The Long JourneyDr Simon Duffy ￭ The Centre for Welfare Reform￭ 9th May 2013 ￭ NASDDDS Conference, Oklahoma CityAn International Perspective on Supporting Families andIndividuals with Developmental Disabilities
Thoughts I want to shareThe shadow of the institution is very longTaking citizenship seriously changes everythingThere is a bigger picture emergingIt is time to think more deeply
The world is a big place......and all we see are little pieces
Early successes includedShifting towards entitlements - not giftsGetting people truly flexible budgetsFocusing on outcomes - not servicesAvoiding the trap of ‘brokerage’Process of collective innovation
Self-directedsupportdevelopedquickly byfocusing onspaces forinnovationwithin theold system
In England early success has beensomewhat over-taken by mindlessimplementation of ‘the model’rather than on-going innovation.
Government spent £0.5 billion onimplementation:•more processes - not less•more specialist IT - in an open source world•more ‘consultants’•more middle-management•over-complication rather than simplification•burdening people and professionals•attention going upwards
Australia is now redesigning itswhole system around individualisedfunding and the promise of extrafunding
Different State systems are to be replaced withone Federally controlled system, self-management is a possibility, but:•care manager controlled•fear of entitlements•rationing through process•high risk of inflexibility•perverse incentives for all
Citizenship itself cannot be just a giftfrom smart well-intentionedprofessionalwe makepowertogether
Emerging questionsAre we entering a new and darker era?Can we see the new form that older evils take?Are we ready to defend each other?
...in the name of Enlightenment we are eliminating wholecategories of persons. For example: So overwhelming is ouranimus against the less-than-perfect that nearly 90% ofpregnancies that test positive for Down syndrome are aborted inthe United States today, all under the rubric of choice. In thename of expanding choice and eliminating suffering we arenarrowing our definition of humanity and, along the way, ourresponsibility to create welcoming environments for all children.Jean Bethke Elshtain from The Abolition of Man in C S Lewis asPhilosopher[figure for UK is 92%]
We see many different groups pulled into thesame kind of hell...
Could we take citizenship seriously?• Human rights at heart ofsystem• Minimum universal securitiesas rights• Fair and integrated tax-benefitsystem• Individual freedom for all• Families and communitiesrespected
Thank you USAfor the inspiration to beginfor the challenge to try and go furtherfor your willingness to reflect more deeplyfor your companionship in travelling hopefully
1.Visit our library or subscribe to The Centre forWelfare Reform:www.centreforwelfarereform.org2.Twitter users can follow @cforwr and@simonjduffy3.Like The Centre for Welfare Reform onFacebook