Social Rights based Model
for Defining and Classifying Disability
Prof. Dr. Judith Hollenweger
Fourth Central Asian Forum ...
Overview
1. Approaches to «Disability»
2. ICF as an information system and a common language
3. Working together towards t...
1. Approaches to Disability
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian F...
Charity Model
Well-being is in the hands of the gods or destiny
•Disability is a punishment or a tragedy
•Individual seen ...
Medical Model
Well-being is in the hands of the doctors
•Disability is a condition of the individual that can be treated
•...
Social model
Well-being is in the hands of society
•Disability is a societal problem solved through social action
•Individ...
Understanding «disability»
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Fo...
Social and human rights model
Well-being is in the hands of all of us and every one of us.
02.08.2013Social Rights based M...
Disorder alone cannot predict functioning
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th C...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 10
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 11
...
If simple images …
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on C...
…. have more than one side to them ….
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Centr...
… how much more complex would capturing «reality» be?
02.08.2013Social Rights based Model for Defining and Classifing Disa...
2. ICF as an information system and a common language
02.08.2013Social Rights based Model for Defining and Classifing Disa...
Lack of common language at system level
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Cen...
What is disability?
Disability describes the situation of a person, not a fixed characteristic.
Disability is dependent on...
Need for an integrated understanding of disability
02.08.2013Social Rights based Model for Defining and Classifing Disabil...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 19
...
ICF Model
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Prot...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 21
...
Body Component
Functioning from the perspective of the body and body systems
Body Functions are physiological functions of...
Activity and Participation Component
Functioning from an individual and societal perspective (life domains)
Activity is th...
Contextual Factors
Contextual Factors have impact on all components of functioning
Environmental Factors make up the physi...
Body Functions and Body Structures
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central ...
Activities and Participation – Life Domains
1 Learning & Applying Knowledge
2 General Tasks and Demands
3 Communication
4 ...
Environmental and Personal Factors – Contextual Factors
1. Products and technology
2. Natural environment and human-made c...
Lack of common language at individual level
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 29
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 30
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 31
...
How to use it? Real life is not a list ….
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th C...
…. but capturing everything is not feasible!
02.08.2013Social Rights based Model for Defining and Classifing Disability 4t...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 34
...
Participation is «Involvement in Life Situations»
«Participation as being engaged…»
− Behavioural engagement (positive con...
Bringing together proximal and distal perspectives
02.08.2013Social Rights based Model for Defining and Classifing Disabil...
Functioning is always contextualised
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Centra...
Functioning takes place in social situations
02.08.2013Social Rights based Model for Defining and Classifing Disability 4t...
Understanding life situations requires going …
02.08.2013Social Rights based Model for Defining and Classifing Disability ...
… beyond the information given.
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asi...
Personal situatedness
ICF: Interplay between functioning and personal factors
Where a person stands in his or her life.
In...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 42
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 43
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 44
...
Social situatedness
ICF: Interplay between functioning and environmental factors
The ability to engage in acts of communic...
Opportunities to participate – towards which goal?
02.08.2013Social Rights based Model for Defining and Classifing Disabil...
3. Working together towards the realisation of rights
02.08.2013Social Rights based Model for Defining and Classifing Disa...
Action towards human rights
Progressive realisation
•Transforming the rhetorical aspirations of CRPD and CRC into concrete...
Need for an integrated view for action
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Cent...
Synchronise problem-solving processes
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Centr...
A vision of future participation to guide action
02.08.2013Social Rights based Model for Defining and Classifing Disabilit...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 52
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 53
...
Intermezzo on «Observation»
Playing basketball
Count how many times the players wearing
white pass the ball.
Available at:...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 55
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 56
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 57
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 58
...
02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 59
...
Thank you for your interest and attention.
Prof. Dr. Judith Hollenweger
Zurich University of Teacher Education
Priority Ar...
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Expert presentation by Ms. Judith Hollenweger, Head Priority Area Inclusive Education at the Zurich University of Teacher Education; Steering Committee member of the ICF Research Branch, WHO-FIC Collaborating Centre

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Social rights based model to defining and classifying disability.
