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SICKLE CELL IN SCHOOLS:
A Guide to School Policy

Simon Dyson
Professor of Applied Sociology
De Montfort University, UK

B...
Project Funded by ESRC (Economic and
Social Research Council) RES-000-23-1486.
Introduction
• Here is a quick overview of how we devised
a guide to school policy for young people
with sickle cell disea...
The Research
In the project, 569 young people with sickle cell
disease aged 4-25 years shared their school
experiences.
Absences from School
• 17 days each school year on average
• Absences typically in blocks of 2, 3 or 5
days
• Reported tha...
Reported Experiences in Schools
Number
of children
questioned
350
300
250
200
150
100
50
0

57%

Not Allowed
Toilet

46%
3...
Raising Teacher Awareness Is Not
Enough!
• Even where teachers were given information
about sickle cell disease this did n...
Policy
From this project we have
made a guide for schools.
It has been translated into
several languages including
Nigeria...
Nigeria Versions
• Reviewed by Bola Ojo, Naomi Maiguwa, Jonah
Lah, Dr Baba Inusa, Comfort Okolo and
Elizabeth Anionwu.
• I...
Policy
- the Hausa
version!
Contact Details
Simon Dyson
De Montfort University
Leicester LE1 9BH
UNITED KINGDOM
+44 116 257 7751
sdyson@dmu.ac.uk
http...
More Open Educational Materials
Visit
http://www.sicklecellanaemia.org
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Sickle cell disease - a guide for schools by Simon Dyson

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A free guide for schools to support children with sickle cell disease. Written by Prof. Simon Dyson at De Montfort University, UK, and now translated into Nigerian and Brazilian languages. For more OPEN EDUCATIONAL RESOURCES on sickle cell visit http://www.sicklecellanaemia.org

Published in: Education, Health & Medicine
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Sickle cell disease - a guide for schools by Simon Dyson

  1. 1. SICKLE CELL IN SCHOOLS: A Guide to School Policy Simon Dyson Professor of Applied Sociology De Montfort University, UK BARKA!
  2. 2. Project Funded by ESRC (Economic and Social Research Council) RES-000-23-1486.
  3. 3. Introduction • Here is a quick overview of how we devised a guide to school policy for young people with sickle cell disease. • With newborn screening for sickle cell, the majority of young people with sickle cell disease can live to school age and into adulthood. Our concern was that the gains made by newborn screening might be lost if young people with sickle cell disease did not get the right support at school.
  4. 4. The Research In the project, 569 young people with sickle cell disease aged 4-25 years shared their school experiences.
  5. 5. Absences from School • 17 days each school year on average • Absences typically in blocks of 2, 3 or 5 days • Reported that they were not helped that much to catch up lessons missed.
  6. 6. Reported Experiences in Schools Number of children questioned 350 300 250 200 150 100 50 0 57% Not Allowed Toilet 46% 36% Not Allowed Drink 34% Unsuitable Exercise Called Lazy When Tired
  7. 7. Raising Teacher Awareness Is Not Enough! • Even where teachers were given information about sickle cell disease this did not overall improve support to young people with SCD. • Young people with sickle cell disease did not like anything that marked them out as different. They wanted to be like their peers.
  8. 8. Policy From this project we have made a guide for schools. It has been translated into several languages including Nigerian. It is an open education resources – licensed by Creative Commons – meaning anyone can adapt and use it without charge.
  9. 9. Nigeria Versions • Reviewed by Bola Ojo, Naomi Maiguwa, Jonah Lah, Dr Baba Inusa, Comfort Okolo and Elizabeth Anionwu. • Inserted good practice examples from Nigerian schools (e.g. on malarial environmental clear-ups and on building schools on one level) • Translated into Hausa, Yoruba and Igbo
  10. 10. Policy - the Hausa version!
  11. 11. Contact Details Simon Dyson De Montfort University Leicester LE1 9BH UNITED KINGDOM +44 116 257 7751 sdyson@dmu.ac.uk http://www.sicklecelleducation.com Sickle Cell Cohort Research (SCORE) 19 Nouakchott Street Off Olusegun Obasanjo Way Kogoma Street Abuja http://www.score-international.org/
  12. 12. More Open Educational Materials Visit http://www.sicklecellanaemia.org

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