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Mid-Ohio Chapter


                 Resource Guide



Produced by the Family Connections (outreach) Committee. We make eve...
JDRF Mid-Ohio Chapter
                               Resource Guide


                               Table of Contents

  ...
1. INTRODUCTION

The mission of the Juvenile Diabetes Research Foundation (JDRF) is to find a cure for diabetes
and its co...
3. WHEN YOUR CHILD IS DIAGNOSED
http://www.jdrf.org/index.cfm?page_id=103432

This section is especially for parents of ch...
Central Ohio Pediatric Endocrinology and Diabetes Services (COPEDS)
6353 Presidential Gateway, Suite 120
Columbus, OH 4323...
(614) 293-8000
             http://medicalcenter.osu.edu/patientcare/hospitalsandservices/hospitals/university/

         ...
James M. Falko, MD, FACC,     McConnell Heart      (614) 566-4248   Diabetes Mellitus
FACE                          Health...
Samuel R. Anderson, MD           500 Thomas Lane,       (614) 457-7732   Adrenal Disorders
                               ...
Mortimer Dolman, MD              University Hospitals          (614) 471-9788       Diabetes and Metabolism
              ...
Teresa H Knicely, RN    Licking Memorial           Newark          43055        (740) 348-1834
CCM CDE                 Hos...
those beginning to use insulin or using an insulin delivery device; and those beginning to use an
insulin pump or needing ...
Medicine
011 Grosvenor Hall (West Green)
Athens, OH 45701
(740) 593-2453

National Kidney Foundation Central Ohio Chapter
...
Columbus, Ohio 43235
   •Literature about research efforts, diabetes, care-giving, self-management, etc.
   •Education
   ...
Children's Hospital Behavioral Health
614-355-8330

Susan Welner-Brunton, PhD
614-841-9686

Ophthamology
Mary McGregor
Ped...
http://www.jdrf.org
        JDRF website. Includes the latest news and breakthroughs in diabetes research, the
        act...
http://www.diabeteswellness.net/
        Diabetes Research Wellness Foundation/Diabetes Wellness Letter website.
        A...
Commercial website for diabetes medical help.

www.diabetes123.com
      An online support website with a good teen chat r...
research.


11. DIABETES CAMPS
Below is a listing of camps for children with diabetes in Ohio.                       Pleas...
rappelling, river canoeing, overnight camping, initiative games and much more. Senior campers
are privileged to invite a f...
Robin Condon BSN, RN, CDE
Website: www.dys4kids.org/
The Diabetes Educational Summer Day Camp provides specialized learnin...
Put together a support team
Discuss vacation plans with your doctor and other diabetes care providers to work out a tailor...
Tips for Flying with Diabetes Supplies
If you are traveling by air, be sure you have the latest information about flying w...
One-Night Sleepover
  Pajamas
  Clean underwear
  Toothbrush and toothpaste
  Glucose tablets or other emergency sugar...
From the JDRF Life with Diabetes E-Newsletter (November 2005)
Ask a medical professional - Insurance Answers & Questions
B...
US Health & Human Services Department: www.insurekidsnow.gov, or call 877-KIDS-NOW.


14. MEDICAL SUPPLY & PRESCRIPTION AS...
site at www.diabetestrustfoundation.org.

15. SCHOOL ISSUES

http://jdrf.org/index.cfm?page_id=103439

Back to School Basi...
Your child may also want to prepare a presentation for the class in order to help the other
students understand what diabe...
their diabetes to the maximum extent possible in school—including being able to test blood
sugars and treat highs and lows...
sugars affect his behavior. The first grade teacher did the same this year. Julie is very grateful
for such support and sa...
• The Americans with Disabilities Act (ADA), enacted in 1990, sets forth laws that essentially
mirror many of the requirem...
What happens when my child goes off to college?
It is important for parents to be aware that things change a bit at the co...
encouraged to pursue the same activities as other kids in spite of their diabetes. JDRF has
focused on this issue a number...
Published monthly to provide all those interested with the latest information about research on
type 1 diabetes and its co...
Sarah and Puffle: A Story for Children About Diabetes
By Linnea Mulder
Illustrated by Joanne H. Friar

The Diabetic Athlet...
Drug Preserves Beta Cell Function in Type 1 Diabetes Patients
In a major finding, a JDRF-funded human clinical trial in Eu...
19. MID-OHIO CHAPTER INFORMATION (see http://www.jdrf.org/midohio )

134 A-2 Northwoods Blvd.
Columbus, OH 43235
Phone: 61...
Calender of Events
Below is a listing of events occurring throughout the year. Please call 614-464-2873 or email
midohio@j...
Juvenile Diabetes Research
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Juvenile Diabetes Research

