<ul><li>MISSION </li></ul><ul><li>To mobilise resources in order to provide curative, preventive, research and support services to cancer patients and their families, high risk groups and the general public, in Malaysia and the World. </li></ul><ul><li>MAKNA is a registered charity with the Registrar of Societies on 10 November 1994 </li></ul><ul><li>Launched on 30 th March 1995 </li></ul><ul><li>Patron : Ke Bawah Duli Yang Maha Mulia Sultan Pahang </li></ul><ul><li>Entity : SOCIAL ENTERPRISE </li></ul><ul><li>Affiliated to UICC (International Union Against Cancer – dedicated to Global prevention and control of cancer) </li></ul>
Dato' Mohd Farid Arifin has vast management, organisational and entrepreneurship experience , having served as a teacher, lecturer and lawyer and later as Deputy Finance Minister (1987 – 1989) and Deputy Health Minister (1989 – 1995). MAKNA was set up from his own family experience, and today it is a home-grown organisation fully focused on cancer. Dato’ Mohd Farid Ariffin Founder and President, MAKNA
TAN SRI ZAIN HASHIM – Chairman of Amsteel Corp Bhd, Dir Lion Group BOARD OF TRUSTEES PATRON KE BAWAH DULI YANG MAHA MULIA SULTAN PAHANG YAM TENGKU PUTERI LELAWANGSA TENGKU TAN SRI HAJJAH MERIAM People Behind MAKNA
Vice President – PROF EMERITUS DR CHEONG SOON KENG – Lecturer IMU & Heamatologist Honorary Secretary ERIC LAI TUCK SING Lawyer, Lai & Associate Asst Honorary Secretary - DATIN FREIDA DATO MOHD PILUS – Chairman Sek Sri Cempaka (Int) Asst Honorary Treasurer ZAINOL TALIB Charted Fin Consultant & Life Underwriter Training Council Fellow <ul><li>Member </li></ul><ul><li>PUAN MIMI HAFIZAN </li></ul><ul><li>ABDUL RAHMAN </li></ul><ul><li>– Director of Klinik Nina </li></ul>Member - MS YEO ENG LAM – MD Kemajuan Abadi Sdn Bhd Honorary Tr easurer - DOUGLAS TAN HOCK KEE - Exec Dir, Asian Business Solutions Sdn Bhd Member - PROF. DATIN PADUKA DR AINI IDERIS – Deputy Vice Canselor UPM Member – TOH PUAN SRI SAGIYAH SALIKIN – wife to Chairman of PNB Tun Dato’ Seri Ahmad Sarji Member - PROF. DR. JAFRI MALIN ABDULLAH – Head of Dept Sch of Medicine HUSM Kubang K erian, Kelantan Member - PROF. MADYA DR ISHAK MAT – Deputy Dir Research Advance Media & Dental Institute USM, Penang The EXECUTIVE COMMITTEE
Also known as Kemunting Cina – has 2 alkaloids called Vinblastine and Vincristine – used either alone or in combination with other forms of therapy for cancer treatment (chemotherapy) Also known as Kemunting Cina – has 2 alkaloids called Vinblastine and Vincristine – used either alone or in combination with other forms of therapy for cancer treatment (chemotherapy) PERIWINKLE
We are trusted by… PATIENTS DONORS MINISTRY OF HEALTH MINISTRY OF FINANCE MINISTRY OF EDUCATION MINISTRY OF HIGHER EDUCATION CORPORATE SPONSORS We are audited by… We are tax exempted… *Dikecualikan cukai pendapatan menurut seksyen 44 (6) Akta Cukai Pendapatan 1967 : RUJ: LHDN. 01/35/42/51/179-6.4232 Nombor Warta Kerajaan 2153 bertarikh 30 Mac 1995
TREATMENT RESEARCH CANCER AWARENESS & EDUCATION SUPPORT SERVICES FUNDRAISING MAKNA CORE ACTIVITIES
<ul><li>Your long Term support </li></ul><ul><li>is essential </li></ul><ul><li>RM85.5 million is needed to fund all MAKNA </li></ul><ul><li>cancer projects for 5 years </li></ul><ul><li>An average patients needs 5 years for full recovery </li></ul><ul><li>An average patient’s treatment cost is RM50,000 </li></ul>YEAR INCOME EXPENDITURE 1995 3,611,682 247,954 1996 22,428,867 696,346 1997 2,816,682 1,431,106 1998 3,530,298 576,932 1999 2,769,835 1,203,054 2000 1,797,910 3,924,489 2001 2,533,504 4,087,888 2002 2,156,684 4,474,615 2003 8,758,452 6,662,388 2004 14,857,936 9,035,665 2005 16,994,315 10,354,002 2006 18,237,697 14,139,424 2007 20,828,134 20,464,291 2008 22,987,110 21,962,846 2009 25,063,910 23,146,604 2010 25,326,083 23,870,812
