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Social Networking Tools Using Facebook, Ning, and More for Health
Agenda 10:30 - Speaker introductions 10:40 – Facebook for public health 11:20 - Ning as a social networking platform. 11:50 - Ning for public health. 12:20 - General Q&A 12:30 - Lunch
William Brown III Doctoral Candidate in Public Health, UC Berkeley Manager eCommunications: Health Research for Action Researcher:  Public Health Institute, Oakland  Psychology Dept., University of Utah Contact info: [email_address] http://facebook.com/healthresearchforaction
Courtenay Stewart Community Advocate, Ning.com Board Member, Kids with Dreams Contact Info [email_address] Ask Us! http://help.ning.com http://creators.ning.com Twitter:  @ningadvocacy
Manny Hernandez Living with LADA (type 1.5 diabetes) since 2002 Founder:  TuDiabetes,org  and  EsTuDiabetes.org President:  Diabetes Hands Foundation Author:  Ning For Dummies Contact:  Email:  [email_address]   Twitter:  @askmanny Blog:  www.askmanny.com
Twitter hashtag Use  #SNT4Health  to live-tweet during the workshop and share any afterthoughts.
Facebook for Public Health Review Social Media trends, concepts, and Public Health opportunities  Highlight Health uses of Social Networking Discuss how to build and maintain a social media presence Share free online tools that can be used for health advocacy
Social Media
Social Networks
Social Media and Public Health Interventions Why use Social Media? Convenient Reach large demographics Cost effective Time efficient Confidential & Safe (w/privacy settings) Youth friendly!
Social Media and Public Health Populations Paraplegic, Quadriplegic; Diabetes; Cancer; HIV, Youth, Pregnancy Internet Gap Race, Able, Chronically Ill, SES, etc. Significantly more likely to find information helpful User generated
Facebook for Public Health Hyper-targeting at massive scale Demographic and psychographic targeting Public Health Research Cyber-ethnographic/anthropologic, Questionnaire, Observation, Analysis Facebook over 200 million users Growth Age 13-17 18-24 25- 34 35+ Pew Research Center (2009). Social Media and Young Adults: Sept. 12, 2009, from  http://www.pewinternet.org/Reports/2010/Social-Media-and-Young-Adults/Part-3/2-Adults-and-social-networks.aspx?r=1
Facebook People Identify your population Assess audience or population Access Evaluate a need
Facebook Tools Identify helpful tools Make use of social information sharing Minimal restrictions  Online communication tools
Facebook Presence Stand out, be appealing Engage your audience in a meaningful way Update status consistently but sparingly 3-4 per week
Facebook Users Pay attention to your users Likes/Trends Issues/Problems Groups/Pages
Facebook for Public Health Designate point person Setup what you can maintain
Facebook for Public Health Potential impact of eHealth Large scale and targeted health delivery Promote health education and literacy Reach more people  Potential for better and faster health outcomes Cost effective Decrease disparities (Cellular technologies) But… Needs more evaluation Technology gaps and barriers
Ning: a social networking platform Create a social network for anything Getting started Tools for your network See it live
Ning: getting started
Ning: getting started
Voilà!
Tools for your network Forum Open the conversation Latest Activity See what’s happening Groups Organize your members Feature Turn members into contributors
Tools for your network Ning Apps and widgets
community.wegohealth.com
Community.wegohealth.com
worldkidneyday.org
Ning for public health
Ning for patients (users, members) You can connect with others like you. …  people you didn’t know before (difference with Facebook) You become empowered with new information. You can educate others (even your med team!) http://flickr.com/photos/madfox/29367611/
Ning for providers (administrators) New way to engage with constituents /patients :  Blogs, forums, videos Foster and solidify offline connections:  Events, groups Increased outreach possibilities: Sharing mechanisms Export member data
Community Management Listen : to your members, on Social Media. Reward : feature member content, feature members. Reward power users. Engage : keep content fresh, give members reasons to return. Offline : the social network can feed from the offline experience and create opportunities for face-to-face collaboration. ( TIP ) read  http://amysampleward.org  and follow  @AmyRSWard Building Stronger Online Communities w/o Losing your Sanity
Member Management ( TIP ) Moderated membership: An additional anti-SPAM measure Helps you keep your network centered on core topic Allows you to know your members better through Registration Questions Featuring members
Content Management Content: ( TIP ) Featuring member-generated content What member-generated content belongs in your network?
