Razlozi za osnivanje Udruzenja su bili u kvalitetnoj koordinaciji i zajedničkomnastupu roditelja i prijatelja djece koja b...
Naravno, moramo naglasiti nesebičnu pomoć istoimene Asocijacije iz Luxemburga igospodje Marie Marthe Bruck Clees i gospodi...
Prvi i osnovni cilj Udruženja je bio kako riješiti problem oko izmještanja djece van graniceBiH na njihovo daljnje liječen...
These kids has fight with this terrible disease and they can win only if they are send tothe one of European clinics where...
ASSOCIATION “ THE HEART FOR THE   KIDS WITH CANCER IN FBIH”
Zahvaljujući našem Udruženju, djeca koja se ne mogu liječiti u našoj zemlji a neophodnaim je hitna intervencija u inostran...
Udruženje ima blizu 100 članova i finansira se isključivo donacijom humanista, ličnimakcijama i nešto iz Budžeta FBiH. Udr...
Naš prioritet je ohrabriti roditelje, pomoći im da prebrode najteže trenutke u životu.Kako bi to i realizirali, Udruženje ...
Konačno smo, poslije skoro tri godine rada i juna mjeseca 2005.g. uselili uiznajmljeni poslovni prostor u naselju Breka u ...
Namely, besides that we are working for almost two years, the Association succeededjust this month (April, 2005) to sign t...
Udruženje ima i svoje internet stranice http://srcezadjecufbih.tripod.com i gdje sednevno mogu naći odgovarajuće informaci...
Naše Udruženje prati u aktivno učestvuje u svim aktivnostima ICCCPo-a. Konferencije,Kroz moje oči, Medjunrodni dan djece k...
Mnoštvo akcija je realizirano u proteklom periodu a još mnogo toga je pred nama           Many actions has been taken out ...
2006                                    Open letter                           to the authorized institutions              ...
Takodjer smo i sa naših Skupština upućivali apele i zahtjeve...We have also send the requests and demands... from the sess...
KO SPASI JEDAN ŽIVOT KAO DA JE SPASIO CIJELI SVIJET       WHO SAVE ONE LIFE SAFES THE WORLD                   ASSOCIATION ...
Upcoming SlideShare
Loading in …5
×

Sabahudin Hadzialic - Info market Geneve 2006 the heart for the kids

612 views

Published on

Published in: Career, Health & Medicine
0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
612
On SlideShare
0
From Embeds
0
Number of Embeds
175
Actions
Shares
0
Downloads
2
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide

