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        T HE S TUTTERING F OUNDATION
            A Nonprofit Organization                SUMMER 2009                              Since 1947... Helping Those Who Stutter


    Research on
     Electronic
      Devices:
   Preliminary Results
By Anne L. Foundas, M.D. and
Edward G. Conture, Ph.D.                                National Stuttering
                                                         Awareness Week
   Developmental stuttering has a
lifetime incidence (i.e., percent-                               May 11-17
age of adults who stuttered at
some point) of nearly 5% and is
                  one of the more




                                                                                                     y of NFL
                  common develop-
                  mental speech dis-




                                                                                    Pho tos cou rtes
                  orders. Although
                  the disorder sig-
                  nificantly     im-
                  pacts the academ-
                  ic, emotional, so-
      Anne L.     cial and vocation-
   Foundas, M.D.  al achievements,
                  development and
                  potential of indi-
                  viduals who stut-
                                                Chargers Star Darren Sproles
                  ter,    important          Breaks Records On and Off the Field
                  questions remain              Darren Sproles, the Stuttering                             Off the field, he’s reached a
                  regarding factors           Foundation’s spokesman for                                 record-breaking number of kids
                  that cause, exac-           National Stuttering Awareness                              and adults who stutter with a
                  erbate      and/or          Week, posted the second-best                               message of help. In fact, the
     Edward G.
   Conture, Ph.D. maintain stutter-           yard gain in Chargers post-sea-                            Foundation’s      Web       site,
                  ing. Likewise, the          son history in a January 3 game                            www.stutteringhelp.org,      has
efficaciousness of various treat-             against the Colts. He also became                          recorded more than 2 million hits
ments for stuttering remains a                the player with the third most                             in the four weeks leading up to
source of vigorous debate as well             yards of any player in a single                            the May 11th awareness week.
as investigation. Among such                  post-season game in NFL history.                                                        Continued on page 6
                    Continued on page 2



 The Impact of ADHD on Stuttering Therapy
 By Joseph Donaher, Ph.D.,             studies have shown that stut-     but research has suggested
 The Center for Childhood              tering runs in families and       that both may be causal fac-
 Communication,                        that approximately 70% of         tors for some individuals
 The Children’s Hospital               the variance in liability to      who stutter, especially those
 of Philadelphia                       stutter can be accounted for      with no family history of
                                       through inheritable factors1,2.   stuttering3,4. Furthermore, it
    The role of genetic factors        The contribution of congeni-      has been suggested that
 in the onset and maintenance          tal factors and early neuro-      when no genetic component
 of stuttering has received con-       logical incidents has been        is present, adults who stutter
 siderable attention. Multiple         less thoroughly investigated                                             Continued on page 4
                                                                                                                                       Joseph Donaher, Ph.D.
THE
                                                                            STUTTERING
2         www.stutteringhelp.org                                            FOUNDATION                                                             800-992-9392


George Cooley                                             Research             Continued from front page                   fications, the audiometric (e.g.,
                                                                                                                           frequency characteristics) proper-
                                                                  treatments, altered-auditory feed-
 Remembered                                                       back (AAF) has received consid-                          ties of the SpeechEasy as well as
                                                                  erable attention in recent years.                        its potential influence on stuttering
              1931-2009                                                                                                    in AWS. Specifically, we have at-
                                                                       With advances in digital tech-
   Longtime Stuttering Foundation                                 nology, one such AAF device,                             tempted to assess how this device
Board member George Cooley                                        the SpeechEasy, has been designed                        influences stuttering in adults with
passed away on                                                    and marketed to treat stuttering.                        persistent developmental stutter-
Feb. 20, 2009.                                                    This small de-                                                               ing (PDS) as
   George and his                                                 vice is worn like                                                            well as the ex-
wife, Jeanette,                                                   a hearing aid and                                                            tent to which
founded Mercury                                                   can be adjusted                                                              device settings
Printing Company                                                  in terms of de-                                                              and the use of
in       Memphis,                                                 layed auditory                                                               the device in the
where George                                                      feedback (DAF)                                                               left versus the
revolutionized                                                    as well as fre-                                                              right ear con-
Stuttering Found- George Cooley                                   quency altered                         Testing the electronic device.         tributes to this
ation materials - everything from                                 feedback (FAF)                                                                influence.
books to brochures to posters and                                 parameters,                      and            volume.    To date, eleven participants (PDS
newsletters.                                                      According to the SpeechEasy’s as-                        = 7, Controls = 4) have been exam-
   “George knew everything                                        sociated marketing literature, such                      ined without the device in place
there was to know about the                                       AAF adjustments of the auditory                          (baseline), with the device in place
printing business and was also a                                  sidetone for speech mimic the ef-                        but not on, with the device in place
superlative teacher,” said Jane                                   fects of choral reading. Results of                      using manufacturer-suggested and
Fraser. “Not a day goes by that I                                 empirical studies can be taken to                        manufacturer-independent settings,
don’t put to use something he                                     suggest that this device is effective                    and in each ear independently.
taught me.”                                                       for at least some adults who stutter                     Reading, narrative, and conversa-
   George was committed to help-                                  (AWS; References 1-6).                                   tional speech-language production
ing others who stutter and is sore-                                    We have recently initiated an                       were examined for each partici-
ly missed by all who were fortu-                                  empirical study to characterize, in-                     pant. For this initial study, we lim-
nate enough to know him and                                       dependent of manufacturer speci-                         ited our sample to right-handed
work with him over the years. K                                                                                            men ages 20 to 40 years who do
                                                                                                                           (PDS) and do not (controls) stutter.
                                                                                                                           Individual performance profiles
                                                                                                                           were examined in relation to
                        Annual Audit of Foundation                                                                         baseline output and results were
    The annual audit of the fund raising are very low, and                                                                 computed as a proportion of ut-
 Stuttering Foundation financial since we are fortunate to have an                                                         terances (stuttering events in the
 reports for 2008 was recently endowment which more than                                                                   first 300 syllables in each speak-
 completed by the accounting covers our overhead expenses,                                                                 ing condition).
 firm of Cannon and Company, donors can be assured that their                                                                 Preliminary findings indicate
 Certified Public Accountants, gifts will go directly to support                                                           that the device has more influence
 Memphis, Tenn. Following is a our program services.                                                                       on stuttering frequency during nar-
 recap of funds and expenditures                                   The Foundation is a 501(c)(3)                           ration and reading than during
 for the year.                                                private operating foundation which                           conversational speech but that this
    The 3.5% of expenditures for expends its funds on its own pro-                                                         effect interacts with which ear the
 administration and general ex- grams and operations and does not                                                          device is worn on. That is, some
 penses and the 7/10 of 1% for make grants to other institutions.                                                          participants exhibited more effect
 Funds expended for:                                                                                                       with the device in the left versus
 Creation, production, printing and distribution                                                                           right ears. As has been shown with
    of educational materials . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $567,362 . . . . . . . 37.8%        previous studies, there is also con-
 Public information and education . . . . . . . . . . . . . . . . . . . . . . . . . 336,805 . . . . . . . 22.4%
 Educational symposia for professionals . . . . . . . . . . . . . . . . . . . . . .184,657 . . . . . . . . 12.3%           siderable variation among partici-
 Research on causes/treatment of stuttering and therapy . . . . . . . . . 261,958 . . . . . . . . 17.4%                    pants. The extent to which the
 Maintain Web site and toll-free information hotline . . . . . . . . . . . . . . . 88,293 . . . . . . . . . 5.9%           placebo effect can account for at
 Total for Program Services:. . . . . . . . . . . . . . . . . . . . . . . $1,439,075 . . . . . . 95.8%
 Other expenditures:
                                                                                                                           least some of these findings is still
    Administration and general . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .53,276 . . . . . . . . . 3.5%    under investigation.
    Fund-raising expense . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10,208 . . . . . . . . 0.7%    In summary, our preliminary
 Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,502,559 . . . . . . . 100%
                                                                                                                                        Continued on page 3
THE
                                                                  STUTTERING
SUMMER 2009                                                       FOUNDATION                                800-992-9392    3


Research                 Continued from page 2
results appear to indicate that the
SpeechEasy device can influence
                                                       PSAs Produce a Harvest
stuttering during at least reading                        The Foundation has been            News & Financial
and narration, but that there is con-                  hearing from readers across
siderable individual variation in its                  America … in rural areas as
effect. It is thought important to de-                 well as suburbs and large cities
termine whether specific settings,                     … through the medium of
ear placement or other biological                      fruit, vegetable, and crop farm-
factors impact users’ response to                      ing magazines. Reaching a
the device. Preliminary findings                       varied group of people in rural,
were taken to suggest that changes                     often isolated areas is particu-
in stuttering, at least for some                       larly rewarding.
adults who stutter, may be related                        Other magazines and newspa-
to changes in speech-language                          pers featured here have donated a
monitoring, something impacted                         record-breaking number of pub-
by AAF devices like the Speech                         lic service ads to the Foundation.
Easy. These findings do seem to                        Farming & Agriculture
support the need to further study
why this AAF device impacts stut-                                                           Time, The New York Post,
tering for some but not other PDS.                                                          Fortune, Technical Analysis of
   Editor’s note: The Stuttering                                                            Stocks and Commodities, Georgia
Foundation is pleased to support                                                            Trend, The Philadelphia Inquirer,
this new research.                                                                          and the Pittsburg Tribune-Review.
References
1. Armson J, Kiefte M, Mason J, De Croos D.
(2006) The effect of SpeechEasy on stuttering
frequency in laboratory conditions. J Fluency                                                 Sports
Disord. 31:137-152.
2. Armson J, Kiefte M. (2008) The effect of
SpeechEasy on stuttering frequency, speech rate,
                                                                                              & Style
and speech naturalness. J Fluency Disord.
33:120-134.
3. Kalinowski, J. (2003). Self-reported efficacy
of an all in-the-ear-canal prosthetic device to in-
hibit stuttering during one hundred hours of uni-
versity teaching. Disability and Rehabilitation,
25, 107–111.                                           Corn & Soybean Digest, American
4. O'Donnell JJ, Armson J, Kiefte M. (2008) The ef-    Vegetable Grower, Greenhouse
fectiveness of SpeechEasy during situations of daily
living. J Fluency Disord. 2008; 33:99-119.             Grower, Western Fruit Grower,
5. Stuart, A., Kalinowski, J., Rastatter, M. P.,       and Soybean Digest.
Saltuklaroglu, T., & Dayalu, V. (2004).
Investigations of the impact of altered auditory
feedback in-the ear devices on the speech of peo-
                                                       Health
ple who stutter: Initial fitting and 4-month follow
up. International Journal of Language &
Communication Disorders, 39, 93–113.
6. Stuart, A, Kalinowski, J, Saltuklaroglu, T, &
Guntupalli, VK. (2006). Investigations of the im-
pact of altered auditory feedback in-the-ear de-
vices on the speech of people who stutter: One-
year follow-up. Disability and Rehabilitation,
28, 757–765.                                      K



                                                       The American Journal of Public
                                                       Health, JAMA, American Journal of
                                                       Nursing and Dentistry Today.               AARP magazine, Redbook,
Read Around the World                                                                             Seventeen, New York
  Stuttering Foundation press re-                      Technical                                  Times Magazine, ESPN,
leases can be read worldwide! In                                                                  Good Housekeeping,
fact, one article about V.P. Joe                                                                  and Avenue Calgary.
Biden’s struggles with stuttering
was published in Equatorial                                                                 3Sound & Vision and Popular
Guinea, the only Spanish-speak-                                                             Photography.
ing country in Africa.          K
THE
                                                         STUTTERING
4      www.stutteringhelp.org                            FOUNDATION                                                            800-992-9392

