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We ask President Obama to take a leading role in the UN NCD Summit, Sept. 2011


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Over 80 diabetes advocates, researchers, endocrinologists and other diabetes leaders ask US President Barack Obama to take a leading role in the coming UN NCD Summit, September 2011.

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We ask President Obama to take a leading role in the UN NCD Summit, Sept. 2011

  1. 1. August  2,  2011    President  Barack  Obama  The  White  House  1600  Pennsylvania  Ave  NW  Washington,  DC  20500    Dear  Mr.  President:    We,  the  undersigned  organizations  and  individuals,  request  that  you  attend  the  United  Nations  High-­‐Level  Summit  on  Non-­‐Communicable  Diseases  (NCD)  in  September  to  push  for  better  health  for  all  of  those  living  with  diabetes.    This  September,  you  and  your  fellow  political  leaders  will  have  a  once-­in-­a-­generation  opportunity  to  halt  a  global   epidemic   that   is   killing   and   disabling   millions   of   people,   impoverishing   families,   and   undermining  economic  progress.  The  UN  NCD  Summit  is  a  chance  for  the  Government  of  the  United  States  of  America  to  play  a   leading   global   role   in   confronting   this   major   threat   to   the   health,   prosperity   and   security   of   all   of   us   and  future  generations.    Together,   the   four   major   NCDs   –   diabetes,   cancer,   heart   disease   and   chronic   respiratory   disease   –   are   the  world’s   number   one   killer.   It   is   estimated   that   some   35   million   people   die   from   NCDs   each   year,   and   14   million  of   these   deaths   could   be   averted   or   delayed.   Diabetes   alone   creates   a   huge   burden  -­‐   over   300   million   people  worldwide  have  diabetes  now,  and  that  figure  will  reach  half  a  billion  within  a  generation  if  we  do  not  act  now.  One   dollar   in   every   eight   spent   across   the   world   on   healthcare   last   year   went   on   diabetes   –   a   staggering  USD378   billion   in   total.   No   country   rich   or   poor   is   immune   from   the   impact.   In   the   US   alone,   there   are   25.8  million   people   with   diabetes,   and   the   Centers   for   Disease   Control   and   Prevention   estimate   that   by   2050,   US  prevalence   will   rise   to   as   many   as   one   in   three   Americans.   EVERY   one   of   us   knows   someone   touched   by  diabetes.    As  a  group  of  committed  diabetes  advocates,  we  ask  you  to  attend  the  UN  Summit  and  work  with  other  political  leaders   to   take   action.   We   have   attached   the   NCD   Alliance’s1   proposals   for   the   Summit   outcomes,   which   we  believe   should   be   the   basis   of   the   political   response   to   NCDs.   The   global   failure   to   invest   in   NCDs   has   led   to   the  current   crisis,   yet   we   have   cost-­‐effective  solutions   that   can   save   lives   and   make   economic   sense.   These   include  action  on  prevention  and  diagnosis  as  well  as  universal  access  to  affordable,  high-­‐quality  essential  medicines  and  medical  technologies.  We  are  also  calling  for  the  establishment  of  a  Stop  NCDs  partnership  to  lead  multi-­‐sectoral   and   coordinated   action,   and   a   UN   Decade   of   Action   on   NCDs   to   implement   the   commitments  governments  will  make  at  the  UN  Summit  in  New  York.  We  would  be  pleased  to  provide  your  office  with  any  further  information  in  preparation  for  the  UN  Summit.  NCDs  such  as  diabetes  affect  us  all.  Diabetes  increasingly  strikes  children,  threatening  international  economic  progress.  But  we  are  not  powerless.  We  have  achievable  cost-­‐effective  solutions.  We  need  political  leadership  now  to  make  them  a  reality.  Please  be  a  champion  for  Non-­Communicable  Diseases  by  attending  the  UN  Summit  in  September  and  safeguard  the  health  and  prosperity  of  future  generations  in  the  US  and  around  the  world.    