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DBI World Conference 2019 - Using videoanalysis to enhance communication between parents and children with deafblindness

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DBI World Conference 2019
Accessibility stream: Concurrent session 6C
Presenter: Arancha Arregui Gómez
Topic: Using videoanalysis to enhance communication between parents and children with deafblindness

Published in: Healthcare
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DBI World Conference 2019 - Using videoanalysis to enhance communication between parents and children with deafblindness

  1. 1. 17th Deafblind International World Conference 2019 in Queensland, Australia Using video-analysis to enhance communication between parents and children with Deafblindness Arregui Gómez, Arancha - Teacher González Garabaya, Francisca - Teacher Martín Sastre, Teresa – Speech therapist Torres Torres, Antonia – Teacher Assistant
  2. 2. 17th Deafblind International World Conference 2019 in Queensland, Australia About us O.N.C.E. (National Organization of the Blind in Spain)
  3. 3. 17th Deafblind International World Conference 2019 in Queensland, Australia About us Supporting and contributing to the development of Deafblind children School years between 3 – 21 years of age Students attending specialized classrooms in the ONCE school or attending conventional schools.
  4. 4. 17th Deafblind International World Conference 2019 in Queensland, Australia Detection of necessities Development of communication and personal autonomy are implemented naturally in a family context. It doesn´t occur in families with Deafblind children Confusion stage: look for solutions that explain the etiology of the Deafblindness. This process slows down the bonding between parents and the new born baby.
  5. 5. 17th Deafblind International World Conference 2019 in Queensland, Australia Detection of necessities Similar approach in Seligman and Darling: Families of children with special needs must be considered as “Ordinary families in exceptional circumstances”.
  6. 6. 17th Deafblind International World Conference 2019 in Queensland, Australia Detection of necessities We can provide: Reference Emotional process of acceptance Strengthen the confidence in their ability to create enriching bonds
  7. 7. 17th Deafblind International World Conference 2019 in Queensland, Australia Detection of necessities Working with families is a key aspect as part of the methodology in educational attention to Deafblind children. Facilitate that children and their families progress together in the development of communication strategies. Promote an information exchange between professionals and family units.
  8. 8. 17th Deafblind International World Conference 2019 in Queensland, Australia Detection of necessities It is necessary: Offer information Families learn a communication system Implication and participation in educational programs.
  9. 9. 17th Deafblind International World Conference 2019 in Queensland, Australia
  10. 10. 17th Deafblind International World Conference 2019 in Queensland, Australia Detection of necessities Objectives (I): To encourage the family to learn how to be the principal observer of the child with DB To increase the sense of competence of parents To provide specific information
  11. 11. 17th Deafblind International World Conference 2019 in Queensland, Australia Detection of necessities Objectives (II): To support families to normalize the family dynamics. To create a channel that allows families to reflect and organize new relationship models. To provide parents with a space to express themselves.
  12. 12. 17th Deafblind International World Conference 2019 in Queensland, Australia The ultimate goal of this program is to get families to enjoy the relationship with their children
  13. 13. 17th Deafblind International World Conference 2019 in Queensland, Australia Method Participants Organization of the sessions Timing and context Use of video-analysis
  14. 14. 17th Deafblind International World Conference 2019 in Queensland, Australia Participants Parents of students with Deafblindness who live in the Community of Madrid
  15. 15. 17th Deafblind International World Conference 2019 in Queensland, Australia Participants Four families: A) Father, daughter with Deafblindness (16 years) B) Father, mother, son with Deafblindness (10 years) and brother (8 years) C) Father, mother and daughter with Deafblindness (12 years) D) Father, mother and son with Deafblindness (13 years)
  16. 16. 17th Deafblind International World Conference 2019 in Queensland, Australia Participants The project began with a phone call to the families of students with Deafblindness that were in conventional schools. In that first contact we offered the possibility of participating in the project. Four of the seven families we contacted accepted.
  17. 17. 17th Deafblind International World Conference 2019 in Queensland, Australia Organization of the sessions Types of sessions: A. Informative session B. Individual sessions B.1. Individual sessions with the student B.2. Individual sessions with the parents B.3. Individual sessions with the student in the presence of the parents C. Group sessions D. Workshops
  18. 18. 17th Deafblind International World Conference 2019 in Queensland, Australia Organization of the sessions A. Informative session Explanation of the objectives, schedule and method. They agreed to use video-analysis as a tool for the development of this project. Families expressed with enthusiasm the need for this type of programs, but at the same time, their fear to confront the analysis of their own behaviors. The timetable of the sessions was established offering them the possibility of adjusting it to their family and work needs.
  19. 19. 17th Deafblind International World Conference 2019 in Queensland, Australia Organization of the sessions B. Individual Sessions B.1. Individual sessions with the student, in order to assess the communicative situation at the time of start and to establish an intervention plan. B.2. Individual sessions with parents to determine intervention needs in conjunction with the parents and to gather information.
