, SM; Abuateya, H; Atkin, K; Culley, LA; Dyson, SE; and Rowley, DT (2008) Local authorities and the ...
Further Information<br />For further information on this research programme, please visit:<br />http://www.sicklecelleduca...
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SCOOTEROER31c Sickle Cell in Schools Survey

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Lecture series on research into the educational experiences of young people with sickle cell disease. A narrated version is available on the SCOOTER project website. http://www.sicklecellanaemia.org/OER/resources/scooter30-35/scooter31.html

Published in: Education, Health & Medicine
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SCOOTEROER31c Sickle Cell in Schools Survey

  1. 1. Local authorities and the education of young people with sickle cell disorders (SCD) in England<br />Simon Dyson<br />Sickle Cell and Education<br />Lecture 2 of 6<br />
  2. 2. Funding RES-000-23-1486.<br />
  3. 3. Research Team<br />Dr Hala Abuateya, Unit for the Social Study of Thalassaemia and Sickle Cell, Research Fellow<br />Professor Karl Atkin, University of York<br />Professor Lorraine Culley, De Montfort University, Leicester<br />Professor Simon Dyson, Unit for the Social Study of Thalassaemia and Sickle Cell, Project Director<br />Dr Sue Dyson, De Montfort University, Leicester<br />Dr Jack Demaine, Loughborough University<br />
  4. 4. The Research: Phases 1-2<br />[1] Review of Secondary Sources<br />[2] Surveys: <br />[i] 150 education authorities and policies<br />[ii] 500 young people under 25 about their educational experiences<br />[iii] 200 schools attended by pupils with SCD.<br />
  5. 5. The Research: Phases 3-5<br />[3] 50 depth, tape-recorded interviews<br />[4] 8-10 case studies with completion of year-long diaries and follow-up interviews.<br />[5] Policy Development Workshops at five regional seminars<br />
  6. 6. Survey of Local Authorities<br />February-April 2007<br />107 replied from 150<br />
  7. 7. Replies by Local Authority Type<br />
  8. 8. Responding Officer<br />
  9. 9. Survey of Local Authorities <br />Who to contact in local authority Children’s and Young Person’s Department<br />92 different job titles among the 107 replies.<br />
  10. 10. Local Authorities with Policies on..<br />
  11. 11. Should have Statement of Special Educational Needs<br />
  12. 12. Department for Children, Schools and Families (DCSF) Spokesperson<br />SCD was not on its own regarded by the DCSF as a special educational needs (SEN) issue<br />That advice on drawing up an individual health care plan (IHCP) was available within guidance issued<br />Monies for ethnic minority pupils were based on “under achieving minority ethnic pupils and those whose first language is other than English”<br />
  13. 13. Should have Statement of Special Educational Needs<br />
  14. 14. Should have Individual Health Care Plan (IHCP)<br />
  15. 15. Should have Individual Health Care Plan (IHCP)<br />
  16. 16. Number of Children with SCD in Local Authorities, England, 2007<br />
  17. 17.
  18. 18. Number of Children with SCD in Local Authorities, England, 2007<br />Most LAs do not know numbers of children with SCD under their jurisdiction<br />Most do not know numbers with SEN statements or IHCP despite majority stating that these should be given to children as a matter of course<br />394/5000 = 7.9% children with SCD “visible” in policy terms within education system<br />
  19. 19. Number of Children with SCD in Local Authorities, England, 2007<br />
  20. 20.
  21. 21. Number of Children with SCD in Local Authorities, England, 2007<br />LA ranked 90th an area designated “high prevalence” by NHS Sickle Cell and Thalassaemia Screening Programme<br />LA ranked 122nd still reported five children with SCD<br />None of the ten local authorities with highest number of Black (African/Caribbean/Other) reported numbers<br />
  22. 22. Conclusion<br />Young people with SCD currently invisible in terms of education policy<br />Where good practice exists it does so as individual acts of kindness and remains impossible to share with teachers and young people who remain unknown<br />Where bad practice exists:<br />No general good practice to learn form, <br />Risks making problems a problem of individual character of parent/young person with SCD <br />No accountability on part of local authorities/schools<br />
  23. 23. Publication<br />Dyson, SM; Abuateya, H; Atkin, K; Culley, LA; Dyson, SE; and Rowley, DT (2008) Local authorities and the education of young people with sickle cell disorders (SCD) in England International Studies in Sociology of Education 18 (1) 47-60. [ISSN 0962-1214] http://dx.doi.org/10.1080/09620210802196168<br />
  24. 24. Further Information<br />For further information on this research programme, please visit:<br />http://www.sicklecelleducation.com<br />End of presentation<br />

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