Pusat Kanser PPUKM – MAKNA (since 19 April, 1999) Pusat Perubatan Universiti Kebangsaan Malaysia (PPUKM)
Oncology Ward – 28 b edded Male & Female Ward Bone Marrow Transplant Unit – 12 bedded Radiotherapy Unit Over 150,000 cases treated Over 200 bone m arrow transplant conducted Divided into p aying & non-paying patients Nurse to patient ratio 1:7 Operational costs: RM 3 million a year (approx)
Pusat Kanser PPUKM - MAKNA PATIENT FRANCO TAN, SABAH PATIENT HELDEEN DONNY 14 YEARS, KENINGAU SABAH – 100 TH TRANSPLANT AUG 2007
MAKNA Cancer Research Collaboration aims to promote and enhance cancer research among local scientists. <ul><li>Research topics covered:- </li></ul><ul><li>Basic Research </li></ul><ul><li>Preclinical Research </li></ul><ul><li>Clinical Research </li></ul><ul><li>Epidemiology Research </li></ul><ul><li>Health policy & outcomes Research </li></ul>Since 2001 MAKNA has invested in 17 collaborative efforts where 30 research topics have been initiated. RM 9.3 million INVESTED
<ul><li>Areas of Research: </li></ul><ul><li>Development of New Drugs – 6 projects </li></ul><ul><li>Study on Food – 4 projects </li></ul><ul><li>Survey (cancer screening / poverty) – 2 projects </li></ul><ul><li>Developments of screening tools – 1 project (cervical cancer </li></ul><ul><li>Bone Marrow Donor Registry – Institute Medical Research (IMR) </li></ul><ul><li>MAKNA Cancer Research Award (Academy of Science Malaysia) </li></ul><ul><li>Collaboration with Higher Learning Institutions (IPTA & IPTS) & Research Institutions - IMR </li></ul><ul><li>Projects are evaluated by a technical committee and approved by MAKNA EXCO before dispersal of funds </li></ul><ul><li>7 projects undergoing pre-clinical trials (animal studies) </li></ul><ul><li>Produced 13 Ph.D & 53 Master </li></ul>
LUMINEX MACHINE Automated HLA typing of samples Human Leukocyte Antigen (HLA) typing, determines whether a patient has a suitable donor for stem cell transplant. These tests are performed on several tubes of blood drawn from the arm. Capabilities : 40 samples a day Purpose : to increase the chances of a match from a non-related donor Possibilities : linked to international registries Total capital costs : RM 265 000 BONE MARROW DONOR REGISTRY The Malaysian Marrow Donor Registry is dedicated to compiling a database of volunteers who have registered to become bone marrow donors. This database offers a chance to patients who are suffering from life-threatening blood disorders and are unable to find a suitable donor from their siblings. The MMDR was setup in December 1999. It is a joint project of the MAKNA, the Ministry of Health and the Institute of Medical Research. As at 20 June 2010 we have more than 16,432 registered donors from 14,823 in 2009. Eligibility to donate – between 18 to 50 years old Luminex machine Bone Marrow Donor Registry - IMR Jalan Ampang KL Tel: 03-2616 2790 E-mail: firstname.lastname@example.org
Development of Cancer Vaccine from Newcastle Disease Virus (NDV) Principal Researcher Prof. Datuk Paduka Dr. Aini Ideris (UPM) - Breast Prof. Dr. Jafri Malin Dato’ Haji Abdullah (HUSM) - Brain Team Members Prof. Dr. Manaf Ali - Leukemia Prof. Dr. Fauziah Othman Prof. Datin Paduka Dr. Khatijah Yusoff Prof. Dr. Abd Rahman Omar Induce tumor to nude mice Induce NDV virus from chicken Cost per nude mice: RM2,000 – Australia RM200 – local e.g. IMR Nude Mice life span: 6 months Note: Utusan Malaysia, 12 April, 2007 After 10 days tumor disappears Amount Allocated RM2,125,500 Project Duration 2001-2011 Research Findings: NDV Virus can be used as an anti-cancer agent (Breast Cancer / Brain Tumor & Leukemia) Stage: Pre-clinical End
MAKNA is continuously undertaking nationwide education and awareness programmes to address the lack of cancer knowledge in our community.