From the 4th Child Protection Forum in Tajikistan, 2013.

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  • http://capitalnews.vcu.edu/2010/02/19/legislator-disabled-kids-are-gods-punishment/
  • http://www.netmagazine.com/features/simple-introduction-web-accessibility
  • http://www.daii.org/about/social_model_of_disability/ http://www.tumblr.com/tagged/social%20model
  • http://www.lpkosova.com/event%202009.html http://www.who.int/features/galleries/disabilities/index.html
  • Medical model tends to focus at proximal perspective, social model tends to focus on distal perspective
  • Enmanuel Alonso Writing, León, Nicaragua
  • Akash / World Health Organization (WHO)
  • http://cogprints.org/2517/1/Lindblom.pdf
  • Logic, 108
  • 15 times
  • Expert presentation by Ms. Judith Hollenweger, Head Priority Area Inclusive Education at the Zurich University of Teacher Education; Steering Committee member of the ICF Research Branch, WHO-FIC Collaborating Centre

    1. 1. Social Rights based Model for Defining and Classifying Disability Prof. Dr. Judith Hollenweger Fourth Central Asian Forum on Child Protection Dushanbe, 2nd August 2013
    2. 2. Overview 1. Approaches to «Disability» 2. ICF as an information system and a common language 3. Working together towards the realisation of rights 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 2
    3. 3. 1. Approaches to Disability 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 3 A great many people think they are thinking when they are really rearranging their prejudices. William James
    4. 4. Charity Model Well-being is in the hands of the gods or destiny •Disability is a punishment or a tragedy •Individual seen as needy, pitiful, even as blameworthy •Salvation though mercy, love and care 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 4
    5. 5. Medical Model Well-being is in the hands of the doctors •Disability is a condition of the individual that can be treated •Individual seen as being in need of a cure or management of illness •It is the health professionals’s responsibility and potential to alleviate pain 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 5
    6. 6. Social model Well-being is in the hands of society •Disability is a societal problem solved through social action •Individual seen as being a victim of social prejudice •It is the society’s responsibility to eliminate barriers 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 6
    7. 7. Understanding «disability» 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 7 Disability can be understood by taking •an economic perspective •an educational perspective •a human-rights perspective •a socio-cultural perspective •a health perspective •… Specific perspectives are assumed by specific groups and individuals. They guide people’s thinking and actions. But for others they are the origin of prejudice. It is time to move from “principlism” to “pragmatism”. First step towards a common understanding is understanding one’s own thinking.
    8. 8. Social and human rights model Well-being is in the hands of all of us and every one of us. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 8
    9. 9. Disorder alone cannot predict functioning 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 9
    10. 10. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 10 Self-determination in defining «disability»? 0 5 10 15 20 25 30 35 Syria Bangladesh Tunisia Lebanon Sudan Algeria Benin Thailand Brazil Libya SriLanka Jordan Japan Malawi Philippines Egypt Italy China Colombia Germany Netherlands Sweden Austria Spain USA Canada Uruguay Australia NewZealand Norway Survey disability
    11. 11. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 11 Everything can make a difference!
