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What Matters Most: Helping Youth with Disabilities and Their Families Flourish

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What Matters Most: Helping Youth with Disabilities and Their Families Flourish

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These slides are from the Summer Institute on Theology and Disability held in Summer 2012. I presented interim data from an ongoing student focused on the strengths, supports, spirituality, and well-being of youth with intellectual disabilities or autism. For more information about this study and its findings, contact Erik Carter using the e-mail address on the final slide.

These slides are from the Summer Institute on Theology and Disability held in Summer 2012. I presented interim data from an ongoing student focused on the strengths, supports, spirituality, and well-being of youth with intellectual disabilities or autism. For more information about this study and its findings, contact Erik Carter using the e-mail address on the final slide.

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What Matters Most: Helping Youth with Disabilities and Their Families Flourish

  1. 1. What Matters Most Youth with Disabilities, Their Families, and Compelling Congregational Supports Erik Carter | Institute on Disability and Theology | Summer 2012
  2. 2. Our Sacred Texts
  3. 3. Our Sacred Texts
  4. 4. From Position to Practice
  5. 5. See Appendix A of Carter, E. W. (2007). Including people with disabilities in faith communities: A guide for service providers, families, and congregations. Baltimore, MD: Paul H. Brookes. Position Statements
  6. 6. (1992, 1996, 2004) The Church and People with Mental, Physical, and/or Psychological Disabilities (1984, 1996, 2004) United Synagogue of Conservative Judaism Mezuzah Accessibility (1997) Measures for Persons with Disabilities (1991) See AppendixAll (2003) A of World Council of Churches A Church of All and For Carter, E. W. (2007). Including people with Interim Statement on the Theological and Empirical Understanding of the disabilities in faith communities: A guide for service Issue of Disabilities (1997) The Handicapped and the Wholeness of the Family of God (1975) providers, families, and congregations. Baltimore, MD: Paul H. Brookes.
  7. 7. Learning From Youth and Families in Tennessee
  8. 8. Learning From Youth and Families in Tennessee
  9. 9. 500 400 300 110 200 242 100 0 Participants Youth and Families Flourishing Project
  10. 10. Other Developmental Disabilities Autism Intellectual Disability Disabilities The Labels We Use
  11. 11. Every Single Community
  12. 12. At Least One Relative 30% American Families Every Single Community
  13. 13. Black White Other Race/Ethnicity of Youth Every Race and Culture
  14. 14. 5 6+ 0 4 3 1 2 Siblings Families Like Any Other
  15. 15. Yes No Poverty Status Economic Challenges
  16. 16. Mostly Inclusive Mostly Separate Some Inclusive Educational Setting Schools Like Any Other
  17. 17. One-to-One None Support in School Individual Support Needs
  18. 18. Often Never Sometimes Rarely How often does your child exhibit challenging behavior (e.g., aggression, self-injury)? Challenging Behavior
  19. 19. Strengths and Faith Young People with Developmental Disabilities
  20. 20. Gifts to Be Received
  21. 21. Autism is characterized by... Intellectual disability • Deficits in social-emotional reciprocity; ranging from is “a disability abnormal social approach and failure of normal back and forth conversation through reduced sharing of characterized by interests, emotions, and affect and response to total significant limitations lack of initiation of social interaction, both in intellectual • Deficits in nonverbal communicative behaviors used functioning and in for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through adaptive behavior, abnormalities in eye contact and body-language, or which covers many deficits in understanding and use of nonverbal everyday social and communication, to total lack of facial expression or practical skills.” gestures. AAIDD definition (2010) • Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and  in making friends  to an apparent absence of interest in people APA proposed definition (2012) Think Differently About How You Make Introductions
  22. 22. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  23. 23. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness Enjoyment Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  24. 24. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  25. 25. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  26. 26. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  27. 27. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  28. 28. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  29. 29. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  30. 30. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  31. 31. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  32. 32. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  33. 33. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness 63% Self-Control Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  34. 34. How much ! each trait characte"#ic of y$r child? Somewhat-Extremely A Little Not at All Happiness 93% Enjoyment 86% Humor 86% Kindness 85% Caring 82% Thankfulness 79% Empathy 78% Courage 74% Resilience 68% Forgivness 63% Self-Control 52% Items drawn from the Assessment Scale for Positive Character Traits-Developmental Disabilities (Woodard, 2009)
  35. 35. My fai% ! somewhat or very impo&ant to me ... 100% 90% 87% 84% 80% 70% 60% 50% 40% 30% 20% 10% 0% People with Disabilities People without Disabilities NOD/Harris Interactive (2000)
  36. 36. My Child... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  37. 37. My Child... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  38. 38. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  39. 39. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  40. 40. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  41. 41. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation ...enjoys being around others who share his/her faith 24% 46% 12% 17% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  42. 42. My Child... Strongly agree Agree Disagree Strongly disagree ...prays daily 21% 34% 25% 20% ...looks to his/her faith as providing meaning and purpose in 18% 39% 23% 20% his/her life ...considers himself/herself to be active in his/her faith community 22% 37% 19% 22% or congregation ...enjoys being around others who share his/her faith 24% 46% 12% 17% ...faith impacts many of his/her decisions 14% 34% 29% 22% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  43. 43. Spiritual Expressions Beyond ' Congregation
