www.gtdregistry.sa.com
Gestational trophblastic disease (GTD) is a rare tumour of placental origin. There is
a range of malignant potential from ...
Saudi GTD
Registry
Criteria Used to Diagnosed GTN
Objective
• Plateauing of HCG level over at least three
weeks.
• A rise ...
Saudi GTD
Registry
Accessing the
Website
Open any Web Browser
–IE (Internet Explorer).
–Mozilla Firefox.
–Google Chrome.
–Apple Safari.
–Oper...
Accessing the
Website
Accessing the
Website
Theme of GTD Registry
Making death from disease of trophoblast some thing
in the past.
Saudi GTD Reg...
How to Register for
1- While on the website’s home page find the
“Register” link which is illustrated below
How to Register for
Physician
2- A...
How to Register for
Physician
3
3- The following information are
required:
– Email: this will serve as your User ID.
– Giv...
How to Register for
Physician
4
4- After all required fields are
displayed, hit the “Register” button
5- A message will be...
1- Locate the Logon form at the top-right corner of the
website page. Supply the User ID and Password then
hit the “Sign I...
Registering
a Patient
1
1- Locate the menu link
“Patient Register” from the
Sidebar.
2- After hitting Patient Register link, the
patient registr...
Registering
a Patient
3- Patient Demographics – required fields
– Given Name
– Family Name
– Date of Birth
– Mobile No.
– ...
• Clinical Presentation
• If Initial Pathology (YES).
• List view will display.
- Complete Mole.
- Partial Mole.
- Invasiv...
Ordering HCG
1- After the successful registration of the patient
• At the patient registration screen, go down before the ...
Modify who
Scoring
At the patient registration screen, go down to the
FINAL EVALUATION section and click link “Scoring
Ent...
Referring
Patients
1
1- Hit the Referral option to bring out the “Order
Referral” link. Hit this link.
2- Enter all the in...
Chemo Therapy
• If chemo therapy is Yes then you should
identify if it is Single or Multiple
• If the “Is Chemo Therapy is...
Referral List
1- Locate the menu link
“Referral List” from
the Sidebar.
1
Click on this icon with status “Pending” to acce...
Referral List
3
3- The Referral acceptance dialog should display.
Hit the “Accept” button to allow the referral.
4- After ...
Result Entry
Hit the Red
icon to open
the result
entry dialog
1
• Result entry is accessible at registration screen or pat...
Planner
Planner link
Hit this icon to Create
a patient booking
• Locate the menu link “Planner”
from the Sidebar. To open ...
Booking Entry
Private
Messages
• Locate the menu link “Messages”
from the Sidebar.
• Doctors can exchange private
messages in this page....
Alerts
This website have alert system that
will send you SMS Alerts in this
situations:
A HCG result has not been entered...
Scientific Chair of Prof. Abdullah Hussain Basalamah
for Gynecological Cancer
And Gynecology Oncology Unit
Saudi Gestation...
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Gestational tropoblastic disease (عكاظ)

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Gestational tropoblastic disease (عكاظ)

