What Matters Most: Helping Youth with Disabilities and Their Families Flourish

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What Matters Most Youth with Disabilities, Their Families, and Compelling Congregational Supports Erik Carter | Institute on Disability and Theology | Summer 2012
Our Sacred Texts
Our Sacred Texts
From Position to Practice
See Appendix A of Carter, E. W. (2007). Including people with disabilities in faith communities: A guide for service providers, families, and congregations. Baltimore, MD: Paul H. Brookes. Position Statements
(1992, 1996, 2004) The Church and People with Mental, Physical, and/or Psychological Disabilities (1984, 1996, 2004) United Synagogue of Conservative Judaism Mezuzah Accessibility (1997) Measures for Persons with Disabilities (1991) See AppendixAll (2003) A of World Council of Churches A Church of All and For Carter, E. W. (2007). Including people with Interim Statement on the Theological and Empirical Understanding of the disabilities in faith communities: A guide for service Issue of Disabilities (1997) The Handicapped and the Wholeness of the Family of God (1975) providers, families, and congregations. Baltimore, MD: Paul H. Brookes.
Learning From Youth and Families in Tennessee
Learning From Youth and Families in Tennessee
500 400 300 110 200 242 100 0 Participants Youth and Families Flourishing Project
Other Developmental Disabilities Autism Intellectual Disability Disabilities The Labels We Use
Every Single Community
At Least One Relative 30% American Families Every Single Community
Black White Other Race/Ethnicity of Youth Every Race and Culture
5 6+ 0 4 3 1 2 Siblings Families Like Any Other
Yes No Poverty Status Economic Challenges
Mostly Inclusive Mostly Separate Some Inclusive Educational Setting Schools Like Any Other
One-to-One None Support in School Individual Support Needs
Often Never Sometimes Rarely How often does your child exhibit challenging behavior (e.g., aggression, self-injury)? Challenging Behavior
Strengths and Faith Young People with Developmental Disabilities
Gifts to Be Received
Autism is characterized by... Intellectual disability • Deficits in social-emotional reciprocity; ranging from is “a disability abnormal social approach and failure of normal back and forth conversation through reduced sharing of characterized by interests, emotions, and affect and response to total significant limitations lack of initiation of social interaction, both in intellectual • Deficits in nonverbal communicative behaviors used functioning and in for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through adaptive behavior, abnormalities in eye contact and body-language, or which covers many deficits in understanding and use of nonverbal everyday social and communication, to total lack of facial expression or practical skills.” gestures. AAIDD definition (2010) • Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and  in making friends  to an apparent absence of interest in people APA proposed definition (2012) Think Differently About How You Make Introductions
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness Enjoyment Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness 63% Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness 63% Self-Control 52% Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
My fai% ! somewhat or very impo&ant to me ... 100% 90% 87% 84% 80% 70% 60% 50% 40% 30% 20% 10% 0% People with Disabilities People without Disabilities NOD/Harris Interactive (2000)
My Child... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Child... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation ...enjoys being around others who share his/her faith 24% 46% 12% 17% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation ...enjoys being around others who share his/her faith 24% 46% 12% 17% ...faith impacts many of his/her decisions 14% 34% 29% 22% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
Spiritual Expressions Beyond ' Congregation
Daily or Weekly Monthly/Yearly Never
Daily or Weekly Monthly/Yearly Never Praying at Mealtime Praying at Bedtime Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites 10% 16% 73% Fasting
Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites 10% 16% 73% Fasting 2% 12% 86%
Spiritual Expressions Wi%in a Congregation
Weekly Monthly/Yearly Never
Weekly Monthly/Yearly Never Attending Worship Services Religious Education Classes Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips 1%8% 91% Other Forms of Service
Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips 1%8% 91% Other Forms of Service 4% 11% 84%
Faith & Strengths Faith & Child Well-Being Faith & Family QOL
Supporting Families Some Opportunities Awaiting Congregations
My Fai%... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Fai%... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation I enjoy being around others who share my faith 48% 40% 7% 5% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation I enjoy being around others who share my faith 48% 40% 7% 5% My faith impacts many of my decisions 57% 31% 6% 6% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
No Religious Tradition Baptist Catholic Non-denominational Christian Presbyterian Methodist Church of Christ Unitarian Episcopal Church of God Church of the Nazarene Pentecostal Seventh-Day Adventist Jewish Buddhist Christian Missionary Holiness Lutheran Mormon Baha’i Christian Reformed Congregational Disciples of Christ Jehovah’s Witnesses Muslim Other 0 25 50 75 Participating Parents
Never Yearly Weekly Monthly Attendance 800+ <100 100-299 300-799 Faith Community Size
350,000 300,000 250,000 200,000 335,000 150,000 100,000 50,000 0 Congregations Congregational Supports
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events 27% 16% 57% More Physically Accessible Congregtation
How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events 27% 16% 57% More Physically Accessible Congregtation 27% 13% 60%
Does Y$r Congregation Actually Offer -!...
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
Does Y$r Congregation Actually Offer -!... 6% Disability Awareness Efforts 4% Advocate to Work with Families 9% Support Group for Parents 2% Resource Center for Families 28% Spiritual Counseling From A Leader 8% Respite Care 9% Modifications to Religious Education 7% Spiritual/Religious Education Plan 15% Support in Religious Education 10% Support During Worship Services 4% Special Worship Services 13% Financial Support 10% Transportation to Church Events 19% More Physically Accessible Congregtation
Congregational Inclusion
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10%
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services ...people with ID/ASD are attending our religious education 57% 23% 20% programs
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services ...people with ID/ASD are attending our religious education 57% 23% 20% programs ...people with ID/ASD interact with people without disabilities during 55% 27% 18% religious education programs
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members ...our leadership demonstrates a commitment to including people 58% 28% 14% with ID/ASD
At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members ...our leadership demonstrates a commitment to including people 58% 28% 14% with ID/ASD ...I am very satisfied with how welcoming others are of people 62% 31% 7% with ID/ASD
Our Next Steps
Where Might You Go?
Where Might You Go?
A Few Ideas
erik.carter@vanderbilt.edu
1 of 143

