Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.

Voice of the Patient: ePatient 2009


Published on

A presentation given at the ePatient 2009 conference in Philadelphia, talking about patient opinion leaders and how patient blogging affects the greater health community.

Published in: Health & Medicine
  • Be the first to comment

Voice of the Patient: ePatient 2009

  1. 1. Voice of the Patient ePatient2009 Conference Kerri Morrone Sparling
  2. 2. <ul><li>Before I was an ePatient, I was e-Impatient. Where were the other people living “real lives” with chronic illnesses, like me? </li></ul><ul><li>Was the only information online of the “horror story” variety? </li></ul>
  3. 3. <ul><li>I couldn’t find what I wanted, </li></ul><ul><li>so I had to create it for myself. </li></ul>
  4. 4. I Wasn’t Alone. <ul><li>SixUntilMe started in May 2005, one of the very first diabetes blogs. </li></ul><ul><li>Now there are more than 350 sites dedicated to diabetes lifestyle and management. </li></ul><ul><li>The diabetes community has stepped outside of the Internet and has in-person meet-ups. </li></ul>
  5. 6. <ul><li>Patient opinion leaders (POLs) are patient bloggers who have risen to become voices for their communities. </li></ul><ul><li>Connecting with the POL links you to their vast community of like-minded people who trust them to provide quality information with integrity. </li></ul>Why Do the “POLs” Matter?
  6. 7. <ul><li>We don’t blog because we HAVE to – we blog because it helps us heal. </li></ul>
  7. 8. <ul><li>Until there is a cure, there will be a blog. And while life with diabetes isn’t easy, sharing our collective stories and finding support in one another makes the burden so much lighter. </li></ul>