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Support after Winterbourne


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Talk describing the kind of support necessary to avoid institutionalisation and abuse.

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Support after Winterbourne

  1. 1. Personalised Supportthe alternative to institutional care Talk by Simon Duffy of The Centre for Welfare Reform for the Skills for Care Conference, 18th April, Taunton.
  2. 2. Support PlansSelf-Directed Support Supported Living InclusionCitizenship Keys to Personal Essential Lifestyle Planning Budgets Personalisation Home Ownership Individual Community Service Funds Individual Connecting Person Centred Planning Budgets Brokerage Personalised Support
  3. 3. “What did you think it was all about?”
  4. 4. My Poem They shoved me in a hostel As a guest of the Salvation Army, With the company of drunks and punks I’m a woman who has talent It was enough to send a poor lass barmy. That they can’t take away. I wonder why it had to be that all my life They tried with drugs. No one to love me And needles to dope me every day. No one to care No one to see Institutions stink, No one to listen properly. They make you want to puke, The doctors think they’re it So now my second life begun – And they’ll read you like a book. A new chance to live life through my son; A reason for living I have found I was kicked around and used And it’s going to be better second time round. Insulted and abused;They messed my mind right from the start So now I tell you Treated me like a dirty tart. I’ve got a voice I’ve got a right to make a choice. But it was them that did that, I’m not a toy for you to abuse It was them that scarred my mind, I’m a woman of spirit and now I’ll refuse…To takeIt was them that corrupted my innocence, that abuse anymore. And left me feeling that no one cared. Suzie Fothergill
  5. 5. Why is WinterbourneView not the exception but the rule?
  6. 6. its an institution
  7. 7. 1. It robs life of purpose
  8. 8. 2. It takes away freedom
  9. 9. 3. It keeps people poor
  10. 10. 4. It makes people homeless
  11. 11. 5. It corrupts need
  12. 12. 6. It limits contribution
  13. 13. 7. It disregards love
  14. 14. And the institution is still with us.
  15. 15. Institutions can belarge or small,far or near,cheap or costly... ...what they all have in common is they are systems of control
  16. 16. Too often,Community Careis the Institution without the Park
  17. 17. Institutions don’t forcepeople to do evil... ...they just make evil seem normal.
  18. 18. We are not condemned to repeat this pattern
  19. 19. We can chooseto supportcitizenship
  20. 20. 1. Help people find their purpose2. Let people be free3. Ensure people have enough money4. Find people real homes5. Offer the right kind of help6. Enable contribution to a full life7. Protect and foster love
  21. 21. This is not rhetoric orideology... is commonsense
  22. 22. 1. Citizenship is safe
  23. 23. Levels of Relative Risk
  24. 24. 2. Citizenship is sustainable
  25. 25. In 1968 there were 65,000 people ininstitutions. In 2010 there were11,000 in smaller privateinstitutions at a typical cost of£160,000 per person. We arespending the same money oninstitutions - but for about onesixth of the people.
  26. 26. 3. Citizenship is happiness
  27. 27. when people take back control
  28. 28. 4. Citizenship is right
  29. 29. Honour can exist anywhere, lovecan exist anywhere, but justice canexist only among people who foundtheir relationships upon it. Ursula Le Guin
  30. 30. Profound changes in skills, supports,services, and systems will be required.
  31. 31. 5 Basic Tasks of Support (O’Brien)
  32. 32. Individualised Service Design
  33. 33. Personalised Support
  34. 34. Self-Directed Support
  35. 35. We know what to do... ...are we ready to do it?
  36. 36. and can we do it at a time of crisis?
  37. 37. £72 billion of cuts
  38. 38. Most cuts fallin two areas:
  39. 39. To find out more •How the cuts target disabled people •What will happen in practice •Why this is happening download the