Booklets Website Calendars Display Panels Annual Report Human Anatomy Banner & Buntings Newspaper Articles Exhibitions Materials Newsletter & Editorials Flyers, Leaflets & Posters Radio & TV Community Announcements
Pusat Kanser PPUKM – MAKNA Nurses MAKNA-Parkson Grand-Pathlab Blood glucose Test Campaign
MAKNA has initiated numerous programmes to support cancer sufferers and their families. Service to the community
BURSARY PROGRAMME – Financial Services The Bursary Programme provides monthly financial assistance of RM 150- RM 500, purchasing of surgical equipment and expensive drugs to needy cancer patients upon referral from Hospital Medical Welfare Departments. Yearly, MAKNA aids over 4,000 patients through this programme. Interventions are in the form of:- <ul><ul><li>urostomy / colostomy bags for 6 months to 1 year </li></ul></ul><ul><ul><li>chemoports used in delivery of chemotherapy drugs </li></ul></ul><ul><ul><li>liquid food (special diet) & palliative care </li></ul></ul><ul><ul><li>prosthesis (cornea/breasts/femur etc) </li></ul></ul><ul><ul><li>non-formulary drugs </li></ul></ul><ul><ul><li>hearing aid </li></ul></ul><ul><ul><li>suction machine </li></ul></ul><ul><ul><li>metallic stent </li></ul></ul><ul><ul><li>diapers </li></ul></ul><ul><ul><li>ripple mattress </li></ul></ul><ul><ul><li>oxygen concentrator </li></ul></ul><ul><ul><li>Petty cash to Welfare Departments in emergency cases </li></ul></ul><ul><ul><li>crutches / walking sticks </li></ul></ul><ul><ul><li>portable / mobile toilet </li></ul></ul><ul><ul><li>Wheelchairs </li></ul></ul><ul><ul><li>total body irradiation </li></ul></ul><ul><ul><li>Funeral Expenses </li></ul></ul>
MAKNA Government Hospital notify patient Private Hospital refer to notify jabatan kerja sosial perubatan MAKNA process - 2 weeks refer to MAKNA Expenditure: RM 9 million a year (approx) Referrals received from 75 hospitals through out Malaysia (general & district hospitals). Majority of cases are from the public poor; earning an income of less than RM 500 a month. Weekly applications received and processed within 2 weeks Applications received: 90 cases a week Note: Early 2008, 50 cases per week Covers adult and pediatric Jabatan Kerja Sosial Perubatan Doctor refer
a urostomy involves diverting urine through a stoma when the bladder has been blocked or removed a valve is inserted into the opening. voice prosthesis a colostomy is when the colon is cut in half and the end leading to the stomach is brought through the wall of the abdomen and attached to the skin colostomy bag hearing aid Bursary Programme
Metallic Stent bypass obstruction a port inserted in your upper chest wall (the space between your collarbone and your breast) to make chemotherapy easier and more comfortable Oxygen therapy increases the amount of oxygen that flows into your lungs and your bloodstream. Oxygen may increase comfort for people who have lung cancer, but it does not treat the cancer oxygen concentrator chemo port Bursary Programme RM860 RM3,500
