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Nordic Cooperation in
Health and Welfare
Erland Hjelmquist
Professor, Dept. of Psychology, University of Gothenburg, Swede...
• Joint Nordic research programme with partners from all Nordic countries
including the Nordic Council of Ministers (DK, F...
•Reports
• NORIA-net on Registers and Biobanks
• NORIA-net on Health and Welfare
• NORIA-net on Sports Sciences
• NOS-M Wh...
• Applying Nordic research and research infrastructure collaboration to
address urgent societal problems related to health...
• Research-, innovation-, and policy activities
• Programme Committee with members from the funders
• Total budget appr. 2...
Programme Committee
• Erland Hjelmquist (Chair)
• Jarmo Wahlfors, Academy of Finland
• Peter Allebeck, FORTE, Sweden
• Jør...
•Research projects on distribution of health and welfare
• Opened in June
• 140 MNOK
• 86 proposals
• 5 projects funded in...
Research projects on distribution of health and
welfare
• Coming of Age in Exile (CAGE) - Health and Socio-Economic
Inequi...
Research projects on user-driven innovation within
health and welfare
ActivABLES: Tangible Interaction to Support Effectiv...
Nordic Register Pilots
• A Nordic Rheumatology Register Pilot to facilitate collaborative
studies based on linkages of cli...
Expansion of the Programme
• Good prospects for a common pot call targeting register-
based research to be opened late spr...
Activities to Strengthen Nordic Register
and Biobank cooperation
Overall aim: to enchance the joint use of Nordic registers in research
If the national registers were combined into real N...
• NORIA-net on Registers and Biobanks
• Cooperation project between Nordic Statistical Institutes
• Cooperation project be...
NORIA-net on Registers and Biobanks
• «NORIA-net on Registers and Biobanks» working group was active
2012-2014
• Targeted ...
Recommendations from the NORIA-net (1)
1. NordForsk should provide a cooperation platform for the Nordic bureaus of statis...
4. NordForsk should establish a small strategic expert group responsible for these
processes, initially for the 2014–2016 ...
Nordic cooperation between
National Statistics Institutes
Nordic cooperation between
National Quality Register Secretariats
Project Outline
• Initiated by the Swedish Association of Local Authorities and Regions (SKL)
/ National secretariat for q...
Nordic pilot case
• Nordic cooperation between national tonsil surgery registers
• National registers exists in Sweden, 14...
Nordic Council of Ministers
23
Examples of NCM health activities
Sustainable Nordic Welfare 2013-2015
- Nordic Trial Alliance
- Nordic Register Cooper...
24
14 proposals for
future Nordic
health cooperation
Bo Könberg
Nordisk samarbejde 25
1 Antimicrobial Resistance
2 Highly-specialised
treatments
3 Rare diagnoses
4 Register-based researc...
Thank you for your attention!
Hvannadalshnjúkur
2110
Gunnbjørn Fjeld
3700
Halti
1328
Galdhøpiggen
2469
Kebnekaise
2102
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Nordic Cooperation in Health and Welfare

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Professor Erland Hjelmquist

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Nordic Cooperation in Health and Welfare

  1. 1. Nordic Cooperation in Health and Welfare Erland Hjelmquist Professor, Dept. of Psychology, University of Gothenburg, Sweden, Head of the Swedish Research Council for Health, Working Life and Welfare, Forte, 2008-2013 Chair of the Programme Committee
  2. 2. • Joint Nordic research programme with partners from all Nordic countries including the Nordic Council of Ministers (DK, FIN, IS, NO, SE, NCM and NF) • Aims to improve health in the Nordic countries by finding solutions to societal and public health challenges through high-quality research • Thematics based on preparatory actions including thorough analysis (Nordic policy papers) • Health and Welfare also a political priority Nordic Programme on Health and Welfare
  3. 3. •Reports • NORIA-net on Registers and Biobanks • NORIA-net on Health and Welfare • NORIA-net on Sports Sciences • NOS-M White Paper I & II • NORIA-net Nordic Research Infrastructure Network •In addition • Legal analysis • Nordic committee on bioethics • Nordic Trial Alliance • Overview on ethical systems Preparatory Actions
  4. 4. • Applying Nordic research and research infrastructure collaboration to address urgent societal problems related to health and wellbeing; • Developing new knowledge about the underlying causes of uneven distribution of health and welfare using a multidisciplinary research approach; • Enhancing Nordic collaboration on research infrastructures, including use of population-based registries and biobanks and efforts to achieve harmonisation at the Nordic level; • Exploring the use of various innovation concepts such as user-driven and open innovation to support research-driven innovation within health and welfare; • Adding scientific value in terms of critical mass and composition, better resource utilisation, and enabling researchers to make use of larger data sets; • Mobilising and qualifying Nordic research communities for participation in activities under the EU’s Horizon 2020 framework programme and Joint Programming Initiatives. Aims will be achieved by..