                                       ADHD                                    speech-language pathologist’s
                                                            Continued from front page
     Stuttering                        are more likely to present with in-
                                                                               scope of practice to suggest
                                                                               whether a family should or should
    and Singing                        creased ADHD-like characteristics
                                       possibly as a result of underlying
                                                                               not pursue pharmacological inter-
                                                                               vention, any significant changes
 By Lisa Scott, Ph.D.                  neurological factors 3.                 in stuttering behaviors should be
                                          While research linking                           reported to the medical
    Answering young reader’s
                                       stuttering with ADHD is lim-                        team. The team can then de-
 question … see page 8
                                       ited at best, preliminary re-                      termine whether to discon-
    We don’t know for sure why
                                       ports suggest that the preva-                      tinue the medication, alter
 people don’t stutter when they
                                       lence of ADHD among chil-                         the dosage or switch to
 sing, but it’s probably a combi-
                                       dren who stutter is signifi-                      a different medication.
 nation of reasons:
                                       cantly higher than in the                        Unfortunately, there are few
    1. When you sing, you take
                                       general population5,6.                           studies describing the effects
 breaths in between measures.
                                          Thus, research is needed                     of ADHD medications on
 This means that the number of
                                       to better understand this re-                   stuttering and much of the
 words you say on one breath is
                                       lationship in an attempt to                     clinical management must be
 very specific. When you talk, on
                                       identify risk factors, man-                    done on an ad-hoc basis.
 the other hand, you can take
                                       agement strategies and                                               Lastly, speech-lan-
 breaths wherever you want in the
                                       possible neurological For more information guage                                  pathologists
 sentence. Sometimes, people
                                       underpinnings of each on ADHD and                             should have a thorough
 who stutter have a hard time
                                       disorder. However, a stuttering, download                     understanding of ADHD
 keeping their air going, so it
                                       more pressing need re- this free brochure at                  and resources for fami-
 makes talking harder.
                                       lates to the clinical www.stutteringhelp.org. lies and professionals.
    2. Different parts of our brains
                                       management of chil-                                           An excellent starting
 help us think or act in special
                                       dren who stutter who present with       point is the brochure, ADHD and
 ways. Most people’s center for
                                       diagnosed ADHD or with subclini-        Stuttering by the Stuttering
 music is on the right side of their
                                       cal levels of ADHD-like traits.         Foundation. Additionally, therapists
 brains, but the speech center is
                                          The speech-language patholo-         can utilize online resources like The
 on the left side of the brain. This
 means that the “controls” are dif-    gist, working as part of a coordinat-   Stuttering Homepage and Children
 ferent for talking versus singing.    ed multidisciplinary team, must         and Adults with Attention Deficit
    3. Another idea that might ex-     consider the impact that ADHD           Disorders – CHADD. By keeping
 plain why people don’t stutter        traits could have on an individual’s    the lines of communication open be-
 when they sing has to do with         ability to succeed in therapy. For      tween all team members, the speech-
 how much you have to think of         example, children with ADHD fre-        language pathologist can increase
 words on your own. When you           quently struggle with monitoring        carry-over and retention of the mate-
 are talking, you have to have an      their behaviors on-line, especially     rial presented in therapy while limit-
 idea, then pick out the words         when challenged with time pres-         ing the frustration and anxiety that
 you’re going to use to tell some-     sure7. Thus, a child with concomi-      too often hinders progress.
 one else your idea, then get your     tant stuttering and ADHD may find           1. Felsenfeld, S., Kirk, K.M., Zhu, G., Statham, D.J.,
 muscles and air going to be able      it difficult to effectively monitor his Neale, M.C., & Martin, N.G. (2000). A study of the genet-
                                                                               ic and environmental etiology of stuttering in a selected
 to say the words. When you sing,      speech and make corrections at the      twin sample. Behavioral Genetics. Sep;30(5):359-66.

 someone else has already thought      moment of stuttering. In this case,         2. Yairi, E., Ambrose, N., & Cox N. (1996). Genetics
                                                                               of stuttering: a critical review.
 up all the words and it’s not your    the child may fully understand          Journal of Speech, Language, Hearing Research.
                                                                               Aug;39(4):771-84.
 own idea, another good reason         what to do but his struggling would         3. Alm, P., A., & Risberg, J. (2007). Stuttering in

 that sining is easier than talking.   be related to consistently using        adults: The acoustic startle response, temperamental traits,
                                                                               and biological factors. Journal of Communication
    We hope this helps answer          what he knows in real-life situa-       Disorders. 40, 1-41.
                                                                                   4. Poulos, M., & Webster, W. (1991). Family history
 your question!                    K   tions. Unfortunately, this could be     as a basis for subgrouping people who stutter. Journal of
                                                                               Speech and Hearing Research. 34, 5-10.
                                       misinterpreted as the child not             5. Healey, E., C., & Reid, R. (2003). Tutorial on
                                       wanting to use his strategies or        Stuttering and ADHD. Journal of Fluency Disorders.
                                                                               Volume 28, Number 2.
                                       lacking motivation.                         6. Biederman, J., Faraone, S.V., Spencer, T., Wilens,
                                                                               T., Norman, D., Lapey, K.A., Mick, E., Lehman, B.K., &
   As part of a new clinical study,       Speech-language pathologists         Doyle, A. (1993). Patterns of psychiatric comorbidity, cog-
researchers will test whether pago-    must also monitor for any               nition, and psychosocial functioning in adults with atten-
                                                                               tion deficit hyperactivity disorder. American Journal of
clone, an investigational medication   changes in stuttering which could       Psychiatry. Dec; 150(12): 1792-8.
                                                                                   7. Van Meel, C.S., Heslenfeld, D.J., Oosterlaan, J., &
for stuttering, may offer a way to     be due to the use of psychostimu-       Sergeant, J.A. (2007). Adaptive control deficits in atten-
achieve more fluent speech.            lant medication which remains           tion-deficit/hyperactivity disorder (ADHD): the role of
                                                                               error processing. June 30;151(3):211-20.
  More details are available at        the most common intervention for            8. Zuyekas, S., Vitiello, B., & Norguist, G. (2006). Recent
                                                                               trends in stimulant medication use among U.S. children.
www.StutteringStudy.com.           K   ADHD8. While it is out of the           American Journal of Pyschiatry. April; 163(4): 574-577. K
THE
                                                       STUTTERING
SUMMER 2009                                            FOUNDATION                                  800-992-9392          5



   Eastern Workshop attendees           Therapy has given me a great             their children learn is an incredi-
were contacted six months after         way to find out what my clients          bly valuable tool, as well as
their 5-day training to see how         have been doing since our last           training the parents to focus on
each of them is using their training    session to move themselves for-          the things that are going right.”
in working with people who stutter.     ward. I really like how the ques-           “The parents had been so dis-
Here’s what they had to say …           tioning leads them to solutions.”        couraged in previous attempts at
   “It has been an eye opening ex-         “I use the rating scale that the      therapy, and fully believed they
perience for my clients when they       clients do by themselves all the time    were doing everything wrong.
start identifying their Negative        since it seems to give the client own-   Their apparent confidence as par-
Automatic Thoughts and the im-          ership on what they are or are not       ents grew remarkably through the
pact it has on their stuttering. The    doing to move themselves forward.        time of our Solution Focused
cognitive model is also used to ad-     The positive approach fits so well.”     Therapy. They adore the special
dress specific problems along with         “The best experience with the         times with the child who stutters as
their fear and anxiety to break down    Parent Child Interactive Therapy         well as with his brother. The child
the ineffective safety net they had     has been with a young boy. The re-       decreased stuttering considerably.
previously created and develop an       sults have really been two-fold ...      He’s getting direct therapy now
effective replacement.”                                                                      and his parents are con-
   “I always start my ther-                                                                  tinuing special times at
apy sessions with ‘What                                                                      home. All are moving
are your best hopes for                                                                      well toward their goals.”
today?’ which has been                                                                         “What I have seen to be
shown to be such a high-                                                                     most effective in my use
ly effective tool to ad-                                                                     of      Parent     Child
dress their needs.”                                                                          Interactive Therapy is
   “The focus on posi-                                                                       how the parents are now
tive behaviors and the
use of ‘special times’
                            Six Months Later ...                                             feeling       empowered
                                                                                             rather than helpless by
has provided the most frequent and      his fluency has stabilized and mom       looking at what interaction strate-
positive feedback from parents of       feels more confident about stutter-      gies help their child to become more
my preschoolers. It’s been such a       ing therapy. During the video pro-       fluent. Integrating ‘descriptive
pleasure to see the relief on their     cess, several ‘lightbulb/aha’ mo-        praise’ and ‘special time’ have been
faces simply because they can now       ments occurred as we noticed what        effective tools for parents.”
shift focus from stopping disfluen-     was working. The ability to work            “I find myself asking ‘And how
cy to examining the fluent times.”      on one homework idea each week           would that make a difference?’ and
   “The way Parent Child                made the plan feel manageable to         ‘What else?’ in most of my conver-
Interactive Therapy is presented is     her. When she identified ways to         sations, including those with col-
exceptional--parents have told me       build his confidence, allowed him        leagues, student teachers and family
time and time again how ‘special        to problem solve situations with-        members. It sure beats ‘Well, I think
time’ not only helps to achieve flu-    out her interference, and learned to     you should ... blah, blah, blah.’ I
ent speech, but gives them the op-      follow his lead in play, the fluency     have a long way to go with this but
portunity to feel the burden and        significantly increased. She also        am in happy mode about it all.”
worry lifted from their shoulders       learned to talk openly about his            Editor’s note: Your donations
and revel in a truly special interac-   fluency.”                                help to fund workshops like this one
tion with their child.”                    “Helping parents learn how to         each year and in return hundreds of
   “The Solution Focused Brief          take responsibility in helping           people who stutter are helped. K



 Paperless e-Catalog Available
   Stepping up with the newest          for specific products, bookmark,
 technology, the Stuttering             make notes, and even link direct-
 Foundation launched its e-             ly to the Foundation’s Web store
 Catalog this spring.                   to order by clicking on any item.
   You can load it on your desk-           If you would like to receive the
 top, browse through the pages,         e-Catalog link, just let us know -
 zoom on items of interest, search      info@stutteringhelp.org.          K
THE
6        www.stutteringhelp.org
                                                              STUTTERING                                             800-992-9392
                                                              FOUNDATION


                            Volunteers Make a Difference

                                                                                                   Carol Ecke, helped
                                                                                                   by Connie Dugan, man
                                                    Charlie Osborne, seconded by Erin              the Illinois state
                                                    Dyer, volunteer for the SFA booth at           convention booth for the
                                                    the Wisconsion state convention.               Stuttering Foundation.
    Kavita Kaul and her student Nick
    wowed the audience of attendees
    at the Virgina state convention.               Dorothy Olson,
                                                     April Brown
       Kudos to the many volunteers who                 and Carol
    give generously of their time and en-           Schaefer visit                                 Carl Dell and Carol Ecke
    ergy in working exhibit booths                      the booth.                                 with a copy of his semi-
    across the country! Some volunteers                                                            nal book, Treating the
    like SLPs Charlie Osborne and               available at the Wisconsin and                     School-Age Child Who
    Kavita Kaul not only work in the            Virginia conventions.                              Stutters.
    booth but also give input into what            Susan Hamilton, of Washington
    materials to send to the convention,        state, is always a first-rate volunteer   Foundation from the many attendees,
    physically set up the booth, organize       as she helps get the word out about       many of whom remembered founder,
    additional workers, and help man the        the newest products on stuttering         Malcolm Fraser. I also got feedback
    booth throughout the event!                 treatment at the all-day Tacoma-          on how our materials are helping
       Charlie and Kavita contacted the         NSA workshop.                             their clients.”
    Foundation and asked if they could             Terri Jones of the Foundation’s           “Professional boother” and booster
    volunteer for their state conventions.      Memphis office reported, “It was a        Carol Ecke continues her enthusiastic
    Thanks to them - materials were             privilege to represent SFA at the Mid-    convention schedule and relates how
                                                South Conference . I enjoyed hearing      exciting it is for her to have SLPs and
                                                stories of the early days of the          students volunteering in the booth
                                                                                          alongside of her.                     K




                                                Terri Jones brought SFA
                Carol Ecke                      products to the University
                   worked her                   of Memphis NSSLHA
                    magic to get                Conference.
                  the Stuttering
     Foundation booth ready at                                                    Susan Hamilton in Tacoma, Wash.,
     conferences in California.                                                   where Dr. Tricia Zebrowski presented
                                                                                  an all-day workshop on fluency.