Yours  sincerely,     [All  signatures  on  file]   Kelly  Close  (diaTribe)   Research  &  product  news  for  15,000+  people  with  diabetes     Manny  Hernandez  (Diabetes  Hands  Foundation)   Serving  200,000  people  with  diabetes  every  month     Phil  Southerland  (Team  Type  1)   CEO/Founder  Team  Type  1,  author  of  Not  Dead  Yet,  and  complication  free  after  29  years  with  Type  1   Diabetes  due  to  always  having  had  access  to  insulin  and  testing  supplies.       Bruce  Buckingham,  M.D.  (Stanford  Medical  Center)   Professor,  Pediatrics  -­  Division  of  Endocrinology  and  Diabetes                                                                                                                                            1  The  NCD  Alliance  comprises  the  International  Diabetes  Federation,  the  International  Union  Against  TB  and  Lung  Disease,  the  Union  for  International  Cancer  Control,  and  the  World  Heart  Federation.  Together  the  NCD  Alliance  represents  900  member  associations  in  170  countries:     1  
  2. 2. Jessica  Apple,  Michael  Aviad,  Karmel  Allison  (   Reaching  30,000  People  Affected  by  Diabetes  Each  Month     David  Edelman,  Elizabeth  Edelman  (   A  diabetes  community  reaching  300,000  each  month.     Francine  R.  Kaufman,  M.D.  (Childrens  Hospital  Los  Angeles)   Emeritus  Professor  of  Pediatrics  and  Communications  at  USC  -­  The  Center  for  Diabetes,  Endocrinology   &  Metabolism     Amy  Tenderich  (DiabetesMine)   A  leading  diabetes  blog  serving  50,000  readers  a  month     Riva  Greenberg  (the  Huffington  Post  and   Reaching  more  than  150,000  diabetes  patients,  professionals  and  readers  each  month     Paula  Ford-­Martin  (dLife)   Editor-­in-­Chief,  Patient  Advocate,  Author   Zachary  T.  Bloomgarden,  MD  (   Editor,  the  Journal  of  Diabetes     Sheri  Colberg,  PhD  (   Expert  on  diabetes  and  exercise,  author  of  8  books  on  lifestyle  and  diabetes  management     Sarah  Knotts  –  Insulin,  Glucose,  Test  Strip  Stories   Sharing  real  stories  of  living  with  Type  1  Diabetes  since  1988.   William  “Lee”  Dubois,  Diabetes  Author,  Educator,  &  Advocate   Reaching  more  than  3  million  people  a  month  via  columns  and  articles     Steven  V.  Edelman,  M.D.   Founder  and  Director  of  Taking  Control  of  Your  Diabetes     Sandra  Bourdette  (Taking  Control  Of  Your  Diabetes)   Co-­Founder  and  Executive  Director,  Educating  and  empowering  the  diabetes  community  since  1995   Irl  B.  Hirsch,  M.D.  (University  of  Washington  Med  Ctr-­Roosevelt)   Professor  of  Medicine   Neal  Kaufman,  M.D.,  M.P.H.  (UCLA  Schools  of  Medicine  and  Public  Health)   Professor  of  Pediatrics  and  Public  Health     Tom  Karlya  (Diabetesdad)   Columnist  at  dLife,  1  million+  people  with  diabetes     Lois  Jovanovič,  MD  (Sansum  Diabetes  Research  Institute)   CEO  &  Chief  Scientific  Officer     James  S.  Hirsch   Author  of  "Cheating  Destiny:  Living  with  Diabetes"     Bernard  Farrell  (  and  Diabetes  Technology  Blog)   Diabetes  answers  for  1,000  people  per  month  and  reviewing  technology  for  3,000  readers/month.     Scott  K.  Johnson  (   Diabetes  blog  reaching  thousands  per  month     George  Simmons  (Ninjabetic)   Sharing  my  story  so  others  feel  less  alone.       Randolph  B.  Linde,    M.D.  (Endocrinologist)   Palo  Alto  Medical  Foundation   Brandy  Barnes  (     2  
  3. 3. A  national  nonprofit  organization  devoted  to  the  issues  faced  by  women  with  diabetes)  and  a  woman   who  has  lived  with  diabetes  for  more  than  21  years.         Kelly  Booth  (   Helping  people  with  diabetes  complications     Kerri  Sparling  (   Patient  Blogger,  Diabetes  Advocate,  and  Living  with  Type  1  Diabetes     Howard  Zisser,  MD  (Sansum  Diabetes  Research  Institute)   Director  of  Clinical  Research  and  Diabetes  Technology     Bruce  W.  Bode  MD  FACE   Atlanta  Diabetes  Associate     Michael  W.  Hoskins  (The  Diabetics  Corner  Booth)   Personal  blog  reaching  5,500  globally  each  month.     Karen  Graffeo  (   Patient  blog  reaching  several  hundred  subscribers     Gina  Capone  (,   Patient  blogger  and  community  manager  reaching  over  19,000+  affected  by  diabetes.     