  5. 5. • Research-, innovation-, and policy activities • Programme Committee with members from the funders • Total budget appr. 24 M€ at the moment (appr. 200 MNOK) • Stakeholders will be invited to develop the Programme further
  6. 6. Programme Committee • Erland Hjelmquist (Chair) • Jarmo Wahlfors, Academy of Finland • Peter Allebeck, FORTE, Sweden • Jørgen Frøkiær, DFF Medical Sciences, Denmark • Ása Guðrún Kristjánsdóttir, RANNIS, Iceland • Berit Nygaard, Research Council of Norway • Anne Hammarström, Nordic Council of Ministers In addition, a call-specific committee for the user-driven innovation call • Ann-Mari Fineman, Vinnova • Alexander Alvsilver, Vinnova • Toomas Merresso, Estonian Research Council • Ása Guðrún Kristjánsdóttir, RANNIS • Kornelija Janavičiūtė, Research Council of Lithuania
  7. 7. •Research projects on distribution of health and welfare • Opened in June • 140 MNOK • 86 proposals • 5 projects funded in March 2015 •Research projects on user-driven innovation within health and welfare • Opened in October • 11 MNOK • 34 proposals, 2 funded in April 2015 •Construction of Nordic research infrastructure pilots in health and welfare by combining socioeconomic- and health-related registers • Opened in November • 30 MNOK • Deadline 18 February • 24 proposals, 4 funded in June 2015 Open Calls for proposals in 2014
  8. 8. Research projects on distribution of health and welfare • Coming of Age in Exile (CAGE) - Health and Socio-Economic Inequities in Young Refugees in the Nordic Welfare Societies, Project leader: Allan Krasnik, Denmark. • Working hours, health, well-being and participation in working life, Project leader: Mikko Härmä, Finland. • Understanding the Link between Air Pollution and Distribution of Related Health Impacts and Welfare in the Nordic Countries (NordicWelfAir), Project leader: Jørgen Brandt, Denmark. • Psychosocial work environment and healthy ageing, Project leader: Mika Kivimäki, Finland. • Social Inequalities in Ageing (SIA); Health, Care and Institutional Reforms in the Nordic Welfare Model, Project leader: Johan Fritzell, Sweden.
  9. 9. Research projects on user-driven innovation within health and welfare ActivABLES: Tangible Interaction to Support Effective and Usable Stroke Rehabilitation at Home. Project leader: Associate Professor Charlotte Magnusson, Lund University, Sweden. Symptom monitoring after hospitalisation in patients with advanced heart failure - a Nordic-Baltic study. Project leader: Professor Anna Strömberg, Linköping University, Sweden.
  10. 10. Nordic Register Pilots • A Nordic Rheumatology Register Pilot to facilitate collaborative studies based on linkages of clinical data with national health. Project leader: Professor Johan Askling, Karolinska Institutet. • Adult Life after Childhood Cancer in Scandinavia (ALiCCS): Socioeconomic consequences of long-term survival. Project leader: Jeanette Falck, The Danish Cancer Society. • Contingent Life Courses (C-LIFE). Project leader: Professor Espen Dahl, Oslo and Akershus University College of Applied Sciences. • Nordic Occupational Register – a tool for estimation of the potential of workplace and population level interventions. Project leader: Svetlana Solovieva, Finnish Institute of Occupational Health.
  11. 11. Expansion of the Programme • Good prospects for a common pot call targeting register- based research to be opened late spring 2016 • Budget appr 60 MNOK • Ongoing consultation process
  12. 12. Activities to Strengthen Nordic Register and Biobank cooperation
  13. 13. Overall aim: to enchance the joint use of Nordic registers in research If the national registers were combined into real Nordic data sets:  Population of 26 Million  Increased quality of research  Used for evidence-based decisions  Attract international attention In order to create this unique asset:  Need of harmonisation  Need to overcome existing hindrances (e.g. ethical, technical, organisational)  This pre-supposes long-term commitment (co-funding) from national funders and policy makers Goal: Joint Nordic Registers Huge Potential!