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Juvenile Diabetes Research

  1. 1. Mid-Ohio Chapter Resource Guide Produced by the Family Connections (outreach) Committee. We make every effort to keep this document as up to date if possible. If you find any information is incorrect or outdated, please notify JDRF at midohio@jdrf.org or (614) 464-2873. As you read through this document, please understand that the volunteers coordinating this manual, and JDRF, are not healthcare professionals and are unable to provide medical advice, for which you should consult your doctor or other healthcare professionals. The information, nor the way it is listed, is meant to be biased toward any medical professional, service, etc. Thank you! As of June 21, 2006
  2. 2. JDRF Mid-Ohio Chapter Resource Guide Table of Contents Page 1 Introduction 3 2 About JDRF 3 3 When Your Child is Diagnosed 4 4 Ask a Volunteer 4 5 Medical Services in Mid-Ohio 4 6 Endocrinologists in Mid-Ohio 6 7 Diabetes Educators, Programs and Organizations 9 8 Other Specialists (child care, counseling, 13 ophthalmology) 9 Support Groups 14 10 Websites 15 11 Diabetes Camps 18 12 Travel Tips 20 13 Health Insurance/Government websites 24 14 Medical Supply & Prescription Assistance 25 15 School Issues 26 16 Athletics 32 17 Publications 32 18 Research Update 34 19 Mid-Ohio Chapter Information 35 20 Membership Information 37 2
  3. 3. 1. INTRODUCTION The mission of the Juvenile Diabetes Research Foundation (JDRF) is to find a cure for diabetes and its complications through the support of research. The Mid-Ohio Chapter of JDRF is providing this information to inform you of resources available, research initiatives and its activities to raise funds for research toward a cure for diabetes. For the most up to date information in any of the following sections, you are advised to consult the JDRF Mid-Ohio Chapter website (http://www.jdrf.org/midohio) or contact the chapter at 614-464-2873 or midohio@jdrf.org. In individual sections of this guide, specific web pages relevant to the subject of interest are listed at the beginning of the section. 2. ABOUT JDRF Please see section 19 or visit http://www.jdrf.org/midohio for specific information about the Mid- Ohio Chapter. JDRF began in 1970, when parents of children with type 1 (juvenile) diabetes founded the organization to raise money and awareness for diabetes research. JDRF has a clear mission: to find a cure for diabetes and its complications through the support of research. In a typical year, more than 80 percent of JDRF’s expenditures directly support research and research-related education, making it the leading charitable funder and advocate of type 1 (juvenile) diabetes research worldwide. JDRF continually receives top rankings from the American Institute of Philanthropy and other independent sources that rate charitable giving. Since inception, JDRF has awarded more than $900 million to diabetes research, including more than $98 million in FY2005. In FY2005, the Foundation funded 500 centers, grants and fellowships in 19 countries. JDRF’s business like approach for funding research includes taking requests for funding year round, a unique lay review combined with scientific peer review system, and accountability through reporting milestones. Embedded in JDRF's mission are its three cure goals: • Restoring normal blood sugar levels • Preventing and reversing complications • Preventing type 1 diabetes JDRF leverages research funds by partnering with government agencies around the world. Its focus is obtaining the best research, anywhere in the world in the quickest timetable. Approximately 1/3 of the research is now outside the United States. JDRF helps scientists to collaborate, communicate, and share information across research disciplines and across traditional research lines. For more information on JDRF, please visit http://www.jdrf.org. 3
  4. 4. 3. WHEN YOUR CHILD IS DIAGNOSED http://www.jdrf.org/index.cfm?page_id=103432 This section is especially for parents of children with diabetes. A new diagnosis of type 1 (juvenile) diabetes can spark a range of reactions, including anger, sadness and guilt. Whatever your feelings, they are normal and you are not alone. Life with diabetes poses challenges for every member of the family. Whether you have diabetes yourself, or are the parent or loved one of a person with diabetes, it takes time to adapt to the day-to-day demands of the disease. But treatment options are improving all the time, and diabetes will not prevent you or your child or loved one from living a full and active life. With medical and emotional support, children with diabetes and their families will learn to cope with the demands that the disease imposes. A child with diabetes, depending on age, will learn to take over much of his or her care. As time goes by, everyone will gain knowledge and confidence, and be able to celebrate successes, learn from mistakes, and move away from the intense feelings common after diagnosis. Until there is a cure, we want to provide information that will help you cope with the burdens diabetes imposes, take advantage of help that is available right now, and keep you and your loved ones as strong and healthy as possible. The sections below contain some basic information about diabetes and its management that is based, first and foremost, on input from parents and children who have “been there” as well as from physicians and diabetes educators. 4. ASK A VOLUNTEER • The Mid-Ohio Chapter keeps a list of JDRF volunteers (parents, siblings, spouse, adults and teens who have diabetes) who are available to talk with you about their experience in dealing with diabetes. Please contact the Mid-Ohio Chapter at 614-464-2873 or midohio@jdrf.org to be put in contact with one of the volunteers. We will do our best to match you with a volunteer who matches your specifications (age, area of town, etc.). • JDRF also offers an Online Diabetes Support team made up of JDRF volunteers from around the country: adults and teens who have diabetes; parents, siblings, spouses, grandparents, and others. To contact a member of the team, visit http://www.jdrf.org/index.cfm?page_id=103451 and submit your request. One of the team members will personally respond by e-mail within 48 hours. If you are UNDER 13, our team is unfortunately not able to respond to you directly, but you may have a parent contact us with questions 5. DIABETES MEDICAL SERVICES IN MID-OHIO This information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers. Appalachian Rural Health Institute Diabetes Center @ The Ohio University College of Osteopathic Medicine Parks Hall (West Green) Athens, OH 56701 (740) 593-2424 http://www.oucom.ohiou.edu/arhi/dec.htm 4
  5. 5. Central Ohio Pediatric Endocrinology and Diabetes Services (COPEDS) 6353 Presidential Gateway, Suite 120 Columbus, OH 43231 (614) 839-3040 http://www.copeds.com Children’s Hospital 700 Children’s Drive Columbus, Ohio 43205-2696 (614) 722-2000 http://www.childrenscolumbus.org/gd/templates/pages/Home/home.aspx?page=1 Doctors Hospital 5100 West Broad Street Columbus, Ohio 43228 (614) 544-1000 http://www.ohiohealth.com/facilities/doctors/ Grant Medical Center 111 South Grant Avenue Columbus, Ohio 43215 (614) 566-9000; scheduling (614) 566-1111 http://www.ohiohealth.com/facilities/grant/ McConnell Heart Health Center 3773 Olentangy River Road Columbus, Ohio 43214 (614) 566-5356 http://www.ohiohealth.com/facilities/mcconnell/about/maps.htm Mount Carmel West Hospital 793 West State Street Columbus, Ohio 43222-1560 (614) 234-5000 http://www.mountcarmelhealth.com/index.cfm Mount Carmel East 6001 East Broad Street Columbus, Ohio 43213 614-234-6000 http://www.mountcarmelhealth.com/index.cfm Mount Carmel St. Ann’s 500 South Cleveland Avenue Westerville, Ohio 43081 614-898-4000 http://www.mountcarmelhealth.com/index.cfm The Ohio State University Medical Center University Hospital 410 West 10th Avenue Columbus, Ohio 43210-1240 5
  6. 6. (614) 293-8000 http://medicalcenter.osu.edu/patientcare/hospitalsandservices/hospitals/university/ Riverside Methodist Hospital 3535 Olentangy River Road Columbus, Ohio 43214-3998 (614) 566-5000; scheduling (614) 566-1111 http://www.ohiohealth.com/facilities/maps/riverside/index.htm 6. ENDOCRINOLOGISTS IN MID-OHIO This information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers. Please visit http://www.aace.com/index.php to find a complete up to date listing of endocrinologists in your area. 700 Children's Dr. (614) 722-5125 Endocrinology/ Juan F. Sotos, MD Columbus, Ohio Metabolism 43205 Pediatric Endocrinology 700 Children's Dr. (614) 722-4425 Endocrinology/ Monika Chaudhari, MD Columbus, Ohio Metabolism 43205 Pediatric Endocrinology 700 Children's Dr. (614) 722-4425 Endocrinology/ Robert P. Hoffman, MD Columbus, Ohio Metabolism 43205 Pediatric Endocrinology 700 Children's Dr. (614) 722-4425 Endocrinology/ Lawrence A. Wetterau, MD Columbus, Ohio Metabolism 43205 Pediatric Endocrinology 700 Children's Dr. (614) 722-4425 Endocrinology/ Sasigarn A. Bowden, MD Columbus, Ohio Metabolism 43205 Pediatric Endocrinology 6353 Presidential (614) 839-3040 Endocrinology/ William B. Zipf, MD Gateway, Suite 120 Metabolism Columbus, Ohio Pediatric Endocrinology 43231 Diabetes Rebecca Dorothy Jackson, MD 1581 Dodd Drive (614) 292-3800 Metabolic Bone Disorders 485 McCampbell Parathyroid Disorders Hall Osteoporosis Columbus, Ohio 43210-1257 N924 Doan Hall (614) 293-8890 Adrenal Disorders William B. Farrar, MD 410 West 10th Cancer Avenue Parathyroid Disorders Columbus, OH Thyroid Dysfunction 43210-1240 6
  7. 7. James M. Falko, MD, FACC, McConnell Heart (614) 566-4248 Diabetes Mellitus FACE Health Center General Endocrinology and 3773 Olentangy Metabolism River Road Lipid Disorders Columbus, Ohio Thyroid Dysfunction 43214-3908 Elizabeth Anne Diakoff, MD 1581 Dodd Drive (614) 292-3800 Diabetes Mellitus 491 McCampbell Hall Columbus, OH 43210 Ravi Dhawale, MD 1581 Dodd Drive (614) 292-3800 Diabetes Mellitus McCampbell Hall Obesity Columbus, Ohio Nutrition 43210 Community (614) 566-5605 Diabetes Mellitus Daryl A. Cottrell, MD, FACE Medicine General Endocrinology and 500 Thomas Lane, Metabolism Suite 2C Columbus, Ohio 43214-1419 Elena A. Christofides, MD 72 West 3rd Avenue (614) 453-9999 Adrenal Disorders Columbus, Ohio Diabetes Mellitus 43201 General Endo/Metab. Lipid Disorders Nutrition Parathyroid Disorders Pituitary Disorders Thyroid Dysfunction 441 McCampbell (614) 292-5208 Diabetes Mellitus Samuel Cataland, MD Hall General Endocrinology and 1581 Dodd Drive Metabolism Columbus, Ohio 43210-1257 Angela Christine Bucci, DO 500 Thomas Lane, (614) 457-7732 Adrenal Disorders Suite 36 Diabetes Mellitus Columbus, Ohio Metabolic Bone Disorders 43214-1419 Thyroid Dysfunction Osteoporosis 500 East Main (614) 233-9925 Diabetes Mellitus John D. Blackman, MD, FACE Street, Suite 100 General Endocrinology and Columbus, Ohio Metabolism 43215-5369 Metabolic Bone Disorders Pituitary Disorders Thyroid Dysfunction Romi Bhasin, MD, PhD Central Ohio Endo. (614) 684-9581 Diabetes Mellitus LLC General Endocrinology and 5969 East Broad Metabolism Street, Suite 302 Thyroid Dysfunction Columbus, Ohio 43213 7
  8. 8. Samuel R. Anderson, MD 500 Thomas Lane, (614) 457-7732 Adrenal Disorders Suite 3G Diabetes Mellitus Columbus, Ohio General Endocrinology and 43214 Metabolism Thyroid Dysfunction Rebecca D. Jackson, MD University Hospitals (614) 292-3800 General Endocrinology James Cancer Osteoporosis Hospital Metabolic bone disease University Hospitals East Jennifer Taeko Rittenberry, MD 485 McCampbell (614) 292-3800 Diabetes Mellitus Hall Thyroid Dysfunction 1581 Dodd Drive Columbus, Ohio 43210-1257 941 Chatham Lane, (614) 457-7746 Diabetes Mellitus Suite 206 General Endocrinology and Charles M. Katz, MD, FACE Columbus, Ohio Metabolism 43221-2416 Raheela Ajmal Khawaja, MD Ohio State (614) 688-5878 Diabetes Mellitus Ohio State University University 491 Pituitary Disorders McCampbell Hall Thyroid Dysfunction 1581 Dodd Drive Columbus, Ohio 43210-1257 John N. Larrimer, MD 6020 Cranberry (614) 868-9129 Cancer Court Diabetes Mellitus Columbus, Ohio Thyroid Dysfunction 43213 Osteoporosis William Blair Malarkey, MD Davis Medical (614) 293-8775 General Endocrinology and Research Metabolism Building 2111-E Pituitary Disorders Columbus, Ohio 43210 Manuel Tzagournis, MD 4335 Sawmill Road (614) 442-1980 Diabetes Mellitus Columbus, Ohio Lipid Disorders 43220 Raheela A. Khawaja, MD University Hospitals (614) 292-3800 General Endocrinology James Cancer Hospital Lawrence S. Kirschner, MD, University Hospitals (614) 292-3800 Endocrine Tumors Pituitary PhD James Cancer Tumors Thyroid Tumors Adrenal Hospital Tumors Dara P. Schuster, MD University Hospitals (614) 292-3800 Diabetes and Glucose James Cancer Metabolism Hospital 8