Sproles             Continued from front page   lates, “I have been working on my
  “We’ve been inundated with re-                stuttering for 54 years and still
quests for the new poster featuring             haven't conquered it, although I con-                                NFL
                                                trol it well enough to host a weekly                                 star
Darren “jumping off the page,”
                                                radio talk show, conduct television                                  running
said Pat Hamm at the SFA                                                                                             back
Memphis office. “We’ve never                    interviews and accept regular public
                                                                                                                     Darren
seen this kind of response before.”             speaking engagements.”
                                                                                                                     Sproles
  Newspaper editor Akwasi Evans                    For him, as for so many others,                                   is featured
requested a copy of the new poster              Darren Sproles stands out as an                                      on this
for his office in Austin, Texas. He re-         outstanding role model.            K                                 new poster.
THE
SUMMER 2009                                         STUTTERING                          800-992-9392          7
                                                    FOUNDATION


Checklist Reaches Pediatricians
   The American Academy of
Pediatrics will incorporate the
Stuttering Foundation Checklist
for Referral in their upcoming       available not only to more than
2010 PREP Self Assessment pub-       30,000 pediatric residents but also
lication. It is a compilation of     to all AAP subscribers through
clinically relevant review ques-     print, online and CD-Rom.
tions and critiques based on the        As a result, thousands of young
AAP Content Specifications for       children who experience disfluen-
Maintenance of Certification.        cies will be helped in a more time-
   The checklist will be made        ly manner.                        K




  Malcolm Fraser Community Service                                         June Campbell answers ques-
    Award Presented in Memphis                                             tions during a conference of
                                                                           Pediatric Nurse Practitioners.
 By Cara Donahue                     cant contribution to the field of
                                     communication disorders.
    Each year the Malcolm Fraser        This year’s award recipient,       Pediatric Nurse
 Community Service Award is          Cindy Myers, as the mother of a
 presented by the Mid-South          child with special needs, is an ad-
                                                                            Practitioners
 Conference on Communicative         vocate for not only her daughter,       Undeterred
 Disorders to an individual in the   but other children with disabili-
 Memphis community as a tribute      ties in the Memphis area who are       by Economy
 to a man who contributed greatly    also communicatively delayed.            Pediatric Nurse Practitioners
 to the field of com-                                 A few years ago,     flocked to San Diego from
 municative disor-                                Cindy created both a     throughout the country for
 ders, namely in the                              social skills group      their Annual Conference.
 field of stuttering.                             and a Sunday School         June Campbell visited with
    Malcolm Fraser,                               group     at     Hope    practitioners from more than 18
 together with his                                Presbyterian Church      states, including Massachusetts,
 brother, was one of                              as a way to give these   Georgia, Illinois, Arkansas,
 the early founders of                            children the opportu-    Utah, Florida, New Hampshire,
 the NAPA Genuine                                 nity to build commu-     Minnesota and Texas.
 Parts Company in                                 nication skills. Laura      Some nurses stopped by to
 Atlanta in 1928. He                              Martin and several       share how the Foundation’s
 used the money from                              University          of   literature has helped their pa-
 auto parts stock to                              Memphis         speech   tients, others were students
 start the Stuttering                             pathology students       who had not yet been exposed
 Foundation         of Cindy Myers (right)        commented, “Cindy        to the literature or Web site
 America. Today the with her daughter             has shown passion        and others shared how they
 Foundation reaches Gabriella, and Becky          and      commitment      used books and brochures in
 people in 126 coun- Jones, NSSLHA                while      organizing    Nursing Education programs.
 tries,    and     Mr. president.                 these programs. She          June noted, “Some of my
 Fraser’s book, Self                              has spent countless      favorite conversations were
 Therapy for the Stutterer, has      hours working to provide chil-        with children joining their
 helped countless numbers of people  dren with an accepting environ-       mothers at the conference.
 who struggle with stuttering.       ment where they can develop           They enjoyed asking ques-
    The Malcolm Fraser Community     communication skills at their         tions about stuttering, sharing
 Service Award honors his many ac-   own pace.”                            about children they know who
 complishments and unselfishness        Cindy’s selfless attitude and      stutter and looking at SFA’s
 and is given to an individual who   dedication exemplify the ideals       books Trouble at Recess and
 like Mr. Fraser has made a signifi- consistent with Mr. Fraser’s. K       Sometimes I Just Stutter.” K
THE
                                                        STUTTERING
 8                                                      FOUNDATION
        www.stutteringhelp.org                                                                                800-992-9392



Dear SFA: Reader Response
Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or e-mail info@stutteringhelp.org.

Like a roller coaster                  sometimes I just want to pull my      ter. To me, nothing is wrong with it.
  Dear SFA:                            hair out. My stuttering usually is    And I don’t care what people think
  My name is Britney, and I’m 8        when I start to get really excited or about my stuttering.
years old. I have been stuttering      really nervous.                       Damian
since I was 5 years old. When I        Lizette                               Cache, Okla.
start to stutter my mom tells me       Cache, Okla.
to think about what I’m going to         Editor’s Note: See page 4 for a     Stuttering feels like a ball
say before I talk. Every time I        reply from Dr. Lisa Scott.              Dear SFA:
stutter it feels like a roller                                                        My name is Jabaree. I’ve
coaster because when I                                                              been stuttering for 6 years
stutter the roller coaster                                                          and I’m through with it!
goes bump, bump, bump.                                                                My stuttering feels like a
That is why stuttering feels                                                        basketball. When the ball
like a roller coaster to me.                                                        bounces, I feel like I can’t
I get frustrated a lot be-                                                          get my words out. And when
cause when my cousins                                                               I shoot the ball, I drag my
tease me I start to stutter a                                                       words out. Dragging my
lot. But sometimes I try                                                            words and sliding are the
not to think about the teas-                                                        best ways I use to not stutter
ing and I try to calm down.                                                         as much. Some kids ask me
I tell them to stop teasing                                                         why I talk like that, and I tell
me because that will make                                                           them I stutter.
me stutter even more. And      Joel (left) and Shawn, 10-year-old twins, cele- Most of them are my
now I’m starting to get bet- brated Pi Day by memorizing more than 150 friends, and they don’t
ter. One of the things I digits of Pi between the two of them. Pi Day is tease me. When I get
learned in speech is about celebrated by math enthusiasts around the teased, I try to ignore it and
eye contact. I am glad I am world on March 14, which is taken from the I don’t get mad.
in this speech class be- first three digits of the equation and happens to In all I’m OK and I like
cause I am starting to get be Einstein’s birthday. Shawn, who has been my life.
better at not stuttering.      stuttering since a young age, has been doing Jabaree
Britney, 8                     adult puzzles since he was 5 years old.              Pamona, Calif.
Pomona, Calif.
                                         Going down the road                       Speech teacher helps
Singing question                           Dear SFA:                                 Dear SFA:
  Dear SFA:                                My name is Greg. I’m 9 years              Hi, my name is Derrik. I block
  My name is Lizette. I would love       old and in the third grade. I think       sometimes. I feel OK about my
to tell you about my stuttering.         stuttering is like a car on a road.       speech. I repeat stuff a lot, but
Sometimes I get really frustrated        If you stutter, you are going too         sometimes I don’t repeat a lot. I go
and other times I’m calm. You see        fast. If you don’t stutter, you go        get help from my speech teacher. I
I hate it when people try and help       where you want to go and you              feel blocking is a little OK.
me and say “slow down” or “what          don’t get a ticket.                       Derrik
did you say?” It just makes me           Greg, 9                                   Hanover, Pa.
think more about stuttering and          Hanover, Pa.
that’s when I get nervous and tend                                                 Making friends
to stutter even more.                    Stuttering is OK                            Dear SFA:
  I love to sing, and my friends will      Dear SFA:                                 My name is Evan and I am 11
ask me, “Why don’t you stutter             My name is Damian and I stutter.        years old. I stutter like all the other
when you sing?” That’s where I get       Sometimes I am mad because                kids who write to the Stuttering
stuck. I don’t know what to say.         when I am reading at school some          Foundation. I repeat my words but
  Yes, I do accept who I am and I        say “hurry up” and sigh, and I            that’s OK now because I go to
know that no one is perfect, but         don’t like that. But it is OK to stut-    speech class and I’ve improved so
                                                                                                       Continued on page 11
THE
                                                  STUTTERING
                                                  FOUNDATION                               800-992-9392   9
SUMMER 2009




      First picture: “This is how I feel when I stutter... It feels like I’m going up a steep hill. I’m
      forcing myself to go up when I stutter. When I finally get up, I try to stop myself because I’m
      going down too fast. I may trip and fall,” writes Nicholas, 6th grader from Henrico, Va.
      Second picture: “This is how I feel when I use my strategies... The best way to go up a hill
      during a stuttering block... easy pace, taking adequate time, don’t rush, steady rhythm in
      speech, sliding down easily (I don’t trip and fall).




      “If the voice box and mouth make        “This is a picture of me giving my presentation. The
      you stutter, then the brain will get    stuttering ghost doesn’t let me talk right,” writes
      rid of the bump. If the brain can’t     Ambrosia, 8, of Pittsburgh, Pa. “I use my strategies to
      do it, then you will have to get rid    scare the ghost away. When I was in first grade I had
      of it yourself. Another way is to       to give a presentation on a flying squirrel. I was shy
      speak slowly,” writes Hunter.           because I was afraid that I would get stuck on my
                                              words. My teacher had to do it for me. It’s okay to get
                                              stuck on words sometimes. Now that I use my pull-outs,
                                              I don’t stutter as much when I am talking to people.”


                                          3Sometimes when we stutter we feel
                                          like we are trapped in a box,” writes J.
                                          from Brooklyn, N.Y. “Sometimes when
                                          you stutter you feel nervous and forget
                                          the way to come out of the stutter.”
800-992-9392




                                         I’m so very proud of
                                         all of you. You have                                                  Mrs. S. has
                                         been remembering                                                     helped me to                    I was nervous
                                         to use your speech                                                  really improve                   when I started
                                         helpers! Keep up                                                      my speech.                   speech. I thought I
                                         the good work.                                                                                     would be teased. I
                                                                                                                                                was wrong.
                                                                                               Chris
                                                                Mrs. S.                                                             Isaac
      FOUNDATION
      STUTTERING




                                                                          In speech
THE




                                                                          class I’m                                                           Speech
                                                                          learning how                                                        class has
                                                                          to make the                                                         helped me.
                                                                          “S” sounds.
                                                                                         Max
                                                                                                             Hunter
                                                                                                             I like speech
                                                                                                                class. My
                                                                                                           speech is much
                                                                                                            smoother than
                                                                                                                 before.
                                                                                                                              Max                 Zackary
               www.stutteringhelp.org




                                                                                                   I am learning to
                                        These computerized drawings                                use less bumps
                                                                                                    in my speech.
                                                                                                                                                I learned to use
                                                                                                                                                  many speech
                                        were created by students in                                                                                 helpers in
                                                                                                                                                   therapy. My
                                        Mrs. S’ speech class.                                                                                      speech is so
                                                                                                                                                much smoother.
           10
THE
                                                                        STUTTERING
                                                                        FOUNDATION                                                              11
SUMMER 2009                                                                                                             800-992-9392



     Dear SFA,                                                                          When you remember to
     My name is Chris and I am                                                          use your speech helpers,
                                                                                        you can hit a home run!!!
     in the fifth grade. I have
     been going to speech ther-
     apy since kindergarten. I
     have learned different ways                                                                                               I remembered
                                                                                                                                  to use my
     to help my speech. When I                                                                                                speech helpers.

     use them, my speech is not                                                                       Home
     bumpy. When I forget to                                                                          Run!
     use them my speech is
     bumpy.
     Chris
                                                           I hate it
                                                         when people
                                  You’re                  make fun
                                  welcome.    You’re        of me.
                                              welcome.
                                                                                           By Isaac                  By Max
                                                           Thank you
                                                            guys for
                                                          standing up
                                                            for me.