    12. 12. If simple images … 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 12
    13. 13. …. have more than one side to them …. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 13
    14. 14. … how much more complex would capturing «reality» be? 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 14
    15. 15. 2. ICF as an information system and a common language 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 15 From many words arise just as many opportunities for misunderstanding. William James
    16. 16. Lack of common language at system level 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 16
    17. 17. What is disability? Disability describes the situation of a person, not a fixed characteristic. Disability is dependent on the expectations and requirements of the environment. There are no «a priori» criteria to identify a person with disabilities – they are «defined» as such. The path towards being identified as having a disability is different in each country and even for each individual. Any person in any moment of his or her life can have a health condition that in a negative environment becomes a disability. Disability is a difficulty in functioning at the body, individual or societal levels, in one or more life domains, as experienced by an individual with a health condition in interaction with contextual factors. (Leonardi et al. 2006) 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 17
    18. 18. Need for an integrated understanding of disability 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 18 Human Functioning - not merely disability Universal Model - not a minority model Integrative Model - not merely medical or social Interactive Model - not linear progressive Parity - not etiological causality Context - inclusive - not person alone Cultural applicability - not western concepts Operational - not theory driven alone Life span coverage - not adult driven alone
    19. 19. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 19 ICF as information system: between knowledge and data Identifying concepts Knowledge Implicit knowledge embedded in conceptual worlds, knowledge basis Giving meaning to data Explaining concepts Information Articulated or verbalised knowledge, embedded in a structure or system Understanding data Operationalising concepts Data Atomised knowledge: fixed representation and interpretation Reading data
    20. 20. ICF Model 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 20 Health Condition Body Functions and Structures Activities Participation Personal FactorsEnvironmental Factors
    21. 21. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 21 Structure of the ICF and ICF-CYStructure of the ICF and ICF-CY Classification Parts Components Constructs/ qualifiers Domains and categories at different levels ICF Part 1: Functioning and Disability Part 2: Contextual Factors Body Functions and Structures Activities and Participation Environmental Factors Personal Factors Change in Body Structures Capacity Performance Facilitator/ Barrier Item levels: 1st 2nd 3rd 4th Item levels: 1st 2nd 3rd 4th Item levels: 1st 2nd 3rd 4th Change in Body Functions Item levels: 1st 2nd 3rd 4th Item levels: 1st 2nd 3rd 4th
    22. 22. Body Component Functioning from the perspective of the body and body systems Body Functions are physiological functions of body systems (including psychological functions). Body Structures are anatomical parts of the body such as organs, limbs and their components. Impairments are problems in body function or structure such as a significant deviation or loss. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 22
    23. 23. Activity and Participation Component Functioning from an individual and societal perspective (life domains) Activity is the execution of a task or action by an individual. Participation is involvement in a life situation. Activity Limitations are difficulties an individual may have in executing activities. Participation Restrictions are problems an individual may experience in involvement in life situations. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 23
    24. 24. Contextual Factors Contextual Factors have impact on all components of functioning Environmental Factors make up the physical, social and attitudinal environment in which people live and conduct their lives. Personal factors are also a component of contextual factors but they are not classified in the ICF due to large social and cultural variance. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 24
    25. 25. Body Functions and Body Structures 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 25 Mental functions Sensory functions and pain Voice and speech functions Functions of the cardiovascular, haematological, immunological and respiratory systems Functions of the digestive, metabolic and endocrine systems Genitouriary and reproductive functions Neuromusculoskeletal and movement- related functions Functions of the skin and related structures Structures of the nervous system The eye, ear and related structures Structures involved in voice and speech Structures of the cardiovascular, haematological, immunological and respiratory systems Structures related to the digestive, metabolic and endocrine systems Structures related to the genitouriary and reproductive systems Structures related to movement Skin and related structures
    26. 26. Activities and Participation – Life Domains 1 Learning & Applying Knowledge 2 General Tasks and Demands 3 Communication 4 Movement 5 Self Care 6 Domestic Life Areas 7 Interpersonal Interactions 8 Major Life Areas: Education, Work and Employment, Economic Life 1 Community, Social & Civic Life 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 26
    27. 27. Environmental and Personal Factors – Contextual Factors 1. Products and technology 2. Natural environment and human-made changes to the environment 3. Support and relationships 4. Attitudes 5. Services, systems and policies Personal factors may include gender, age, social background, past and current experiences, ethnic background, profession. They are understood as the particular background of an individual’s living situation in relation to functioning 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 27