  9. 9. Mortimer Dolman, MD University Hospitals (614) 471-9788 Diabetes and Metabolism East Geriatric Medicine Steven H. Lichtblau, MD University Hospitals (614) 527-2562 Endocrinology General Internal Medicine Geriatrics 7. DIABETES EDUCATORS, PROGRAMS & ORGANISATIONS IN MID-OHIO This information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers. A list of up-to-date Diabetes Educators can be found via http://members.aadenet.org/ Scriptcontent/AADE_Educator_Search_Action.cfm. Diabetes Educators Name Company/Employer City Zip Phone Brenda Ames Medical And Surgical Newark 43055 (740) 344-6901 Assoc Marti Andrews, PhD, The Ohio State Columbus 43210 (614) 688-8656 RD, LD University Glenna J. Bell, RD, LD Memorial Hospital Of Marysville 43040 (937) 578-2442 Union County/Food & Nutrition Cherrie A Cherrington, Mc Connel Heart Health Columbus 43214 (614) 566-5143 RN CDE Center/clinic Valerie J Christensen, Va Opc Columbus Ohio Columbus 43203 (614) 257-5684 RN CDE Jane E. Collins, RN Mount Carmel West Columbus 43222 (614) 234-3823 BSN CDE Hospital Denise Cooper, BSN Marietta Memorial Marietta 45750 (740) 568-5433 MSN CDE Hosp/Diabetes Education Mary Dye, RN CDE Washington 43160 (740) 333-2954 Court House Jennifer L Dzwonczyk, Riverside Methodist Columbus 43214 (614) 566-5551 BSN Hospital Patricia S. Graves, RN Central OH Pediatric Columbus 43231 (614) 839-3040 CPNP CDE Endo & DM Services Cara Harris, CNP The Ohio State Columbus 43210 (614) 688-3818 University Julia A Hitch, RN BSN Mt Carmel Health Columbus 43222 (614) 234-7114 CDE Systems 9
  10. 10. Teresa H Knicely, RN Licking Memorial Newark 43055 (740) 348-1834 CCM CDE Hospital/comm Case Mgmt Tracey Kubik, RD LD Central Ohio Primary Columbus 43214 (614) 459-0216 ext 204 Care Physician's Inc. Jan E Martin, RD LD Endocrinology Assoc Columbus 43201 (614) 453-9999 CDE Inc Gail M. Meddles, RN Memorial Hospital Of Marysville 43040 (937) 578-2280 Union Co/Diabetes Ed Stacey L Newpoff, MS Mc Connell Heart Columbus 43214 (614) 566-3801 RD CDE Health Center/DM Self- Mgmt Allen Nichol, PharmD Grandview Family Columbus 43212 (614) 488-5996 Practice Lynda Children’s Hospital Columbus 43205 (614) 722-6550 Peel Beverly L. Pinkston, Central Ohio Diabetes Columbus 43201 (614) 884-4400 RN BSN CDE Association Audrey Scott, RD LD Central Ohio Primary Columbus 43214 (614) 459-0216 ext 202 CDE Care Physicians Inc/DM Education Suzanna H Theodoras, Ohio University / A R H Athens 45701 (740) 593-2453 RN CDE I Diabetes Center Wynola N Wayne, RN Childrens Hospital Columbus 43205 (614) 722-6217 BSN CDE Clinical Svcs &cc Keirsten M. Welch, RD Paramount Nutrition Columbus (800) 631-3766 LD Therapy, Llc Education Programs Children’s Hospital Diabetes Medical Services in Mid Ohio (614) 722-4949Community Education Institute for Pediatric Education 700 Children’s Drive Columbus, Ohio 43205 communityeducation@chi.osu.edu OSU Division of Endocrinology and Metabolism (614) 293-8000 420 West 10th Ave Columbus, Ohio 43210 Classes to people with (or family of) type 1 or type 2 diabetes For general information and newly diagnosed patients. Classes are also offered for: those using insulin with an intensive schedule (three or more injections daily) and carbohydrate counting; 10
  11. 11. those beginning to use insulin or using an insulin delivery device; and those beginning to use an insulin pump or needing review sessions. http://medicalcenter.osu.edu/patientcare/healthinformation/support/?ID=1323&GID=76 Central Ohio Diabetes Association (614) 884-4400 1100 Dennison Ave. Columbus, Ohio 43201 Diabetes classes offer a comprehensive look at self-management techniques. A registered nurse and dietitian, who are both certified diabetes educators, teach a series of four two-hour classes. Classes include meal planning, medications, stress management and other diabetes- related topics. Many insurance companies cover the fee. For persons on a limited income, reduced fees are available on a sliding scale. No one will be denied services because of inability to pay. Day and evening sessions are offered. To register for the class series and inquire about fees, call Central Ohio Diabetes Association at (614) 884-4400 or 1-800-422-7946. Registration is required and class size is limited. http://www.diabetesohio.org/cms/content/view/11/34/ Diabetes Services at the McConnell Heart Health Center (614) 566-5356 3773 Olentangy River Road Columbus, Ohio 43214 •Classes covering diabetes, ketone testing, insulin and oral medications, home blood sugar testing, meal planning, grocery shopping, eating out, hyper-hypoglycemia, exercise, foot care and travel. •Setting personal behavior change goals with assistance from an educator; follow-up through individual appointment by phone and/or mail. •Individual instruction on diet, home blood sugar monitoring and insulin administration. •On-going continuing education and follow-up visits available. •Up-to-date education materials, resources, films and visual aids. •Education during pregnancy. Classes are offered both daytime and evenings. Family members or significant others are encouraged to attend classes at no additional charge. Classes are offered at the McConnell Center. http://www.ohiohealth.com/services/conditionsanddiseases/diabetes/index.htm Diabetes Self-Management Program at Mount Carmel Several locations available. Please call: (614) 234-2628 A collection of classes, consultations and support groups about the demands of your disease and put you in touch with the people who can help you manage it. The program gives you the tools to control your diabetes - so it doesn't control you. In addition to offering education, the Diabetes Self-Management Program introduces you to others who are dealing with the disease and living well. Taking part in the program left them more in control of their illness and better prepared to cope with the disease. The American Diabetes Association has recognized the Diabetes Self-Management Program at Mount Carmel for Quality Self-Management Education. http://www.mountcarmelhealth.com/520.cfm Applachian Rural Health Institute Diabetes Center Ohio University College of Osteopathic 11
  12. 12. Medicine 011 Grosvenor Hall (West Green) Athens, OH 45701 (740) 593-2453 National Kidney Foundation Central Ohio Chapter (614) 481-4030 1373 Grandview Avenue Columbus, Ohio 43212 •Printed materials •Medical ID bracelets •Summer camp Life Care Alliance (614) 278-3130 1699 West Mound Street Columbus, Ohio 43223 •Call for location of individual centers •Wellness centers to assess blood glucose, blood pressure and some nursing services •Housekeeping services •Home care, diabetes teaching Bureau of Services for Visually Impaired (614) 466-7730 3333 Indianola Avenue, Suite 402 Columbus, Ohio 43214-4192 •Vocational rehabilitation •Adoptive training •Restoration •Vocational development for school age youth Ohio Society to Prevent Blindness (614) 464-2020 1500 W. Third Avenue, Suite 20 Columbus, Ohio 43212 •Free glaucoma and visual acuity screening •Information and referral services Vision Center (614) 294-5571 1393 North High Street Columbus, Ohio 43201 •Personal and work adjustment in activities of daily living with a vision deficit Diabetes Organizations Juvenile Diabetes Research Foundation (614) 464-2873 134 A2 Northwoods Boulevard 12
  13. 13. Columbus, Ohio 43235 •Literature about research efforts, diabetes, care-giving, self-management, etc. •Education •Support groups and resources for children and parents Central Ohio Diabetes Association (614) 884-4400 1100 Dennison Avenue Columbus, Ohio 43201 •Public education programs •Adult support groups One month free supply of strips and lancet once a year (for people in need) American Diabetes Association (614) 436-1917 937 High Street Worthington, Ohio 43085 •Membership programs •Equipment loans •Emergency patient assistance 8. OTHER SPECIALISTS/SERVICES This information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers. Childcare Sitters Unlimited – have sitters identified who have experience with type 1 diabetes Contact: Julie O’Donnell at 614-799-9116 Counseling Anthony Alioto, PhD Children’s Hospital Psychology Department 614-722-4700 Jolie Brams, PhD Children’s Hospital Guidance Centers Intake 614-222-1999 Dan Davis, PhD 614-451-6157 Marcia Huhn, MS, LPCC Gerlach, Lear & Assoc., Inc. 614-451-9401 Sawmill Family Counseling 614-766-1061 Erin K. Torson, Ph.D. 13
  14. 14. Children's Hospital Behavioral Health 614-355-8330 Susan Welner-Brunton, PhD 614-841-9686 Ophthamology Mary McGregor Pediatric Ophthalmology Assoc. Inc. 614-224-6222 9. SUPPORT/NETWORKING GROUPS FOR PARENTS & CHILDREN WITH DIABETES IN MID-OHIO Columbus Area 1. POLO (Parents of Little Ones) – bimonthly support/networking group with guest speakers. Parents, family and friends are encouraged to attend. POLO is not designed just for parents of young children; those with older children are encouraged to attend. Children are welcome. Contact: announcements are posted on JDRF chapter website (http://www.jdrf.org/midohio) Calendar of Events, or contact the JDRF office at 614-464-2873 or midohio@jdrf.org to be added to the mailing list (email or hard copy). 2. Mom’s Night Out – an opportunity for mom’s to get together. Meets monthly at Columbus area restaurants. Contact: Kathy Feeley at rfeeley@insight.rr.com; announcements posted on chapter website. 3. Playgroups - North Columbus area coordinated by Megan Jaycox mjaycox@columbus.rr.com, also posted on the chapter website calendar of events. 4. “Insulin Pumpers' Support Group” – meets monthly at Columbus area restaurants. This is an un-structured, friendly, stress free group of men and woman ages 20-50, who are using the pump, but everyone is welcome. It is a chance for people to swap ideas, new techniques or products, ask for suggestions or contacts, etc. Contact: If you have any questions or would like to be included in the email notification/reminder list, please email Kristen McMahon at kree22osu@hotmail.com or Cheryl Manbeck at cherylmanbeck@yahoo.com. Mansfield Area 1. MedCentral Mansfield Juvenile Diabetes Support Group – meets 3rd Monday of the months throughout the school year (Sept. – Nov. and Jan. – May) at 335 Glessner Ave. (Mansfield) in the Patient Education Suite. Contact: Donna Dillinger, 419-526-8923. Knox County Area 1. Support Group – meets every other month during the school year at the Knox County Health Department, first Thursday of the month, 6:30 p.m. Contact: Lindsay Davis at ldavis@knoxhealth.com. 10. DIABETES WEBSITES TO EXPLORE 14