  20. 20. 17th Deafblind International World Conference 2019 in Queensland, Australia Organization of the sessions B.3. Professional interaction with the Deafblind child in the presence of both parents in order to offer a communicative model that fitted the need of their child. After some sessions, parents began carrying out the activities with their children while professionals modeled the intervention with verbal guidelines. The goal is that parents could get to do the activities in their family environment without the need of external support.
  21. 21. 17th Deafblind International World Conference 2019 in Queensland, Australia
  22. 22. 17th Deafblind International World Conference 2019 in Queensland, Australia
  23. 23. 17th Deafblind International World Conference 2019 in Queensland, Australia
  24. 24. 17th Deafblind International World Conference 2019 in Queensland, Australia Organization of the sessions C. Group Sessions Space for the exchange of experiences and reflections. These situations enabled families to get to know each other, to share feelings and experiences and to learn from one another. These contacts also allowed families to identify themselves as a specific group.
  25. 25. 17th Deafblind International World Conference 2019 in Queensland, Australia Organization of the sessions D. Workshops Initially these workshops were done with each family individually. As the program progressed, it was possible to make groups. Workshops were also intended to show parents how to create and adapt materials such as different kinds of anticipation calendars, toys, agendas, and to promote literacy (photographs were taken).
  26. 26. 17th Deafblind International World Conference 2019 in Queensland, Australia Organization of the sessions
  27. 27. 17th Deafblind International World Conference 2019 in Queensland, Australia
  28. 28. 17th Deafblind International World Conference 2019 in Queensland, Australia Timing and context This program was carried out using the Spanish school calendar. Alternating, fortnightly, two families each week. The duration of each session was 45 minutes. Video-taped parent-lead activities with the child were carried out in a simulated home environment as close as possible to their homes. Self-personal skills, communication strategies and vocabulary related to the activities were worked on simultaneously.
  29. 29. 17th Deafblind International World Conference 2019 in Queensland, Australia Timing and context
  30. 30. 17th Deafblind International World Conference 2019 in Queensland, Australia
  31. 31. 17th Deafblind International World Conference 2019 in Queensland, Australia Personal resources and material Personal resources: A multidisciplinary approach is essential in the intervention with students with Deafblindness and their families. Professionals: two teachers, a speech therapist, a teacher assistant, a rehabilitation instructor and a psychologist. In most of the sessions two professionals participated.
  32. 32. 17th Deafblind International World Conference 2019 in Queensland, Australia Personal resources and material Material Resources: Spaces: two classrooms, the kitchen and an apartment in the residential area of the school. Real and reference objects related to the activities: food, toilet utensils and clothes.
  33. 33. 17th Deafblind International World Conference 2019 in Queensland, Australia Video-analysis Video-taping is a tool that the professionals of this team have been using as a form of analysis of our own work with very positive results. We have focused on its role as an assessment and driver tool, as well as a tool for the teachers’ training.
  34. 34. 17th Deafblind International World Conference 2019 in Queensland, Australia Video-analysis Some of the activities were recorded and then, individually with each family, we analyzed the communication and interactions with their children.
  35. 35. 17th Deafblind International World Conference 2019 in Queensland, Australia Video-analysis Using video-analysis parents were also able to realize what specific vocabulary related to each activity they needed to learn. After that, we carried out individual sessions to work on that vocabulary.
  36. 36. 17th Deafblind International World Conference 2019 in Queensland, Australia Project assessment We applied continuous assessment. At the end of each session, the two professionals involved carried out an analysis of the dynamics in which the needs were detected, and a new program adjustment was made. As the project progressed, it became clear that some aspects related to behavior needed to be dealt with. In most cases, disruptive behavior is related to the lack of communicative strategies, either from the students or from the parents.
  37. 37. 17th Deafblind International World Conference 2019 in Queensland, Australia Project assessment Changes observed and expressed by the parents through an interview: Increased parental confidence in the Deafblind child´s potential. Increased interest in joint activities. Improved parental self-confidence in their own ability to communicate and interact with their child.
  38. 38. 17th Deafblind International World Conference 2019 in Queensland, Australia
  39. 39. 17th Deafblind International World Conference 2019 in Queensland, Australia Project assessment As professionals we observed: Improvement of vocabulary in the communication system of their children. Reduction of fear to feel evaluated by both the professionals and other family members. Increase of the initiative to carry out new activities.
  40. 40. 17th Deafblind International World Conference 2019 in Queensland, Australia Project assessment As professionals we observed: Improvement in the observation and interpretation of the actions of their children, as well as in the quality of the parent´s feedback and reactions. Direct relationship between the positive evolution of children and the communicative advances of their families
  41. 41. 17th Deafblind International World Conference 2019 in Queensland, Australia Conclusion: The use of video- analysis helps to improve communicative strategies and family dynamics.
  42. 42. 17th Deafblind International World Conference 2019 in Queensland, Australia Thank you for your attention Arregui Gómez, Arancha arag@once.es González Garabaya, Francisca mfgg@once.es Martín Sastre, Teresa mtms@once.es Torres Torres, Antonia atto@once.es

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