     By Chris




                 Do you have a letter, drawing, or poem you would like
                 published? Please send it to us with your name, phone
                number, age, and signed parent permission form. Mail to:
                  The Stuttering Foundation, 3100 Walnut Grove Road,
                         Suite 603 Memphis, TN 38111-0749.                              By Maxwell




Letters                   Continued from page 8    old. I stutter. I think that stuttering is         What should I do?
                                                   not bad at all. Sometimes people                     Dear SFA:
much. I’ve gotten teased by a lot of               tease me. I ignore it because no one
kids. When I get teased, it’s like                                                                      My name is Makayla. I am 8
                                                   is perfect and no one will ever be                 years old. I’m like my daddy be-
getting punched in the face. The                   perfect.
kids who teased me are now my                                                                         cause he stutters too. People make
                                                   Naftali, 8                                         fun of me. When people make fun
friends because I forgave them.                    Far Rockaway, N.Y.
What I ask for from a friend is for                                                                   of me I get sad because I feel bad
them to treat me the way they want                                                                    for stuttering. I was wondering what
                                                   Things that help                                   should I do if someone makes fun of
to be treated.                                       Dear SFA:
  Through the years, stuttering has-                                                                  me? What did the other kids do?
                                                     My name is Cherrelle. I attend                     Makayla, 8
n’t pushed me back from playing                    Fairfield Court Elementary. When
sports and doing activities. Its actu-                                                                  E-mail
                                                   I am talking, sometimes I start to
ally pushed me forward and al-                     stutter a little bit. When I’m with
lowed me to tell my friends about                  my speech therapist, it’s like I                     Editor’s Note: Be sure to read
my stuttering.                                     never stutter. I never stutter when I              the letters in this newsletter from
  Thank you Stuttering Foundation                  read something. When she closes                    other children who have ideas
for supporting all the kids in                     the book, I start to stutter. When I               about teasing. Remember to not
America. And, remember, there is                   stutter, first I’ll stop then I’ll start           let the teasing get you down and
no perfect speech. All the perfect                 over and make up a little rhythm to                to stay calm. It's okay to let others
speech you could get is confidence                 the speech. When I’m with my                       know teasing hurts and to ask
and it is all from the heart.                      family, I stutter a lot. But now I’m               them to stop.
Evan, 11                                           used to stuttering around people. If                 Another good resource is
Stevenson Ranch, Calif.                            you stutter, it is OK. Just tap your               Sometimes I Just Stutter. In it,
                                                   leg and start on your sentence. It                 every time 9-year old Mark is
Ignore teasing                                     will really help.                                  teased, he just grins and says,
 Dear SFA:                                         Cherrelle,                                         “Come back when you can stutter
 My name is Naftali. I am 8 years                  Richmond, Va.                                      better than I do!”                  K
THE
                                                       STUTTERING
12        www.stutteringhelp.org                       FOUNDATION                                         800-992-9392




                                   B ues legends have
                                                                         Even stuttering
     B.B. King
        B.B. King and John Lee Hooker        with words. Never could express my-       However, he had role models who
     have much in common. Born in            self the way I wanted. My mind            stuttered. His Uncle Major was a se-
     Mississippi only a few years            fights my mouth, and thoughts get         vere stutterer and King wrote of
     apart, both are considered among        stuck in my throat. Sometimes they        him, “Probably because I stuttered
     the best blues gui-                             stay stuck for seconds or even    too, the way he suffered with his
     tarists of all-time.                            minutes. As a child, I stut-      speech broke my heart and made me
     Both King and                                   tered. What was inside could-     love him even more. There was a
     Hooker have been                                n’t get out. I’m still not real   silent bond between us. Unlike oth-
     inducted into The                               fluent. I don’t know a lot of     ers, I could feel what he wanted to
     Rock and Roll Hall                              good words. If I were wrong-      say and sometimes said it for him.”
     of Fame. However,                               fully accused of a crime, I’d           His great-grandfather, Pop
     what the public                                                                            Davidson, who had been a
     may not know is                                                                            slave, was a major influ-
     that they have an-                                                                         ence on King’s life and also
     other thing in com-                                                                        stuttered. King’s admiration
     mon: stuttering.                                                                           for his great-grandfather
        B.B. King was                                                                           helped him accept his own
     born Riley B. King in 1925.                                                                stuttering. When discussing
     Listed as number three on                                                                  their stuttering bond in his
     Rolling Stone’s list of the 100                                                            autobiography, King wrote
     greatest guitarists of all-time,                                                           of his great-grandfather,
     King’s career and accomplish-                                                              “Sometimes I wondered
     ments are legendary, yet his                                                               about Pop’s stuttering,
     stuttering has received scant                                                              which       unlike     Uncle
     attention over the years.                                                                  Major’s, frustrated him like
        B.B. stuttered from the time                                                            crazy; I wondered if a
     he was a child. According to                                                               speech impediment has to
     Everyday I Sing the Blues: The                                                             do with a boiled-up fury in-
     Story of B.B. King by David                                                                side. Why did I stutter?
     Shirley, while in grade school                                                             Classmates were cruel and
     King attended the lively                                                                             called me stupid,
     Pentecostal church services, and                                                                     teasing me some-
     it was there that he discovered                                                                      thing fierce. But I
     he had a special gift for music.                                                                     never saw anyone
     People were amazed that he                                                                           tease          Pop
     could sing so beautifully without       have a tough time explaining                                 Davidson.”
     stuttering. The church’s pastor con-    my innocence. I’d stammer and                                  Countless times
     tended that it was the Holy Ghost       stumble and choke up until the                               in his life, King
     who sang so gracefully through          judge would throw me in jail.                                has stated that
     B.B.’s throat when the young lad        Words aren’t my friends. Music                               singing was al-
     joined the choir.                       is. Sounds, notes, rhythms. I                                ways easier than
        In his 1996 autobiography, Blues     talk through music.”                      speaking. He claims that his stut-
     All Around Me: The Autobiography           King faced the typical difficulties    tering has decreased over the
     of B.B. King, King wrote, “I struggle   faced by many children who stutter.       years but is always there.          K
THE
                                                            STUTTERING
      SUMMER 2009                                           FOUNDATION                             800-992-9392     13




many things in common
John Lee Hooker
   John Lee Hooker, born in 1915,           when telling stories against himself.
also took refuge in music at an                 This good natured form of self-
early age as he struggled with stut-        parody is evident in Hooker’s clas-       To list all of the accom-
tering.      In     the       biography     sic 1953 song “Stuttering Blues.”       plishments of these two
Boogie Man: The                                   In 1980, Hooker appeared          famed blues guitarists
Adventures of John                                and sang in the now classic       would be a major task.
Lee Hooker in the                                 movie, The Blues Brothers.        B.B. King and John Lee
American Twentieth                                As a result, the look of John     Hooker have an infinite
Century,        author                                                                   number of CDs avail-
Charles          Shaar                                                                   able on Amazon.com
Murray          states,                                                                  and to say that the
“Hooker sounds as                                                                        two are well repre-
if he has $100,000                                                                       sented on YouTube is
worth of sophisti-                                                                       an understatement. It
cated digital good-                                                                      is disheartening to
ies built in his chest                                                                   think that the general
and his throat. Yet                                                                      public does not know
his voice is quiet and muted, its                                                        that the two greatest
tonal richness offset by a resid-                                                        blues guitarists of all-
ual stammer and blurred by the                                                           time shared the com-
deepest alluvial accents of the                                                          mon bond of stutter-
Mississippi Delta.”                                                                      ing and that their
   Murray also writes about                                                              speech        problems
how so many people do im-                                                                were responsible for
pressions of Hooker and that                                                             leading them to
his stuttering is a big part of it.                                                      music at an early age
“Anybody who tells you an                                                                and on their way to
anecdote about John Lee                                                                  international super-
Hooker as a young man –                                                                  stardom.
and Buddy Guy is the cur-
rent champ, by a very short
head indeed, of the Hooker
Impressionists League –                               Belushi’s character,
will inevitably end up mim-                           Jake Blues, was di-
icking his characteristic                             rectly influenced by
stutter.” Also, Bernard                               Hooker’s trademark
Besman, the producer who first              sunglasses and soul patch.
recorded Hooker, claims that the               Though his stuttering reduced
primary reason for his decision was         to some degree in his adult life,
that he was intrigued by the sce-           Hooker is remembered by
nario of a man who stuttered when           friends as putting them at ease
he spoke, but not when he sang.             about his stuttering by being
   Reportedly in a spirit of self-parody,   able to poke fun at his speech in
Hooker used an exaggerated stutter          a soft way.                     K
THE
    STUTTERING
    FOUNDATION
    3100 Walnut Grove Road, Suite 603
    P.O. Box 11749 • Memphis, TN 38111-0749