  15. 15. http://www.jdrf.org JDRF website. Includes the latest news and breakthroughs in diabetes research, the activities of JDRF and “Kids Online” http://kids.jdrf.org/, a special site devoted to children with diabetes. http://kids.jdrf.org/index.cfm JDRF Kids Online. The website for kids with diabetes and their friends and family. http://www.medhelp.org/perl6/Diabetes/ Med Help - Juvenile Diabetes Forum. This extensive resource for consumer health information on the Web features a Juvenile Diabetes forum staffed by JDRF volunteers. http://diabetes.niddk.nih.gov/index.htm The National Diabetes Information Clearinghouse (NDIC). A service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). Established in 1978, the clearinghouse provides information about diabetes to people with diabetes and to their families, health care professionals, and the public. http://diabetes.niddk.nih.gov/dm/pubs/dictionary/ This dictionary from the NIDDK defines words that are often used when people talk or write about diabetes. It is designed for people who have diabetes and for their families and friends. http://ndep.nih.gov/ The National Diabetes Education Program is a federally-sponsored initiative that involves public and private partners to improve the treatment and outcomes for people with diabetes, to promote early diagnosis, and to prevent the onset of diabetes. http://www.cdc.gov/diabetes/faq/index.htm The Centers for Disease Control and Prevention (CDC), an agency of the Department of Health and Human Services, provides answers to frequently asked questions about Diabetes, along with information about prevention and treatment. http://www.dlife.com/ dLife.com serves as a total diabetes hub, featuring the latest information and exclusive content about both types 1 and 2 from many of the top experts in the world. Topics include diagnosis, research, lifestyle, and diabetes treatment and management information. http://www.childrenwithdiabetes.com An "online community" for kids, families, and adults with diabetes. Includes sample 504 and IEP plans. http://www.fda.gov/diabetes/ - U.S. Food and Drug Administration website. The FDA regulates the medical products used to treat diabetes, including glucose meters, insulin pumps, diabetes medicines, and insulin. Its Web site is an excellent source for new products that have received FDA approval and other current information about diabetes care. http://www.diabetesmonitor.com/ "Monitoring diabetes happenings everywhere in cyberspace." 15
  16. 16. http://www.diabeteswellness.net/ Diabetes Research Wellness Foundation/Diabetes Wellness Letter website. Articles on treatment, diet and exercise, and lifestyle. http://www.newtecumseth.library.on.ca/banting/ Banting Digital Library website. History of discovery of insulin; links to U.S./international diabetes organizations. http://www.insulin-pumpers.org/ Insulin Pumpers. Provides information and support for adults and children with diabetes and their families interested in insulin pump therapy. http://www.aadenet.org/ American Association of Diabetes Educators (AADE) website. General diabetes information; find a diabetes educator. http://www.diabetes-exercise.org/index.asp Diabetes Exercise and Sports Association (DESA) website. DESA exists to enhance the quality of life for people with diabetes through exercise and physical fitness. http://www.aace.com/index.php American Association of Clinical Endocrinologists (AACE) website. A professional medical organization devoted to the enhancement of the practice of clinical endocrinology. http://www.diabetescamps.org/ Diabetes Camping Association. Lists diabetes camps worldwide. http://medicalcenter.osu.edu/patientcare/healthinformation/ The Ohio State University Medical Center has information on diabetes classes that are offered through the OSU Division of Endocrinology and Metabolism. http://www.diabetesohio.org Central Ohio Diabetes Association. http://www.Diabetes.org/ American Diabetes Association website. http://www.themedicineprogram.com/ Provides prescription medication for people who do not have adequate insurance coverage or are experiencing financial hardship- no toll free number but can be reached at (573) 966-7300. www.thorfoundation.org T.H.O.R. Foundation has a good up to date news section. www.jewishdiabetes.org For people who are interested in a Jewish diet and lifestyle while coping with diabetes. www.healthMBA.com 16
  17. 17. Commercial website for diabetes medical help. www.diabetes123.com An online support website with a good teen chat room. http://www.eatright.org American Dietetic Association http://eatrightohio.org The Ohio Dietetic Association’s site provides food and nutrition information in Ohio. http://www.nutrition.gov/ This site includes a variety of nutrition information and features specific nutrition information on a variety of foods. http://www.diabetes.ca Canadian Diabetes Association http://www.diabetesworld.com Diabetes Interview http://www.diabeteslife.net Diabetes Life Network http://www.healthlinkusa.com Health-related search engine. http://www.americanheart.org American Heart Association website has information on ways you can reduce your chance of heart disease and other complications of diabetes. http://www.healthfinder.gov Health Finder: English and Spanish health information. http://www.4woman.gov National Women’s Health Information Center. http://www.noah-health.org The New York Online Access to Health features information in English and Spanish. The site has extensive diabetes information with links to many other diabetes related sites. http://www.type1tools.com Type1Tools offers educational tools designed to simplify everyday tasks and build knowledge and confidence in children with type 1 and type 2 diabetes. http://www.diabetes.com/ This site specializes in type 2 diabetes. http://www.celiac.org/connections.php CDF's mission is dedicated to providing services and support regarding Celiac Disease and Dermititis Herpetiformis through programs of awareness, education, advocacy and 17
  18. 18. research. 11. DIABETES CAMPS Below is a listing of camps for children with diabetes in Ohio. Please visit http://www.diabetescamps.org/ for a full listing of camps for children with diabetes worldwide. Stepping Stones Camp Central Ohio Diabetes Association 1100 Dennison Avenue Columbus, Ohio 43201 1-800-422-7946 (in Ohio) (614) 884-4400 (614) 884-4484 Fax coda@diabetesohio.org Introductory program designed for first-time campers and those recently diagnosed to assist in learning more about themselves and diabetes. Stepping Stones is a three-day day camp with an overnight campout. Located at Hoover Y-Park, 1570 Rohr Road, Lockbourne, Ohio, just south of Columbus; 9:00 a.m. to 4:00 p.m. Camp Hamwi Programs Central Ohio Diabetes Association 1100 Denison Avenue Columbus, Ohio 43201 1-800-422-7946 (in Ohio) (614) 884-4400 (614) 884-4484 Fax coda@diabetesohio.org From beginners to more practiced individuals, Camp Hamwi offers a diverse program for any skill level. The camp environment promotes a sense of team spirit and good sportsmanship in individual and group activities, and competitive and non-competitive challenges. Campers are encouraged to try new skills and explore their unique individual potentials. Activity options include horseback riding, archery, volleyball, soccer, canoeing, swimming, arts and crafts, drama, dance, outdoor living skills, nature crafts, and outdoor adventure. Incorporated into the daily schedule are diabetes education sessions to increase campers' understanding of diabetes. The program is specially designed to address the interests of a particular age group. Trailblazers Week (ages 7 - 10) Activities and programs are geared to entertain and encourage the youngest resident campers. Hayrides, water games, a talent show and a treasure hunt are a few of the activities that make this program full of wholesome fun and delight. Special programs highlighting the Trailblazer week include a spectacular carnival celebration where everyone comes dressed in their zaniest attire. Explorers Program (ages 11 - 13) A week of adventure created to inspire this energetic group of campers. Rafting along the Mohican River or spending a day swimming, boating and tubing at the lake. Explorers are busy with an exciting array of activities. Evenings find campers dressing up for a variety show or preparing for a day of Olympic competition. Senior Challenge (ages 14 - 17) A more advanced program structured to challenge our oldest campers. Seniors are exposed to 18
  19. 19. rappelling, river canoeing, overnight camping, initiative games and much more. Senior campers are privileged to invite a friend to attend Hamwi with them. Friends can use the application form, checking the appropriate "Friend" box. Counselors-In-Training (ages 17 - 18) For individuals entering their senior year of high school and looking for an opportunity to develop their leadership potential. No longer campers and not yet staff, C.I.T.s undergo a comprehensive counselor training program designed to increase their awareness of counselor responsibilities and leadership roles. To apply for this program, please contact the camp director. Camp Ho Mita Koda Camp Ho Mita Koda Administrative Offices 3601 S. Green Road, Suite 100 Cleveland, Ohio 44122 (216) 591-0800 email: camp@dagc.org website: www.CampHoMitaKoda.org Camp Ho Mita Koda's mission is to enable children to live well with diabetes through an enjoyable camp experience. Camp Ko-Man-She Diabetes Association / Dayton Area - DADA West Medical Plaza 1 Elizabeth Place, Suite 180 Dayton, Ohio 45408 Phone: (937) 220-6611 Fax: (937) 224-0240 E-mail: info@diabetesdayton.org Website: www.diabetesdayton.org Camp Ko-Man-She provides a safe, healthy and natural environment for your child's camping adventure. Programs offered at camp have been well thought out and planned for maximum stimulation and enjoyment. A goal of camp is to teach skills to your child that will help them manage their own diabetes. Diabetes Resident Camp The Diabetes Youth Program 3100 W. Central Avenue, Suite 158 Toledo, Ohio 43606 (419) 578-1796 Robin Condon BSN, RN, CDE website: www.dys4kids.org/ The Diabetes Resident Camp is the only camp of its kind in northwest Ohio to offer a weeklong outdoor adventure for pre-teen and teenage children with diabetes. Campers with diabetes are welcome to share the week with friends or family members who may not have diabetes and care about someone who does. Summer Day Camp The Diabetes Youth Program 3100 W. Central Avenue, Suite 158 Toledo, Ohio 43606 (419) 578-1796 19
  20. 20. Robin Condon BSN, RN, CDE Website: www.dys4kids.org/ The Diabetes Educational Summer Day Camp provides specialized learning programs designed for elementary school students with diabetes. In a fun-filled recreational setting, the camp offers these children practical solutions to problems they confront daily because of their diabetes. 2005 Kids Day Camp Hoover Y-Park, 1570 Rohr Road, Lockbourne, Ohio just south of Columbus; 9 a.m. to 3 p.m. This three-day program, June 20-22, is for young children with diabetes, ages 3 to 7, to participate in three days of outdoor fun, group games and diabetes education. Parents and siblings are welcome. Cost is $85 per camper. Call the Central Ohio Diabetes Association at 614-884-4400 or 1-800-422-7946 to register. 12. DIABETES TRAVEL TIPS Diabetes care needs continue, even if you are traveling. However, with a few simple precautions and a little planning, you should be able to travel without any difficulty. When traveling, follow the tips listed below: •Carry a first aid kit with bandages, gauze pads and antibacterial soap. •Wear diabetes identification. Travel with someone, if possible. Carry the telephone number of your doctor. •Request a diabetic meal if you are flying. Most airlines do provide special meals with 24- hour notice. •Follow your meal plan and try to eat on time. •Carry a supply of food in case of delayed meals. Try small cans of juice, dried fruit, cheese, crackers, peanut butter, and glucose tablets. Maintain fluid intake (diet sodas, decaffeinated tea/coffee, water, etc.). •Drink bottled water in countries where drinking water may be unsafe. •Carry your medications and glucose meter with you if you are flying. Baggage can be lost during travel and temperatures not controlled in airline baggage compartments may affect your insulin. •Bring extra medications in case you are delayed in returning home. You may need a prescription or letter from your doctor stating that you are on insulin if you are going through customs. Bring extra monitoring supplies. •If changing time zones, you may need to change your medication schedule. Discuss this with your doctor. •If traveling by car, do not store insulin in the car overnight or where it will freeze or become overheated. •Carry a list of your medications in your wallet at all times. Include your drug allergies. •Take medications to control vomiting or diarrhea, and bring antacids to counteract new foods. If you have type 1 diabetes, carry urine ketone strips to monitor your urine as needed. http://jdrf.org/index.cfm?page_id=103441 Travel Tips Whether you’re planning short day trips or a voyage of several weeks, thinking ahead will alleviate many problems, not to mention a lot of stress. Although diabetes requires extra work, you will find that virtually any trip or event you have planned is do-able. So read on and prepare to have a fabulous family vacation. 20