What Matters Most: Helping Youth with Disabilities and Their Families Flourish

••
SpiritualHealth & Medicine

These slides are from the Summer Institute on Theology and Disability held in Summer 2012. I presented interim data from an ongoing student focused on the strengths, supports, spirituality, and well-being of youth with intellectual disabilities or autism. For more information about this study and its findings, contact Erik Carter using the e-mail address on the final slide.

S
shercarter

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What Matters Most: Helping Youth with Disabilities and Their Families Flourish

  • 1. What Matters Most Youth with Disabilities, Their Families, and Compelling Congregational Supports Erik Carter | Institute on Disability and Theology | Summer 2012
  • 4. From Position to Practice
  • 5. See Appendix A of Carter, E. W. (2007). Including people with disabilities in faith communities: A guide for service providers, families, and congregations. Baltimore, MD: Paul H. Brookes. Position Statements
  • 6. (1992, 1996, 2004) The Church and People with Mental, Physical, and/or Psychological Disabilities (1984, 1996, 2004) United Synagogue of Conservative Judaism Mezuzah Accessibility (1997) Measures for Persons with Disabilities (1991) See AppendixAll (2003) A of World Council of Churches A Church of All and For Carter, E. W. (2007). Including people with Interim Statement on the Theological and Empirical Understanding of the disabilities in faith communities: A guide for service Issue of Disabilities (1997) The Handicapped and the Wholeness of the Family of God (1975) providers, families, and congregations. Baltimore, MD: Paul H. Brookes.
  • 7. Learning From Youth and Families in Tennessee
  • 8. Learning From Youth and Families in Tennessee
  • 9. 500 400 300 110 200 242 100 0 Participants Youth and Families Flourishing Project
  • 10. Other Developmental Disabilities Autism Intellectual Disability Disabilities The Labels We Use
  • 12. At Least One Relative 30% American Families Every Single Community
  • 13. Black White Other Race/Ethnicity of Youth Every Race and Culture
  • 14. 5 6+ 0 4 3 1 2 Siblings Families Like Any Other
  • 15. Yes No Poverty Status Economic Challenges
  • 16. Mostly Inclusive Mostly Separate Some Inclusive Educational Setting Schools Like Any Other
  • 17. One-to-One None Support in School Individual Support Needs
  • 18. Often Never Sometimes Rarely How often does your child exhibit challenging behavior (e.g., aggression, self-injury)? Challenging Behavior
  • 19. Strengths and Faith Young People with Developmental Disabilities
  • 20. Gifts to Be Received
  • 21. Autism is characterized by... Intellectual disability • Deficits in social-emotional reciprocity; ranging from is “a disability abnormal social approach and failure of normal back and forth conversation through reduced sharing of characterized by interests, emotions, and affect and response to total significant limitations lack of initiation of social interaction, both in intellectual • Deficits in nonverbal communicative behaviors used functioning and in for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through adaptive behavior, abnormalities in eye contact and body-language, or which covers many deficits in understanding and use of nonverbal everyday social and communication, to total lack of facial expression or practical skills.” gestures. AAIDD definition (2010) • Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and  in making friends  to an apparent absence of interest in people APA proposed definition (2012) Think Differently About How You Make Introductions
  • 22. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 23. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness Enjoyment Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 24. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 25. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 26. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 27. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 28. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 29. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 30. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 31. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 32. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 33. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness 63% Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 34. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness 63% Self-Control 52% Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  • 35. My fai% ! somewhat or very impo&ant to me ... 100% 90% 87% 84% 80% 70% 60% 50% 40% 30% 20% 10% 0% People with Disabilities People without Disabilities NOD/Harris Interactive (2000)
  • 36. My Child... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 37. My Child... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 38. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 39. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 40. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 41. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation ...enjoys being around others who share his/her faith 24% 46% 12% 17% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 42. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation ...enjoys being around others who share his/her faith 24% 46% 12% 17% ...faith impacts many of his/her decisions 14% 34% 29% 22% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 43. Spiritual Expressions Beyond ' Congregation
  • 44. Daily or Weekly Monthly/Yearly Never
  • 45. Daily or Weekly Monthly/Yearly Never Praying at Mealtime Praying at Bedtime Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 46. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 47. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 48. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 49. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 50. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 51. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 52. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 53. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 54. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 55. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 56. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  • 57. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions Religious Websites Fasting
  • 58. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites Fasting
  • 59. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites 10% 16% 73% Fasting
  • 60. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites 10% 16% 73% Fasting 2% 12% 86%
  • 61. Spiritual Expressions Wi%in a Congregation
  • 62. Weekly Monthly/Yearly Never
  • 63. Weekly Monthly/Yearly Never Attending Worship Services Religious Education Classes Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 64. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 65. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 66. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 67. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 68. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 69. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 70. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 71. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 72. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 73. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 74. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 75. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 76. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  • 77. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage Mission Trips Other Forms of Service