Crystal  Lane  (Randomly  capitalizeD)   Diabetes  Advocate  letting  hundreds  know  they  are  not  alone     Scott  Strange  (   Sharing  decades  of  diabetes  trials  and  tribulations     Lorraine  Sisto  (This  is  Caleb...)   Daily  readers  in  excess  of  500.     Wendy  K.  Rose,  RN  (   Diabetes  Advocate     Aliza  Chana  Zaleon  (Aliza  With  Diabetes)   1,000+  readers  and  counting     Michael  W.  Durbin  (   Diabetes  Advocate,  living  with  Type  2  Diabetes  and  Congestive  Heart  Failure     Kim  Vlasnik  (Texting  My  Pancreas;  You  Can  Do  This  Project)     Reaching  12,000+  people  with  diabetes  every  month     Mari  Ruddy  (Team  WILD  and  Red  Rider  Recognition  Program  Founder)   Representing  over  5,000  cyclists  and  athletes  with  diabetes     Scott  Strumello  (Scotts  Web  Log)   A  Patient-­Written  Blog  Reaching  An  Average  of  2,500  Visitors  Per  Month     Lahle  Wolfe  (,  Pre-­   7.9  million  visitors  since  2005,  10,000+  subscribers     Bill  Woods  (   “It’s  All  About  Your  Attitude!”     Martin  Wood  (   Type  1  diabetes  blogger  and  advocate.  Sharing  my  life  with  diabetes  so  that  others  may  have  a  voice.     Chris  Stocker  (The  Life  of  a  Diabetic)   Reaching  1,000s  of  people  with  diabetes  every  day!     Naomi  Kingery,  The  Diabetic  Diva  (   Author  and  blogger  who  has  reached  over  10,000  people  with  diabetes.     3  
  4. 4. Victoria  Cumbow  (   Type  1  diabetic  for  18  years,  advocate,  patient  and  health  blogger  at  Dia-­Beat-­This  and   @victoriacumbow     Hallie  K.  Addington  (The  Princess  and  The  Pump)   I  am  a  wife,  mother,  teacher…  and  a  pancreas!     Kelly  Kunik  (   Spreading  Diabetes  Validation  through  Humor,Ownership  &  Advocacy     Elissa  R.  Weitzman,  ScD,  MSc   Assistant  Professor     Harvard  Medical  School  |  Children’s  Hospital  Boston     Cherise  Shockley  (Diabetes  Social  Media  Advocacy)   Diagnosed  with  Latent  Autoimmune  Diabetes  in  Adults  in  June  2004.  Creator  of    Diabetes  Social  Media   Advocacy  (DSMA)  weekly  twitter  chat  and  blog  talk  radio.     Merle  Gleeson  (Type  1  Diabetes  Lounge)     Meri  Schuhmacher  (Our  Diabetic  Life)   Blogger,  advocate,  friend  to  1000+  mothers  and  fathers  of  children  with  diabetes.     Satish  K.  Garg,  MD  (Barbara  Davis  Center  for  Childhood  Diabetes,  University  of   Colorado  Denver)   Professor  of  Medicine  and  Pediatrics;  Director,  Adult  Program;  Clinical  and  Research  Endowed  Chairs   Editor-­in-­Chief,  Diabetes  Technology  and  Theraputics     Beatriz  Dominguez  (Sweet  Bea)   Diabetes  Patient  and  Advocate     Jessica  Collins  (jess-­   Diabetes  blogger  and  advocate     Allison  Blass  (Lemonade  Life)   A  personal  blog  about  living  with  diabetes  serving  5,000  readers  a  month     Leighann  Calentine  (D-­Mom  Blog)   Mom  of  a  child  with  type  1  diabetes,  author  of  D-­Mom  Blog  reaching  8,000+  families  per  month,   diabetes  advocate.       Hope  Warshaw,  RD,  CDE  (   Diabetes  educator,  author  with  nearly  1  million  books  in  print     Nicolas  Cuttriss,  MD,  MPH  (   Empowering  youth  to  serve  as  agents  of  change  in  diabetes  communities  abroad     Jane  Jeffrie  Seley,  DNP  MPH  MSN  BC-­ADM  CDE  (New  York  Presbyterian/Weill  Cornell)   Diabetes  Nurse  Practitioner     Barry  H  Ginsberg,  MD,  PhD   Diabetes  Consultants       Prof.  Dr.  Lutz  Heinemann,  PhD  (Profil  Institut  für  Stoffwechselforschung  GmbH)   Partner  and  Scientific  Consultant     Bennet  Dunlap  (Your  Diabetes  May  Vary,  The  BetesNOW)   Advocate  for  families  living  with  diabetes.  Father  of  two  type  1  teens.   Jay  Skyler,  MD  (University  of  Miami  Miller  School  of  Medicine,  Diabetes  Research  Institute)   Professor  of  Medicine,  Pediatrics  and  Psychology  at  Associate  Director  for  Academic  Programs  at  DRI         Darrell  M  Wilson,  MD  (Stanford  University  and  the  Lucile  Packard  Childrens  Hospital)   Professor  and  Chief,  Pediatric  Endocrinology  and  Diabetes       4  