  21. 21. Put together a support team Discuss vacation plans with your doctor and other diabetes care providers to work out a tailored plan. Any change in activity can affect blood sugar levels. For big trips, added excitement may cause lows, so you may want to consult your doctor for help with changing insulin dosages at such times. Also, ask your doctor for a letter explaining your medical condition and treatment needs, and get a prescription for insulin in case of an emergency. Make any special accommodations for your child with diabetes well in advance of camp trips and other events. Speak to camp counselors, coaches, relatives, friends, etc. ahead of time to be sure you and your child will have enough support wherever you go. If you’re not comfortable with the level of support, change your plans. Pack extra supplies of everything you use to treat diabetes, and pack them in more than one bag, including a carry-on or purse. Make sure you wear your medical ID bracelet, or other medical identification, and let friends or family members know your itinerary. You may also want to make reservations at restaurants to avoid long waits, and ask if they can provide you with nutritional information on their menu items. Check blood sugar levels more often In general, people with type 1 diabetes should check blood sugars at least six times a day as part of their regular routine, and more whenever their schedule changes. Heat and excitement are two factors that can significantly affect blood sugar levels. The more often you check blood sugars, the more easily you’ll be able to anticipate and avoid problems. The insulin pump is becoming more and more popular, as it provides quite a bit of flexibility in your routine while also eliminating the need for insulin injections. Kids are becoming “pumpers” at very young ages and immediately after diagnosis as the technology improves and word spreads. If you have a child with diabetes, ask your doctor if the pump is right for him or her and, if possible, speak to other parents about their experiences with their children or teens on the pump. Beat the heat People with diabetes may experience more low blood sugars in the heat, so take extra precautions. Dehydration can be a serious problem, whether or not you have diabetes, so make sure you carry water with you at all times, even when going to the beach or pool for the day. Most experts recommend drinking at least eight 8-oz. glasses of water a day in order to avoid problems, and even more if you’re going to be very active. Keep meters, test strips, and insulin out of direct sunlight and use insulated containers or ice packs, but be sure insulin does not freeze. Special considerations for amusement parks If you are taking a child with diabetes to a major amusement park like Disney World, the first thing you should do when you arrive is go to the guest relations office. Explain to the staff that your child has diabetes and must eat, check blood sugars, and take insulin at specific times. Some of them will give you a pass that will get your family in the handicapped line for most rides, which will drastically cut the amount of time you will have to wait in lines. Bring a backpack with snacks, juices, water, and all your diabetes supplies. You may also want to pack meters and insulin pumps in waterproof bags so they don’t get wet on water rides. If your child is relatively young, you can also rent a stroller for the day and stash supplies in there—and when he/she gets tired, he/she can rest in it, too. Many parents also suggest making reservations for sit-down meals at amusement park restaurants before leaving for your trip. 21
  22. 22. Tips for Flying with Diabetes Supplies If you are traveling by air, be sure you have the latest information about flying with diabetes supplies. The information below is an excerpt from the guidelines for travelers with diabetes provided by the Transportation Security Administration of the Department of Homeland Security. Please note that JDRF is not responsible for the accuracy of this information. You may want to print this page to take with you to the airport, as well as call your airline for additional information. http://www.tsa.gov/public/interapp/editorial/editorial 1375.xml Persons with Diabetes •Notify the screener that you have diabetes and are carrying your supplies with you. The following diabetes-related supplies and equipment are allowed through the checkpoint once they have been screened: •insulin and insulin loaded dispensing products (vials or box of individual vials, jet injectors, pens, infusers, and preloaded syringes); •unlimited number of unused syringes when accompanied by insulin or other injectable medication; •lancets, blood glucose meters, blood glucose meter test strips, alcohol swabs, meter-testing solutions; •insulin pump and insulin pump supplies (cleaning agents, batteries, plastic tubing, infusion kits, catheters, and needles); •Glucagon emergency kit; •Urine ketone test strips; •Unlimited number of used syringes when transported in sharps disposal container or other similar hard-surface container; •Sharps disposal containers or similar hard-surface disposal container for storing used syringes and test strips. •Insulin in any form or dispenser must be clearly identified. •If you are concerned or uncomfortable about going through the walk-through metal detector with your insulin pump, notify the screener that you are wearing an insulin pump and would like a full-body pat-down and a visual inspection of your pump instead. •Advise the screener that the insulin pump cannot be removed because it is inserted with a catheter (needle) under the skin. •Insulin pumps and supplies must be accompanied by insulin. •Advise screeners if you are experiencing low blood sugar and are in need of medical assistance. •You have the option of requesting a visual inspection of your insulin and diabetes associated supplies. If you encounter problems with the screening process, ask to speak with the TSA security supervisor. You can report problems encountered while traveling by calling the TSA Consumer Response Center toll free at 1-866-289-9673. http://kids.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=2248E773-5004-D739- A58A6CE0F7727A12 Below are some checklists to help you prepare for your trip: What to pack for a: 22
  23. 23. One-Night Sleepover Pajamas Clean underwear Toothbrush and toothpaste Glucose tablets or other emergency sugar source Snack for low blood sugar Glucose meter and strips (check the supply before you go!) Insulin and syringes (again, check before you go!) A Glucagon emergency kit Emergency phone number easily accessible to your friends Your diabetes ID bracelet or card, with a note explaining what to do if you start acting strange What to add for a: Several-Day Camp Away Enough nonperishable snacks (granola bars, crackers) for each day Glucose meter and enough strips, insulin and syringes for each day A few bottles of water to help you stay hydrated Information about where to find medical care in the area What to add for a: Vacation of a Week or More A note from your doctor explaining how to contact him or her A copy of your prescriptions (including nondiabetes medications) Enough insulin and strips for the whole trip, plus extra for unforeseen situations Enough snacks to make up for a lost meal (fruit, crackers, string cheese, peanut butter and jelly, bread) What to add for a: Trip to a Foreign Country A prescription from your doctor in case of stomach upset or diarrhea A card that says "I have diabetes" in the language of your destination Enough phrases in the language to be able to order meals and get medical help Traveling? Here's how to pack your insulin: •Cushioned, such as between layers of clothing •In an insulated container (like a thermos) that has been cooled first •At a comfortable, cool temperature: not too hot or too cold •In bags that you will carry with you (do not check at the airline counter or stick in a hot trunk) •In more than one bag, in case you lose one. Put your insulin in a refrigerator as soon as you have arrived at your destination. It may be helpful to call ahead to arrange for refrigeration. 13. HEALTH INSURANCE/ GOVERNMENT WEBSITES 23
  24. 24. From the JDRF Life with Diabetes E-Newsletter (November 2005) Ask a medical professional - Insurance Answers & Questions By Kathy Spain, R.N., C.D.E., Mother of Will, age 10, diagnosed age 2 If you or a family member has recently been diagnosed with diabetes, chances are that meeting the cost of diabetes medications and supplies such as insulin, meters, and test strips, and finding good health coverage are significant concerns for you. You may wonder how your family can afford health coverage or how you would go about finding health insurance for your child with diabetes. Are large-ticket items such as pumps covered? What are the rights of a person with diabetes when it comes to medical insurance? There are many resources to help you answer your questions and to assist you in finding satisfactory coverage. If you have trouble obtaining or keeping your insurance, there are resources to help you explore options. Covering the Cost of Your Coverage If you are concerned that you cannot cover the costs of diabetes care, a publication titled “Financial Help for Diabetes Care” can help you learn about your options. Published by the NIH’s National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), this easy-to- read guide offers an overview, with contact information, about resources such as Medicare, Medicaid, and health insurance programs that cover diabetes-related medical expenses or low or no-cost health care for people with diabetes. You can view this publication on the NIDDK website at http://diabetes.niddk.nih.gov/dm/pubs/financialhelp or order copies from the National Diabetes Information Clearinghouse at 1-800-860-8747. Laws to Protect You An important insurance issue a person with diabetes may face is when a new insurer defines diabetes as a ‘pre-existing condition’ and excludes or limits diabetes-related care coverage. There are laws that protect people with diabetes who encounter pre-existing condition exclusions. For people with individual (as opposed to employer-sponsored or group) health insurance coverage, 46 states now have laws requiring health insurance coverage to include treatment for diabetes. (The exceptions are Alabama, Idaho, North Dakota and Ohio.) Laws governing health coverage vary from state to state, and you will want to start with the healthcare regulations and laws for your state. “A Consumer Guide for Getting and Keeping Health Insurance,” a resource published by the Institute for Health Care Research & Policy at Georgetown University is available for each of the 50 states. It can be accessed online at www.healthinsuranceinfo.net. For those insured through an employer-sponsored group health plan, protection from coverage being denied to a person with diabetes is offered by the Health Insurance Portability and Accountability Act of 1996 (HIPAA). The Act also helps workers who change or lose jobs to maintain their health insurance. (The HIPAA provision, however, only refers to group plans, such as employee health plans, and not individual health plans.) You can read detailed information about HIPAA on the US Department of Health and Human Services website at www.hhs.gov/ocr/hipaa. Insurance Programs for Children For children of families with limited financial resources, there are multiple programs available at the state level. Medicaid is a state-administered program and each state sets its own guidelines regarding eligibility and services. You can find information for your state at the Medicaid site for consumer information at http://www.cms.hhs.gov/medicaid/consumer.asp. For families who earn too much to qualify for Medicaid yet still find their resources too modest to cover their children’s diabetes care, the states operate a lowcost private insurance program called the State Children’s Health Insurance Program, or SCHIP. To find out more about this program covering eligible children until the age of 19, go to the Insure Kids Now! Web site offered by the 24
