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Dementia India 2015 Infographic

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Dementia affects many families in India. This infographic, available in both English and Hindi, shows about the current status, future estimates, and the problems that families face in dementia care. See how families living with dementia can be supported. View the Hindi version of the infographic at: https://www.slideshare.net/swapnakishore/dementia-india-2015-infographic-hindi

(Website page for the infographic: http://dementiacarenotes.in/dementia/dementia-india-2015-info/)

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Dementia India 2015 Infographic

  1. 1. Dementia in India, 2015 Current status. Future estimates. Problems faced in dementia care. A call for action to support families living with dementia in India.  Many families in India live with dementia Younger people also get dementia. This adds 2-8% to the number of people with dementia 🏠🏠🏠🏠🏠🏠🏠🏠 🏠🏠🏠🏠🏠🏠🏠🏠 In India, 41 lakh (4.1 million) people above 60 have dementia 3.7 % of people above 60 have dementia 2015 1in every 16 households with an elder has someone with dementia  ...dementia is under-diagnosed worldwide [1] IndiaIn 1 10Only out of people with dementia get any diagnosis, treatment or care Most do not get a diagnosis  Dementia care involves many difficulties Caregivers face difficulties during these years of care for many reasons  Initial dementia symptoms are mild. They keep getting worse. The person becomes fully dependent.  Family members, young and old, provide care Goes on for many years (may never be diagnosed) Over time, care needs more time and money Symptoms of dementia are assumed to be normal ageing Crazy  People with dementia are criticised Families are blamed for not caring well enough Extremely poor dementia awareness in society ...creating misinformation, myths and stigma...   =  Stubborn “Not there” Cruel Greedy Negligent Specialists available for 131,10,00,000 Indians can fit in less than two basketball courts Health care professionals may not recognise dementia unless they are specialists ...awareness regarding the disease is very poor in the community as well as the medical fraternity.[2]  Families may not get a diagnosis, or may get it very late They may not get any information from their doctors Benefits of diagnosis missed. Person may not get drugs or counselling that can improve life, especially in early stages. 💊   The person with dementia and the family may not get time to accept dementia. Care cannot be planned. Help from the health care profession is very limited ....the most significant barrier to closing the service gap for dementia is the very low human resource capacity for the care of those with the disease.[2]  Number of specialists per 10,00,000 Indians Psychiatrists Neurosurgeons Psychiatric nurses Neurologists Psychologists Social workers 1 2 Dementia’s effect is heart- breaking to see. Work is tiring. No time for self-care. Stress and depression are common. Major changes are needed to give care Not enough money 📅₹ No time to socialise Even more isolation because of stigma Caregivers are affected in many ways for many years No financial support for home caregivers. 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠 🏠🏠 🏠 🏠 🏠 🏠 41 lakh elders have dementia Less than 2000 Day + full-time care capacity in India is The capacity of suitable care centres is very low   No practical advice for home care. No support services. No income security  Almost all care is done at home without information or support People are living longer Life expectancy if born in... Older people (60+ years old) will be a larger part of the population 36.62 years 49.4 years 67.47 years 75.87 years 1950-55 1970-75 2010-15 2045-50 And ... India’s population is “ageing” The impact of dementia is increasing 60-64 70-74 80-84 90+Age (years) 65-69 75-79 85-89 1.9% 3.0% 4.9% 8.3% 14.0% 23.0% 44.1% Dementia is higher in older people Dementia prevalence doubles for every 6.6 years of age In the 90+ age group, 44.1% have dementia From 8.9% in 2015 ... To 19.4% in 2050 2015 8.9% 2050 19.4% 133.3 lakh people will have dementia (this is an increase of 225%!) By 2050 Compared to this, the overall population will increase by 30% So more and more families will be impacted by dementia. 2015 2050 What can be done What the Government, experts, corporates, volunteers & NGOs can do Have systems for caregivers 📣 Spread dementia awareness Have systems for early diagnosis Train more professionals ₹Give financial support Provide information in many ways Counsel and support families Focus on dementia through policy and programs Create affordable services, products, and centres 🏢 Regulate service providers 🎓💊 ఒక ଅ അ अ ಅ  Develop medicines Train caregivers    Be alert for symptoms and consult doctors early Share caregiving stories and tips Help the family Spend time with the person with dementia Make society “dementia friendly” Be a friend to a stressed caregiver  📅 Give your time, skills, and money for dementia programs. Take part in studies. ₹  What all of us can do (we can make a difference) References used for the infographic [1] Dementia: A Public Health Priority (WHO and ADI report) [2] Dementia India Report 2010 (ARDSI report) [3] World Alzheimer Report 2015 (ADI report) [4] World Population Prospects: Key findings and advanced tables, 2015 Revision (UN) [5] United Nations, Department of Economic and Social Affairs, Population Division (2015). World Population Prospects: The 2015 Revision, custom data acquired via website (September 2015) [6] Shaji KS, Reddy MS Caregiving: A Public Health Priority, Indian J Psychol Med 2012;52; 34.303-5. [7] Alzheimer’s and Related Disorders Society of India/ National Dementia Helpline India Also see: Website for dementia home caregivers in India: http://dementiacarenotes.in (English) and http://dementiahindi.com (Hindi) Blog: http:// swapnawrites,wordpress.com Videos at: http://www.youtube.com/user/dementiacarenotes and http://www.youtube.com/user/swapnawrites Infographic ©2015 Swapna Kishore Please attribute when sharing About this infographic http://dementiacarenotes.in/dementia/dementia-india-2015-info/

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