Getting the message across - supported self management for persistent pain in Northern Ireland
Getting the message across-
supported self management for
persistent pain in Northern Ireland
A journey of discovery
• 15 minutes on why,
when, who, how,
where and what…
• 5 minutes for asking
questions and finding
The World Health Organisation (WHO) defines
health literacy as:
• “….the personal characteristics and social
resources needed for individuals and
communities to access, understand, appraise
and use information and services to make
decisions about health”.
In the beginning…
• People sought help
• Partnership with patients and PANI
• 2,500 people surveyed
• Report launched in 2014
• affects at least 1 in 5 people in Northern Ireland
• loses EU countries 3- 10% of GDP
• doubled NI pain prescribing costs since 2005
1. Long-term pain should be recognised as a condition in its
own right by all HSC organisations.
2. Training/ information for GPs and other health care
professionals are needed to increase awareness of long-
term pain and its effects on those who have it.
3. Information resources developed for healthcare staff
should be informed by and tested with people who live
with long-term pain, their carers and relatives.
4. Patients should be offered a range of pain management
care and support programmes including supported self-
Young women with Endometriosis
“I can’t believe I’m on
HRT at 27 years old”
Sam is 27 years old and has epilepsy (diagnosed at 9 years old) and endometriosis (diagnosed
at 25 years of age). She is a post graduate student at QUB. She is very tech savvy and manages
both the website and social media for the endo support group. Sam is confident managing her
epilepsy medication with the support of her nurse, however she finds it difficult to manage
the pain associated with her endometriosis.
• Would like more information on pain management techniques for endometriosis to help
her manage her pain.
• Wants to connect with young people who are going through the same thing as she is.
• Would like to decrease her pain medication as it negatively impacts her epilepsy
• Is on HRT and will be for 16 months until she has an operation.
• Lack of support she has been given from her Health Care Professionals to manage her pain.
• Doesn’t feel confident enough to talk to her pain management consultant to self manage
Northern Ireland PfG Outcomes
We prosper through a strong,
competitive, regionally balanced
We live and work sustainably -
protecting the environment.
We care for others and we
help those in need.
We have high quality
We enjoy long, healthy, active lives.
Other Hackathon Outputs
PhD on Visualisation of pain
Breathe – Mindfulness VR app
Pain tracking app
• 0800 917 0222
• The Patient and Client Council
• 2nd Floor, Centre House, 79
• Belfast BT1 4JE
Public Health Agency
Linenhall Street Unit
12-22 Linenhall Street
Tel: 0300 555 0114
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