  25. 25. US Health & Human Services Department: www.insurekidsnow.gov, or call 877-KIDS-NOW. 14. MEDICAL SUPPLY & PRESCRIPTION ASSISTANCE From the JDRF Life with Diabetes E-Newsletter (November 2005) Ask a medical professional - Insurance Answers & Questions By Kathy Spain, R.N., C.D.E., Mother of Will, age 10, diagnosed age 2 Help with Supplies and Prescriptions Many drug companies offer pharmaceutical assistance programs to help offset the cost of supplies or prescription medications for people with diabetes who have little or no insurance. Enrollment in the programs requires a letter or application from your doctor. Listed below are some of the companies offering patient assistance: Aventis: 800-221-4025 Bayer Corporation: 800-998-9180 Bristol-Myers Squibb: 800-437-0994 Eli Lilly & Company: 800-545-6962 Novo Nordisk: 800-727-6500 In addition, the Partnership for Prescription Assistance offers a point of access to 275 assistance programs, including 150 programs through pharmaceutical companies that have joined together to provide savings to the uninsured. To see if you qualify for any of these programs, visit www.pparx.org or call 1-888-477-2669. The Children with Diabetes Foundation also offers diabetes supplies on a short-term basis for children with diabetes who are in emergency situations in which their families are unable to obtain basic supplies for diabetes care. You can find information on this program at: www.cwdfoundation.org/supplies.htm. Are Pumps and Pump Supplies Covered? Last, but certainly not least, pumps can present a financial burden for families, with the devices themselves costing on average $5,000 and basic supplies more than $100 a month. Insurance companies vary in their coverage of pumps, but most insurance plans cover costs associated with pump use. Pumps and supplies are usually included in the Durable Medical Equipment (DME) component of major medical plans. Some plans have a deductible or co-pay, so ask your health insurance carrier or check your benefits summary to find your level of coverage. The major pump manufacturing companies have insurance experts who can verify your benefits and out-of-pocket expenses when you consider the purchase of a pump. These manufacturers are aware that their products are costly, and they often are able to work with potential customers and/or their insurance companies to make them more affordable. Here is contact information for several leading pump manufacturers: Accu-Chek (Disetronic): www.disetronic-usa.com 800-280-7801 Animas: www.animas.com 877-767-7373 CozMore (Deltec Cozmo): www.cozmore.com 800-826-9703 Medtronic MiniMed: www.minimed.com 800-646-4633 As one further option, the Diabetes Trust Foundation (in partnership with Animas) provides financial assistance through its Insulin Pump Program for Children, as well as assistance for medications and testing supplies for individuals who qualify. For more information, visit their web 25
  26. 26. site at www.diabetestrustfoundation.org. 15. SCHOOL ISSUES http://jdrf.org/index.cfm?page_id=103439 Back to School Basics Back to school season is an exciting time of year… especially for parents! But before you can celebrate, chances are you have a lot of preparation and planning to get out of the way— especially if you are the parent of a child with type 1 diabetes. Wondering where to begin? In the links below (visit http://jdrf.org/index.cfm?page_id=103439 to access if you are using a hard copy of the resource manual), you will find topics and strategies that parents of kids with Type 1 diabetes across the country consider important in making the school year a success. While every child and school is unique, these guidelines should help you get started. In addition, JDRF has a school information packet, available upon request (email info@jdrf.org), with further information on managing diabetes in school. #1: Do your homework Before meeting with staff at your child’s school — ideally, before the beginning of the school year, although it’s never too late—you’ll need to get organized, and perhaps do some research on your child’s rights and Section 504 plans (see below for more information or click on the links). Look through the new publication from the National Diabetes Education Program (NDEP): Helping the Student with Diabetes Succeed: A Guide for School Personnel and download or order copies for your child’s school. You should not assume that the school will know how to provide the best care for your child, even if there are other students with diabetes in the school. As the parent, take the initiative to educate your child’s teachers, principal, school nurse, coaches, etc. about your child’s specific needs. Create and gather informational materials about your child and diabetes for school personnel. #2: Meet with school staff The most important thing to do is contact the school before classes start. Speak to the principal, any teacher the child will have, the gym, P.E. or coaching staff, school nurse, and cafeteria manager. This meeting is usually the best time to go over your proposed 504 plan or other health plan, and distribute informational materials about your child and type 1 diabetes, including warning signs for hypo- and hyperglycemia. The child may also be a part of this meeting. #3: Develop your strategy After you’ve spoken with the school, you should have a clearer idea of what you need to do to prepare your child for their day-to-day activities. Many parents prepare snack and supply “kits” for the classroom teachers, school nurse, coaches, etc. Nancy Gaynor supplies syringes, pump insertion sets, a glucose monitor, lancet needles, and snacks. “I provide baggies of high carb snacks already counted out. For example, 10 to 20 baggies with 15 Skittles per baggie, which equals a 1 carb snack,” she says. “And don't forget to include a glucagon kit.” Michelle Alswager, whose son Jesse, 6, has diabetes adds, “Make sure the classroom teacher also has a sheet with your child’s picture on it with instructions for a substitute teacher. A sub may not have a clue what diabetes is.” 26
  27. 27. Your child may also want to prepare a presentation for the class in order to help the other students understand what diabetes is. Stephanie Vasi, mom of Tyler, 11, says, “We have found that letting Tyler tell his story has been the best way for him to feel like he is in control. At the beginning of the year we set a time with the teacher to come into the classroom and do—in essence—a ‘show and tell.’ We take everything that Tyler uses on a daily basis. The children can ask Tyler questions and we have found that it lessens the resentment in the classroom when Tyler gets more bathroom breaks and more trips to the water fountain. It has also helped with the kids’ awareness, so if Tyler starts acting weird they can go get help.” Other children with diabetes may not be comfortable with such attention from classmates. Michelle Alswager explains, “My son wants diabetes to be like brushing your teeth…just one more thing that has to be done during the day, nothing more. He does not like attention drawn to his pump and he appreciates the respect the kids give him in not talking about it.” Develop a communication plan with the school, particularly for emergencies, but also for daily issues and concerns. Make sure that all those responsible for your child know who to call, and when, and that they have the appropriate contact numbers. #4: Stay involved An ongoing, open relationship between you, your child, and the school is vital to your child’s well being throughout the year. Do everything you can to create the best possible environment. More Back to School Advice Back to school time can be very stressful, particularly for families with children with diabetes. Will your child be properly cared for? Who is prepared to respond in emergencies? Will your child be able (and willing) to check blood sugar levels frequently enough? How will students, teachers, and coaches view your child? The list of questions goes on and on. The best thing to do to alleviate fears and ensure a successful school year is to get educated about diabetes in school, and form a plan. No matter how alone you may feel in your plight, you're not—parents across the country, if not in your very own school or district, are dealing with the same issues you are, and can be a vital resource. In the links below, you'll find wisdom and advice from some experts—parents and kids who have been dealing with diabetes in school for years. If you still have questions after reading their suggestions, contact the Mid-Ohio Chapter Family Connections Committee (via 614-464-2873 or midohio@jdrf.org) or our Online Diabetes Support Team with your specific concerns. Make it a Team Effort: Building good relationships with your child's school personnel right from the start, if possible, is important in making sure your child is well cared for. If you begin with a positive, team-oriented approach, teachers and other school personnel will be more willing to listen to your needs and work with you as the year goes on. Educate the Educators: While your child's teachers probably know a great deal, they may not necessarily know anything about diabetes. It's important to provide teachers and staff with at least the basics of the disease, along with information about your child's regimen and needs. Supplies, Supplies, Supplies: Many parents suggested providing snacks and extra supplies for every classroom, as well as the nurse's office, to ensure that your child is safe and prepared, especially for lows, while at school. Know Your Rights: JDRF believes that all children with diabetes should be allowed to manage 27
  28. 28. their diabetes to the maximum extent possible in school—including being able to test blood sugars and treat highs and lows wherever they are in the school. However, different schools have different rules regarding diabetes care, so it is important that parents be aware of their rights. A helpful resource can be found through http://www.diabetes.org/advocacy-and- legalresources/attorneymaterials/legalrights.jsp. Taking Academic Tests: RN and diabetes educator Kathy Spain teaches the teachers at her son's school how high and low blood sugars can affect cognitive function. "This is especially important for the older kids," she says. "I encourage having kids check their blood sugars an hour or so before a big test, since stress (i.e., test anxiety) can affect blood sugars." Keep Learning: In addition to these great tips and advice from our experts, JDRF has a special school packet—with brochures, a Warning Signs card, a Low Blood Sugar Emergencies card for schools, a book list, and more. This kit is available upon request, by sending your name and mailing address to info@jdrf.org. Your Child’s Rights Relationships between schools, teachers, and the parents of children with Type 1 diabetes are often as unique as the individuals themselves. While there are federal and, in some cases, state laws protecting the rights of children with diabetes in school, such laws only provide general guidelines and are enforced differently in different areas. At the beginning of each school year, you will need to communicate with your child’s principal, teacher, nurse, and any other adults who will share responsibility for your child during the day, to come up with a plan to make sure your child is well cared for throughout the year. 504 plans By far the most important legal document you can have to protect your child’s rights is a 504 plan. 504 plans are relatively easy to create (see examples by visiting http://www.childrenwithdiabetes.com/504/ or contacting the chapter office if you do not have internet access), and are an invaluable tool for allowing your child the same access to educational opportunities as their peers. 