    28. 28. Lack of common language at individual level 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 28
    29. 29. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 29 ICF as a tool to bring together «fragmented» information Body Functions and Structure Activities Participation Environmental Factors Mental Functions Sensory Func- tions and Pain Voice and Speech Functions Functions of the cardiovasc ... Functions of the digestive ... Genitourinary and ..... Neuromusculo- skeletal and movement ... Functions of Skin and .... Learning and Applying Knowledge General Tasks and Demands Communication Mobility Self Care Domestic Life Interpersonal Interactions and Relationships Major Life Areas Community, Social and Civic Life Products and Technology Natural and Human made Changes to Environment Support and Relationships Attitudes Services, Systems and Policies Child Psychiatrist Family Therapist Social Worker Teacher Special Educator Pediatrician Speech Pathologist
    30. 30. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 30 Different domains can be selected as fit-for-purpose
    31. 31. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 31 Functioning as a continuum
    32. 32. How to use it? Real life is not a list …. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 32
    33. 33. …. but capturing everything is not feasible! 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 33
    34. 34. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 34 Rights-based approach: Start with «Participation»
    35. 35. Participation is «Involvement in Life Situations» «Participation as being engaged…» − Behavioural engagement (positive conduct, involvement in learning and academic tasks, participation in school-related activities) − Cognitive engagement (self-regulation, flexibility in problem-solving, coping strategies) − Emotional engagement (affective reactions such as interest, happiness, identification with teachers and peers) … «in typical routines in typical settings…» … «that are directed towards personally and/or socially meaningful goals.» Demonstrate and experience competence (e.g. cognitive, communicative, manual, emotional, etc.) Demonstrate and experience autonomy (e.g. direct attention, self-regulate behaviour to carry out complex actions, taking decisions on one’s life) Demonstrate and experience belonging (e.g. show interest in others, be motivated to consider suggestions of others, feeling accepted and welcomed) 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 35
    36. 36. Bringing together proximal and distal perspectives 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 36 Time Space/Context
    37. 37. Functioning is always contextualised 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 37
    38. 38. Functioning takes place in social situations 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 38
    39. 39. Understanding life situations requires going … 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 39
    40. 40. … beyond the information given. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 40 Body functions and body structures Activities Participation as… carrying out tasks in current environment involvement in life situations involvement in major life domains
    41. 41. Personal situatedness ICF: Interplay between functioning and personal factors Where a person stands in his or her life. Individual life situation. Past experiences are linked to present sense of own capabilities and what a person thinks is feasible to achieve. Learning as overcoming problems of action – may be focussed on different objectives than adults think. Agency and communion required to promote development. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 41
    42. 42. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 42 Different personal situations across childhood ICD-10 H55 Nystagmus and other irregular eye movements ICF Seeing functions Prognosis at age 1: Will be “legally blind” with all its implications for watching, learning, moving around… Participation in Education? Participation in Mobility? Participation in Domestic Life?
    43. 43. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 43 At age five Prognosis proofed to be wrong. Problems Speech Development Motor Development Hyperactivity Attention and interests on things Easily out of control Sleeps badly, cries a lot A difficult child? A disabled child? A sick child?
    44. 44. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 44 At age 15 Many problems disappeared, but new ones emerged: General tasks and demands Interpersonal interactions and relationships Major life areas: Education Community, social and civic life
    45. 45. Social situatedness ICF: Interplay between functioning and environmental factors The ability to engage in acts of communication and participate in social practices within a community. As communities of practice, we create spaces and places for functioning. Everything in the person has to be first lived between persons. Much more than «social determinants of health»  Activity Theory (Engeström 2001) can be used for better understanding. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 45
    46. 46. Opportunities to participate – towards which goal? 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 46 tools and artefacts Subject Rules Community Division of labour Object Outcome Sense, meaning
    47. 47. 3. Working together towards the realisation of rights 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 47 A problem well put is half solved. John Dewey
    48. 48. Action towards human rights Progressive realisation •Transforming the rhetorical aspirations of CRPD and CRC into concrete results •Realistic understanding of the restraints states confront when satisfying their human rights obligations Awareness of cirumstances •Requires flexibility to changing circumstances •Situational differences affecting the distribution of resources Negotiation •Universal human rights are said to be ‘non-negotiable’, but…. •… negotiation is the primary political mode of the realisation of human rights. Bickenbach 2009 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 48