Sabahudin Hadzialic - Info market Geneve 2006 the heart for the kids

  1. 1. Razlozi za osnivanje Udruzenja su bili u kvalitetnoj koordinaciji i zajedničkomnastupu roditelja i prijatelja djece koja boluju od malignih oboljenja a sa ciljempomoci u lijecenju, rehabilitaciji i resocijalizaciji bolesne djece. Godina 2002-2003The reasons for the establishment of the Association were within the qualitycoordination and joint approach of the parents and friends of the cancer sickchildren and with the goal to help within treatment, rehabilitation andresocialisation of the sick children. Year of 2002-2003. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  2. 2. Naravno, moramo naglasiti nesebičnu pomoć istoimene Asocijacije iz Luxemburga igospodje Marie Marthe Bruck Clees i gospodina Francois Schoentgena koji su i odvojiliodredjeni iznos sredstava za početak rada našeg Udruženja zbog čega smo imneizmjerno zahvalni.By all means we have to underline the unselfish help of the Association of the samename from Luxemburg and Mrs. Marie Marthe Bruck- Clees and Mr. FrancoisSchoentgen who put a side certain amount of financial means for the start up of ourAssociation and for what we are immeasurable grateful. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  3. 3. Prvi i osnovni cilj Udruženja je bio kako riješiti problem oko izmještanja djece van graniceBiH na njihovo daljnje liječenje. Drastično je povećan broj djece oboljele od teških oblikaleukemije i drugih malignih bolesti, a podatak je da se od 1997 do 2004.g. više od 234djece do 15 godina starosti liječilo na Klinici u Sarajevu od kojih je 107 oboljelo odleukemije a 127 od ostalih malignih oboljenja. U 2005.g. I 2006.g. se broj oboljelih oddrugih malignih oboljenja i povećao u odnosu na raniji period.First and basic goal of the Association was how to solve the problem in regards takingchildren abroad/outside of BiH for further treatment. It has been drastically increasednumber of children with leukemia and other malignomas, and we have the informationthat as of 1997 until 2004 more that 234 children of up to 15 years of age has beentreated at the Clinic in Sarajevo among whom 107 had leukemia and 127 of other kind ofmalignomas. In 2005 and 2006 the number of other malignomas has increased. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  4. 4. These kids has fight with this terrible disease and they can win only if they are send tothe one of European clinics where would be done transplantation of bony pith and bythat reason our Association send an open letter to the Federal Minister of Health, Mr.Tomo Lucic. The letter has been published in daily newspapers and within the letter hasbeen underlined the medical status of sick children, despair of the parents who areaware that the can not expect any kind for help of any Institution in FBiH, and thequestion was also if they can get that help from some European state and in which way-and by doing that Association underlined within the letter the question: Does the Statehas intention and will to establish and made capable the team for the transplantation ofbony pith for the children in the same way as they did by establishing the team foradults. After the above mentioned letter, Minister Lucic answered the next day in themedia and by doing that gave a hope in solving of problems underlining that in findingthe solution the Federal Government will involve itself together with the Fond ofSolidarity of FBiH. Very soon the decision has been made in regards the conditions andthe way of how the ensured persons- kids will be send abroad for healing treatment inregards the cancer. Later on the Contract has been signed with the State where thechildren will be transferred (and being charged Fond of Solidarity for that)- and it wasState of Republic of Croatia. Until today for children has been send for thetransplantation of bony pith in Zagreb (Croatia) but, unfortunately three of them has died. ASSOCIATION “ THE HEART FOR THE Articles/tekstovi KIDS WITH CANCER IN FBIH”
  5. 5. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  6. 6. Zahvaljujući našem Udruženju, djeca koja se ne mogu liječiti u našoj zemlji a neophodnaim je hitna intervencija u inostranstvu, se izmještaju u Italiju posredstvom italijanskihhumanitarnih organizacija i uz nesebičnu pomoć oko transporta naših prijatelja izEUFOR-a.We have also done the following: The children who can not be healed in our country,and there is a necessary urgent intervention abroad, has been transferred also to Italyby using help of Italian humanitarian organisations and EUFOR. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  7. 7. Udruženje ima blizu 100 članova i finansira se isključivo donacijom humanista, ličnimakcijama i nešto iz Budžeta FBiH. Udruženje je na samom početku bilo bez ikakvihsredstava za rad tako da smo pokrenuli različite akcije. S obzirom da je finansijski isocijalni status porodica u nezavidnom položaju, Udruženje pruža finansijsku pomoćporodici oboljelog djeteta, finansijsku pomoć onom djetetu kojem se vrati bolest (relaps) ifinansijsku pomoć za odlazak u inostranstvo na daljnje liječenje.Our Association has near 100 members and being financed exclusively through thedonation of human people, personal actions and some of it from the Budget of theFederal Government. Having in mind that the financial and social status of the families ofcancer sick children is not good at all, the association gives financial help to the family,financial help to the child with relapse and financial help for going abroad for furthertreatment. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  8. 