  14. 14. • NORIA-net on Registers and Biobanks • Cooperation project between Nordic Statistical Institutes • Cooperation project between national secretariats for health care registries/quality registries • Nordic Biobank Pilot on Colon Cancer • Nordic Trial Alliance – cooperation on clinical studies • NOS-M – Joint Committee of the Nordic Medical Research Council’s • Nordic Committee on Bioethics
  15. 15. NORIA-net on Registers and Biobanks • «NORIA-net on Registers and Biobanks» working group was active 2012-2014 • Targeted both socioeconomic and health registers as well as biobanks • Mandate: give strategic advice to the NordForsk board on how to strengthen Nordic cooperation on register-based research • Work tasks included identification of existing hindrances impeding Nordic research and proposing ways to overcome these
  16. 16. Recommendations from the NORIA-net (1) 1. NordForsk should provide a cooperation platform for the Nordic bureaus of statistics, national health register institutes and other register-hosting bodies. This platform should facilitate research support operations in order to increase joint Nordic research. Discussion platforms for different stakeholders should also be supported, when relevant. 2. NordForsk should investigate possibilities for developing procedures for mutual recognition of ethical review permissions between the Nordic countries, including models for informed consent. This will require political consideration and should be carried out in dialogue with the Nordic Council of Ministers. 3. NordForsk should actively follow, and, if necessary, influence the ongoing revision of European legislation targeting data protection, clinical trials and copyright legislation, in particular in relation to data sharing and with a view to drawing the full benefit of new research technologies, such as text and data mining. This may require political consideration and follow-up by the Nordic Council of Ministers.
  17. 17. 4. NordForsk should establish a small strategic expert group responsible for these processes, initially for the 2014–2016 period. The group should possess the relevant expertise and have the support of relevant Nordic stakeholder groups. It should report to the NordForsk Board. 5. As a follow-up to recommendations one to three, NordForsk should establish a research programme to pilot the joint Nordic use of registers. The programme should fund Nordic pilot projects using joint Nordic register data sources within the field of health and wellbeing. 6. Future vision: Nordic Centre for Register-based research Recommendations from the NORIA-net(2)
  18. 18. Nordic cooperation between National Statistics Institutes
  19. 19. Nordic cooperation between National Quality Register Secretariats
  20. 20. Project Outline • Initiated by the Swedish Association of Local Authorities and Regions (SKL) / National secretariat for quality registers • Working group with representatives from all Nordic countries to be set up • Guidance for Nordic cooperation between health care registers to easen and stimulate such cooperation • Such document should stimulate: - International comparison - International collaboration on rare diseases - Knowledge exchange in research - Increased quality and cost efficiency - Knowledge exchange in patient participation - Possibilities for international development – combination of registers
  21. 21. Nordic pilot case • Nordic cooperation between national tonsil surgery registers • National registers exists in Sweden, 14 000 operations annually mostly on children/teen agers • Monitors operation techniques, care, bleeding, pain etc • Denmark and Norway plan to establish national registers and plan to use the Swedish variable definitions, possibly the same IT-platform • Investigate if de-identified data could be gathered from all countries and used for research • Obvious added value to coordinate activities, share experiences, monitor care, international comparison • Creation of a harmonised Nordic register research infrastructure available for research
  22. 22. Nordic Council of Ministers
  23. 23. 23 Examples of NCM health activities Sustainable Nordic Welfare 2013-2015 - Nordic Trial Alliance - Nordic Register Cooperation - Social inequalities (Call 1 – Distribution of health) - Könberg report
  24. 24. 24 14 proposals for future Nordic health cooperation Bo Könberg
  25. 25. Nordisk samarbejde 25 1 Antimicrobial Resistance 2 Highly-specialised treatments 3 Rare diagnoses 4 Register-based research 5 Public health 6 Inequalities in access to health 7 Patient mobility 8 Welfare technology 9 e-Health 10 Psychiatry 11 Health preparedness 12 Pharmaceutical co- operation 13 Exchanges for officials 14 National experts in the EU Commission
  26. 26. Thank you for your attention! Hvannadalshnjúkur 2110 Gunnbjørn Fjeld 3700 Halti 1328 Galdhøpiggen 2469 Kebnekaise 2102

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