Develop Guidelines You will need them in times of crisis. …  and enforce them! TuDiabetes values  (examples): Community Support Diversity & respect http://www.flickr.com/photos/furnari/3484546075/
Network development, outreach Through your members: Invitations, badges, embeddable content Through network RSS feeds TwitterFeed feeding Twitter, FB page Through bloggers Through Twitter: ( TIP ) Hootsuite let’s you schedule tweets! Through existing offline efforts
Managing your network, growth There’s no auto-pilot Recruit helpers: from among your members! “ Economies of scale” and self-policing help Administrators Up to a few 100 members, 1 admin suffices Harder to keep up for one person past 1,000 members Outreach: about 1-5 hours per week
TuDiabetes http://www.tudiabetes.org   Launched in March 2007 Mid-April 2009 (monthly stats): 14,200+ members 130,000 monthly visits (50% are from returning visitors) 675,000 monthly pageviews 5+ minutes average session (9:04 for returning visitors) Lots to be learned from info in Google Analytics
Word in your Hand: video from member submissions July 2007: Member published  blog entry  with word describing feeling about diabetes. Oct. 2007: Through the  forum , we collected 120+  photos . Nov. 2007: We created a  video  (music also contributed by a member) for World Diabetes Day 2007.
TuAnalyze Ning App to be launched late April 2010 Collaboration between Diabetes Hands Foundation & Children’s Hospital Boston Mechanism for TuDiabetes members to: Enter, track; and  Optionally share their Hemoglobin A1c data Trending potential: Healthier behaviors Regional A1c averages
TuAnalyze Ning App
Data stored in Indivo PCHR
Ning App to enter, track, share A1c
A1c data Sharing Settings
Mapping aggregate A1c data
California Convergence http://CaliforniaConvergence.ning.com Coordinated by the Partnership for the Public's Health (PHI project) 45 organizations “working together to improve food and physical activity environments” Mid-April 2009: Nearly 600 members (100+ new members since start of 2010) Policy streams communication hub Conference to encourage site use
Public Health Policy meets Ning Each button on the home page links to a  Group  page Slideshows to share  photos  from events Live blogging  as events unfold
Questions???
Thank you!! Enjoy lunch!

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Social networking tools for Health

  • 1. Social Networking Tools Using Facebook, Ning, and More for Health
  • 2. Agenda 10:30 - Speaker introductions 10:40 – Facebook for public health 11:20 - Ning as a social networking platform. 11:50 - Ning for public health. 12:20 - General Q&A 12:30 - Lunch
  • 3. William Brown III Doctoral Candidate in Public Health, UC Berkeley Manager eCommunications: Health Research for Action Researcher: Public Health Institute, Oakland Psychology Dept., University of Utah Contact info: [email_address] http://facebook.com/healthresearchforaction
  • 4. Courtenay Stewart Community Advocate, Ning.com Board Member, Kids with Dreams Contact Info [email_address] Ask Us! http://help.ning.com http://creators.ning.com Twitter: @ningadvocacy
  • 5. Manny Hernandez Living with LADA (type 1.5 diabetes) since 2002 Founder: TuDiabetes,org and EsTuDiabetes.org President: Diabetes Hands Foundation Author: Ning For Dummies Contact: Email: [email_address] Twitter: @askmanny Blog: www.askmanny.com
  • 6. Twitter hashtag Use #SNT4Health to live-tweet during the workshop and share any afterthoughts.
  • 7. Facebook for Public Health Review Social Media trends, concepts, and Public Health opportunities Highlight Health uses of Social Networking Discuss how to build and maintain a social media presence Share free online tools that can be used for health advocacy
  • 10. Social Media and Public Health Interventions Why use Social Media? Convenient Reach large demographics Cost effective Time efficient Confidential & Safe (w/privacy settings) Youth friendly!