  44. 44. Daily or Weekly Monthly/Yearly Never
  45. 45. Daily or Weekly Monthly/Yearly Never Praying at Mealtime Praying at Bedtime Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  46. 46. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  47. 47. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  48. 48. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  49. 49. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  50. 50. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  51. 51. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  52. 52. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  53. 53. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  54. 54. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  55. 55. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  56. 56. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others Celebrating Religious Traditions Religious Websites Fasting
  57. 57. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions Religious Websites Fasting
  58. 58. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites Fasting
  59. 59. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites 10% 16% 73% Fasting
  60. 60. Daily or Weekly Monthly/Yearly Never Praying at Mealtime 68% 18% 13% Praying at Bedtime 59% 7% 34% Reading/Listening Scripture 54% 18% 28% Religious Music 49% 18% 33% Praying with Family Members 45% 25% 30% Talking About Spiritual Ideas 42% 17% 42% Sabbath/Lord’s Day 41% 6% 53% Contributing Money 38% 20% 42% Personal Devotions 29% 10% 62% Family Devotions 27% 15% 59% Watching Religious TV/Movies 24% 36% 40% Sharing One’s Faith with Others 19% 20% 61% Celebrating Religious Traditions 12% 77% 12% Religious Websites 10% 16% 73% Fasting 2% 12% 86%
  61. 61. Spiritual Expressions Wi%in a Congregation
  62. 62. Weekly Monthly/Yearly Never
  63. 63. Weekly Monthly/Yearly Never Attending Worship Services Religious Education Classes Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  64. 64. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  65. 65. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  66. 66. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  67. 67. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  68. 68. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  69. 69. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  70. 70. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  71. 71. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  72. 72. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  73. 73. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  74. 74. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  75. 75. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  76. 76. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats Rites of Passage Mission Trips Other Forms of Service
  77. 77. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage Mission Trips Other Forms of Service
  78. 78. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips Other Forms of Service
  79. 79. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips 1%8% 91% Other Forms of Service
  80. 80. Weekly Monthly/Yearly Never Attending Worship Services 64% 23% 12% Religious Education Classes 46% 16% 37% Youth Group 24% 12% 64% Small Group 21% 8% 71% Sacraments 12% 31% 57% Prayer Meetings 10% 10% 80% Choir or Music Team 8% 8% 84% Social Events 8% 52% 40% Greeter or Usher 7% 14% 78% Local Outreach Ministries 6% 28% 66% Acolyte or Altar Server 3% 3% 94% Leading Prayers During Services 3% 9% 88% Leading Scripture Readings 3% 4% 92% Youth Retreats 2% 26% 71% Rites of Passage 2% 17% 81% Mission Trips 1%8% 91% Other Forms of Service 4% 11% 84%
  81. 81. Faith & Strengths Faith & Child Well-Being Faith & Family QOL
  82. 82. Supporting Families Some Opportunities Awaiting Congregations
  83. 83. My Fai%... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  84. 84. My Fai%... Strongly agree Agree Disagree Strongly disagree Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  85. 85. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  86. 86. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  87. 87. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  88. 88. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation I enjoy being around others who share my faith 48% 40% 7% 5% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  89. 89. My Fai%... Strongly agree Agree Disagree Strongly disagree I pray daily 46% 30% 15% 8% I look to my faith as providing meaning and purpose in my life 59% 31% 4% 6% I consider myself to be active in my faith community or 41% 30% 20% 9% congregation I enjoy being around others who share my faith 48% 40% 7% 5% My faith impacts many of my decisions 57% 31% 6% 6% Items drawn from the Santa Clara Strength of Religious Faith Questionnaire (Plante et al., 2002)
  90. 90. No Religious Tradition Baptist Catholic Non-denominational Christian Presbyterian Methodist Church of Christ Unitarian Episcopal Church of God Church of the Nazarene Pentecostal Seventh-Day Adventist Jewish Buddhist Christian Missionary Holiness Lutheran Mormon Baha’i Christian Reformed Congregational Disciples of Christ Jehovah’s Witnesses Muslim Other 0 25 50 75 Participating Parents
  91. 91. Never Yearly Weekly Monthly Attendance 800+ <100 100-299 300-799 Faith Community Size
  92. 92. 350,000 300,000 250,000 200,000 335,000 150,000 100,000 50,000 0 Congregations Congregational Supports
  93. 93. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All
  94. 94. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  95. 95. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  96. 96. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  97. 97. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  98. 98. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  99. 99. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  100. 100. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  101. 101. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  102. 102. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  103. 103. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  104. 104. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  105. 105. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support Transportation to Church Events More Physically Accessible Congregtation