                                                   #Over the Side by Richard Wells, USN             #Current Issues in Stuttering Research
  #Speakeasy Symposium XXVII, May 1-3,           AFJ and USMC Merchant. 2008. For more            and Practice by Nan Bernstein Ratner and
News Briefs
2009, in Saddle Brook, NJ. For more infor-       information, e-mail bwana@ameritech.net.         John Tetnowski. 2006. Lawrence Erlbaum
mation, contact Bob Gathman at 201-262-            #Stuttering Stan Takes a Stand by Artie        Associates, Mahwah, NJ.
0895 or e-mail speakezusa@optonline.net.         Knapp. 2008. Available at www.amazon.com.          # Begaiement: Intervention preventive
  #FRIENDS, the National Organization of           # Practical Intervention for Early             precoce chez le jeune enfant by Anne Marie
Young People Who Stutter, July 23-26,            Childhood Stammering by Elaine Kelman            Simon et al. 2005. Available from the
2009, Tampa, Fla., www.friendswho                and Alison Nicholas. (2008) Speechmark           Association       Parole       Begaiement,
stutter.org.                                     Publishing, Ltd. Milton Keynes, U.K.,            www.begaiement.org.
  # National       Stuttering      Association   www.speechmark.net.                                #Les begaiements: Histoire, psychologie,
Conference - July 8 - 12, 2009, Scottsdale,        #Stammering, Advice for All Ages by Renee      evaluation, varietes, traitements by Anne
Ariz., www.westutter.org.                        Byrne and Louise Wright. (2008), Sheldon         Van Hout and Francoise Estienne. Published
  #ELSA’s 7th Youth meeting - July 25-31,        Press, London, www.sheldonpress.co.uk.           by Masson, S.A., 120 boulevard Saint
2009,        Settle,      England,      e-mail     #Speak Freely: Essential Speech Skills         Germain, 75280 Paris Cedex 06, France.
elsa.europe@telia.com.                           for School-Age Children Who Stutter by             #Forty Years After Therapy: One Man’s
  # 6th World Congress on Fluency                Mark Allen, Ph.D., (2007) Speak Freely           Story by George Helliesen, M.A. Available
Disorders      -      International   Fluency    Publications, Evanston, IL, www.cfst.com.        from Apollo Press, Inc., 800-683-9713 or
Association, Aug. 5-8, 2009, Rio de Janeiro,       #Stuttering: An Integrated Approach to         www.apollopress.com.
Brazil, www.theifa.org.                          Its Nature and Treatment, Third Edition by         #Sharing the Journey: Lessons from my
  #BSA National Conference, Sept. 11-            Barry Guitar. 2006. Available from               Students and Clients with Tangled Tongues
13, 2009, at the Harrow campus of the            Lippincott, Williams & Wilkins, 800-638-         by Lon Emerick, Ph.D., available from the
University of Westminster, London,               3030, www.LWW.com.                               Stuttering Foundation at 800-992-9392.
www.stammering.org.                                #Beyond Stammering, Revised edition by           #Stuttering: Its Nature, Diagnosis, and
  #International Stuttering Awareness Day        David Maguire. (2008) Souvenir Press,            Treatment, by Edward G. Conture, Ph.D.,
Online Conference - Oct. 1 - 22, 2009. Freely    London.                                          published by Allyn & Bacon, Needham
available and linked starting Oct. 1 at            # Stuttering Recovery Personal and             Heights, MA. (781) 433-8410.
www.stutteringhomepage.com.                      Empirical Perspectives by Dale F.                  # Successful Stuttering Management
  # American         Speech-Language       and                                                    Program, Second Edition, by Dorvan
                                                 Williams. 2006. Available from Lawrence
Hearing Association Convention - Nov. 19-                                                         Breitenfeldt, Ph.D., published by EWU
                                                 Erlbaum Associates, Mahwah, NJ,
21, 2009, New Orleans, La., www.asha.org.                                                         Press, Cheney, WA, (509) 235-6453.
                                                 www.erlbaum.com.                                   # Synergistic Stuttering Therapy: A
  #14th Speak Easy Convention, Australian          #Speech Therapy for the Severe Older
Speak Easy Association - Feb. 18-21, 2010,                                                        Holistic Approach by Sister Charleen
                                                 Adolescent and Adult Stutterer: A Program        Bloom and Donna K. Cooperman.
Sydney, Australia, www.speakeasy.org.au.
                                                 for Change by George Helliesen. 2006.            Published by Butterworth Heineman,
                                                 Available from Apollo Press, Newport News,       Woburn, MA.
 Books on Stuttering or Related Topics:          VA, 800-683-9713, www.apollopress.com.             #Stuttering Intervention: A Collaborative
Books
 #Only When I Talk by Bob Hubbert. 2007.           #The Child and Adolescent Stuttering           Journey to Fluency Freedom by David



         T
Available online at www.amazon.com.              Treatment and Activity Resource Guide by         Allen Shapiro, published by Pro-Ed,
                                                 Peter Ramig and Darrell Dodge. 2005.             Austin, Texas.
             he Stuttering Foundation            Available from Thomson Delmar Learning,
                                                                                                                                           K

             of America is a tax-exempt          Clifton Park, NY.                                  This newsletter is published quarterly. Please
         organization under section                # Early Childhood Stuttering: For                e-mail address changes and story ideas to
         501(c)(3) of the Internal               Clinicians by Clinicians by Ehud Yairi and
                                                                                                    info@stutteringhelp.org.
         Revenue Code and is classified
                                                 Nicoline Grinager Ambrose. 2005.
         as a private operating founda-
                                                 Available from ProEd, Austin, TX, and
                                                                                                              Volume18, Issue 2
         tion as defined in section
 4942(j)(3). Charitable contributions            www.amazon.com.
                                                                                                    Renee Shepherd . . . . . . . . Editor/Writer

 and bequests to the Foundation are                #50 Great Activities for Children Who
                                                                                                    Scot Squires . . . . . . . . . . . . . . . . Designer

 tax-deductible, subject to limitations          Stutter by Peter Reitzes. 2006. Available from
                                                                                                    Special thanks to Joan Warner, Patty Reed,

 under the Code.                                 Pro-Ed, Austin, TX, www.proedinc.com.
                                                                                                    Susie Hall, Pat Hamm, Lisa Hinton, and
                                                                                                    Terri Jones.