504 plans can be particularly useful in allowing special accommodations for your child during standardized testing. 504 plans may be as detailed as you like, and should clearly specify roles and instructions for the school personnel, as well as for the parent/guardian, and the child. Even with a 504 plan, however, problems may arise between you and the school. Should you have a conflict, there are a number of things you can do to improve the situation. But first, determine where the problem lies. Unfortunately, lack of awareness about diabetes is still a big problem in some areas. Schools may not be well informed about Section 504, or what’s covered under it. Be sure to give them all the information they need to understand your child’s special needs and rights. Take the initiative, and be careful not to assume the school is being uncooperative when the issue may be just a misunderstanding. Consider bringing a Certified Diabetes Educator (CDE) or other diabetes expert to the school, if possible, to train the staff and help them understand your child’s needs. JDRF volunteer and mom Julie Costakis strongly advocates a proactive approach after her own experience with son Grant’s kindergarten and first grade teachers. “It is amazing what some schools, nurses, and teachers will do to help their students with diabetes,” she says. Julie approached Grant’s kindergarten teacher last year at the beginning of the summer to explain her son’s case. The teacher agreed to meet with Grant privately during the summer in the Costakis’s home to learn about his diabetes care regimen and how his high and low blood 28
  29. 29. sugars affect his behavior. The first grade teacher did the same this year. Julie is very grateful for such support and says, “We shower these teachers with thanks for giving their time and effort.” Handling Conflicts On the other hand, there are a number of documented cases where the school will not cooperate. One such case involved William Cross, whose daughter Katelyn has type 1 diabetes. In 1996, Katelyn’s school refused to agree with Katelyn’s 504 plan request to check her blood sugars and have snacks in the classroom, despite the fact that the plan was proposed by her doctor at Yale University School of Medicine. As a result, Katelyn had to go to the nurse’s office and miss valuable class time every time she needed to check her blood sugar. After repeated attempts at negotiation with the school for a better arrangement, William Cross finally filed a lawsuit. In 1999, an acceptable agreement was reached, and today Katelyn (now at a different school) has no difficulties with her diabetes plan at school. Since most parents don’t have the resources or desire to engage schools in long legal battles, JDRF encourages using legal action only as a last resort. At the same time, however, it is important that you don’t allow yourself to be pressured into an agreement that compromises your child’s safety and well-being in any way. In other words, don’t be afraid to “make waves” if necessary. The way a school “has always done it” may not be the best way for your child. Whenever possible, document things in writing—this offers protection for both you and the school. You may also file a complaint with the U.S. Department of Education’s Office for Civil Rights in case of disputes. Another option is to pursue state legislation to protect your child. A number of JDRF volunteers, who are also parents of children with diabetes, have had success with this approach, and JDRF fully supports such efforts on the local level. Currently, six states have their own laws addressing diabetes management in schools: Montana, North Carolina, Tennessee, Virginia, Washington State, and Wisconsin. The Family Connections Outreach Committee can also be a resource for coming up with a strategy for dealing with a school. Perhaps there are other parents in your area who share your frustrations, or who have overcome similar ones, and can help you improve your situation. Please contact the office at 614-464-2873 or midohio@jdrf.org for more information. Remember that your goal is to establish a good long-term relationship with your child’s school, so try to be positive and communicate frequently with teachers, nurses, or other relevant staff. Laws Protecting Children with Diabetes The educational rights and interests of children with diabetes are protected by several federal laws, and sometimes state laws as well: • Section 504 of the Rehabilitation Act of 1973 states that no "otherwise qualified handicapped individual" can be excluded from programs or activities receiving federal financial assistance simply because of his or her disability. The handicap is defined as an impairment that substantially limits one or more of such persons major life activities. "Programs or activities" include all kinds of schools as well as social services like day care centers. The Act gives parents of children with diabetes the right to develop, with the school's agreement, a plan to accommodate any special needs as a result of the condition. 29
  30. 30. • The Americans with Disabilities Act (ADA), enacted in 1990, sets forth laws that essentially mirror many of the requirements of the Rehabilitation Act of 1973. • The Individuals with Disabilities Education Act (IDEA), a federal law passed in 1975, mandates that all children "receive a free, appropriate public education regardless of the level or severity of their disability." IDEA also provides funds to assist states in the education of students with disabilities and requires that states make sure that these students receive an individualized education program (IEP)—a written statement of the educational program designed to meet a child’s unique needs. A fundamental principle of the IEP is the right of parents to participate in the educational decision-making process. You should be involved in the development of your child's IEP, and the school is required to accommodate you regarding meeting times when you may discuss and formulate the program. In developing an IEP, you should work with your child's school toward the common objective of fulfilling the student’s educational goals, related services needed and the placement decision. Do your best to educate school personnel about how diabetes affects your child and the steps he or she must take to properly manage it. For a child with diabetes, particular needs might include (1) permission to check blood glucose levels at any point during the day; (2) freedom to immediately treat high or low glucose levels; (3) advance permission for extra trips to the bathroom or water fountain; and (4) ensuring that staff members are present who are trained in testing blood glucose levels, recognizing symptoms of high or low blood glucose and giving immediate treatment for the conditions. If you are dissatisfied with any aspect of the IEP and are unable to resolve the problem, you can refuse to sign the IEP and, if necessary, pursue due process options guaranteed by the law. Understanding 504 Plans If you have a child with diabetes attending elementary through high school, JDRF highly recommends that you set up a Section 504 plan. A 504 plan (named for Section 504 of the Rehabilitation Act of 1973) is an agreement between the parent and the school, which gives guidelines for your child's diabetes management in school. 504 plans are a legal right only in schools that receive federal funding, however, students attending schools that do not take federal monies are covered under the Americans with Disabilities Act or the Individuals with Disabilities Education Act (IDEA), and can set up similar plans. 504 (and similar) plans can and should be tailored to the individual child's age, abilities, and needs, making all aspects of your child's life in school easier to handle. How do I set up a 504 plan? Parents should first identify their child to the school as qualifying for protection under the Americans with Disabilities Act and Section 504, if the school has not done so already. That identification requires the school to give special consideration to accommodate the student's needs (diabetes is legally considered to be a disability). What if my child's school is already cooperating without a 504? Even if the school is cooperative without a 504, it is advisable to put one in place, to be prepared should problems arise in the future. Is there anything I need to do besides set up a 504 plan? Yes. While 504 plans are very helpful, they are not foolproof. As the relationships among you, your child, and school personnel develop, you will get a sense of how much you need to be involved in your child's diabetes care at school. 30
  31. 31. What happens when my child goes off to college? It is important for parents to be aware that things change a bit at the college level. At the elementary and secondary levels, the school district is responsible for identifying, evaluating, and providing the appropriate services. At the postsecondary level, on the other hand, colleges have no responsibility to identify disabilities. It is the student's responsibility to make his or her disability known and to request special accommodations. Once the student or parents have done that, the college should be willing to fulfill the requirements of Section 504. As parents, you may want to inquire about special accommodations while exploring colleges with your teen in order to help guide their decision based on their specific needs. Once your teen is accepted to the college and you begin the enrollment process, housing applications, etc., you can work with a disabilities coordinator to complete the necessary paperwork. If your teen is living on campus, put in writing in your accommodation plan the need for nutritional data from food services. Regarding confidentiality: Most colleges will request that parents indicate on a special signed form who needs to know about the student's disability. In most cases, the Dean of Students, the accommodations coordinator, food services, the RA, and professors need to know. That form does not give them consent to discuss your student's health issues with other parents, students, or outside personnel who have no need to know why certain accommodations are being made. JDRF Position Statement Regarding Diabetes Management in Schools (October 15, 2001) The Juvenile Diabetes Research Foundation International (JDRF) believes that it is essential that children with diabetes be able to monitor their blood glucose levels, eat food and administer insulin when necessary, in order to manage — to the maximum extent possible — their diabetes. Failure to do so could lead to life- threatening insulin shock and coma caused by low glucose levels and long-term complications such as kidney failure, blindness, amputation, heart disease and stroke exacerbated by high blood glucose levels. Children with diabetes need to be able to test their blood glucose at school and apply whatever means necessary to bring these levels to near normal quickly and with as few encumbrances as possible. For some students this can be done independently; other students — who are younger or who have less experience with the disease — need assistance from trained school personnel. All students with diabetes need assistance from trained school personnel in the case of medical emergencies. These trained personnel need not be medical professionals. Accordingly, JDRF fully supports efforts to enact state legislation to ensure that students with diabetes are medically safe at school and have the same access to educational opportunities as do other children. This includes making sure that there are trained adults available to assist students with diabetes as needed during school hours, extracurricular activities and field trips; that students have access to blood glucose testing; that medications, including insulin and glucagon, are available at school; and that students who are able to do so are allowed to test their blood glucose levels in the classroom or anywhere else that the student happens to be, and to administer corrective measures immediately. 16. ATHLETICS The issue of diabetes and athletics is an important one, as children with diabetes are 31