to prevent and treat pressure sores a ripple mattress is used beneath the patient to relieve the pressure on the tissue and allow blood flow in the tissue ripple Mattress RM420 adult diapers wheel chair – RM280 on loan crutches portable / mobile toilet suction machine Bursary Programme
<ul><li>Ensure Milk Powder </li></ul><ul><li>RM31.20/tin 400grams x 60 tins (6 months) = RM1,872 </li></ul><ul><li>Enercal Plus Liquid </li></ul><ul><li>RM62/tin 900grams x 12tins (3 months) = RM2,232 </li></ul><ul><li>Adult Diapers Size M </li></ul><ul><li>RM22/box (120 pieces / 3months) x 36 = RM790 </li></ul><ul><li>Esophageal Stent </li></ul><ul><li>1 unit = RM3,500 </li></ul><ul><li>Chemoport </li></ul><ul><li>1 unit = RM860 </li></ul><ul><li>Surgical Stapler = RM1,500 to RM2,439 </li></ul><ul><li>GIA 8038S – Single Use Staplet (1pc) – RM700 </li></ul><ul><li>GIA 8038L(SULU) – Single Use Loading Unit (2pcs) – RM800 </li></ul><ul><li>Endoprosthesis (GMRS Proximal Femur) – RM20,000 </li></ul><ul><li>Giant Cell Tumors - usually found in the long bones, most often the distal femur, proximal tibia, and distal </li></ul><ul><li>radius. </li></ul>Bursary Programme Surgical Stapler
<ul><li>Ballon Compression – RM5,025 </li></ul><ul><li>Chemotherapy </li></ul><ul><li>Topotecan Inj (Hycantin) 4mg </li></ul><ul><li>RM2,584/cycle x 6 cycle = RM15,504 </li></ul><ul><li>DRUG - Femara 2.5mg (long term medication treatment required) </li></ul><ul><li>6 months supply - daily oral intake = RM3,213.60 </li></ul><ul><li>(Femara help reduce risk of Breast Cancer returning in early stage of Breast Cancer. It helps to starve </li></ul><ul><li>cancer cells) </li></ul><ul><li>Hearing Aid (NPC) – RM6,409 </li></ul><ul><li>Oxygen Concentrator – RM5,150 </li></ul><ul><li>UniLOCK Reconstruction Plate 2.4 (Titanium) – RM4,516 </li></ul><ul><li>Total Body Irradiation – RM23,000 </li></ul><ul><li>is a form of radiotherapy used primarily as part of the preparative regimen for haematopoietic stem cell </li></ul><ul><li>or bone marrow transplantation </li></ul><ul><li>Total Hip Replacement – RM12,800 </li></ul><ul><li>Chondrosarcoma (malignant mesenchymal tumor, cartilage tumor ) - occurs in age 50’s or 60’s, most </li></ul><ul><li>common in the femur, humerus, ribs and on the surface of the pelvis </li></ul>Bursary Programme
Bursary Programme <ul><li>PEG Tube – RM750 </li></ul><ul><li>Percutaneous Endoscopic Gastrostomy (PEG) - A feeding tube is a medical device used to provide </li></ul><ul><li>nutrition to patients who cannot obtain nutrition by swallowing. </li></ul>
HOME VISIT All patients under the Bursary Program are visited at home by the MAKNA Home Visit Team, Volunteers and Staff to evaluate their treatment progress and socio-economic status. MICRO CREDIT Implemented to provide small unsecured loans to cancer patients, survicors and their families for income improvement through business activities, are interest free and require no collateral.