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Summer2009newsletterweb

  • 1. www.stutteringhelp.org • 800-992-9392 • www.tartamudez.org T HE S TUTTERING F OUNDATION A Nonprofit Organization SUMMER 2009 Since 1947... Helping Those Who Stutter Research on Electronic Devices: Preliminary Results By Anne L. Foundas, M.D. and Edward G. Conture, Ph.D. National Stuttering Awareness Week Developmental stuttering has a lifetime incidence (i.e., percent- May 11-17 age of adults who stuttered at some point) of nearly 5% and is one of the more y of NFL common develop- mental speech dis- Pho tos cou rtes orders. Although the disorder sig- nificantly im- pacts the academ- ic, emotional, so- Anne L. cial and vocation- Foundas, M.D. al achievements, development and potential of indi- viduals who stut- Chargers Star Darren Sproles ter, important Breaks Records On and Off the Field questions remain Darren Sproles, the Stuttering Off the field, he’s reached a regarding factors Foundation’s spokesman for record-breaking number of kids that cause, exac- National Stuttering Awareness and adults who stutter with a erbate and/or Week, posted the second-best message of help. In fact, the Edward G. Conture, Ph.D. maintain stutter- yard gain in Chargers post-sea- Foundation’s Web site, ing. Likewise, the son history in a January 3 game www.stutteringhelp.org, has efficaciousness of various treat- against the Colts. He also became recorded more than 2 million hits ments for stuttering remains a the player with the third most in the four weeks leading up to source of vigorous debate as well yards of any player in a single the May 11th awareness week. as investigation. Among such post-season game in NFL history. Continued on page 6 Continued on page 2 The Impact of ADHD on Stuttering Therapy By Joseph Donaher, Ph.D., studies have shown that stut- but research has suggested The Center for Childhood tering runs in families and that both may be causal fac- Communication, that approximately 70% of tors for some individuals The Children’s Hospital the variance in liability to who stutter, especially those of Philadelphia stutter can be accounted for with no family history of through inheritable factors1,2. stuttering3,4. Furthermore, it The role of genetic factors The contribution of congeni- has been suggested that in the onset and maintenance tal factors and early neuro- when no genetic component of stuttering has received con- logical incidents has been is present, adults who stutter siderable attention. Multiple less thoroughly investigated Continued on page 4 Joseph Donaher, Ph.D.
  • 2. THE STUTTERING 2 www.stutteringhelp.org FOUNDATION 800-992-9392 George Cooley Research Continued from front page fications, the audiometric (e.g., frequency characteristics) proper- treatments, altered-auditory feed- Remembered back (AAF) has received consid- ties of the SpeechEasy as well as erable attention in recent years. its potential influence on stuttering 1931-2009 in AWS. Specifically, we have at- With advances in digital tech- Longtime Stuttering Foundation nology, one such AAF device, tempted to assess how this device Board member George Cooley the SpeechEasy, has been designed influences stuttering in adults with passed away on and marketed to treat stuttering. persistent developmental stutter- Feb. 20, 2009. This small de- ing (PDS) as George and his vice is worn like well as the ex- wife, Jeanette, a hearing aid and tent to which founded Mercury can be adjusted device settings Printing Company in terms of de- and the use of in Memphis, layed auditory the device in the where George feedback (DAF) left versus the revolutionized as well as fre- right ear con- Stuttering Found- George Cooley quency altered Testing the electronic device. tributes to this ation materials - everything from feedback (FAF) influence. books to brochures to posters and parameters, and volume. To date, eleven participants (PDS newsletters. According to the SpeechEasy’s as- = 7, Controls = 4) have been exam- “George knew everything sociated marketing literature, such ined without the device in place there was to know about the AAF adjustments of the auditory (baseline), with the device in place printing business and was also a sidetone for speech mimic the ef- but not on, with the device in place superlative teacher,” said Jane fects of choral reading. Results of using manufacturer-suggested and Fraser. “Not a day goes by that I empirical studies can be taken to manufacturer-independent settings, don’t put to use something he suggest that this device is effective and in each ear independently. taught me.” for at least some adults who stutter Reading, narrative, and conversa- George was committed to help- (AWS; References 1-6). tional speech-language production ing others who stutter and is sore- We have recently initiated an were examined for each partici- ly missed by all who were fortu- empirical study to characterize, in- pant. For this initial study, we lim- nate enough to know him and dependent of manufacturer speci- ited our sample to right-handed work with him over the years. K men ages 20 to 40 years who do (PDS) and do not (controls) stutter. Individual performance profiles were examined in relation to Annual Audit of Foundation baseline output and results were The annual audit of the fund raising are very low, and computed as a proportion of ut- Stuttering Foundation financial since we are fortunate to have an terances (stuttering events in the reports for 2008 was recently endowment which more than first 300 syllables in each speak- completed by the accounting covers our overhead expenses, ing condition). firm of Cannon and Company, donors can be assured that their Preliminary findings indicate Certified Public Accountants, gifts will go directly to support that the device has more influence Memphis, Tenn. Following is a our program services. on stuttering frequency during nar- recap of funds and expenditures The Foundation is a 501(c)(3) ration and reading than during for the year. private operating foundation which conversational speech but that this The 3.5% of expenditures for expends its funds on its own pro- effect interacts with which ear the administration and general ex- grams and operations and does not device is worn on. That is, some penses and the 7/10 of 1% for make grants to other institutions. participants exhibited more effect Funds expended for: with the device in the left versus Creation, production, printing and distribution right ears. As has been shown with of educational materials . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $567,362 . . . . . . . 37.8% previous studies, there is also con- Public information and education . . . . . . . . . . . . . . . . . . . . . . . . . 336,805 . . . . . . . 22.4% Educational symposia for professionals . . . . . . . . . . . . . . . . . . . . . .184,657 . . . . . . . . 12.3% siderable variation among partici- Research on causes/treatment of stuttering and therapy . . . . . . . . . 261,958 . . . . . . . . 17.4% pants. The extent to which the Maintain Web site and toll-free information hotline . . . . . . . . . . . . . . . 88,293 . . . . . . . . . 5.9% placebo effect can account for at Total for Program Services:. . . . . . . . . . . . . . . . . . . . . . . $1,439,075 . . . . . . 95.8% Other expenditures: least some of these findings is still Administration and general . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .53,276 . . . . . . . . . 3.5% under investigation. Fund-raising expense . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10,208 . . . . . . . . 0.7% In summary, our preliminary Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,502,559 . . . . . . . 100% Continued on page 3
  • 3. THE STUTTERING SUMMER 2009 FOUNDATION 800-992-9392 3 Research Continued from page 2 results appear to indicate that the SpeechEasy device can influence PSAs Produce a Harvest stuttering during at least reading The Foundation has been News & Financial and narration, but that there is con- hearing from readers across siderable individual variation in its America … in rural areas as effect. It is thought important to de- well as suburbs and large cities termine whether specific settings, … through the medium of ear placement or other biological fruit, vegetable, and crop farm- factors impact users’ response to ing magazines. Reaching a the device. Preliminary findings varied group of people in rural, were taken to suggest that changes often isolated areas is particu- in stuttering, at least for some larly rewarding. adults who stutter, may be related Other magazines and newspa- to changes in speech-language pers featured here have donated a monitoring, something impacted record-breaking number of pub- by AAF devices like the Speech lic service ads to the Foundation. Easy. These findings do seem to Farming & Agriculture support the need to further study why this AAF device impacts stut- Time, The New York Post, tering for some but not other PDS. Fortune, Technical Analysis of Editor’s note: The Stuttering Stocks and Commodities, Georgia Foundation is pleased to support Trend, The Philadelphia Inquirer, this new research. and the Pittsburg Tribune-Review. References 1. Armson J, Kiefte M, Mason J, De Croos D. (2006) The effect of SpeechEasy on stuttering frequency in laboratory conditions. J Fluency Sports Disord. 31:137-152. 2. Armson J, Kiefte M. (2008) The effect of SpeechEasy on stuttering frequency, speech rate, & Style and speech naturalness. J Fluency Disord. 33:120-134. 3. Kalinowski, J. (2003). Self-reported efficacy of an all in-the-ear-canal prosthetic device to in- hibit stuttering during one hundred hours of uni- versity teaching. Disability and Rehabilitation, 25, 107–111. Corn & Soybean Digest, American 4. O'Donnell JJ, Armson J, Kiefte M. (2008) The ef- Vegetable Grower, Greenhouse fectiveness of SpeechEasy during situations of daily living. J Fluency Disord. 2008; 33:99-119. Grower, Western Fruit Grower, 5. Stuart, A., Kalinowski, J., Rastatter, M. P., and Soybean Digest. Saltuklaroglu, T., & Dayalu, V. (2004). Investigations of the impact of altered auditory feedback in-the ear devices on the speech of peo- Health ple who stutter: Initial fitting and 4-month follow up. International Journal of Language & Communication Disorders, 39, 93–113. 6. Stuart, A, Kalinowski, J, Saltuklaroglu, T, & Guntupalli, VK. (2006). Investigations of the im- pact of altered auditory feedback in-the-ear de- vices on the speech of people who stutter: One- year follow-up. Disability and Rehabilitation, 28, 757–765. K The American Journal of Public Health, JAMA, American Journal of Nursing and Dentistry Today. AARP magazine, Redbook, Read Around the World Seventeen, New York Stuttering Foundation press re- Technical Times Magazine, ESPN, leases can be read worldwide! In Good Housekeeping, fact, one article about V.P. Joe and Avenue Calgary. Biden’s struggles with stuttering was published in Equatorial 3Sound & Vision and Popular Guinea, the only Spanish-speak- Photography. ing country in Africa. K
  • 4. THE STUTTERING 4 www.stutteringhelp.org FOUNDATION 800-992-9392 ADHD speech-language pathologist’s Continued from front page Stuttering are more likely to present with in- scope of practice to suggest whether a family should or should and Singing creased ADHD-like characteristics possibly as a result of underlying not pursue pharmacological inter- vention, any significant changes By Lisa Scott, Ph.D. neurological factors 3. in stuttering behaviors should be While research linking reported to the medical Answering young reader’s stuttering with ADHD is lim- team. The team can then de- question … see page 8 ited at best, preliminary re- termine whether to discon- We don’t know for sure why ports suggest that the preva- tinue the medication, alter people don’t stutter when they lence of ADHD among chil- the dosage or switch to sing, but it’s probably a combi- dren who stutter is signifi- a different medication. nation of reasons: cantly higher than in the Unfortunately, there are few 1. When you sing, you take general population5,6. studies describing the effects breaths in between measures. Thus, research is needed of ADHD medications on This means that the number of to better understand this re- stuttering and much of the words you say on one breath is lationship in an attempt to clinical management must be very specific. When you talk, on identify risk factors, man- done on an ad-hoc basis. the other hand, you can take agement strategies and Lastly, speech-lan- breaths wherever you want in the possible neurological For more information guage pathologists sentence. Sometimes, people underpinnings of each on ADHD and should have a thorough who stutter have a hard time disorder. However, a stuttering, download understanding of ADHD keeping their air going, so it more pressing need re- this free brochure at and resources for fami- makes talking harder. lates to the clinical www.stutteringhelp.org. lies and professionals. 2. Different parts of our brains management of chil- An excellent starting help us think or act in special dren who stutter who present with point is the brochure, ADHD and ways. Most people’s center for diagnosed ADHD or with subclini- Stuttering by the Stuttering music is on the right side of their cal levels of ADHD-like traits. Foundation. Additionally, therapists brains, but the speech center is The speech-language patholo- can utilize online resources like The on the left side of the brain. This means that the “controls” are dif- gist, working as part of a coordinat- Stuttering Homepage and Children ferent for talking versus singing. ed multidisciplinary team, must and Adults with Attention Deficit 3. Another idea that might ex- consider the impact that ADHD Disorders – CHADD. By keeping plain why people don’t stutter traits could have on an individual’s the lines of communication open be- when they sing has to do with ability to succeed in therapy. For tween all team members, the speech- how much you have to think of example, children with ADHD fre- language pathologist can increase words on your own. When you quently struggle with monitoring carry-over and retention of the mate- are talking, you have to have an their behaviors on-line, especially rial presented in therapy while limit- idea, then pick out the words when challenged with time pres- ing the frustration and anxiety that you’re going to use to tell some- sure7. Thus, a child with concomi- too often hinders progress. one else your idea, then get your tant stuttering and ADHD may find 1. Felsenfeld, S., Kirk, K.M., Zhu, G., Statham, D.J., muscles and air going to be able it difficult to effectively monitor his Neale, M.C., & Martin, N.G. (2000). A study of the genet- ic and environmental etiology of stuttering in a selected to say the words. When you sing, speech and make corrections at the twin sample. Behavioral Genetics. Sep;30(5):359-66. someone else has already thought moment of stuttering. In this case, 2. Yairi, E., Ambrose, N., & Cox N. (1996). Genetics of stuttering: a critical review. up all the words and it’s not your the child may fully understand Journal of Speech, Language, Hearing Research. Aug;39(4):771-84. own idea, another good reason what to do but his struggling would 3. Alm, P., A., & Risberg, J. (2007). Stuttering in that sining is easier than talking. be related to consistently using adults: The acoustic startle response, temperamental traits, and biological factors. Journal of Communication We hope this helps answer what he knows in real-life situa- Disorders. 40, 1-41. 4. Poulos, M., & Webster, W. (1991). Family history your question! K tions. Unfortunately, this could be as a basis for subgrouping people who stutter. Journal of Speech and Hearing Research. 34, 5-10. misinterpreted as the child not 5. Healey, E., C., & Reid, R. (2003). Tutorial on wanting to use his strategies or Stuttering and ADHD. Journal of Fluency Disorders. Volume 28, Number 2. lacking motivation. 6. Biederman, J., Faraone, S.V., Spencer, T., Wilens, T., Norman, D., Lapey, K.A., Mick, E., Lehman, B.K., & As part of a new clinical study, Speech-language pathologists Doyle, A. (1993). Patterns of psychiatric comorbidity, cog- researchers will test whether pago- must also monitor for any nition, and psychosocial functioning in adults with atten- tion deficit hyperactivity disorder. American Journal of clone, an investigational medication changes in stuttering which could Psychiatry. Dec; 150(12): 1792-8. 7. Van Meel, C.S., Heslenfeld, D.J., Oosterlaan, J., & for stuttering, may offer a way to be due to the use of psychostimu- Sergeant, J.A. (2007). Adaptive control deficits in atten- achieve more fluent speech. lant medication which remains tion-deficit/hyperactivity disorder (ADHD): the role of error processing. June 30;151(3):211-20. More details are available at the most common intervention for 8. Zuyekas, S., Vitiello, B., & Norguist, G. (2006). Recent trends in stimulant medication use among U.S. children. www.StutteringStudy.com. K ADHD8. While it is out of the American Journal of Pyschiatry. April; 163(4): 574-577. K