  106. 106. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events More Physically Accessible Congregtation
  107. 107. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events 27% 16% 57% More Physically Accessible Congregtation
  108. 108. How hel(ul w$ld %! b).. Somewhat or Very A Little Not at All Disability Awareness Efforts 76% 9% 14% Advocate to Work with Families 73% 12% 15% Support Group for Parents 70% 17% 13% Resource Center for Families 70% 16% 14% Spiritual Counseling From A Leader 65% 16% 19% Respite Care 64% 15% 21% Modifications to Religious Education 61% 13% 26% Spiritual/Religious Education Plan 61% 13% 27% Support in Religious Education 56% 15% 30% Support During Worship Services 48% 10% 42% Special Worship Services 48% 10% 43% Financial Support 39% 18% 43% Transportation to Church Events 27% 16% 57% More Physically Accessible Congregtation 27% 13% 60%
  109. 109. Does Y$r Congregation Actually Offer -!...
  110. 110. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  111. 111. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  112. 112. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  113. 113. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  114. 114. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  115. 115. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  116. 116. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  117. 117. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  118. 118. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  119. 119. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  120. 120. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  121. 121. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  122. 122. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  123. 123. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  124. 124. Does Y$r Congregation Actually Offer -!... Disability Awareness Efforts Advocate to Work with Families Support Group for Parents Resource Center for Families Spiritual Counseling From A Leader Respite Care Modifications to Religious Education Spiritual/Religious Education Plan Support in Religious Education Support During Worship Services Special Worship Services Financial Support Transportation to Church Events More Physically Accessible Congregtation
  125. 125. Does Y$r Congregation Actually Offer -!... 6% Disability Awareness Efforts 4% Advocate to Work with Families 9% Support Group for Parents 2% Resource Center for Families 28% Spiritual Counseling From A Leader 8% Respite Care 9% Modifications to Religious Education 7% Spiritual/Religious Education Plan 15% Support in Religious Education 10% Support During Worship Services 4% Special Worship Services 13% Financial Support 10% Transportation to Church Events 19% More Physically Accessible Congregtation
  126. 126. Congregational Inclusion
  127. 127. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know
  128. 128. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know
  129. 129. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10%
  130. 130. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services
  131. 131. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services ...people with ID/ASD are attending our religious education 57% 23% 20% programs
  132. 132. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I don’t know ...people with ID/ASD are present during our worship services 74% 16% 10% ...people with ID/ASD interact with members without disabilities 67% 22% 11% during our worship services ...people with ID/ASD are attending our religious education 57% 23% 20% programs ...people with ID/ASD interact with people without disabilities during 55% 27% 18% religious education programs
  133. 133. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know
  134. 134. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know
  135. 135. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders
  136. 136. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members
  137. 137. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members ...our leadership demonstrates a commitment to including people 58% 28% 14% with ID/ASD
  138. 138. At my congregation... Agree/Strongly Agree Disagree/Strongly Disagree I Don’t Know ...my child with disabilities is accepted by congregational 84% 10%7% leaders ...my child with disabilities is accepted by other congregation 81% 12% 7% members ...our leadership demonstrates a commitment to including people 58% 28% 14% with ID/ASD ...I am very satisfied with how welcoming others are of people 62% 31% 7% with ID/ASD
  139. 139. Our Next Steps
  140. 140. Where Might You Go?
  141. 141. Where Might You Go?
  142. 142. A Few Ideas
  143. 143. erik.carter@vanderbilt.edu

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  • Where are we going next? Remember that this is an interim snapshot of the experiences of Tennessee families. We hope to involve another 250 families. Our team (which includes a couple of doctoral students here this week--Thomas Boehm and Naomi Annandale) will shortly turn to interviewing as many as 50 young people with disabilities and their families to better understand their faith journeys, the supports they need to flourish in this area, and the ways in which congregations might extend a deeper welcome and richer support to these young people. Moving forward, we&amp;#x2019;ll also turn toward our focus toward congregations to better understand how they impacted by the presence, participation, and gifts of people with disabilities. We also hope to refine one of our reflection tools so that congregations can better use it to identify starting points for change efforts. Tomorrow afternoon, there will be a symposium time to discuss some of the research and writing interests many of you hold. Perhaps there are ways we might partner together. \n
  • Let&amp;#x2019;s return back to Chicago and to each of you. How might you draw upon this small snapshot into the lives of young people with disabilities and their families in your own work?\n
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  • With my time running short, let me close by thanking Bill Gaventa, David Morstat, and Bethesda Institute for the generous invitation to join you today and the very wonderful opportunity to learn alongside you this week. I look forward to the discussions that lie ahead this afternoon and throughout the week.\n\nThank you!\n
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