8. Naš prioritet je ohrabriti roditelje, pomoći im da prebrode najteže trenutke u životu.Kako bi to i realizirali, Udruženje ima cilj i zadatak da, uz pomoć stručnih lica, educiraroditelje kako bi na najlakši način prebrodili tok liječenja djeteta za dobrobit ne samobolesnog djeteta već i cijele porodice. Zahvaljujemo se svim dobrim ljudima koji nampomažu u našim naporima da pomognemo djeci i njihovim porodicama kao i Dr. EdiHasanbegoviću, autoru prvog Priručnika kojeg je izdavač naše Udruženje pod nazivom„Priručnik za roditelje djece oboljele od leukemije“, 2005. a zatim je dosao Bilten i josjedna Brosura 2006.g. Our priority is to encourage the parents, help them to overcome the hardestmoments in their lives- To be able to realise that, the Association has the goal and thetask to, with the help of experts, educate the parents how to find the way to, in mosteasiest way, overcome the period when their child is sick and all of that not only forthe benefit of the sick child but also the whole family. With the help of Dr. EdoHasanbegovic we have published first Brochure for the parents of the cancer sickchildren 2005. and after that we have published bulletin and other Brochure. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  9. 9. Konačno smo, poslije skoro tri godine rada i juna mjeseca 2005.g. uselili uiznajmljeni poslovni prostor u naselju Breka u Sarajevu što će nam pomoći u našimdaljim aktivnostima. Naše Udruženje je od oktobra 2003.g. član ICCCPO uz aktivnoučestvovanje na Kongresima i koordinaciji kontakata sa ostalim članicama. Veomadobru saradnju imamo sa Udruženjima iz okruženja (Srbija i Crna Gora- NURDOR,Hrvatska- SANUS i Makedonija- LEPTIR) uz nadu da će se ta saradnja i proširiti naosnivanje RAURDOR-a, Regionalne Asocijacije Udruženja na prostoru JugoistočneEvrope. Takodjer imamo izvrsnu saradnju sa medijima koji nam pomažu u edukacijikao i animiranju javnosti o problemima sa kojima se susrećemo u našem radu. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH” ENGLISH
  10. 10. Namely, besides that we are working for almost two years, the Association succeededjust this month (April, 2005) to sign the Contract in regards the renting of businesspremises. There is a need for the premises to be equipped and we have a hope that wewill, with the help of human people, put the premises into the function to be able, afterentering the premises (two offices), to have bigger possibilities within the realisation ofexisting task and achievement of goals. Since the October 2003, our Association is thefull member of ICCCPO with active involvement on the Congress of ICCCPO andcoordination of contacts with other members. We have a very good cooperation withthe Association from Serbia and Montenegro (NURDOR) and Croatia (SANUS) with thehope that this cooperation will expand into the establishment of RAURDOR (RegionalAssociation of the Associations of South- East Europe). We have also and excellentcooperation with the media who helps us in two ways: education and animation of thepublic in regards the problems we are facing within our work. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  11. 11. Udruženje ima i svoje internet stranice http://srcezadjecufbih.tripod.com i gdje sednevno mogu naći odgovarajuće informacije o radu Udruženja, o stanju oboljele djece,kao i linkovi od pomoći za roditelje i prijatelje djece koja boluju od malignih oboljenja.Association has its own Internet site: http://srcezadjecufbih.tripod.com where it can befound (almost on daily basis) information about the work of the Association, status of thecancer sick children as well as links of help for the parents and friends of cancer sickchildren. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  12. 12. Naše Udruženje prati u aktivno učestvuje u svim aktivnostima ICCCPo-a. Konferencije,Kroz moje oči, Medjunrodni dan djece koja boluju od raka, Medjunarodna sedmica djecekoja boluju od leukemije Turska, rehabiltacija u Barretstown seroius kampu 2005 i 2006.Our association folows and is in active way involved into the all activities of ICCCPO:Conferences, Through my eyes, ICCD, International leukemia week- Turkey,Rehabilitation at Barretstown serious camp- Ireland in 2005 and 2006 ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  13. 13. Mnoštvo akcija je realizirano u proteklom periodu a još mnogo toga je pred nama Many actions has been taken out and a lot of it is front of us ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  14. 14. 2006 Open letter to the authorized institutions and to Bosnia and Herzegovina public Request, Demand, AskWe are requesting, demanding and kindly asking that authorized state(government) institutions conduct independent and methodologically shapedup analyze of the presence of cancer within the area of Bosnia andHerzegovina in cooperation with authorized medical and statisticalinstitutions.We are requesting, demanding and kindly asking Ministry of civil affairs of BiHthat, within the area of Bosnia and Herzegovina, make possible that childrenand tinageers who were healed of cancer be release of scoring during theenrolling into the Secondary school and/or University/College.We are requesting, demanding and kindly asking that Institute for PublicHealth of FBiH and other authorized institutions for transferring of difficult(heavy) cases of cancer sick children that healing treatment outside of Bosniaand Herzegovina be possible with more options and out of the area of South-East Europe, and if it is possible in developed countries of Western Europe. ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  15. 15. Takodjer smo i sa naših Skupština upućivali apele i zahtjeve...We have also send the requests and demands... from the sessions of our Assemblies ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”
  16. 16. KO SPASI JEDAN ŽIVOT KAO DA JE SPASIO CIJELI SVIJET WHO SAVE ONE LIFE SAFES THE WORLD ASSOCIATION “ THE HEART FOR THE KIDS WITH CANCER IN FBIH”

×