  • 5. THE STUTTERING SUMMER 2009 FOUNDATION 800-992-9392 5 Eastern Workshop attendees Therapy has given me a great their children learn is an incredi- were contacted six months after way to find out what my clients bly valuable tool, as well as their 5-day training to see how have been doing since our last training the parents to focus on each of them is using their training session to move themselves for- the things that are going right.” in working with people who stutter. ward. I really like how the ques- “The parents had been so dis- Here’s what they had to say … tioning leads them to solutions.” couraged in previous attempts at “It has been an eye opening ex- “I use the rating scale that the therapy, and fully believed they perience for my clients when they clients do by themselves all the time were doing everything wrong. start identifying their Negative since it seems to give the client own- Their apparent confidence as par- Automatic Thoughts and the im- ership on what they are or are not ents grew remarkably through the pact it has on their stuttering. The doing to move themselves forward. time of our Solution Focused cognitive model is also used to ad- The positive approach fits so well.” Therapy. They adore the special dress specific problems along with “The best experience with the times with the child who stutters as their fear and anxiety to break down Parent Child Interactive Therapy well as with his brother. The child the ineffective safety net they had has been with a young boy. The re- decreased stuttering considerably. previously created and develop an sults have really been two-fold ... He’s getting direct therapy now effective replacement.” and his parents are con- “I always start my ther- tinuing special times at apy sessions with ‘What home. All are moving are your best hopes for well toward their goals.” today?’ which has been “What I have seen to be shown to be such a high- most effective in my use ly effective tool to ad- of Parent Child dress their needs.” Interactive Therapy is “The focus on posi- how the parents are now tive behaviors and the use of ‘special times’ Six Months Later ... feeling empowered rather than helpless by has provided the most frequent and his fluency has stabilized and mom looking at what interaction strate- positive feedback from parents of feels more confident about stutter- gies help their child to become more my preschoolers. It’s been such a ing therapy. During the video pro- fluent. Integrating ‘descriptive pleasure to see the relief on their cess, several ‘lightbulb/aha’ mo- praise’ and ‘special time’ have been faces simply because they can now ments occurred as we noticed what effective tools for parents.” shift focus from stopping disfluen- was working. The ability to work “I find myself asking ‘And how cy to examining the fluent times.” on one homework idea each week would that make a difference?’ and “The way Parent Child made the plan feel manageable to ‘What else?’ in most of my conver- Interactive Therapy is presented is her. When she identified ways to sations, including those with col- exceptional--parents have told me build his confidence, allowed him leagues, student teachers and family time and time again how ‘special to problem solve situations with- members. It sure beats ‘Well, I think time’ not only helps to achieve flu- out her interference, and learned to you should ... blah, blah, blah.’ I ent speech, but gives them the op- follow his lead in play, the fluency have a long way to go with this but portunity to feel the burden and significantly increased. She also am in happy mode about it all.” worry lifted from their shoulders learned to talk openly about his Editor’s note: Your donations and revel in a truly special interac- fluency.” help to fund workshops like this one tion with their child.” “Helping parents learn how to each year and in return hundreds of “The Solution Focused Brief take responsibility in helping people who stutter are helped. K Paperless e-Catalog Available Stepping up with the newest for specific products, bookmark, technology, the Stuttering make notes, and even link direct- Foundation launched its e- ly to the Foundation’s Web store Catalog this spring. to order by clicking on any item. You can load it on your desk- If you would like to receive the top, browse through the pages, e-Catalog link, just let us know - zoom on items of interest, search info@stutteringhelp.org. K
  • 6. THE 6 www.stutteringhelp.org STUTTERING 800-992-9392 FOUNDATION Volunteers Make a Difference Carol Ecke, helped by Connie Dugan, man Charlie Osborne, seconded by Erin the Illinois state Dyer, volunteer for the SFA booth at convention booth for the the Wisconsion state convention. Stuttering Foundation. Kavita Kaul and her student Nick wowed the audience of attendees at the Virgina state convention. Dorothy Olson, April Brown Kudos to the many volunteers who and Carol give generously of their time and en- Schaefer visit Carl Dell and Carol Ecke ergy in working exhibit booths the booth. with a copy of his semi- across the country! Some volunteers nal book, Treating the like SLPs Charlie Osborne and available at the Wisconsin and School-Age Child Who Kavita Kaul not only work in the Virginia conventions. Stutters. booth but also give input into what Susan Hamilton, of Washington materials to send to the convention, state, is always a first-rate volunteer Foundation from the many attendees, physically set up the booth, organize as she helps get the word out about many of whom remembered founder, additional workers, and help man the the newest products on stuttering Malcolm Fraser. I also got feedback booth throughout the event! treatment at the all-day Tacoma- on how our materials are helping Charlie and Kavita contacted the NSA workshop. their clients.” Foundation and asked if they could Terri Jones of the Foundation’s “Professional boother” and booster volunteer for their state conventions. Memphis office reported, “It was a Carol Ecke continues her enthusiastic Thanks to them - materials were privilege to represent SFA at the Mid- convention schedule and relates how South Conference . I enjoyed hearing exciting it is for her to have SLPs and stories of the early days of the students volunteering in the booth alongside of her. K Terri Jones brought SFA Carol Ecke products to the University worked her of Memphis NSSLHA magic to get Conference. the Stuttering Foundation booth ready at Susan Hamilton in Tacoma, Wash., conferences in California. where Dr. Tricia Zebrowski presented an all-day workshop on fluency. Sproles Continued from front page lates, “I have been working on my “We’ve been inundated with re- stuttering for 54 years and still quests for the new poster featuring haven't conquered it, although I con- NFL trol it well enough to host a weekly star Darren “jumping off the page,” radio talk show, conduct television running said Pat Hamm at the SFA back Memphis office. “We’ve never interviews and accept regular public Darren seen this kind of response before.” speaking engagements.” Sproles Newspaper editor Akwasi Evans For him, as for so many others, is featured requested a copy of the new poster Darren Sproles stands out as an on this for his office in Austin, Texas. He re- outstanding role model. K new poster.
  • 7. THE SUMMER 2009 STUTTERING 800-992-9392 7 FOUNDATION Checklist Reaches Pediatricians The American Academy of Pediatrics will incorporate the Stuttering Foundation Checklist for Referral in their upcoming available not only to more than 2010 PREP Self Assessment pub- 30,000 pediatric residents but also lication. It is a compilation of to all AAP subscribers through clinically relevant review ques- print, online and CD-Rom. tions and critiques based on the As a result, thousands of young AAP Content Specifications for children who experience disfluen- Maintenance of Certification. cies will be helped in a more time- The checklist will be made ly manner. K Malcolm Fraser Community Service June Campbell answers ques- Award Presented in Memphis tions during a conference of Pediatric Nurse Practitioners. By Cara Donahue cant contribution to the field of communication disorders. Each year the Malcolm Fraser This year’s award recipient, Pediatric Nurse Community Service Award is Cindy Myers, as the mother of a presented by the Mid-South child with special needs, is an ad- Practitioners Conference on Communicative vocate for not only her daughter, Undeterred Disorders to an individual in the but other children with disabili- Memphis community as a tribute ties in the Memphis area who are by Economy to a man who contributed greatly also communicatively delayed. Pediatric Nurse Practitioners to the field of com- A few years ago, flocked to San Diego from municative disor- Cindy created both a throughout the country for ders, namely in the social skills group their Annual Conference. field of stuttering. and a Sunday School June Campbell visited with Malcolm Fraser, group at Hope practitioners from more than 18 together with his Presbyterian Church states, including Massachusetts, brother, was one of as a way to give these Georgia, Illinois, Arkansas, the early founders of children the opportu- Utah, Florida, New Hampshire, the NAPA Genuine nity to build commu- Minnesota and Texas. Parts Company in nication skills. Laura Some nurses stopped by to Atlanta in 1928. He Martin and several share how the Foundation’s used the money from University of literature has helped their pa- auto parts stock to Memphis speech tients, others were students start the Stuttering pathology students who had not yet been exposed Foundation of Cindy Myers (right) commented, “Cindy to the literature or Web site America. Today the with her daughter has shown passion and others shared how they Foundation reaches Gabriella, and Becky and commitment used books and brochures in people in 126 coun- Jones, NSSLHA while organizing Nursing Education programs. tries, and Mr. president. these programs. She June noted, “Some of my Fraser’s book, Self has spent countless favorite conversations were Therapy for the Stutterer, has hours working to provide chil- with children joining their helped countless numbers of people dren with an accepting environ- mothers at the conference. who struggle with stuttering. ment where they can develop They enjoyed asking ques- The Malcolm Fraser Community communication skills at their tions about stuttering, sharing Service Award honors his many ac- own pace.” about children they know who complishments and unselfishness Cindy’s selfless attitude and stutter and looking at SFA’s and is given to an individual who dedication exemplify the ideals books Trouble at Recess and like Mr. Fraser has made a signifi- consistent with Mr. Fraser’s. K Sometimes I Just Stutter.” K
  • 8. THE STUTTERING 8 FOUNDATION www.stutteringhelp.org 800-992-9392 Dear SFA: Reader Response Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or e-mail info@stutteringhelp.org. Like a roller coaster sometimes I just want to pull my ter. To me, nothing is wrong with it. Dear SFA: hair out. My stuttering usually is And I don’t care what people think My name is Britney, and I’m 8 when I start to get really excited or about my stuttering. years old. I have been stuttering really nervous. Damian since I was 5 years old. When I Lizette Cache, Okla. start to stutter my mom tells me Cache, Okla. to think about what I’m going to Editor’s Note: See page 4 for a Stuttering feels like a ball say before I talk. Every time I reply from Dr. Lisa Scott. Dear SFA: stutter it feels like a roller My name is Jabaree. I’ve coaster because when I been stuttering for 6 years stutter the roller coaster and I’m through with it! goes bump, bump, bump. My stuttering feels like a That is why stuttering feels basketball. When the ball like a roller coaster to me. bounces, I feel like I can’t I get frustrated a lot be- get my words out. And when cause when my cousins I shoot the ball, I drag my tease me I start to stutter a words out. Dragging my lot. But sometimes I try words and sliding are the not to think about the teas- best ways I use to not stutter ing and I try to calm down. as much. Some kids ask me I tell them to stop teasing why I talk like that, and I tell me because that will make them I stutter. me stutter even more. And Joel (left) and Shawn, 10-year-old twins, cele- Most of them are my now I’m starting to get bet- brated Pi Day by memorizing more than 150 friends, and they don’t ter. One of the things I digits of Pi between the two of them. Pi Day is tease me. When I get learned in speech is about celebrated by math enthusiasts around the teased, I try to ignore it and eye contact. I am glad I am world on March 14, which is taken from the I don’t get mad. in this speech class be- first three digits of the equation and happens to In all I’m OK and I like cause I am starting to get be Einstein’s birthday. Shawn, who has been my life. better at not stuttering. stuttering since a young age, has been doing Jabaree Britney, 8 adult puzzles since he was 5 years old. Pamona, Calif. Pomona, Calif. Going down the road Speech teacher helps Singing question Dear SFA: Dear SFA: Dear SFA: My name is Greg. I’m 9 years Hi, my name is Derrik. I block My name is Lizette. I would love old and in the third grade. I think sometimes. I feel OK about my to tell you about my stuttering. stuttering is like a car on a road. speech. I repeat stuff a lot, but Sometimes I get really frustrated If you stutter, you are going too sometimes I don’t repeat a lot. I go and other times I’m calm. You see fast. If you don’t stutter, you go get help from my speech teacher. I I hate it when people try and help where you want to go and you feel blocking is a little OK. me and say “slow down” or “what don’t get a ticket. Derrik did you say?” It just makes me Greg, 9 Hanover, Pa. think more about stuttering and Hanover, Pa. that’s when I get nervous and tend Making friends to stutter even more. Stuttering is OK Dear SFA: I love to sing, and my friends will Dear SFA: My name is Evan and I am 11 ask me, “Why don’t you stutter My name is Damian and I stutter. years old. I stutter like all the other when you sing?” That’s where I get Sometimes I am mad because kids who write to the Stuttering stuck. I don’t know what to say. when I am reading at school some Foundation. I repeat my words but Yes, I do accept who I am and I say “hurry up” and sigh, and I that’s OK now because I go to know that no one is perfect, but don’t like that. But it is OK to stut- speech class and I’ve improved so Continued on page 11