  5. 5. Ginger  Vieira  (www.Living-­in-­   Type  1  diabetes  advocate,  vlogger,  author  and  health  coach.       Lee  Ann  Thill,  MA,  ATR-­BC,  LPC  (   Type1  diabetic  for  32  yrs,  blogger,  art  therapist,  diabetes/mental  health  advocate,  artist.     Mariela  Glandt,  MD   Endocrinology  Department,  Bronx-­Lebanon  Hospital     Gonzalo  Bacigalupe,  EdD,  MPH   International  Health  Council  Representative  at  ,  Ikerbasque  Research  Professor,  Associate   Editor  at  Family,  Systems,  &  Health     Sysy  Morales  (   Encouraging  10,000  women  with  diabetes  to  live  their  best  life  every  month     Kitty  Castellini,  Founder,  President  &  CEO  (Diabetes  Living  Today®)   National  Broadcast  News  on  Diabetes  for  120,000  with  diabetes     Kathy  White  (kathy-­   Islet  cell  transplant  recipient     Anne  Findlay  (annetics,  Team  Type  1  cyclist)   Advocating  for  healthier  living  through  exercise  for  people  with  diabetes     Gretchen  Becker  (     Author  of  "The  First  Year:  Type  2  Diabetes"       Cheryl  Alkon   Author  of  Balancing  Pregnancy  With  Pre-­Existing  Diabetes:  Healthy  Mom,  Healthy  Baby     Ronnie  Gregory  (     Erin  D.  ONeill  Argueta  (   Living  creatively  for  over  39  years  with  Type  I  Diabetes     Cara  Richardson  (   Every  Day,  Every  Hour,  Every  Minute     Cheri  Pate  (   Michael  Robinton  (Insulin  Pumpers)   Executive  Director       5  
  6. 6. sectIon 4: resources, tooLs AnD pubLIcAtIons IDF - Calling the World to aCtion on diabetes: an adVoCaCY toolKit 39J. ncd AlliAnce proposed oUTcomes docUmenT – pAGe 1 Proposed Outcomes Document for the United Nations High-Level Summit on Non-Communicable Diseases We, the NCD Alliance, request Governments of the world at the UN High-level Summit on NCDs taking place 19-20th September 2011 to commit to: Leadership Prevention • Implement the WHO 2008-2013 Action Plan for the Global • ccelerate the effective implementation of the Framework A Strategy for the Prevention and Control of NCDs; Global Strategy Convention on Tobacco Control. on Diet, Physical Activity and Health; and the Global Strategy to Reduce the Harmful Use of Alcohol. • Establish effective population-wide prevention, early detection, screening and awareness-raising programmes for NCDs targeting • nclude NCDs in the global development goals that succeed the I high-risk populations by 2020, including, but not limited to: Millennium Development Goals in 2015. o By 2018, reduce the mortality and morbidity of gastric, colorectal, breast, cervical cancer; diabetes; and • By 2016, 60% of countries implement a national NCDs Action cardiovascular diseases (including heart disease and stroke) Framework, a Coordinating Authority and a country-level by increasing early detection programmes. Monitoring and Evaluation System and develop national health o By 2018, implement national immunisation strategies for plans with specific objectives and targets for the prevention, early HPV and HBV for populations at high risk and strategies to detection, treatment and care of NCDs. prevent rheumatic fever to avert rheumatic heart disease. o Reduce or eliminate environmental (including indoor air • Develop, implement, monitor and evaluate strategies addressing pollution), occupational and other contextual risk factors NCDs engaging the whole of government, the private sector and associated with NCDs. civil society and adopt a ‘health in all policies’ approach where all major policies and capital projects are subject to a health impact • mplement global and national trade and fiscal measures to I assessment. provide incentives for production, distribution and marketing of vegetables, fruit and unprocessed food. • Establish a UN interagency coordination mechanism on NCDs by 2012. • By 2013, develop and implement comprehensive strategies to decrease childhood obesity, and eliminate all forms of marketing, • Establish a ‘Stop NCDs Partnership’ within the UN system to particularly those aimed at children, for foods high in saturated coordinate follow-up action on UN Summit commitments fats, trans-fats, salt and refined sugars by 2016. working with governments, NGOs and the private sector. • By 2013, develop and implement regulatory measures to achieve • Establish a UN Decade of Action on NCDs 2012–2022 to substantial reductions in levels of saturated fats, trans-fats, salt implement the Outcomes Document and ensure that by 2016, and refined sugars in processed foods. Aim to reduce worldwide 85% of the world’s