Libby started the presentation with the phrase “it was a shock, but not a surprise” and went on to discuss some of the challenges that the hospice felt they were facing to provide adequate support to young people with life shortening conditions as they moved into young adult hood. She also discussed some of the things they had learnt as they explored these areas more fully. Linda then discussed how they had worked with the Hospice to look at referral pathways and ways of working together to provide better support.
Libby left us at the end of the presentation with lots of questions that needed answered as they looked to ensuring the future of this kind of work. This included the idea of collaborative working, what relationships need to be in place and how we could lead forward with this.