  • 9. THE STUTTERING FOUNDATION 800-992-9392 9 SUMMER 2009 First picture: “This is how I feel when I stutter... It feels like I’m going up a steep hill. I’m forcing myself to go up when I stutter. When I finally get up, I try to stop myself because I’m going down too fast. I may trip and fall,” writes Nicholas, 6th grader from Henrico, Va. Second picture: “This is how I feel when I use my strategies... The best way to go up a hill during a stuttering block... easy pace, taking adequate time, don’t rush, steady rhythm in speech, sliding down easily (I don’t trip and fall). “If the voice box and mouth make “This is a picture of me giving my presentation. The you stutter, then the brain will get stuttering ghost doesn’t let me talk right,” writes rid of the bump. If the brain can’t Ambrosia, 8, of Pittsburgh, Pa. “I use my strategies to do it, then you will have to get rid scare the ghost away. When I was in first grade I had of it yourself. Another way is to to give a presentation on a flying squirrel. I was shy speak slowly,” writes Hunter. because I was afraid that I would get stuck on my words. My teacher had to do it for me. It’s okay to get stuck on words sometimes. Now that I use my pull-outs, I don’t stutter as much when I am talking to people.” 3Sometimes when we stutter we feel like we are trapped in a box,” writes J. from Brooklyn, N.Y. “Sometimes when you stutter you feel nervous and forget the way to come out of the stutter.”
  • 10. 800-992-9392 I’m so very proud of all of you. You have Mrs. S. has been remembering helped me to I was nervous to use your speech really improve when I started helpers! Keep up my speech. speech. I thought I the good work. would be teased. I was wrong. Chris Mrs. S. Isaac FOUNDATION STUTTERING In speech THE class I’m Speech learning how class has to make the helped me. “S” sounds. Max Hunter I like speech class. My speech is much smoother than before. Max Zackary www.stutteringhelp.org I am learning to These computerized drawings use less bumps in my speech. I learned to use many speech were created by students in helpers in therapy. My Mrs. S’ speech class. speech is so much smoother. 10
  • 11. THE STUTTERING FOUNDATION 11 SUMMER 2009 800-992-9392 Dear SFA, When you remember to My name is Chris and I am use your speech helpers, you can hit a home run!!! in the fifth grade. I have been going to speech ther- apy since kindergarten. I have learned different ways I remembered to use my to help my speech. When I speech helpers. use them, my speech is not Home bumpy. When I forget to Run! use them my speech is bumpy. Chris I hate it when people You’re make fun welcome. You’re of me. welcome. By Isaac By Max Thank you guys for standing up for me. By Chris Do you have a letter, drawing, or poem you would like published? Please send it to us with your name, phone number, age, and signed parent permission form. Mail to: The Stuttering Foundation, 3100 Walnut Grove Road, Suite 603 Memphis, TN 38111-0749. By Maxwell Letters Continued from page 8 old. I stutter. I think that stuttering is What should I do? not bad at all. Sometimes people Dear SFA: much. I’ve gotten teased by a lot of tease me. I ignore it because no one kids. When I get teased, it’s like My name is Makayla. I am 8 is perfect and no one will ever be years old. I’m like my daddy be- getting punched in the face. The perfect. kids who teased me are now my cause he stutters too. People make Naftali, 8 fun of me. When people make fun friends because I forgave them. Far Rockaway, N.Y. What I ask for from a friend is for of me I get sad because I feel bad them to treat me the way they want for stuttering. I was wondering what Things that help should I do if someone makes fun of to be treated. Dear SFA: Through the years, stuttering has- me? What did the other kids do? My name is Cherrelle. I attend Makayla, 8 n’t pushed me back from playing Fairfield Court Elementary. When sports and doing activities. Its actu- E-mail I am talking, sometimes I start to ally pushed me forward and al- stutter a little bit. When I’m with lowed me to tell my friends about my speech therapist, it’s like I Editor’s Note: Be sure to read my stuttering. never stutter. I never stutter when I the letters in this newsletter from Thank you Stuttering Foundation read something. When she closes other children who have ideas for supporting all the kids in the book, I start to stutter. When I about teasing. Remember to not America. And, remember, there is stutter, first I’ll stop then I’ll start let the teasing get you down and no perfect speech. All the perfect over and make up a little rhythm to to stay calm. It's okay to let others speech you could get is confidence the speech. When I’m with my know teasing hurts and to ask and it is all from the heart. family, I stutter a lot. But now I’m them to stop. Evan, 11 used to stuttering around people. If Another good resource is Stevenson Ranch, Calif. you stutter, it is OK. Just tap your Sometimes I Just Stutter. In it, leg and start on your sentence. It every time 9-year old Mark is Ignore teasing will really help. teased, he just grins and says, Dear SFA: Cherrelle, “Come back when you can stutter My name is Naftali. I am 8 years Richmond, Va. better than I do!” K
  • 12. THE STUTTERING 12 www.stutteringhelp.org FOUNDATION 800-992-9392 B ues legends have Even stuttering B.B. King B.B. King and John Lee Hooker with words. Never could express my- However, he had role models who have much in common. Born in self the way I wanted. My mind stuttered. His Uncle Major was a se- Mississippi only a few years fights my mouth, and thoughts get vere stutterer and King wrote of apart, both are considered among stuck in my throat. Sometimes they him, “Probably because I stuttered the best blues gui- stay stuck for seconds or even too, the way he suffered with his tarists of all-time. minutes. As a child, I stut- speech broke my heart and made me Both King and tered. What was inside could- love him even more. There was a Hooker have been n’t get out. I’m still not real silent bond between us. Unlike oth- inducted into The fluent. I don’t know a lot of ers, I could feel what he wanted to Rock and Roll Hall good words. If I were wrong- say and sometimes said it for him.” of Fame. However, fully accused of a crime, I’d His great-grandfather, Pop what the public Davidson, who had been a may not know is slave, was a major influ- that they have an- ence on King’s life and also other thing in com- stuttered. King’s admiration mon: stuttering. for his great-grandfather B.B. King was helped him accept his own born Riley B. King in 1925. stuttering. When discussing Listed as number three on their stuttering bond in his Rolling Stone’s list of the 100 autobiography, King wrote greatest guitarists of all-time, of his great-grandfather, King’s career and accomplish- “Sometimes I wondered ments are legendary, yet his about Pop’s stuttering, stuttering has received scant which unlike Uncle attention over the years. Major’s, frustrated him like B.B. stuttered from the time crazy; I wondered if a he was a child. According to speech impediment has to Everyday I Sing the Blues: The do with a boiled-up fury in- Story of B.B. King by David side. Why did I stutter? Shirley, while in grade school Classmates were cruel and King attended the lively called me stupid, Pentecostal church services, and teasing me some- it was there that he discovered thing fierce. But I he had a special gift for music. never saw anyone People were amazed that he tease Pop could sing so beautifully without have a tough time explaining Davidson.” stuttering. The church’s pastor con- my innocence. I’d stammer and Countless times tended that it was the Holy Ghost stumble and choke up until the in his life, King who sang so gracefully through judge would throw me in jail. has stated that B.B.’s throat when the young lad Words aren’t my friends. Music singing was al- joined the choir. is. Sounds, notes, rhythms. I ways easier than In his 1996 autobiography, Blues talk through music.” speaking. He claims that his stut- All Around Me: The Autobiography King faced the typical difficulties tering has decreased over the of B.B. King, King wrote, “I struggle faced by many children who stutter. years but is always there. K
  • 13. THE STUTTERING SUMMER 2009 FOUNDATION 800-992-9392 13 many things in common John Lee Hooker John Lee Hooker, born in 1915, when telling stories against himself. also took refuge in music at an This good natured form of self- early age as he struggled with stut- parody is evident in Hooker’s clas- To list all of the accom- tering. In the biography sic 1953 song “Stuttering Blues.” plishments of these two Boogie Man: The In 1980, Hooker appeared famed blues guitarists Adventures of John and sang in the now classic would be a major task. Lee Hooker in the movie, The Blues Brothers. B.B. King and John Lee American Twentieth As a result, the look of John Hooker have an infinite Century, author number of CDs avail- Charles Shaar able on Amazon.com Murray states, and to say that the “Hooker sounds as two are well repre- if he has $100,000 sented on YouTube is worth of sophisti- an understatement. It cated digital good- is disheartening to ies built in his chest think that the general and his throat. Yet public does not know his voice is quiet and muted, its that the two greatest tonal richness offset by a resid- blues guitarists of all- ual stammer and blurred by the time shared the com- deepest alluvial accents of the mon bond of stutter- Mississippi Delta.” ing and that their Murray also writes about speech problems how so many people do im- were responsible for pressions of Hooker and that leading them to his stuttering is a big part of it. music at an early age “Anybody who tells you an and on their way to anecdote about John Lee international super- Hooker as a young man – stardom. and Buddy Guy is the cur- rent champ, by a very short head indeed, of the Hooker Impressionists League – Belushi’s character, will inevitably end up mim- Jake Blues, was di- icking his characteristic rectly influenced by stutter.” Also, Bernard Hooker’s trademark Besman, the producer who first sunglasses and soul patch. recorded Hooker, claims that the Though his stuttering reduced primary reason for his decision was to some degree in his adult life, that he was intrigued by the sce- Hooker is remembered by nario of a man who stuttered when friends as putting them at ease he spoke, but not when he sang. about his stuttering by being Reportedly in a spirit of self-parody, able to poke fun at his speech in Hooker used an exaggerated stutter a soft way. K
  • 14. THE STUTTERING FOUNDATION 3100 Walnut Grove Road, Suite 603 P.O. Box 11749 • Memphis, TN 38111-0749 #Over the Side by Richard Wells, USN #Current Issues in Stuttering Research #Speakeasy Symposium XXVII, May 1-3, AFJ and USMC Merchant. 2008. For more and Practice by Nan Bernstein Ratner and News Briefs 2009, in Saddle Brook, NJ. For more infor- information, e-mail bwana@ameritech.net. John Tetnowski. 2006. Lawrence Erlbaum mation, contact Bob Gathman at 201-262- #Stuttering Stan Takes a Stand by Artie Associates, Mahwah, NJ. 0895 or e-mail speakezusa@optonline.net. Knapp. 2008. Available at www.amazon.com. # Begaiement: Intervention preventive #FRIENDS, the National Organization of # Practical Intervention for Early precoce chez le jeune enfant by Anne Marie Young People Who Stutter, July 23-26, Childhood Stammering by Elaine Kelman Simon et al. 2005. Available from the 2009, Tampa, Fla., www.friendswho and Alison Nicholas. (2008) Speechmark Association Parole Begaiement, stutter.org. Publishing, Ltd. Milton Keynes, U.K., www.begaiement.org. # National Stuttering Association www.speechmark.net. #Les begaiements: Histoire, psychologie, Conference - July 8 - 12, 2009, Scottsdale, #Stammering, Advice for All Ages by Renee evaluation, varietes, traitements by Anne Ariz., www.westutter.org. Byrne and Louise Wright. (2008), Sheldon Van Hout and Francoise Estienne. Published #ELSA’s 7th Youth meeting - July 25-31, Press, London, www.sheldonpress.co.uk. by Masson, S.A., 120 boulevard Saint 2009, Settle, England, e-mail #Speak Freely: Essential Speech Skills Germain, 75280 Paris Cedex 06, France. elsa.europe@telia.com. for School-Age Children Who Stutter by #Forty Years After Therapy: One Man’s # 6th World Congress on Fluency Mark Allen, Ph.D., (2007) Speak Freely Story by George Helliesen, M.A. Available Disorders - International Fluency Publications, Evanston, IL, www.cfst.com. from Apollo Press, Inc., 800-683-9713 or Association, Aug. 5-8, 2009, Rio de Janeiro, #Stuttering: An Integrated Approach to www.apollopress.com. Brazil, www.theifa.org. Its Nature and Treatment, Third Edition by #Sharing the Journey: Lessons from my #BSA National Conference, Sept. 11- Barry Guitar. 2006. Available from Students and Clients with Tangled Tongues 13, 2009, at the Harrow campus of the Lippincott, Williams & Wilkins, 800-638- by Lon Emerick, Ph.D., available from the University of Westminster, London, 3030, www.LWW.com. Stuttering Foundation at 800-992-9392. www.stammering.org. #Beyond Stammering, Revised edition by #Stuttering: Its Nature, Diagnosis, and #International Stuttering Awareness Day David Maguire. (2008) Souvenir Press, Treatment, by Edward G. Conture, Ph.D., Online Conference - Oct. 1 - 22, 2009. Freely London. published by Allyn & Bacon, Needham available and linked starting Oct. 1 at # Stuttering Recovery Personal and Heights, MA. (781) 433-8410. www.stutteringhomepage.com. Empirical Perspectives by Dale F. # Successful Stuttering Management # American Speech-Language and Program, Second Edition, by Dorvan Williams. 2006. Available from Lawrence Hearing Association Convention - Nov. 19- Breitenfeldt, Ph.D., published by EWU Erlbaum Associates, Mahwah, NJ, 21, 2009, New Orleans, La., www.asha.org. Press, Cheney, WA, (509) 235-6453. www.erlbaum.com. # Synergistic Stuttering Therapy: A #14th Speak Easy Convention, Australian #Speech Therapy for the Severe Older Speak Easy Association - Feb. 18-21, 2010, Holistic Approach by Sister Charleen Adolescent and Adult Stutterer: A Program Bloom and Donna K. Cooperman. Sydney, Australia, www.speakeasy.org.au. for Change by George Helliesen. 2006. Published by Butterworth Heineman, Available from Apollo Press, Newport News, Woburn, MA. Books on Stuttering or Related Topics: VA, 800-683-9713, www.apollopress.com. #Stuttering Intervention: A Collaborative Books #Only When I Talk by Bob Hubbert. 2007. #The Child and Adolescent Stuttering Journey to Fluency Freedom by David T Available online at www.amazon.com. Treatment and Activity Resource Guide by Allen Shapiro, published by Pro-Ed, Peter Ramig and Darrell Dodge. 2005. Austin, Texas. he Stuttering Foundation Available from Thomson Delmar Learning, K of America is a tax-exempt Clifton Park, NY. This newsletter is published quarterly. Please organization under section # Early Childhood Stuttering: For e-mail address changes and story ideas to 501(c)(3) of the Internal Clinicians by Clinicians by Ehud Yairi and info@stutteringhelp.org. Revenue Code and is classified Nicoline Grinager Ambrose. 2005. as a private operating founda- Available from ProEd, Austin, TX, and Volume18, Issue 2 tion as defined in section 4942(j)(3). Charitable contributions www.amazon.com. Renee Shepherd . . . . . . . . Editor/Writer and bequests to the Foundation are #50 Great Activities for Children Who Scot Squires . . . . . . . . . . . . . . . . Designer tax-deductible, subject to limitations Stutter by Peter Reitzes. 2006. Available from Special thanks to Joan Warner, Patty Reed, under the Code. Pro-Ed, Austin, TX, www.proedinc.com. Susie Hall, Pat Hamm, Lisa Hinton, and Terri Jones.