Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.

National Consumer Body Discussion Paper


Published on

Summary of discussion paper prepared by Craze Lateral Solutions regarding a proposed Hybrid National Mental Health Body. Authored by Jenny Speed. Endorsed by all members of A way Ahead Queensland (

Published in: Education, Health & Medicine
  • Be the first to comment

  • Be the first to like this

National Consumer Body Discussion Paper

  1. 1. PROPOSED NEW NATIONAL MENTAL HEALTH CONSUMER BODY Summary of discussion paper prepared by Craze Lateral Solutions
  2. 2. ROLE OF NEW BODY <ul><li>Advocate for change through provision of advice to Government </li></ul><ul><li>Provide national leadership on consumer engagement and participation </li></ul><ul><li>Provide national leadership on consumer organisation and service development </li></ul><ul><li>Engage the community in promoting a positive understanding of people with mental illness and their lived experience </li></ul>
  3. 3. KEY AREAS OF WORK <ul><li>Policy development, lobbying & systemic advocacy </li></ul><ul><li>Research & information development & dissemination </li></ul><ul><li>Resource development & dissemination </li></ul><ul><li>Engagement with community & media </li></ul><ul><li>Membership development & services </li></ul><ul><li>National projects & collaborations </li></ul>
  4. 4. PEAK BODIES <ul><li>Association established to act on behalf of members when lobbying government or promoting the interests of the members. </li></ul><ul><li>Examples of Australian national peaks : </li></ul><ul><ul><li>Athletics Australia </li></ul></ul><ul><ul><li>ACTU </li></ul></ul><ul><ul><li>Australian Youth Affairs Coalition </li></ul></ul><ul><ul><li>ACOSS </li></ul></ul><ul><ul><li>AFDO </li></ul></ul>
  5. 5. POSSIBLE MODELS FOR NEW BODY <ul><li>Peak of individuals </li></ul><ul><li>Peak of peaks </li></ul><ul><li>Peak of organisations </li></ul><ul><li>Hybrid peak </li></ul>
  6. 6. <ul><li>PEAK OF PEAKS </li></ul><ul><li>Peak body of peak mental health consumer organisations </li></ul><ul><li>It is difficult to find enough genuine consumer bodies in Australia for there to be a need for a peak to represent them </li></ul>
  7. 7. Australian Examples of Peaks of Peaks <ul><li>Athletics Australia </li></ul><ul><li>ACTU </li></ul><ul><li>Australian Youth Affairs Coalition </li></ul><ul><li>ACOSS </li></ul><ul><li>AFDO </li></ul>
  8. 8. International Mental Health Consumer Example— US NCMHCSO <ul><li>Members </li></ul><ul><li>Groups whose members are consumers and which are governed by consumers, and </li></ul><ul><li>Regularly communicate with networks to ensure they are inclusive & representative </li></ul><ul><li>Boards endorse in writing mission & purpose </li></ul><ul><li>Collaboratively work out of differences </li></ul><ul><li>Advocate that the voice of consumers be central to decision making at all levels </li></ul>
  9. 9. Suggestions in Discussion Paper <ul><li>CONSUMER </li></ul><ul><li>CAN (Mental Health) </li></ul><ul><li>Multi-cultural MHN </li></ul><ul><li>PANDA </li></ul><ul><li>VMIAC </li></ul><ul><li>ACT MHCN </li></ul><ul><li>Maybe </li></ul><ul><li>NSW CAG (members don’t have to be consumers; 50% of Board does) </li></ul><ul><li>Top End MHCN (no info on net) </li></ul><ul><li>Health Consumers Alliance of SA </li></ul><ul><li>NOT CONSUMER or CONSUMER/CARER </li></ul><ul><li>GROW </li></ul><ul><li>Hearing Voices </li></ul><ul><li>Blue Voices </li></ul><ul><li>Private MH Consumer Carer Network </li></ul><ul><li>Inspire Foundation </li></ul><ul><li>NMHCCF </li></ul><ul><li>Queensland Voice </li></ul><ul><li>Butterfly Foundation </li></ul><ul><li>Mental Health Association of Central Australia </li></ul>
  10. 10. <ul><li>Peak of Individuals </li></ul><ul><li>Diverse individual membership </li></ul><ul><li>Needs a way to ensure effective two-way communication between grass roots and decision makers </li></ul>
  11. 11. Australian Examples of Peaks of Individuals <ul><li>AMA </li></ul><ul><li>Australian Conservation Foundation </li></ul><ul><li>Political parties (except ALP) </li></ul><ul><li>Australian Union of Students </li></ul><ul><li>Medical Colleges </li></ul><ul><li>Australian Psychological Association </li></ul>
  12. 12. International Mental Health Consumer Example— VOX Scotland <ul><li>Members must  be over 16 years and have, or have had, personal experience of mental health problems and live, work or study in Scotland. </li></ul>
  13. 13. Peak of Organisations <ul><li>Similar to Peak of Peaks, except that any consumer organisation can be a member. </li></ul><ul><li>Similar problem to the first model—there are very few consumer organisations </li></ul>
  14. 14. Australian Examples of Peaks of Organisations <ul><li>Homelessness Australia </li></ul>
  15. 15. Hybrid Model <ul><li>Membership comprising individuals, national and state consumer organisations and other consumer organisations </li></ul><ul><li>Probably the most feasible model right now, owing to the lack of genuine, independent consumer organisations in Australia at this time. </li></ul>
  16. 16. International Mental Health Consumer Example— NSUN <ul><li>Individual users and user groups as well as allies, both individuals and groups, can join. </li></ul>
  17. 17. Why do we need a peak consumer body <ul><li>To provide an organised way of informing government, services, professions and other organisations about mental health from a consumer perspective </li></ul><ul><li>To provide an avenue for consumers to be informed about developments in mental health locally, regionally, nationally and internationally </li></ul>
  18. 18. Why is it important that the body be a consumer body <ul><li>Consumers are the people most directly affected by the way mental health services are delivered </li></ul><ul><li>Consumers interests are not identical with those of any other participants in the mental health sector, although they might be aligned with them at times </li></ul><ul><li>Consumer leadership is a necessity for the health and well-being of people who have lived experience of mental illness </li></ul>
  19. 19. What underpins recovery <ul><li>Hope </li></ul><ul><li>Connectedness </li></ul><ul><li>Self-determination </li></ul>
  20. 20. Individual autonomy, self esteem, and health are linked together ( Michael Marmot , 2003