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PATRON

                                                                               Candice
Reed






                ...
Childlessness:


               loss
of
security
&
hope



   The
invisibility
of
the
loss
‐
the
s9gma


   Loss
of
hope...
PATRON
                                          Candice
Reed




                             Australia’s
Na,onal
Voice

...
www.icsi.ws/regional alliances

Using the strength of an alliance
to bring infertility issues to
governments in each world...
World’s highest
                             prevalence of
                             infertility





         Sub-Saha...
PATRON
                                          Candice
Reed




                             Australia’s
Na,onal
Voice

...
PATRON
                                          Candice
Reed




                             Australia’s
Na,onal
Voice

...
“Infer9lity
should
be
recognized
as
a

     public
health
issue
worldwide,

     including
developing
countries.”


      ...
Australia’s
Na,onal
Voice


Pa,ents
as
equal
partners

Childlessness:
Uganda

  Couples
live
in
isola9on,
under
s9gma,
and

    fear.

  Society
judges
them
irresponsible
and
...
Margaret’s
story


   My
husband
told
me
I
was
useless.



   No
other
man
will
accept
a
useless
woman

      like
me.

...
Australia’s
Na,onal
Voice


Pa,ents
as
equal
partners

Australia’s
Na,onal
Voice


Pa,ents
as
equal
partners

No
IVF

                                  
lab

          No
research
funds

                               No




       ...
Australia’s
Na,onal
Voice


Pa,ents
as
equal
partners

Challenges

  Poor
public
awareness
about
human
reproduc9on

    or
family
planning

  High
fer9lity
rate

  Govt
unawa...
Australia’s
Na,onal
Voice


Pa,ents
as
equal
partners

 Low
cost
IVF
–
part

                                       of
the
solu9on.


                                     
Lap...
Australia’s
Na,onal
Voice


Pa,ents
as
equal
partners

Opportuni/es

   Exchange
programs
to
train
local
doctors
in

      public
hospitals

   Training
for
embryologist

   ...
Benefits

   Allevia/ng
significant
human
suffering;

           Easing
social
isola9on
for
women

       
           Impro...
Mahmoud
Fathalla:
       
“There
is
power
in
partnership,
between

        ac9ve
consumers
and
professionals,


        an...
Stability
and
growth

                  Health

          Governments

               professionals


                    ...
Together we can!

Patients and patients’ organizations
working in partnership with:
    health professionals,
    indust...
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Ivf In Low Resource Settings Uganda

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Ivf In Low Resource Settings Uganda

  1. 1. PATRON
 Candice
Reed

 Reproduc/ve
benefits
in
low
 resource
se9ngs:
Uganda
 WHO
‐
ICMART‐
LCIVFF/IFFS
Interna9onal
Mee9ng
on
 quot;
Reproduc9ve
Technologies:

 Common
Terminology
and
Management
in
Low‐Resource
SeGngs”
 Sandra
K
Dill
AM
BComm,
MLS
 PhD
Candidate
 Coordinator,
iCSi
Pa9ent
Leader
Network
 Chair,
Assisted
Concep9on
Taskforce
 Board
member,

IAPO
 CEO:
Access
Australia Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  2. 2. Childlessness:

 loss
of
security
&
hope


   The
invisibility
of
the
loss
‐
the
s9gma
   Loss
of
hope
 
 
 
 
 
 
 
 
(Murray,
2002)
   Leaves
infer9le
people
with
a
sense
of
 decreased
security
in
their
world.
 (Dyregrov
and
MaGesen,
1987)
 “Give
me
children,
or
I
shall
die!”
 (Rachel,
Genesis
30:2)
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  3. 3. PATRON Candice
Reed Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  4. 4. www.icsi.ws/regional alliances Using the strength of an alliance to bring infertility issues to governments in each world region. Together we are stronger! Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  5. 5. World’s highest prevalence of infertility
 Sub-Saharan Africa: up to 1/3 of couples infertile
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  6. 6. PATRON Candice
Reed Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  7. 7. PATRON Candice
Reed Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  8. 8. “Infer9lity
should
be
recognized
as
a
 public
health
issue
worldwide,
 including
developing
countries.”
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  9. 9. Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  10. 10. Childlessness:
Uganda
   Couples
live
in
isola9on,
under
s9gma,
and
 fear.
   Society
judges
them
irresponsible
and
a
curse.

   Live
insecurely
within
the
family
unit
–
 polygamy
/abandonment.
   Community
ostracism.
   Witch
doctors

abuse.
   Always
expected
to
give
but
not
to
receive.
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners
 (Rita
Sembuya,
Uganda
for
Joyce
FerAlity
Support
&
African
InferAlity
Alliance)

  11. 11. Margaret’s
story
   My
husband
told
me
I
was
useless.

   No
other
man
will
accept
a
useless
woman
 like
me.


   When
you
are
barren
you
are
useless.
 (27
yr
old
Margaret,
3
months
aHer
husband
deserted
her)
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  12. 12. Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  13. 13. Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  14. 14. No
IVF
 
lab
 No
research
funds
 No No
laparoscopes
 uipment
 No
e No
eq mbryologist
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  15. 15. Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  16. 16. Challenges
   Poor
public
awareness
about
human
reproduc9on
 or
family
planning
   High
fer9lity
rate
   Govt
unaware
of
high
prevalence
of
infer9lity
   Most
women
have
NO
control
over
sex

   High
HIV+
rate
   Cultural/educa9on
barriers
–
high
illiteracy
   Ministry
of
Health
infrastructure:
 Compe9ng
demands
when
ra9oning
very,
very,
   very,
very,
very,
very
scarce
resources.
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  17. 17. Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  18. 18.  Low
cost
IVF
–
part
 of
the
solu9on.
  
Laparoscopes
+
trng
 “I
could
sell
that
to
the
 Ministry”.
 Asst
Commissioner
of
Health:
Paul
Kagwa

 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  19. 19. Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  20. 20. Opportuni/es
   Exchange
programs
to
train
local
doctors
in
 public
hospitals
   Training
for
embryologist
   Assistance
seGng
up
quality
lab
   Public
awareness
educa9on
to
understand
 and
encourage
use
of
family
planning
   Public
awareness
targeted
at
male
pop.
to
 educate
men
about
condom
use
to
protect
 female
fer9lity.
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  21. 21. Benefits
   Allevia/ng
significant
human
suffering;
 Easing
social
isola9on
for
women
   Improving
women’s
and
men’s
health
   Easing
tensions
in
family
real9onships
     Reducing
demand
in
public
health
sector
 for
tmt
of
tubal
disease.
   Reducing
HIV+

   Building
capacity
in
public
health
sector
as
 more
graduates
choose
infer9lity
as
sub
 speciality.

 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  22. 22. Mahmoud
Fathalla: 
“There
is
power
in
partnership,
between
 ac9ve
consumers
and
professionals,

 and
this
power
can
be
used
in
advocacy”.
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  23. 23. Stability
and
growth
 Health

 Governments
 professionals
 Pa/ents/ consumers
 Industry
 Community
 Partners
 Equity
of
access






Pa9ent
autonomy





Reproduc9ve
freedom

 and
medical
responsibility
with
use
of
public
funds
 Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners

  24. 24. Together we can!
 Patients and patients’ organizations working in partnership with:   health professionals,   industry partners and   WHO and govt policy-makers, To provide equity of access for our brothers and sisters in Uganda to help them achieve their dream of having a family. Australia’s
Na,onal
Voice

 Pa,ents
as
equal
partners


×