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Mental Health with Chronic Illness.pptx

See the slides from the Scleroderma Foundation of Greater Chicago's Workshop: Improving Mental Health with Chronic Illness. This presentation was held by the mental health professionals at Ellie Mental Health.

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StopScleroderma.org
info@stopscleroderma.org
312-660-1131
Improving Mental
Health with Chronic
Illness
3
Hello!
I am Tricia Saviano, MA, ATR,
LCPC
Clinic Director
Ellie Mental Health- Libertyville, IL
You can find me at
tsaviano@elliementalhealth.com
Appointments: 847-242-2370
Agenda
● Discuss mental health challenges with chronic
illness and scleroderma
● Discuss practical tools for improving mental and
emotional health
● Look at resources offered to help
4
1. Mental Health
Challenges Living with
Chronic Illness
Themes
Anxiety
Fear of the
unknown and
the struggles
with coping with
uncertainty
Grief/Sadness
Loss of
independence as
well as a loss of
the sense of self
and how life was
“supposed” to be
6
Stress
Living with the
illness, speaking
with doctors,
learning
treatments,
maintaining a
healthy self-
image
Ad

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Mental Health with Chronic Illness.pptx

Editor's Notes

  1. Spoke at Fall Conference in Chicago and took feedback and based this presentation on the needs as indicated from the conference
  2. Anxiety: What will this progression look like for me? Fear of death/thoughts of mortality/can be disfiguring. How will I look? Can I work? Affects everyone differently so your journey is so individual Grief/Sadness: Dealing with loss; stages of grief- denial, bargaining, anger, sadness, acceptance Stress: A lot to keep up with and can be overwhelming, can be an invisible illness and not validating. “No one understands” What ifs? Is life on hold? Are you solely focused on treatment? Do you feel like a burden? Inner dialogue Speak to this? Any other themes?
  3. Being able to still find your meaning in life is important in helping you to move forward and adjust in a healthy way. We often feel as if life is supposed to have a certain order to it and is fair, but when it gets disrupted, it can be traumatic. It is important to ground yourself in still finding your purpose. Do I want to be an advocate, support others- feels good to support others
  4. Communication- Sometimes you have to tell your story until you don’t need to tell it. That can be therapeutic. Talk about it. Open up to loved ones instead of holding. Physical symptoms come with anxiety… don’t want to trauma dump on a loved one, support groups and therapists are there for that. Some journal to express themselves Knowledge is power- ask questions, learn about the illness, empower yourself- Scleroderma Foundation does exactly this. Understand and take back control. Goal Setting- set small, manageable goals, celebrate them; don’t go 0-60 and overwhelm yourself- show yourself compassion Avoid social isolation- sadness, grief, depression can make you want to hide, which can keep you down. An object in motion…object at rest… Fatigue and winter- cold can be debilitating- How do you handle this? Tick- How can you still do the things you love? What can be adapted/adjusted? Remember what makes you happy. Maybe we will find something new we would not have found. New purpose or hobby. Use creative problem solving…
  5. Reframe it- opportunity for personal growth by challenging your perceptions and encouraging self-reflection/going inward Mindfulness- be aware of each moment, senses, emotions, thoughts/cognitions, focus on now and not past or future and accept what you feel without judgment. Walking, eating, breathing- 3-3-3 Rule for grounding, a song and listen to the lyrics, suntan lotion, fancy cup of coffee Guided Meditation- listen to someone walk you through a meditation to help you stay in the moment yogaforscleroderma.com Art Therapy- explain what it is… American Art Therapy Association AATA- choosing an art medium and creating art can help empower, focus can help reduce physical pain, express emotions without dialogue, build coping skills- without judgment- scribble and look for images- repetitive processes can be calming- can’t hold a paintbrush, adaptive paintbrush with bigger handles. Sponges, clothes… Suggestions? Workaround you can share? EAS- unconditional love, purpose, companionship, stress/anxiety reduction, mood enhancement
  6. Support Groups- Several based on geography, but based on Zoom so you can join any meeting you choose. Reach out to support group leaders directly. You can find the groups on the calendar on the resource page as well. Therapy- Cognitive- Help reframe/reshape way of thinking Family/Marital- Involve loved ones; helps them with their role in the relationship and to help learn to communicate effectively