  32. 32. encouraged to pursue the same activities as other kids in spite of their diabetes. JDRF has focused on this issue a number of times in Countdown for Kids Magazine. The profile of a number of athletes with type 1 diabetes can be found on the JDRF Kids Website: http://kids.jdrf.org/athletes. These profiles include tips about training and the special needs of athletes with diabetes. The JDRF Kids Website also contains a section on exercise: http://kids.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=268E68B3-5004-D739- A54A1D41F61C5F61 For information to give to coaches or gym instructors, the packet that is given to teachers and school staff is appropriate. You can also receive information form the Diabetes Exercise and Sports Association: http://www.diabetes-exercise.org/. You might also consult The Diabetes Sports & Exercise Book, by Claudia Graham, June Bierman and Barbara Toohey (see publications below). 17. PUBLICATIONS http://jdrf.org/index.cfm?page_id=100688 Mid-Ohio Chapter E-Newsletter http://www.jdrf.org/index.cfm?page_id=101294 The Mid-Ohio Chapter provides a monthly e-newsletter with local information, family highlights, research updates, legislative information and more. To be added to the monthly E-Newsletter mailing list or to make suggestions for future issues, please email midohio@jdrf.org. Discoveries http://www.newsletternet.com/newsletter.asp?c=VFJOVFMXRG A quarterly 4 page publication that includes local and international JDRF information. To be added to the mailing list, please contact Jean Jones at jjones@jdrf.org. Life With Diabetes E-Newsletter https://www.jdrf.org/index.cfm?page_id=103443 JDRF's Life with Diabetes e-mail newsletter is published eight times a year to provide information and support for families with a recent diagnosis of type 1 diabetes. The newsletter is available in HTML format, with links to additional information and a printer-friendly Adobe Acrobat version. Subscribe by sending an e-mail to info@jdrf.org. Please include "Subscribe Life with Diabetes e-mail newsletter" in the subject line. Countdown Magazine http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=29462568-6F00-42FB- B2168F60D7AD511F In-depth analysis of cutting-edge diabetes research and treatments, profiles and more. Countdown for Kids http://kids.jdrf.org/index.cfm?fuseaction=home.viewpage&page_id=8EFB2293-5004-D739- A589D8D98BCA0BBF The first magazine especially for kids with diabetes; information, fun, role models, pen pals. Research E-Newsletter http://www.jdrf.org/index.cfm? fuseaction=home.viewPage&page_id=8D3A7AED-2A5E-7B6E-1373836D63ABDBA6 32
  33. 33. Published monthly to provide all those interested with the latest information about research on type 1 diabetes and its complications. Books: Even Little Kids Get Diabetes Ages: 2–6 By Connie White Pirner Illustrated by Nadine Bernard Westcott Rufus Comes Home Rufus, The Bear with Diabetes Ages: 3-10 By Kim Gosselin The Best Year of My Life Book 1: Getting Diabetes Ages 4–10 By Jed Block Matthew Takes His Shot Ages: 4–10 By Owen Coleman Illustrated by Judy Bullock Taking Diabetes to School Ages: 6–11 By Kim Gosselin Everyone Likes to Eat: How Children Can Eat Most of the Foods They Enjoy and Still Take Care of Their Diabetes Ages: 6–14 By Hugo J. Holleroth, Ed.D. and Debra Kaplan, R.D., M.S. with Anna Maria Bertorelli, M.B.A., R.D., C.D.E. It’s Time to Learn about Diabetes Ages: 7–11 By Jean Betschart, M.S.N., R.N., C.D.E. Sugar Was My Best Food: Diabetes and Me Ages: 8–13 By Carol Antoinette Peacock, Adair Gregory and Kyle Carney Gregory; Illustrated by Mary Jones Diabetes at 14: Choosing Tighter Control for an Active Life Ages: 12–17 By Bill Melluish Illustrated by Paul Bourgeois In Control: A Guide for Teens with Diabetes Ages: 12–18 By Jean Betschart, M.S.N., R.N., C.D.E. and Susan Thom, R.D., L.D., C.D.E. 33
  34. 34. Sarah and Puffle: A Story for Children About Diabetes By Linnea Mulder Illustrated by Joanne H. Friar The Diabetic Athlete By Sheri Colberg, Ph.D. Parenting a Child with Diabetes, Second Edition By Gloria Loring Diabetic Low-Fat & No-Fat Meals in Minutes! By M.J. Smith, R.D. Real Life Parenting of Kids with Diabetes By Virginia Nasmyth Loy Living with Juvenile Diabetes: A Practical Guide for Parents and Caregivers By Victoria Peurrung Guide to Raising a Child with Diabetes, Second Edition By Linda M. Siminerio, R.N., Ph.D., C.D.E. and Jean Betschart, M.N., M.S.N., C.P.N.P., C.D.E. The Ten Keys to Helping Your Child Grow Up with Diabetes, Second Edition By Tim Wysocki, Ph.D. Growing Up With Diabetes By Alicia McAuliffe Diabetes Care for Babies, Toddlers, and Preschoolers By Jean Betschart, C.R.N.P., C.D.E. Everyday Law for Individuals with Disabilities By Ruth Colker and Adam Milani 18. RESEARCH UPDATE Since diabetes research is such a rapidly changing area, please refer to: http://www.jdrf.org/index.cfm?page_id=100686. A sampling of articles recently posted follows: Islet Transplants Found to Improve Cardiovascular Function Type 1 diabetic patients with end-stage renal disease receiving a kidney transplant showed improved cardiovascular function when they received a subsequent islet transplant, Italian researchers found. JUL 20 05 Researchers Prompt Human Adult Liver Cells to Produce Insulin Results of a recent study by JDRF-funded researchers in Israel offer patients new hope of regaining control of blood sugar levels by having their liver cells reprogrammed to secrete insulin. JUN 8 05 34
  35. 35. Drug Preserves Beta Cell Function in Type 1 Diabetes Patients In a major finding, a JDRF-funded human clinical trial in Europe has shown that treating newly diagnosed type 1 diabetes patients with a drug called an anti-CD3 antibody can preserve residual beta cell function for up to 18 months. JUNE 22 05 Tight Glucose Control Reduces Heart and Kidney Disease Recent studies have found further evidence that intensive insulin therapy, or tight glucose control, can significantly lower the risk of two life-threatening diabetes complications — heart disease and kidney disease. JUL 13 05 35
  36. 36. 19. MID-OHIO CHAPTER INFORMATION (see http://www.jdrf.org/midohio ) 134 A-2 Northwoods Blvd. Columbus, OH 43235 Phone: 614-464-2873 Fax: 614-464-2877 http://www.jdrf.org/midohio GEOGRAPHIC DISTRICT The Mid-Ohio Chapter serves 27 Ohio counties around Columbus. They are: Athens, Coshocton, Crawford, Delaware, Fairfield, Fayette, Franklin, Guernsey, Hardin, Hocking, Knox, Licking, Madison, Marion, Meigs, Morgan, Morrow, Muskingum, Noble, Perry, Pickaway, Pike, Richland, Ross, Union, Vinton and Washington. CHAPTER ORGANIZATION The Mid-Ohio Chapter is staffed by an Executive Director, Staci Perkins (sperkins@jdrf.org), Special Events Coordinators, Pat Alcorn (palcorn@jdrf.org and Melissa Salamony-Fulling (mfulling@jdrf.org) and an Administrative Assistant, Jean Jones (jjones@jdrf.org). Support for activities comes from volunteers dedicated to finding a cure for diabetes. Additional volunteers are recruited as needed for special events. A Board of Directors elected by the Mid-Ohio JDRF membership makes policy and oversees strategic development, financial matters and fundraising activities for our chapter. Besides the outreach efforts provided by the Family Connections Outreach Committee, the Mid- Ohio Chapter focuses on the following fundraising events and activities: Walk to Cure Diabetes The Mid-Ohio Chapter took its first fundraising steps at a Walk in September 1994. Contributions made through our first Walk totaled over $25,000. Thanks to the increasing generosity and commitment of corporate sponsors, family teams and volunteers, gifts made through Mid-Ohio's fall 2005 Walk raised $720,000. Nationally, JDRF received more than $81 million in contributions through Walks last fiscal year. Fund a Cure Gala Our annual Fund a Cure Gala began in 1998 and is held every spring. The Gala is a wonderful evening of silent auctions, live auctions, entertainment and excellent cuisine. Through corporate table sponsorships, individual ticket sales and generous bidding on must-have auction items, Gala revenues have grown from $85,000 in 1999 to almost $500,000 in 2006. Next year’s Fund a Cure Gala is scheduled for Saturday, April 2`, 2007. Other Fundraising Activities Major Gifts, Planned Giving (e.g. wills, estate planning), Combined Appeal Campaigns (employees giving through Community Health Charities, United Way, etc.), Memorials and Tributes, Third Party Fundraisers (gifts received from non-JDRF hosted events), Miscellaneous (e.g. contributions from individuals and organizations, grants, sale of merchandise, etc.). 36
  37. 37. Calender of Events Below is a listing of events occurring throughout the year. Please call 614-464-2873 or email midohio@jdrf.org for more information on any of these events. A complete calendar can be found on the Mid-Ohio Chapter website, www.jdrf.org/midohio. POLO (Parents of Little Ones) – Meets bi-monthly. Please note this is not designed just for parents of young children. Mom’s Night Out – Meets monthly and various locations throughout Columbus. Fund a Cure Gala – April 21, 2007 at Hyatt Regency, downtown Columbus. Please contact the JDRF office at 614- 464-2873 for more information regarding sponsoring, attending and volunteering for the event. Walk to Cure Diabetes – October 1, 2006 at The Ohio State University. Please contact the JDRF office at (614) 464-2873 regarding this event including sponsorship opportunities and volunteer participation. Ride to Cure Diabetes – various dates and locations throughout the year For more information about participating or sponsoring a rider, please contact Pat Alcorn at palcorn@jdrf.org Holiday Parties and other Youth Events co-hosted by CODA and JDRF. Diabetes Awareness Month (November) Volunteer Opportunities: At the Mid-Ohio Chapter, we have a host of volunteer opportunities available for many ages, abilities and time allowances. Below are several upcoming volunteer needs. Please contact us at 614-464-2873 or by email at midohio@jdrf.org for more information and to discuss your specific volunteer interests. . • Walk to Cure Diabetes, October 1, 2006 - We are in need of volunteers to serve in both long (planning committee and family and corporate committees; office help prior to and after the Walk) and short-term capacities (day of volunteer needs including registration volunteers, set-up, food and beverage distribution, etc.). • 9th Annual Fund a Cure Gala, April 21, 2007 – Please contact the office for more information about volunteering in advance of the event (committee involvement and office help) and the night of (registration, auction, set-up, clean-up, etc.). • Youth Ambassador - JDRF Youth Ambassadors are children with juvenile diabetes who are matched with Corporate Walk Teams, Ride to Cure Diabetes Riders, etc. to put a face on juvenile diabetes that is close to home and help them understand the everyday challenges of living with diabetes. Their stories of living with diabetes will move anyone to fundraise, complete a 100 mile bike ride, etc. A Youth Ambassador may be asked to participate in an internal kickoff and other Walk related events, write an article for a company newsletter about juvenile diabetes, display their picture on internal recruitment materials, serve as a spokesperson, cheer on a Ride participant through letters and email, send a Rider decorated equipment to remember the child during the Ride. etc. • Government Relations - JDRF partners with the federal government to implement research funding increases, policy changes, and research freedom to find a cure for juvenile diabetes and its complications. By focusing efforts on a core plan of legislative 37

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