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Joint Futures 2019: Conducting Research with Vulnerable Communities

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Joint Futures 2019: Conducting Research with Vulnerable Communities

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Presentation given at the Joint Futures 2019 conference, on the topic of "Conducting Research with Vulnerable Communities."

This talk covers specific approaches and methods to employ when working with vulnerable populations, starting with a definition of vulnerability and discussing how to ensure that researchers and designers do no harm and remain respectful, fair, and culturally appropriate, specifically when:
- Planning for design research, including choosing the right research methods for the participants and topic at hand;
- Recruiting and compensating research participants;
- Obtaining informed consent and ensuring research participants are aware of their rights and potential risks for participating in the research;
- Managing participant data by ensuring their identifiable information is not traceable and doesn’t put them at risk.

Presentation given at the Joint Futures 2019 conference, on the topic of "Conducting Research with Vulnerable Communities."

This talk covers specific approaches and methods to employ when working with vulnerable populations, starting with a definition of vulnerability and discussing how to ensure that researchers and designers do no harm and remain respectful, fair, and culturally appropriate, specifically when:
- Planning for design research, including choosing the right research methods for the participants and topic at hand;
- Recruiting and compensating research participants;
- Obtaining informed consent and ensuring research participants are aware of their rights and potential risks for participating in the research;
- Managing participant data by ensuring their identifiable information is not traceable and doesn’t put them at risk.

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Joint Futures 2019: Conducting Research with Vulnerable Communities

  1. 1. Conducting research with vulnerable communities Sarah Fathallah
  2. 2. Before we start... What do we mean by vulnerable communities?
  3. 3. 4 Vulnerability noun “The diminished capacity of an individual or group to anticipate, cope with, resist and recover from the impact of a natural or man-made hazard. —International Federation of Red Cross and Red Crescent Societies
  4. 4. 8 The different stages of design research Developing research tools and methodology Recruiting participants Conducting research Managing research data (for dummies)
  5. 5. Developing research tools and methodology 1
  6. 6. WHAT KEEPS ME UP AT NIGHT, PT. 1 What are the most respectful and culturally appropriate research methods for the topic at hand, for the audience, and for the context?
  7. 7. RECRUITING PARTICIPANTS 2
  8. 8. WHAT KEEPS ME UP AT NIGHT, PT. 2 How to fairly engage and compensate community members as research participants?
  9. 9. CONDUCTING RESEARCH 3
  10. 10. WHAT KEEPS ME UP AT NIGHT, PT. 3 How to gather data in a respectful, responsible, transparent, and trauma-informed way?
  11. 11. MANAGING RESEARCH DATA 4
  12. 12. WHAT KEEPS ME UP AT NIGHT, PT. 4 How to manage participant data by ensuring their identifiable information is not traceable and/or doesn’t put them at risk?
  13. 13. WHAT KEEPS ME UP AT NIGHT, PT. 5 to ∞ How to translate research findings in a truthful and authentic way that does not feel subtractive to the community? How to avoid “research fatigue” and lessen the burden on communities to keep engaging in research activities? How to recognize systemic oppression and/or privilege affecting this community, and how it can relate to this project? And more...
  14. 14. Thanks! sarahfathallah.com @SFath Illustrations: unDraw

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