  • 78. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips Other Forms of Service
  • 79. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips 1%8% 91% Other Forms of Service
  • 80. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips 1%8% 91% Other Forms of Service 4% 11% 84%
  • 81. Faith & Strengths Faith & Child Well-Being Faith & Family QOL
  • 82. Supporting Families Some Opportunities Awaiting Congregations
  • 83. My Fai%... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 84. My Fai%... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 85. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 86. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 87. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 88. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation I enjoy being around others who share my faith 48% 40% 7% 5% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 89. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation I enjoy being around others who share my faith 48% 40% 7% 5% My faith impacts many of my decisions 57% 31% 6% 6% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  • 90. No Religious Tradition Baptist Catholic Non-denominational Christian Presbyterian Methodist Church of Christ Unitarian Episcopal Church of God Church of the Nazarene Pentecostal Seventh-Day Adventist Jewish Buddhist Christian Missionary Holiness Lutheran Mormon Baha’i Christian Reformed Congregational Disciples of Christ Jehovah’s Witnesses Muslim Other 0 25 50 75 Participating Parents
  • 91. Never Yearly Weekly Monthly Attendance 800+ <100 100-299 300-799 Faith Community Size
  • 92. 350,000 300,000 250,000 200,000 335,000 150,000 100,000 50,000 0 Congregations Congregational Supports
  • 93. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All
  • 94. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 95. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 96. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 97. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 98. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 99. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 100. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 101. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 102. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 103. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 104. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 105. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 106. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events More Physically Accessible Congregtation
  • 107. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events 27% 16% 57% More Physically Accessible Congregtation
  • 108. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events 27% 16% 57% More Physically Accessible Congregtation 27% 13% 60%
  • 109. Does Y$r Congregation Actually Offer -!...
  • 110. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 111. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 112. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 113. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 114. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 115. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 116. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 117. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 118. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 119. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 120. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 121. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 122. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 123. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 124. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  • 125. Does Y$r Congregation Actually Offer -!... 6% Disability Awareness Efforts 4% Advocate to Work with Families 9% Support Group for Parents 2% Resource Center for Families 28% Spiritual Counseling From A Leader 8% Respite Care 9% Modifications to Religious Education 7% Spiritual/Religious Education Plan 15% Support in Religious Education 10% Support During Worship Services 4% Special Worship Services 13% Financial Support 10% Transportation to Church Events 19% More Physically Accessible Congregtation
  • 127. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know
  • 128. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know
  • 129. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10%
  • 130. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services
  • 131. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services ...people with ID/ASD are attending our religious education 57% 23% 20% programs
  • 132. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services ...people with ID/ASD are attending our religious education 57% 23% 20% programs ...people with ID/ASD interact with people without disabilities during 55% 27% 18% religious education programs
  • 133. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know
  • 134. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know
  • 135. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders
  • 136. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members
  • 137. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members ...our leadership demonstrates a commitment to including people 58% 28% 14% with ID/ASD
  • 138. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members ...our leadership demonstrates a commitment to including people 58% 28% 14% with ID/ASD ...I am very satisfied with how welcoming others are of people 62% 31% 7% with ID/ASD

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  165. Where are we going next? Remember that this is an interim snapshot of the experiences of Tennessee families. We hope to involve another 250 families. Our team (which includes a couple of doctoral students here this week--Thomas Boehm and Naomi Annandale) will shortly turn to interviewing as many as 50 young people with disabilities and their families to better understand their faith journeys, the supports they need to flourish in this area, and the ways in which congregations might extend a deeper welcome and richer support to these young people. Moving forward, we&amp;#x2019;ll also turn toward our focus toward congregations to better understand how they impacted by the presence, participation, and gifts of people with disabilities. We also hope to refine one of our reflection tools so that congregations can better use it to identify starting points for change efforts. Tomorrow afternoon, there will be a symposium time to discuss some of the research and writing interests many of you hold. Perhaps there are ways we might partner together. \n
  166. Let&amp;#x2019;s return back to Chicago and to each of you. How might you draw upon this small snapshot into the lives of young people with disabilities and their families in your own work?\n
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  168. With my time running short, let me close by thanking Bill Gaventa, David Morstat, and Bethesda Institute for the generous invitation to join you today and the very wonderful opportunity to learn alongside you this week. I look forward to the discussions that lie ahead this afternoon and throughout the week.\n\nThank you!\n