    49. 49. Need for an integrated view for action 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 49 personal problem and social problem medical therapy and social integration individual treatment and social action professional help and group responsibility personal changes and environmental changes behaviour and attitude, culture care and human rights health policies and politics individual adaptation and societal change
    50. 50. Synchronise problem-solving processes 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 50 new situation, problem
    51. 51. A vision of future participation to guide action 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection Services, Schools, Professionals Goals and Contents of Education A shared vision of future participation 51
    52. 52. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 52 Capturing problems using the ICF-CY Different expertise – different perception of problem: Which problems of children with disabilities are you most aware of? Which problems of children are you able to address best? Different expertise – different approaches to capturing problems: A child comes to your school / our office / classroom / clinic for the first time •What do you do first? •Which questions do you ask the parents? •How do you gain an understanding of the situation of the child? •Do you apply a method or a procedure in such situations? new situation, problem
    53. 53. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 53 Collecting, measuring and documenting Mapping functioning and disability as it is related to: •Disorder (functioning of children with HIV/AIDS, Cerebral Palsy, Autism) •Disability (functioning of children with Intellectual Disabilities) •Participation (functioning essential for survival, child development, education) Applications: •Disability Module of UNICEF (10 questions) •ICF-Checklists and Questionnaires (0 to <3, 3-6, 6-12, >13) •Functional Profiles •Observation forms to capture Activities and Participation Requirements: •Expertise to adequately map test results, observations, etc. to ICF-CY codes •Expertise to adequately represent severity levels by using the qualifiers measuring, collectingmeasuring, collecting
    54. 54. Intermezzo on «Observation» Playing basketball Count how many times the players wearing white pass the ball. Available at: http://www.youtube.com/watch?v=vJG698U2Mvo 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 54
    55. 55. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 55 Using ICF to understand complex situations Developing a shared understanding of complex situation: •Dynamics of functioning at body, person and societal levels •Linking ICF-based information with information on risk factors, case history •Integration of information from different data sources Applications: •Using a procedures to integrate information from different sources •Documenting outcome of interdisciplinary meetings •Prioritizing further discussions based on an coherent and integrated problem description Requirements: •Expertise to judge relevance and select information to understand situations •Willingness to deal with diversity of thinking and understanding problems analysing, understanding
    56. 56. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 56 Using ICF for setting goals Developing a shared vision of future functioning: •Present functioning is projected into the future •Necessary adaptations or changes in the environment are considered •Different perspectives from different players can be integrated Applications: •Understand the visions and objectives of different players •Reach a common vision that can be pursued in different contexts Requirements: •Expertise to judge impact of functional limitations on future functioning •Knowledge related to developmental processes and dynamics •Willingness to integrate knowledge and expertise planning, deciding
    57. 57. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 57 Using ICF for planning and decision-making Solving problems and making decisions as they relate to: •Medical indications, social indications, educational indications •Identify targets, develop visions of goals, check availability of resources •Contextual considerations related to collaboration practices, available expertise Applications: •ICF-based eligibility procedure developed in Switzerland •Individual educational plans (Veneto, Italy) •School-based collaborative assessment meetings (Zurich, Switzerland) Requirements: •Ability to consider and synthesize information related to a complex situation with expertise on carrying out interventions and knowledge of their likely effect •Openness to considerations and values of other stakeholders - negotiation planning, deciding
    58. 58. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 58 Using ICF for evaluation Content and level of functioning as targets of interventions •Need to operationalise functioning in a way which allows to measure impact of interventions •Need to relate environmental changes (interventions) to functional outcomes •Monitoring potential negative effects on other aspects of functioning Applications: •Next meeting starts with an evaluation of goals and means •Revision of the interventions with regard to their effectiveness Requirements: •Expertise to identify relevant content from ICF as targets and us adequate measurements •Expertise to reliably observe, measure or otherwise capture changes planning, decidingcontroling, evaluating
    59. 59. 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 59 Linking participation to services, systems and policies Chronological Perspective Measuring Collecting Analysing Understanding Planning Deciding Acting Implementing Controlling Evaluating Policies Organisations Services Participatory relationships as mediators between opportunities and person Participation of Child and Youth European Agency for Development in Special Needs Eudcation, 2011 Systems Perspective
    60. 60. Thank you for your interest and attention. Prof. Dr. Judith Hollenweger Zurich University of Teacher Education Priority Area Inclusive Education judith.hollenweger@phzh.ch 02.08.2013Social Rights based Model for Defining and Classifing Disability 4th Central Asian Forum on Child Protection 60

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