Young Cancer SURVIVOR SCHOLARSHIP Programme This programme aims to support young cancer survivors wishing to further their tertiary studies. Underprivileged cancer survivors aged 25 or younger, with the right potential and interest, will be given assistance for a better future through education. Cancer Support Group Our team of well-trained staff comprising volunteers and cancer survivors are constantly on hand to counsel cancer patients and their family members on coping with the emotional suffering of cancer.
Half Way Home It is a house which allows patients and their caretakers who are from afar to stay for a short while waiting to receive treatment from the hospital. It makes it easy for the patient to travel back and forth if it is required for him or her to undergo treatment for certain duration. The current halfway house is located in Taman Mount Austin, Johor. MAKNA Cancer Helpline (MCH) Toll-free helpline and infoline for cancer patients, their families and general public. Can be contacted at 1-800-88-MAKNA (62562).
<ul><li>2011 Expected launch- first mobile cancer screening unit </li></ul><ul><li>1994 set up and registered under </li></ul><ul><li>Registrar of Societies </li></ul><ul><li>1995 Received tax exemption status </li></ul><ul><li>1995, 30 March officially launched </li></ul><ul><li>1999, 19 April opened IKM PPUKM </li></ul><ul><li>1999, Malaysian Marrow Donor </li></ul><ul><li>Registry (MMDR) + HLA Typing joint </li></ul><ul><li>project MOH & IMR </li></ul><ul><li>2001 Research collaborations </li></ul><ul><li>2005 Introduced Young Survivors </li></ul><ul><li>Scholarship Programme </li></ul><ul><li>2006 Introduced Micro Credit </li></ul><ul><li>2008 Launched MAKNA Cancer </li></ul><ul><li>Information Service 1-800-88-MAKNA </li></ul><ul><li>(62562) </li></ul>
Reference Note:- 2005 - an idea, work in progress 2007 - mobile unit was built License to - Set up Mobile Unit Licence to - Installation & Operations of the Mammogram machine onto Mobile Unit 14 Oct 2010 - viewed by Ministry of Health at Putrajaya, unit under Bahagian Amalan (Best Practice) for final assessment & approval 7 Nov 2010 - Approved 2011 - set to be on the road - roadshow schedule - launch
This reserve will allow the services to continue to serve cancer patients especially those from the public poor to gain access to the latest in cancer treatment even after 50 years . Research can be conducted with continued funding. Some of the projects are displayed herewith. MAKNA conducts an average of 2 events a day. Without a constant flow of Funds, all of MAKNA’s services would cease. Patients, families, researches and public alike will not be able to benefit. Hence, MAKNA is always in the top gear towards creating a sustainable income.
PAYROLL GIVING DIRECT DEBIT DONOR PROGRAMME (DDDP) DIRECT MAIL
MAKNA MAS LOOSE CHANGE CAMPAIGN SENS SAVES LIVES (SSL) E-CHARITY http://www.makna.org.my/donate.asp KEMPEN KUTIP SYILING / Kempen Satu Sen WILLS & TRUST TELEMARKETING – May 2009 MSIG MAKNA Student Insurance Scheme RM10/RM20 per annum covers RM50,000 Permanent Disablement & RM10,000 to cancer. MSIG donates 5% of gross premium from the policy.
VOLUNTEER Management Volunteerism is vital to a non-profit organisation like MAKNA. Every year, more people realise the essential services that volunteers provide and seek to be a part of this noble calling. By registering as volunteers they offer invaluable contributions and assistance in MAKNA’s mission to help cancer sufferers and combat the disease.
Basic Nursing Care 1 & 2 MAKNA Introductory Programme Home Visit VOLUNTEER Management
community outreach programme VOLUNTEER Management cancer awareness & fundraising
VOLUNTEER Management give away books home visit coin / cash sorting patch work
MAKNA (Majlis Kanser Nasional / National Cancer Council ) BG 03A & 05, Ground Floor Megan Ambassy, 225 Jalan Ampang 50450 Kuala Lumpur Malaysia Tel: 03-2162 9178 Fax: 03-2162 9203 E-mail: [email_address] www.makna.org.my THANK YOU!