  • 11. Social Media and Public Health Populations Paraplegic, Quadriplegic; Diabetes; Cancer; HIV, Youth, Pregnancy Internet Gap Race, Able, Chronically Ill, SES, etc. Significantly more likely to find information helpful User generated
  • 12. Facebook for Public Health Hyper-targeting at massive scale Demographic and psychographic targeting Public Health Research Cyber-ethnographic/anthropologic, Questionnaire, Observation, Analysis Facebook over 200 million users Growth Age 13-17 18-24 25- 34 35+ Pew Research Center (2009). Social Media and Young Adults: Sept. 12, 2009, from http://www.pewinternet.org/Reports/2010/Social-Media-and-Young-Adults/Part-3/2-Adults-and-social-networks.aspx?r=1
  • 13. Facebook People Identify your population Assess audience or population Access Evaluate a need
  • 14. Facebook Tools Identify helpful tools Make use of social information sharing Minimal restrictions Online communication tools
  • 15. Facebook Presence Stand out, be appealing Engage your audience in a meaningful way Update status consistently but sparingly 3-4 per week
  • 16. Facebook Users Pay attention to your users Likes/Trends Issues/Problems Groups/Pages
  • 17. Facebook for Public Health Designate point person Setup what you can maintain
  • 18. Facebook for Public Health Potential impact of eHealth Large scale and targeted health delivery Promote health education and literacy Reach more people Potential for better and faster health outcomes Cost effective Decrease disparities (Cellular technologies) But… Needs more evaluation Technology gaps and barriers
  • 19. Ning: a social networking platform Create a social network for anything Getting started Tools for your network See it live
  • 23. Tools for your network Forum Open the conversation Latest Activity See what’s happening Groups Organize your members Feature Turn members into contributors
  • 24. Tools for your network Ning Apps and widgets
  • 28. Ning for public health
  • 29. Ning for patients (users, members) You can connect with others like you. … people you didn’t know before (difference with Facebook) You become empowered with new information. You can educate others (even your med team!) http://flickr.com/photos/madfox/29367611/
  • 30. Ning for providers (administrators) New way to engage with constituents /patients : Blogs, forums, videos Foster and solidify offline connections: Events, groups Increased outreach possibilities: Sharing mechanisms Export member data
  • 31. Community Management Listen : to your members, on Social Media. Reward : feature member content, feature members. Reward power users. Engage : keep content fresh, give members reasons to return. Offline : the social network can feed from the offline experience and create opportunities for face-to-face collaboration. ( TIP ) read http://amysampleward.org and follow @AmyRSWard Building Stronger Online Communities w/o Losing your Sanity
  • 32. Member Management ( TIP ) Moderated membership: An additional anti-SPAM measure Helps you keep your network centered on core topic Allows you to know your members better through Registration Questions Featuring members
  • 33. Content Management Content: ( TIP ) Featuring member-generated content What member-generated content belongs in your network?
  • 34. Develop Guidelines You will need them in times of crisis. … and enforce them! TuDiabetes values (examples): Community Support Diversity & respect http://www.flickr.com/photos/furnari/3484546075/
  • 35. Network development, outreach Through your members: Invitations, badges, embeddable content Through network RSS feeds TwitterFeed feeding Twitter, FB page Through bloggers Through Twitter: ( TIP ) Hootsuite let’s you schedule tweets! Through existing offline efforts
  • 36. Managing your network, growth There’s no auto-pilot Recruit helpers: from among your members! “ Economies of scale” and self-policing help Administrators Up to a few 100 members, 1 admin suffices Harder to keep up for one person past 1,000 members Outreach: about 1-5 hours per week
  • 37. TuDiabetes http://www.tudiabetes.org Launched in March 2007 Mid-April 2009 (monthly stats): 14,200+ members 130,000 monthly visits (50% are from returning visitors) 675,000 monthly pageviews 5+ minutes average session (9:04 for returning visitors) Lots to be learned from info in Google Analytics
  • 38. Word in your Hand: video from member submissions July 2007: Member published blog entry with word describing feeling about diabetes. Oct. 2007: Through the forum , we collected 120+ photos . Nov. 2007: We created a video (music also contributed by a member) for World Diabetes Day 2007.
  • 39. TuAnalyze Ning App to be launched late April 2010 Collaboration between Diabetes Hands Foundation & Children’s Hospital Boston Mechanism for TuDiabetes members to: Enter, track; and Optionally share their Hemoglobin A1c data Trending potential: Healthier behaviors Regional A1c averages
  • 41. Data stored in Indivo PCHR
  • 42. Ning App to enter, track, share A1c
  • 43. A1c data Sharing Settings
  • 45. California Convergence http://CaliforniaConvergence.ning.com Coordinated by the Partnership for the Public's Health (PHI project) 45 organizations “working together to improve food and physical activity environments” Mid-April 2009: Nearly 600 members (100+ new members since start of 2010) Policy streams communication hub Conference to encourage site use
  • 46. Public Health Policy meets Ning Each button on the home page links to a Group page Slideshows to share photos from events Live blogging as events unfold

Editor's Notes

  1. -set up in less than 5 minutes
  2. -less is more! -16 features and counting -great way to customize for your audience
  3. -in house developers and 3 rd party developers -other: donate button (paypal)
  4. “ Helping health activists to help others” -WEGO Health asks top health activists to share their stories. Learn about their experiences, motivations and goals -members->contributers -intergrating with website/outside blogs -hlth activists, patients, etc ->4000, #hits, funding
  5. -network for one event -spread awareness -go viral with information -organize information -events scheduled in dif cities