population have access to information, salt intake to less than 5g/day per capita (2,000 mg sodium/day) education and services to reduce their vulnerability to NCDs. by 2025. • Reduce NCD death rates by at least 2% per annum. • Develop and implement policies for urban design to include safe open spaces and encourage walking, cycling and other physical activities. • Develop and implement comprehensive strategies to decrease the harmful use of alcohol, in particular, among youth. Non-Communicable Diseases (NCDs): Cancer, cardiovascular disease, chronic respiratory disease and diabetes, and the four shared risk factors of tobacco use, unhealthy diet, physical inactivity and the harmful use of alcohol, as identified by the World Health Organization (WHO).
  7. 7. 40 sectIon 4: resources, tooLs AnD pubLIcAtIons IDF - Calling the World to aCtion on diabetes: an adVoCaCY toolKit J. ncd AlliAnce proposed oUTcomes docUmenT – pAGe 2 Diagnostics and Treatment • Ensure universal access to affordable high-quality essential NCD medicines and medical technologies including, but not limited to: o Diagnostic technologies, radiotherapy and cancer medicines by 2020. o Anti-hypertensives, statins, aspirin and penicillin by 2015. o Insulin and other diabetes medicines, and diabetes diagnostic and monitoring technologies by 2015. o Good-quality, affordable asthma inhalers by 2012. • Provide improved access to high quality palliative care, including opioid analgesics, for those suffering from pain associated with NCDs. • By 2013 develop and implement strategies to address NCD treatment and care in emergencies, natural disasters and conflicts. Health Systems Research • By 2015, establish and strengthen national health information • Encourage, increase and accelerate research on NCD causes and systems (including registries) for monitoring and evaluation of cures, including longitudinal research into the ‘early origins’ of NCDs and risk factors and morbidity/mortality statistics by cause. NCDs. • By 2016, 60% and by 2020 80% of countries to develop strategies • Encourage operational research on prevention, treatment and to integrate health-system management of NCDs, especially at management of NCDs. primary health care levels. • Strengthen national and community-based health systems to ensure continuity of care and support through to effective referral Human Rights / Vulnerability by 2020. • Accelerate approaches to address the social determinants of • Develop and implement strategies to strengthen human NCDs, including malnutrition, and reduce the vulnerability resources for health, including public health and community of women, children, indigenous peoples and populations at health workers, to ensure equitable access to NCD prevention, particularly high risk. early detection, treatment and care. • By 2016, implement NCD screening into maternal and child health programmes. Resources • Implement legislation, policies and public awareness campaigns to reduce stigma and discrimination associated with NCDs. • Allocate sufficient funds to the United Nations and member states to support the implementation of the UN Summit Outcomes Document. Monitoring / Follow up • Develop and implement innovative financing mechanisms for NCDs at global and country level. • By 2012, establish a high-level Commission on Accountability for Action on NCDs with representatives from government, donors, • Leverage existing essential medicine procurement mechanisms multi-lateral institutions, civil society and the private sector and develop new solutions to provide access to affordable NCD to ensure ongoing monitoring of commitments from the UN medicines and technologies. Summit. • Increase the percentage of national health budgets allocated to • Every year devote time at the UN General Assembly to review a NCDs. report from the Secretary General on progress, and conduct a high-level review of progress in 2016. • By 2012, bilateral donor agencies and multilateral organisations to support NCD programmes in low- and middle-income countries. NCD Alliance UN Summit Partners American Cancer Society, American Heart Association, Framework Convention Alliance, Global Health Council, LIVESTRONG, Norwegian Cancer Society and World Lung Foundation. To comment on this Proposed Outcomes Document and get more information about the NCD Alliance, please visit: