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Open Data within Clinical Research
Richard Corbridge




                    Supporting research to make patients, and the NHS, better
Evolution & Creation of Research Capability


                  There are two types of creation myths:
 those where life arises from mud, and those where life falls from the sky.
  In our myth computers arose from the mud, and code fell from the sky.


                                                   George Dyson - Turing’s Cathedral



         Successful clinical research outcomes happen in two ways: moments of
             unplanned genius occurring under pressure and as a reaction to
         environments, and those where organisational intelligence is applied to
          ensure that delivery of a health outcome is probable and possible and
                  where evidence is overwhelming to prove the benefit.


Unattributed quote - Clinical Research Community
Evolution & Creation of Research Capability

              Clinical research is most akin to a mine, a great deal of waste rock
          requiring huge effort has to be removed before the rich seam of discovery
                                         can be got at.


Sir Andrew Witty, CEO, GlaxoSmithKline




   Three things we have to do with informatics to hit the rich seam


      1   Innovate, INNOVATE, Innovate

       2       Remove COMPLEXITY for researchers and participants

        3           Increase TRANSPARENCY of inputs and outputs
Richard Corbridge, CIO at NIHR - Open data within clinical research environment
The needle in the BIG DATA haystack




     Higher Quality   Lower Cost      Quicker
The needle in the BIG DATA haystack

                      What is OPEN DATA?

           The comedy answer is DATA that is OPEN…




                      But it is as simple as that…
    Open data - data that can be made use of by anyone through
         analysis, linkages, and evidence based delivery.
            Real World Data – the Big Data of 2013!
The needle in the BIG DATA haystack

  Numerous scientists have pointed out the irony that right at the historical
 moment when we have the technologies to permit worldwide availability and
     distributed process of scientific data, broadening collaboration and
accelerating the pace and depth of discovery we are busy locking up that data
    and preventing the use of correspondingly advanced technologies on
                                  knowledge


                                        John Wilbanks, VP Science, Creative Commons



                                Until now…

 UK PLC and a number of global Pharma all now have an Open Data
strategy and will, in 2013, move to facilitate the use of BIG DATA in an
                              OPEN way
Blackpool Rock




                     Data
                 Information
                    Insight
                 Intelligence
Open Data within Clinical Research
Richard Corbridge




                    Supporting research to make patients, and the NHS, better

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Richard Corbridge, CIO at NIHR - Open data within clinical research environment

  • 1. Open Data within Clinical Research Richard Corbridge Supporting research to make patients, and the NHS, better
  • 2. Evolution & Creation of Research Capability There are two types of creation myths: those where life arises from mud, and those where life falls from the sky. In our myth computers arose from the mud, and code fell from the sky. George Dyson - Turing’s Cathedral Successful clinical research outcomes happen in two ways: moments of unplanned genius occurring under pressure and as a reaction to environments, and those where organisational intelligence is applied to ensure that delivery of a health outcome is probable and possible and where evidence is overwhelming to prove the benefit. Unattributed quote - Clinical Research Community
  • 3. Evolution & Creation of Research Capability Clinical research is most akin to a mine, a great deal of waste rock requiring huge effort has to be removed before the rich seam of discovery can be got at. Sir Andrew Witty, CEO, GlaxoSmithKline Three things we have to do with informatics to hit the rich seam 1 Innovate, INNOVATE, Innovate 2 Remove COMPLEXITY for researchers and participants 3 Increase TRANSPARENCY of inputs and outputs
  • 5. The needle in the BIG DATA haystack Higher Quality Lower Cost Quicker
  • 6. The needle in the BIG DATA haystack What is OPEN DATA? The comedy answer is DATA that is OPEN… But it is as simple as that… Open data - data that can be made use of by anyone through analysis, linkages, and evidence based delivery. Real World Data – the Big Data of 2013!
  • 7. The needle in the BIG DATA haystack Numerous scientists have pointed out the irony that right at the historical moment when we have the technologies to permit worldwide availability and distributed process of scientific data, broadening collaboration and accelerating the pace and depth of discovery we are busy locking up that data and preventing the use of correspondingly advanced technologies on knowledge John Wilbanks, VP Science, Creative Commons Until now… UK PLC and a number of global Pharma all now have an Open Data strategy and will, in 2013, move to facilitate the use of BIG DATA in an OPEN way
  • 8. Blackpool Rock Data Information Insight Intelligence
  • 9. Open Data within Clinical Research Richard Corbridge Supporting research to make patients, and the NHS, better