Third sector providers and
Hospice care – how can we
support each other?
Linda Campbell,
PAMIS Future Choice Project Assis...
“It was a shock,
but not a surprise”
Our Hospice experience
• Current perception of Hospice care
• New challenges for the future
– Widening access
• Learning f...
What have we learnt?
• Identification of young person with “palliative care
needs” :
– Profound LD and health needs; progr...
Working with PAMIS
• How we support families
• Finding out what the hospice can offer
• Getting information to families
• ...
“It was a shock,
but not a surprise”
• What the ideal service would look like
– Person and family centred
– Connected up health – social – education
– Proactiv...
Questions that remain…
• What is the impact if the young person is
acknowledged to have palliative care needs?
(don’t use ...
• What relationships need to be in place to support
transition to adult palliative care services
– For pre school leavers?...
• How do we take this forward with
– School nurses
– Third sector providers
– GPs
– Families
– Hospice staff
– Acute care ...
Envision the future
• Identification of those with palliative care needs
• A partnership approach
– Age appropriate care
–...
Libby Milton
libby.milton@ppwh.org.uk
0141 429 9834
Linda Campbell
linda.pamis@btconnect.com
0141 572 0782
Want to get inv...
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Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

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Libby started the presentation with the phrase “it was a shock, but not a surprise” and went on to discuss some of the challenges that the hospice felt they were facing to provide adequate support to young people with life shortening conditions as they moved into young adult hood. She also discussed some of the things they had learnt as they explored these areas more fully. Linda then discussed how they had worked with the Hospice to look at referral pathways and ways of working together to provide better support.

Libby left us at the end of the presentation with lots of questions that needed answered as they looked to ensuring the future of this kind of work. This included the idea of collaborative working, what relationships need to be in place and how we could lead forward with this.

Published in: Healthcare, Health & Medicine
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Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

  1. 1. Third sector providers and Hospice care – how can we support each other? Linda Campbell, PAMIS Future Choice Project Assistant Libby Milton, PPWH, Clinical Advisor and service lead for young people
  2. 2. “It was a shock, but not a surprise”
  3. 3. Our Hospice experience • Current perception of Hospice care • New challenges for the future – Widening access • Learning for us – Knowledge – Attitude – Models of care • Our commitment
  4. 4. What have we learnt? • Identification of young person with “palliative care needs” : – Profound LD and health needs; progressive neuromuscular conditions, others – Vulnerability and surprise question……. – How to recognise change – Once it is recognised, what to do, where to signpost
  5. 5. Working with PAMIS • How we support families • Finding out what the hospice can offer • Getting information to families • Making referrals
  6. 6. “It was a shock, but not a surprise”
  7. 7. • What the ideal service would look like – Person and family centred – Connected up health – social – education – Proactive – Built on relationships of trust – Perfect blend of social and therapeutic support • Location? Not so important, but needs to be accessible! What have we learnt?
  8. 8. Questions that remain… • What is the impact if the young person is acknowledged to have palliative care needs? (don’t use label “palliative”) • It must NEVER make it worse, only enhance things
  9. 9. • What relationships need to be in place to support transition to adult palliative care services – For pre school leavers? – For young adults? • Who should lead on this? – LD nurses? – Palliative care providers? – Partnership approach? – CHAS? Questions that remain…
  10. 10. • How do we take this forward with – School nurses – Third sector providers – GPs – Families – Hospice staff – Acute care staff (children and adult services) – Social services – All the other people!!!! Questions that remain…
  11. 11. Envision the future • Identification of those with palliative care needs • A partnership approach – Age appropriate care – Family centred care, close to home – Staff trained and supported to recognise palliative care needs, and offer appropriate intervention and support – Integration of health and social care • Living and Dying Well
  12. 12. Libby Milton libby.milton@ppwh.org.uk 0141 429 9834 Linda Campbell linda.pamis@btconnect.com 0141 572 0782 Want to get involved?

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