  1. 1. www.gtdregistry.sa.com
  2. 2. Gestational trophblastic disease (GTD) is a rare tumour of placental origin. There is a range of malignant potential from the relatively benign (premalignant) Hydatidiform Mole which occurs about 1 in 1,500 pregnacies to the much rarer malignant form (Choriocarcinoma, invasive mole, Placenta site trophoblastic disease and the new entity which called epitheliod trophoblastic tumor. Its incidence is various depend on the location from 1: 85 in Indonosia to 1; 1500 in Europe and USA . In Saudi Arabia the incident is 2.6 per 1000 pregnancy. The chance to have chemotherapy after evacuation oh moler pregnancy depends were you live if you are in UK is 7 % and in Canada is 30% and in Saudi Arabia is 25%. The Journey of GTD began in 1956 when the sensitivity of gestational trophblastic neoplasia (GTN )was found to Methotraxate . In 1970 the great Bagashow was used the folonic acid to decrease the side effect of Methoraxate. and introduce the EMACO regimen in the management of High risk GTN. Between 1970 and 1980 Actinomycin D were introduced. different protocol in the management is used which has basically similar good prognosis. Since year 2000 we globally thankfully reach to a kind of uniform and classification system which started to show effect on the way how to report the data and compare data together. The scoring system validated in 2000 and adapted by WHO and FIGO and its current classification most of us follow hopefully. In the UK there is three registration for GTD and 100 % of patient with GTD registered and death from GTN is now no more accepted especially in a low risk group. Because the incidence in Saudi Arabia is very low it is very difficult for individuals to establish and maintain expertise in the management of these rare diseases. Therefore, the management should be centralized and establishment of Saudi GTD registry need to in used. Khalid Hussain Wali Sait Director of Saudi Gestational Trophoblastic Disease Registry Email: khalidsait@yahoo.com Mobile: +966505693160 Welcome Saudi GTD Registry
  3. 3. Saudi GTD Registry Criteria Used to Diagnosed GTN Objective • Plateauing of HCG level over at least three weeks. • A rise of HCG of 10% or greater for three values or more over at least two weeks. • Persistent of HCG beyond six months after molar evacuation • Ensure adequate follow up of patient with moler pregnancy and early detection of GTN. • If GTN diagnosed treatment is coordinated with an expert in the field and help arrange in the referal. • To get exact incidence of GTD in Saudi Arabia.
  4. 4. Saudi GTD Registry
  5. 5. Accessing the Website Open any Web Browser –IE (Internet Explorer). –Mozilla Firefox. –Google Chrome. –Apple Safari. –Opera. Type http:gtdregistry.sa.com in the address bar
  6. 6. Accessing the Website
  7. 7. Accessing the Website Theme of GTD Registry Making death from disease of trophoblast some thing in the past. Saudi GTD Registry Team Prof. Khalid Sait Director of Saudi GTD Registry Dr. Nisrin Anfinan GTD Registry Coordinator Dr. Asem Sabghatallah GTD Registry Coordinator Faten Anfanan GOU Secretary Rowaida Al Mehy GOU Secretary Reem Qubaidi Health Educator Amal Al Montasheri Nurse JCSP Maribi Marqueses GOU Office Assistant Prof. Jim Bentley International Advisor Prof. Abdullah Hussain Basalamah General Advisor
  8. 8. How to Register for
  9. 9. 1- While on the website’s home page find the “Register” link which is illustrated below How to Register for Physician 2- After clicking the link the registration form will display 1 2
  10. 10. How to Register for Physician 3 3- The following information are required: – Email: this will serve as your User ID. – Given Name. – Family Name. – Password: you must enter the same. – password twice. – Password Hint: please make sure the hint lets you remember your password. – Mobile No. – please register a valid mobile number.
  11. 11. How to Register for Physician 4 4- After all required fields are displayed, hit the “Register” button 5- A message will be sent to your email after a successful registration. Click the link to continue and activate/confirm your new account. 5
  12. 12. 1- Locate the Logon form at the top-right corner of the website page. Supply the User ID and Password then hit the “Sign In” button. Account Logon Now that you have secure access for the website, you may now logon and access the tools for managing GTD patients. Your email used for registration will be your User ID. Please make sure you use the same password during registration to access the website. 1 2 2- Once you are logged on you will be presented with alerts relating to patients, test results and private messages.
  13. 13. Registering a Patient
  14. 14. 1 1- Locate the menu link “Patient Register” from the Sidebar. 2- After hitting Patient Register link, the patient registration form will display and the data entry will be available for the following – Patient demographics – Gestational trophoblastic information • Gbstetric history events • Clinical presentation • Final evaluation 2 Registering a Patient
  15. 15. Registering a Patient 3- Patient Demographics – required fields – Given Name – Family Name – Date of Birth – Mobile No. – Document Type – Document No – Next of Kin 3 4- OBSTETRIC HISTORY EVENTS – required fields – Gravida – Date of Evacuation – Para – Gestationa age – Previous Molar pregnancy – Initial HCG 4
  16. 16. • Clinical Presentation • If Initial Pathology (YES). • List view will display. - Complete Mole. - Partial Mole. - Invasive Mole. - PSTT. - Choriocarcinoma. 5 • After a successful registration Saudi GTD will be following the patient you registered. • Saudi GTD will be alerting physicians when a laboratory exam is due or pending. • Saudi GTD will follow the patient’s progress until the disease is cleared.6 Registering a Patient
  17. 17. Ordering HCG 1- After the successful registration of the patient • At the patient registration screen, go down before the FINAL EVALUATION. • Hit Order New HCG link to bring the order HCG screen. 1 2 • This is the display of HCG • HCG Result / Graph Physician will be alert by the following: First alert, if the HCG not done in the right time. Second alert, if the HCG is not going down. Third alert, Does patient so far had presistent GTD is YES.
  18. 18. Modify who Scoring At the patient registration screen, go down to the FINAL EVALUATION section and click link “Scoring Entry” • WHO Scoring is auto calculate once you selected each factor. • The four first will be mandatory. • Click on save button to proceed. • Click on reset to reset your entry. • You can close the screen without saving by clicking on Close without save.
  19. 19. Referring Patients 1 1- Hit the Referral option to bring out the “Order Referral” link. Hit this link. 2- Enter all the information asked • Referral date, Referred to Doctor and Interpretation • Save the data 2
  20. 20. Chemo Therapy • If chemo therapy is Yes then you should identify if it is Single or Multiple • If the “Is Chemo Therapy is Success” is No then another entry will display once you click on save button. • Once you select Other, a free text will display for entry. Single Dropdown • Mtx. • Act. D • Other Double Dropdown • MAC • EMACO • Other
  21. 21. Referral List 1- Locate the menu link “Referral List” from the Sidebar. 1 Click on this icon with status “Pending” to accept a referral. 2 2- The Referral List page should display all referrals to you from other doctors.
  22. 22. Referral List 3 3- The Referral acceptance dialog should display. Hit the “Accept” button to allow the referral. 4- After a referral is accepted, both the doctor who registered and the doctor referred to will be able to manage the patient by: – Order a new HCG – Enter HCG results – Refer the patient – Read patient progress 4
  23. 23. Result Entry Hit the Red icon to open the result entry dialog 1 • Result entry is accessible at registration screen or patient chart. • To enter a result go to the Order list and locate the unreleased order with pending status as seen below: • Enter the HCG result in the dialog as seen below and hit the “Save” button. Hit to save the result Enter HCG Result here 2
  24. 24. Planner Planner link Hit this icon to Create a patient booking • Locate the menu link “Planner” from the Sidebar. To open clinic bookings.
  25. 25. Booking Entry
  26. 26. Private Messages • Locate the menu link “Messages” from the Sidebar. • Doctors can exchange private messages in this page. Messages link
  27. 27. Alerts This website have alert system that will send you SMS Alerts in this situations: A HCG result has not been entered or is delayed (HCG not done in the right time). If the HCG is not going down. If the patient so far had persistent GTD. If there are a new referrals for you.
  28. 28. Scientific Chair of Prof. Abdullah Hussain Basalamah for Gynecological Cancer And Gynecology Oncology Unit Saudi Gestational Trophoblastic Disease Registry Mobile: (+966540963815) (+966540964759) Tel: +966(12) 6401000 Ext. 11480 - 11523

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