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Voice of the Patient: ePatient 2009

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A presentation given at the ePatient 2009 conference in Philadelphia, talking about patient opinion leaders and how patient blogging affects the greater health community.

Published in: Health & Medicine
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Voice of the Patient: ePatient 2009

  1. 1. Voice of the Patient ePatient2009 Conference Kerri Morrone Sparling www.sixuntilme.com
  2. 2. <ul><li>Before I was an ePatient, I was e-Impatient. Where were the other people living “real lives” with chronic illnesses, like me? </li></ul><ul><li>Was the only information online of the “horror story” variety? </li></ul>
  3. 3. <ul><li>I couldn’t find what I wanted, </li></ul><ul><li>so I had to create it for myself. </li></ul>
  4. 4. I Wasn’t Alone. <ul><li>SixUntilMe started in May 2005, one of the very first diabetes blogs. </li></ul><ul><li>Now there are more than 350 sites dedicated to diabetes lifestyle and management. </li></ul><ul><li>The diabetes community has stepped outside of the Internet and has in-person meet-ups. </li></ul>
  5. 6. <ul><li>Patient opinion leaders (POLs) are patient bloggers who have risen to become voices for their communities. </li></ul><ul><li>Connecting with the POL links you to their vast community of like-minded people who trust them to provide quality information with integrity. </li></ul>Why Do the “POLs” Matter?
  6. 7. <ul><li>We don’t blog because we HAVE to – we blog because it helps us heal. </li></ul>
  7. 8. <ul><li>Until there is a cure, there will be a blog. And while life with diabetes isn’t easy, sharing our collective stories and finding support in one another makes the burden so much lighter. </li></ul>

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